Question:

: : I just recieved a nebuliser to help me with this bronchitis I have.  This : is my third case since fall.  It is like I get over one case of it and : then walk right into another one.  This time the flu turned into : bronchitis.  Then my lungs dried out.  I was coughing up hard mucus.  This : hurt real bad. [snip] : : shown.  Also, for the thick mucous, drink plenty of water.  This is your : best friend.  The water keeps the secretions hydrated so you can bring them : up easier and decrease your chances of continuous infections.  Thick : mucous can lead to mucous plugging, leading to worse problems than : bronchitis.  Ask the doctor about an expectorant to help along with the : water.  If you are having continous bouts of infection, chances are it is : being set off from an allergic reaction to something.  Have you come : in contact with something new?  Might want to go see an allergist, or : if you have a HMO dr., insist that he refer you to one.  Find out now to : get a better handle on this. :          Good Luck,   Donna Another potential hint for the thick mucus:  use a humidifier of some sort, particularly at night – that might help keep things moist.  YMMV on this, of course – I found that humid air is harder to breathe, even when I’m sick, though for some reason a hot shower helps without bothering me. And make sure to clean/disinfect the humidifier regularly to prevent growth of mold/bacteria. …Marie and ‘Fang’ (Joey) 8/13/94… …He’s learned to climb – the end of Life As We Know It!  Aiiigggghhhhh!

Response:

I just recieved a nebuliser to help me with this bronchitis I have.  This is my third case since fall.  It is like I get over one case of it and then walk right into another one.  This time the flu turned into bronchitis.  Then my lungs dried out.  I was coughing up hard mucus.  This hurt real bad. I want to ad that I love my neb.  It is a pain in the butt to clean it, but I have been consistent.  I feel much better after using it(much better than the albuterol cannister).  I was on it every 4 hours at first.  Now I am on it just 3 times a day or as needed.  For awhile if felt like I was tied to the nebuliser!  I added up the time spent using and cleaning it (15 minutes every use).  I spent close to 1-2 hours a day getting to know that machine.

First of all.  There is no need to clean the nebulizer chamber after each treatment.  Every two days is sufficient, as studies have shown.  Also, for the thick mucous, drink plenty of water.  This is your best friend.  The water keeps the secretions hydrated so you can bring them up easier and decrease your chances of continuous infections.  Thick mucous can lead to mucous plugging, leading to worse problems than bronchitis.  Ask the doctor about an expectorant to help along with the water.  If you are having continous bouts of infection, chances are it is being set off from an allergic reaction to something.  Have you come in contact with something new?  Might want to go see an allergist, or if you have a HMO dr., insist that he refer you to one.  Find out now to get a better handle on this.          Good Luck,   Donna

Response:

I just recieved a nebuliser to help me with this bronchitis I have.  This is my third case since fall.  It is like I get over one case of it and then walk right into another one.  This time the flu turned into bronchitis.  Then my lungs dried out.  I was coughing up hard mucus.  This hurt real bad. This really stinks(except I lost a pant size on the flu diet).  I am trying to keep a good mental outlook but it is hard as I watch the dollars fly out of my pocket!  Ha. I want to ad that I love my neb.  It is a pain in the butt to clean it, but I have been consistent.  I feel much better after using it(much better than the albuterol cannister).  I was on it every 4 hours at first.  Now I am on it just 3 times a day or as needed.  For awhile if felt like I was tied to the nebuliser!  I added up the time spent using and cleaning it (15 minutes every use).  I spent close to 1-2 hours a day getting to know that machine.   I have been on Biaxin for almost 7 days now and I am still coughing up GAK.  Anyone have any suggestions for me?  Have any of you had bronchitis this bad?  I am just so thankful it wasn’t a Pneumonia diagnosis.  I have heard about that hell. Thanks in advance for any support or input!   Suz in Arizona(gagging and huffing, oh well people leave me alone when I shop at least! Ha.)

Response:

After a bad cold I think I might have bronchitis, which feels different than my usual asthma.  Can anyone tell me what bronchitis feels like? Do you have to have a fever?  Do antibiotics help?  Is there a test or something?  There is this "spot" I feel where I wheeze.  Cough is no longer productive. Any experience out there?  It’s still here 3 wks leter…

Antibiotics help if the bronchitis is caused by bacteria but not for virus. If you are still wheezing or your Peak Flow is below 80% of Personal Best, you may not be taking enough long-acting preventor meds like inhaled steroids. Here’s my links on bronchitis to research: http://www.vh.org/Beyond/PeerReviews/31Bronchitis.html Virtual Hospital,    Bronchitis http://www.familyinternet.com/peds/top/000124.htm  Acute Bronchitis http://www.njc.org/MFhtml/URI_MF.html  URI (Colds) &  Acute Bronchitis http://www.njc.org/PRhtml/!k_bronc.htm  Chronic Bronchitis http://www.charm.net/~epi1/mycoplas.htm  Mycoplasma http://www.sk.sympatico.ca/Contents/Health/REV_HTML/R7738.html Bronchitis    Resources http://www.springnet.com/ce/j701as1.htm Table. Causative Organisms     of Acute Bronchitis http://www.njc.org/MFhtml/RDE_MF.html Resources for COPD  (Chronic Bronchitis, Emphysema)

Question:

Thanks to all who responded on my Tilade problem-especially Bill Ellis Fleemore.  I have my medication on the way-thank goodness.  Seems like my mail-order pharmacy had the medicine discontinued when all that happened was another company had bought out the originial manufacturers.  After calling the new manufacturer, they called the pharmacy and sent the Tilade to them.  I had been trying to reduce my Tilade without much success and was really wondering just how I was going to do without any.  My doctor had tried to take me off of it 3 yrs ago to no avail so both he and I were quite concerned that my asthma was going to get out of control again.  Now I don’t have to worry about that!- Pam in TN

Response:

Judy- I can certainly say that I did not expect to here my mail order pharmacy to say that Tilade is no longer available either.  With the help of Ellis in this group, I was able to talk to the manufacturer today and found out that they have temporary stopped the old formula and are waiting for a new one that has already passed trials in Europe.  So it looks like that the new version will be available in the US but they could not give me a definite date.  So I am still looking for some of the old stuff and they are also helping me out there too. I have one canister left so I hope that I can get something worked out within 17 days before this one runs out.- Pam in TN

Response:

I found out this week that one of my mainstay medications is no longer available in the US thanks to that darn little law that was passed earlier regarding the propellants used in the inhalers.  Well, my Tilade has bit the dust-along with my treatment plan that has had me in control since 1993!  My plan was 2 puffs of Tilade 3 times a day and 2 sprays twice a day of FLovent 220.  My pulmonary physician has told me that we will have to try to find another plan that will work since there is no substitution on the market for the Tilade. Pam in TN

– The drug manufacturers have enough CFC’s to last for several years.   There should not be a problem getting Tilade if you check with a few pharmacies.  We have plenty of it in New York. Wellington S. Tichenor, M. D. 642 Park Avenue New York, New York 212 517 6611 Visit our website at: http://www.sinuses.com Sinusitis: A Treatment Plan that Works for Asthma and Allergy too Any information read here should not be viewed as medical advice, as individual medical problems must be addressed by your physician. If you are looking for a physician and cannot get to New York City, please see the FAQ page.

Response:

I have to admit that I need to grumble a little bit and felt like here was the place to do it.  I found out this week that one of my mainstay medications is no longer available in the US thanks to that darn little law that was passed earlier regarding the propellants used in the inhalers.  Well, my Tilade has bit the dust-along with my treatment plan that has had me in control since 1993!  My plan was 2 puffs of Tilade 3 times a day and 2 sprays twice a day of FLovent 220.  My pulmonary physician has told me that we will have to try to find another plan that will work since there is no substitution on the market for the Tilade. Until now, I never realized that my health would be at the hands of someone that knows absolutely nothing about me or my disease-just the "bottom" line boardroom tactics.  It is frustrating enough to have to deal with the uncertainties of the disease but I was always comfortable knowing that my medications were keeping it under control.  Now I have to go back to sqare one again- Pam in TN

Response:

Dosn’t Tilade and Intal have the same propellant ? So if one has been chucked shouldn’t the other one follow suit ? But I was under the understanding this was not going to happen until suitable replacements were available.

Response:

I found out this week that one of my mainstay medications is no longer available in the US thanks to that darn little law that was passed earlier regarding the propellants used in the inhalers.  Well, my Tilade has bit the dust-along with my treatment plan that has had me in control since 1993!  My plan was 2 puffs of Tilade 3 times a day and 2 sprays twice a day of FLovent 220.  My pulmonary physician has told me that we will have to try to find another plan that will work since there is no substitution on the market for the Tilade.

 Pam in TN I forwarded your post to Francis Adams, MD, author of the comprehensive asthma book ‘The Asthma Sourcebook’. Here is his response. "Dear Ellis: Tilade definitely has not been discontinued. I think you must be right that they are bringing out a new formulation, probably with HFA instead of CFC. That means that they won’t supply any more of the current formula and will hopefully ship the new one soon. In terms of finding the original formula, I think it depends on the individual pharmacy and what they have in stock.  I will try to find out more on Monday from the manufacturer. Good luck, Francis V. Adams, M.D." Here are some references to the manufacturer. Reference: http://www.rpr.rpna.com/  Rhone-Poulenc Rorer (mfgr of Tilade) http://www.prnewswire.com/cnoc/exec/menu?764050/ Company News Business Name                         Address                                                      Phone  Rhone-Poulenc Rorer  Incorporated                         500 Arcola Rd, Collegeville, PA                         19426-3930                                                      610-454-8000 Ellis

Response:

Question:

$240 for a "trial" package?  You guys gotta be kidding!  Is anybody who subscribes to this group stupid enough to send these assholes money? – Hide quoted text — Show quoted text – Hello, We are writing to announce that Johnny Powers has joined as a partner with William Lee, and we now have both the 20mg Lilly Icos original Cialis and the 20mg Chinese manufactured generic Cialis available. business. Lee did not save his emails offline, so he has no record of your order. However, as his partner, Johnny Powers will honor every commitment that William Lee made.  If you have an order of the generic 20mg Chinese Cialis pending, just write to us with the banking and the order details, and we will get the package mailed off to you. So, this is what we have now Real (Lilly Icos) 20mg Cialis Tablets Available for Sale in Quantity 1.)Small trial sample   $15 USD per pill.  16 pills for $15 each, that would be $240  for a 16 pill personal use supply.  (16 pills = 4 blister packs) 2.)Personal use supply   $10 USD per pill.  60 pills for $10 each, that would be $600  for a nice 60 pill personal use supply.  (60 pills = 15 blister packs) 3.)Large Lot sales    $5 USD per pill.  We are willing to really deeply discount to sell in large lots.  We are willing to sell 1,000 pill lots for $5 each, that would be $5,000 for a 1,000 pills.  (1,000 pills = 250 blister packs) Now, We Also Have Generic Chinese Cialis 20mg Pills Available at the following prices: 100 pills for $99-USD  (0.99 per pill) 200 pills for $180-USD  (0.90  per pill) 300 pills for $245-USD  (0.817 per pill) These prices for both the Generic and the Lilly Pharmaceuticals Cialis include shipping to any destination via parcel post.  We have had no problems with any countrys customs.  We place industry standard labeling and customs declarations on the package, and we have our doctors letter inside the package. Please write for ordering instructions Security Issues, we will not allow ourselves to be run out the business, the way that my friend William Lee was treated by Yahoo. Whenever we correspond, I will always send a bcc copy to my Hotmail Save that Hotmail address.  Email to us at Hotmail should hushmail ever fail. Should hushmail roll-over for the net nannies and shut down this account, we will still have your order information at hotmail, and saved offline on our laptops, and we will not loose or otherwise fail to honor any commitments that we make

Response:

There’s a sucker born every minute..

– Hide quoted text — Show quoted text – $240 for a "trial" package?  You guys gotta be kidding!  Is anybody who subscribes to this group stupid enough to send these assholes money? Hello, We are writing to announce that Johnny Powers has joined as a partner with William Lee, and we now have both the 20mg Lilly Icos original Cialis and the 20mg Chinese manufactured generic Cialis available. business. Lee did not save his emails offline, so he has no record of your order. However, as his partner, Johnny Powers will honor every commitment that William Lee made.  If you have an order of the generic 20mg Chinese Cialis pending, just write to us with the banking and the order details, and we will get the package mailed off to you. So, this is what we have now Real (Lilly Icos) 20mg Cialis Tablets Available for Sale in Quantity 1.)Small trial sample   $15 USD per pill.  16 pills for $15 each, that would be $240  for a 16 pill personal use supply.  (16 pills = 4 blister packs) 2.)Personal use supply   $10 USD per pill.  60 pills for $10 each, that would be $600  for a nice 60 pill personal use supply.  (60 pills = 15 blister packs) 3.)Large Lot sales    $5 USD per pill.  We are willing to really deeply discount to sell in large lots.  We are willing to sell 1,000 pill lots for $5 each, that would be $5,000 for a 1,000 pills.  (1,000 pills = 250 blister packs) Now, We Also Have Generic Chinese Cialis 20mg Pills Available at the following prices: 100 pills for $99-USD  (0.99 per pill) 200 pills for $180-USD  (0.90  per pill) 300 pills for $245-USD  (0.817 per pill) These prices for both the Generic and the Lilly Pharmaceuticals Cialis include shipping to any destination via parcel post.  We have had no problems with any countrys customs.  We place industry standard labeling and customs declarations on the package, and we have our doctors letter inside the package. Please write for ordering instructions Security Issues, we will not allow ourselves to be run out the business, the way that my friend William Lee was treated by Yahoo. Whenever we correspond, I will always send a bcc copy to my Hotmail Save that Hotmail address.  Email to us at Hotmail should hushmail ever fail. Should hushmail roll-over for the net nannies and shut down this account, we will still have your order information at hotmail, and saved offline on our laptops, and we will not loose or otherwise fail to honor any commitments that we make

Response:

Hello, We are writing to announce that Johnny Powers has joined as a partner with William Lee, and we now have both the 20mg Lilly Icos original Cialis and the 20mg Chinese manufactured generic Cialis available. business. Lee did not save his emails offline, so he has no record of your order. However, as his partner, Johnny Powers will honor every commitment that William Lee made.  If you have an order of the generic 20mg Chinese Cialis pending, just write to us with the banking and the order details, and we will get the package mailed off to you. So, this is what we have now Real (Lilly Icos) 20mg Cialis Tablets Available for Sale in Quantity 1.)Small trial sample   $15 USD per pill.  16 pills for $15 each, that would be $240  for a 16 pill personal use supply.  (16 pills = 4 blister packs) 2.)Personal use supply   $10 USD per pill.  60 pills for $10 each, that would be $600  for a nice 60 pill personal use supply.  (60 pills = 15 blister packs) 3.)Large Lot sales    $5 USD per pill.  We are willing to really deeply discount to sell in large lots.  We are willing to sell 1,000 pill lots for $5 each, that would be $5,000 for a 1,000 pills.  (1,000 pills = 250 blister packs) Now, We Also Have Generic Chinese Cialis 20mg Pills Available at the following prices: 100 pills for $99-USD  (0.99 per pill) 200 pills for $180-USD  (0.90  per pill) 300 pills for $245-USD  (0.817 per pill) These prices for both the Generic and the Lilly Pharmaceuticals Cialis include shipping to any destination via parcel post.  We have had no problems with any countrys customs.  We place industry standard labeling and customs declarations on the package, and we have our doctors letter inside the package. Please write for ordering instructions Security Issues, we will not allow ourselves to be run out the business, the way that my friend William Lee was treated by Yahoo. Whenever we correspond, I will always send a bcc copy to my Hotmail Save that Hotmail address.  Email to us at Hotmail should hushmail ever fail. Should hushmail roll-over for the net nannies and shut down this account, we will still have your order information at hotmail, and saved offline on our laptops, and we will not loose or otherwise fail to honor any commitments that we make

Response:

Question:

I had asthma as a child as well.  Junior high school was the worst–we had to run around the track in PE every day, and although they let me walk instead, I would get teased all the time about it.  Sometimes I would run until I had an attack just because I was so embarrassed. I can’t suggest much in the near term, but when he gets older you might encourage him to get into anaerobic sports.  I finally learned to weight lift when I was 22, and it’s great for me–it improves my self esteem and very rarelly triggers my asthma. Try not to let his asthma cause him to exercise half-heartedly or not at all–when I was in high school they put me in an "adaptive PE" program where we walked around the track and "lifted weights."  What that really meant was we gossiped and tried to look busy while the teacher sat around.  We didn’t learn anything about weight training or learn to keep track of our walking performance to improve our cardiovascular fitness, both things I had to learn as an adult, after I’d developed lazy exercise habits.  I think it’s important to figure out what your asthma will let you do, and then DO IT, even if it’s just walking really slowly and stretching.  Hopefully your private school will be better about this, but it’s something to pay attention to. I recently started Singulair and it improved my peak flow quite a bit, although I don’t think it has helped my exercise-induced asthma much. Good luck, Karen – Hide quoted text — Show quoted text – I have a twelve year old son who has had asthma since he was two, probably since he was born.

Response:

Hi Danielle, My heart goes out to you and your son. My son is 7-1/2 and has moderate-severe asthma, including the EIA variety. We started him out with an indoor soccer program a year and a half ago, pre-treating him with albuterol and Intal. At that age all they do is run all over the place at top speed and he came through okay except for one incident — he kept sitting down on the floor every chance he got. Half the team was this way, too, though, so there must have been something in the air. Anyway, based on that we tried outdoor soccer last fall — big mistake. He could barely play an entire quarter and the coach was just not sympathetic to the asthma — I think he didn’t accept the idea that fatigue is indicative of a flare and thought perhaps Ed should be turning blue and gasping in order to be having at attack. He kept Ed sidelined a lot or put him in as goalie — not Ed’s strong point as he’s easily bored <g so it wasn’t a good experience for any of us. Tee-ball was much more successful, I think because they’re not so physically active for extended periods. He’s in a baseball program again this summer and really looking forward to it. Is there a baseball program around and would your son consider that in lieu of football? My son’s (private) school has a very active sports program, football being the foremost event; the star player for the last four years is a severe asthmatic. I’m heartened by this, knowing that for all the negative aspects of his win-at-all-costs attitude, the coach is very willing to work with asthma rather than sideline a kid. Is it worth approaching the coach(es) or director of the football program and explain he might fail the physical if it happens to be a rough trigger day and that perhaps they could take a closer look at his overall abilities? I guess it all depends on the people running the program. We haven’t yet put Ed on Singulair — I keep waffling over the Churg-Strauss syndrome thing. From what I understand, Singular doesn’t work for everyone; it either works very well or not at all. Certainly, the convenience of a once-daily tablet can’t be beat! Best of luck to you and your son, Danielle. Jeanne Ed’s Asthma Track http://asthmatrack.com/

Response:

Hi Danielle, Our daughter is also 12 and she started using Singulair about 5 months ago. It has improved her nighttime symptoms and is giving her better sleep, which has improved her daytime quality of life. For the EIA she still must pre-medicate and we have seen some improvement in her overall ability there too. We haven’t noticed any negative side-effects but are truly enjoying the benefits. Dot

Response:

His Doctor is going to start him on singulair, (I think that spelling is right), it is a preventative medicine. Has anyone tried it, and please say it works, how long does it take to start showing success?

Singulair is a ‘leukotrine receptor antagonist’.  In plain english this medication blocks the receptor sites leukotrines (a key inflammatory moderator) in am manner analogous to toothpicks getting shoved in a lock. Singulair has a very low rate of side effects.  The bad news is that for 1/3 of the people who try it is has great effects, for another 1/3 it has minor effects, and for the final 1/3 it has virtually no effects. "The difference between genius and stupidity is that genius has limits." Einstein

Response:

For the exercise induced asthma, two things can possibly help: premedicating (a couple of puffs of his rescue inhaler–likely albuterol–roughly a half hour before practice), and a slow warmup (15 minutes or so) before starting heavier activity.

Response:

Don’t really have any info for you about he singulair, but having been through the over use of antibiotics leading to bowel problems w/ my son I’d like to put my 2 cents in there. Part of what’s going on  is that the antibiotics killed "good" bacteria as well as the "bad".  The intestines use the good bacteria to digest food. Have him eat  yogurt every day–make sure its the kind with active cultures, and try to stay away from the kiddie-fied stuff that’s loaded with coloring, flavoring and gelatin.  Dannon has a great fruit on the bottoom style, or Stonyfield farms makes a really great one that’s organic as well.  YOu could aslo talk to the  DR about his taking acidophilius (sp?) tablets on a daily basis.  This will help to restore his intestine. Also, make sure he eats enough fresh fruits and vegetalbes, and drinks at least 8 glasses of water daily. Lesa – Hide quoted text — Show quoted text – I have a twelve year old son who has had asthma since he was two, probably since he was born. He was not diagnosed until two. He has been through so much, it breaks my heart. At two the doctors in an HMO overdosed him with antibiotics, which infected, (or messed up some how), his small intestine, which has left him with bowel problems ever since. Poor kid, as if asthma is not enough. He has either been in private school or home school up until the seventh grade, because he would have asthma attacks, and bowel problems at school and I would have to take him home, therefore, he missed too much school. We did home school for three years to get him caught up, and now he is in public school for the first time, (what an experience!) , He is going back to private school next year, he just needs closer attention. I feel I get more support from a private school, (probably because I am paying them), dealing with his special needs. He tried to sign up for football about two years ago, and he did not pass their physical,  this broke his heart, being a boy he wants to get involved and feels left out when he sees his friends going to practice. His sister is a varsity softball player, I know this also hurts him to witness her accomplishments. I have him signed up for acting classes, (he is a little comedian, I think it started as a cover up), his first movie will show on TNT in June 99, he is in three or four scenes, very small part , but he will be on TV. I thought this would make him feel accomplished, he will probably feel proud when he sees himself on TV, but I don’t hear much about it now. He came to me yesterday and asked to sign up for football again, of course I said we could try, but I am afraid for him, because he has exercise induced asthma, ( this is one of his triggers), and I can’t watch him be turned down again. His Doctor is going to start him on singulair, (I think that spelling is right), it is a preventative medicine. Has anyone tried it, and please say it works, how long does it take to start showing success? Is there any suggestions you have for my son? Thank you for all of your support, I will be looking forward to reading your posts. Sorry this is so long, but it is so hard to put 12 years in one story. Thanks, Danielle (worried Mom)

Response:

I have a twelve year old son who has had asthma since he was two, probably since he was born. He was not diagnosed until two. He has been through so much, it breaks my heart. At two the doctors in an HMO overdosed him with antibiotics, which infected, (or messed up some how), his small intestine, which has left him with bowel problems ever since. Poor kid, as if asthma is not enough. He has either been in private school or home school up until the seventh grade, because he would have asthma attacks, and bowel problems at school and I would have to take him home, therefore, he missed too much school. We did home school for three years to get him caught up, and now he is in public school for the first time, (what an experience!) , He is going back to private school next year, he just needs closer attention. I feel I get more support from a private school, (probably because I am paying them), dealing with his special needs. He tried to sign up for football about two years ago, and he did not pass their physical,  this broke his heart, being a boy he wants to get involved and feels left out when he sees his friends going to practice. His sister is a varsity softball player, I know this also hurts him to witness her accomplishments. I have him signed up for acting classes, (he is a little comedian, I think it started as a cover up), his first movie will show on TNT in June 99, he is in three or four scenes, very small part , but he will be on TV. I thought this would make him feel accomplished, he will probably feel proud when he sees himself on TV, but I don’t hear much about it now. He came to me yesterday and asked to sign up for football again, of course I said we could try, but I am afraid for him, because he has exercise induced asthma, ( this is one of his triggers), and I can’t watch him be turned down again. His Doctor is going to start him on singulair, (I think that spelling is right), it is a preventative medicine. Has anyone tried it, and please say it works, how long does it take to start showing success? Is there any suggestions you have for my son? Thank you for all of your support, I will be looking forward to reading your posts. Sorry this is so long, but it is so hard to put 12 years in one story. Thanks, Danielle (worried Mom)

Response:

Question:

Increasing one’s albuterol is not one of the recommended answers to falling peak flows. Inhaled steroids… yes. The overall goal is to use as little of the albuterol as possible. This should have been something that your doctor discussed. I would certainly call your doctor if your peak flows fall below 80%… and I would expect some immediate treatment.

Response:

I have a question. I recently started on Pulmicort and Accolate. For the past week, I have had very few symptoms and haven’t used any albuterol. My peak flow is running from 80% to 85% of peak. This means my peak flow is about 400 most of the time with my max at 500. The question is this, should I use albuterol when I reach the 80% mark? Or should I pass it up since I feel OK? I haven’t been using it on the theory that the least medicine is the best. I’d like to see your opinions on this. I haven’t had a chance to get back to my doctor for a while. Probably won’t see him until April. Thanks, Jim

Response:

Question:

::I went to Roel this morning, and I have still the zoloft. ::But I take now 2x 50mg, first I had 3x 50mg. ::I will see him back in 14 days, and than we will talk again abaut the med. ::And we will than talk also abaut the problems I have, ::with the deadt of my sister, and why it is so difficult for me. Dear Diana, I hope the Zoloft reduction helps. I agree with Philip in that I don’t understand why nothing more was done at this appt.  You’ve been suffering long enough. (((((Diana))))) Jackie ~*~Life was so much easier when your clothes didn’t match and boys had cooties~*~ — The charter is available at: http://readystump.algebra.com/~asapm

Response:

My dear Family . I went to Roel this morning, and I have still the zoloft. But I take now 2x 50mg, first I had 3x 50mg. I will see him back in 14 days, and than we will talk again abaut the med. And we will than talk also abaut the problems I have, with the deadt of my sister, and why it is so difficult for me. I will let you know how things are going. Love Diana — The charter is available at: http://readystump.algebra.com/~asapm

Response:

Hi, Diana, I hope this med adjustment is successful for you. Dealing with the death of a loved one takes time.  Your sister was a valuable piece of your life but you will make it through this… smiles, Elise

– Hide quoted text — Show quoted text – My dear Family . I went to Roel this morning, and I have still the zoloft. But I take now 2x 50mg, first I had 3x 50mg. I will see him back in 14 days, and than we will talk again abaut the med. And we will than talk also abaut the problems I have, with the deadt of my sister, and why it is so difficult for me. I will let you know how things are going. Love Diana — The charter is available at: http://readystump.algebra.com/~asapm

– The charter is available at: http://readystump.algebra.com/~asapm

Response:

I wish you the very best with this med change, Diana.  I hope you can, somehow, deal with the death of your sister.  I know how close you were and I would feel the same.  Thinking of you.  {{{{{Diana}}}}} Love, Di

My dear Family . I went to Roel this morning, and I have still the zoloft. But I take now 2x 50mg, first I had 3x 50mg. I will see him back in 14 days, and than we will talk again abaut the med. And we will than talk also abaut the problems I have, with the deadt of my sister, and why it is so difficult for me. I will let you know how things are going. Love Diana

– The charter is available at: http://readystump.algebra.com/~asapm

Response:

Diana schreef: My dear Family . I went to Roel this morning, and I have still the zoloft. But I take now 2x 50mg, first I had 3x 50mg. I will see him back in 14 days, and than we will talk again abaut the med. And we will than talk also abaut the problems I have, with the deadt of my sister, and why it is so difficult for me.

I wonder why he didn’t talk with you about your medication now instead of postponing it. The same goes for talking about your sister’s death. You were scheduled for aan appointment, weren’t you? Or didn’t he have enough time? Well, you will survive another two weeks but it’s a bit disappointing that nothing was talked about. Maybe lowering ther Zoloft dose is a good idea. Philip — The charter is available at: http://readystump.algebra.com/~asapm

Response:

Question:

Does anyone know of a good med or combination of meds for social anxiety and depression.  I was on paxil for 6 months and gained 50 lbs and felt like I was on sleeping pills.  It worked great except for the unbearable side effects. Zoloft made me aggressive and mean.  Serzone made me confused and not able to think straight at work.  I’m on wellbutrin now with ativan, but the wellbutrin makes me too anxious.  Anyone have any suggestions that have worked for them? The main things is that I cannot gain any more weight!

Response:

Perhaps try adding in a little Celexa to what you’re already on?   I haven’t used it, but from what I hear, once you get used to it, it seems to be the most side effect free SSRI, and many report weight management okay with it.  –Frel. – Hide quoted text — Show quoted text -Does anyone know of a good med or combination of meds for social anxiety and depression.

Response:

Does anyone know of a good med or combination of meds for social anxiety and depression.  I was on paxil for 6 months and gained 50 lbs and felt like I was on sleeping pills.  It worked great except for the unbearable side effects. Zoloft made me aggressive and mean.  Serzone made me confused and not able to think straight at work.  I’m on wellbutrin now with ativan, but the wellbutrin makes me too anxious.  Anyone have any suggestions that have worked for them? The main things is that I cannot gain any more weight!

Dear Babydoll, It is almost impossible for anyone to "know" what med or med combo will work for you without the side-effects you are trying so hard to avoid. That is the unfortunate part of meds, you just don`t know what will work unless you go on them, it is all trial and error. There is one thing that is quite effective for Social anxiety and it has no side-effects , and that is cognitive behavioral therapy. Take care Jackie ~*~I am the master in my fate; I am the captain of my soul~*~

Response:

Question:

Well I thought I would come to this NG for some input. My girlfriend and I have been together for three years now. When we met she was abusing volume and was on her last leg, just darn near living in her car but always had here pills. I took her in and was able to stop the pill taking execept for a few incidents. Anyhow this takes us to where we are now. A few weeks ago I noticed that she was acting the same as on volume. I was at my last string when she finally told me she had been to the doctors for anxiety attacks and depression. She claimed that she was diagnosed before we had met.  Her doctor, a few weeks ago prescribed her xanax and zoloft to there maximum dose. Now I have read a few internet sites on anxiety attacks and I have not witnessed one episode.  In fact I have not seen any depression or sadness throughout our relationship. She has told me recently that she can tell when one is coming so she just leaves to her moms to deal with it. So I guess my question is, are pills something that can be abused or should I look farther into the anxiety attacks? Can a family doctor diagnose anxiety and depression? Thanks very much for your input.         Ken

Response:

– Hide quoted text — Show quoted text – Well I thought I would come to this NG for some input. My girlfriend and I have been together for three years now. When we met she was abusing volume and was on her last leg, just darn near living in her car but always had here pills. I took her in and was able to stop the pill taking execept for a few incidents. Anyhow this takes us to where we are now. A few weeks ago I noticed that she was acting the same as on volume. I was at my last string when she finally told me she had been to the doctors for anxiety attacks and depression. She claimed that she was diagnosed before we had met.  Her doctor, a few weeks ago prescribed her xanax and zoloft to there maximum dose. Now I have read a few internet sites on anxiety attacks and I have not witnessed one episode.  In fact I have not seen any depression or sadness throughout our relationship. She has told me recently that she can tell when one is coming so she just leaves to her moms to deal with it. So I guess my question is, are pills something that can be abused or should I look farther into the anxiety attacks? Can a family doctor diagnose anxiety and depression? Thanks very much for your input.         Ken

Hi Ken! It’s very hard to give you good advice without knowing a lot more about your GF.  Sometimes a family doctor can diagnose anxiety, panic or depression, but your best bet is for her to see a psychiatrist to be diagnosed properly.  I’ve hidden some pretty whopper panic attacks and no one knew I was going through them at the time.  It is possible she’s had and hidden them well.  I’m not a doctor and I wish I could help you more.  Please post other info about your GF if you have any and maybe someone else here can give you more insight.  Sorry! Di

Response:

- Hide quoted text — Show quoted text – Well I thought I would come to this NG for some input. My girlfriend and I have been together for three years now. When we met she was abusing volume and was on her last leg, just darn near living in her car but always had here pills. I took her in and was able to stop the pill taking execept for a few incidents. Anyhow this takes us to where we are now. A few weeks ago I noticed that she was acting the same as on volume. I was at my last string when she finally told me she had been to the doctors for anxiety attacks and depression. She claimed that she was diagnosed before we had met.  Her doctor, a few weeks ago prescribed her xanax and zoloft to there maximum dose. Now I have read a few internet sites on anxiety attacks and I have not witnessed one episode.  In fact I have not seen any depression or sadness throughout our relationship. She has told me recently that she can tell when one is coming so she just leaves to her moms to deal with it. So I guess my question is, are pills something that can be abused or should I look farther into the anxiety attacks? Can a family doctor diagnose anxiety and depression?

Dear Ken, Welcome to ASAP!!! Yes, a family doctor can diagnosis and treat anxiety and depression. However, it is in anyones best interest to go to a psych doctor to be diagnosed and treated, they know much more about anxiety and depression than a MD. I am not surprised that you haven`t witnessed any panic or depression in your girlfriend. We tend to cover up these disorders quite well. My husband very rarely can tell when I am having a bad time. My mother has told me she cannot believe that I have an anxiety disorder, I can be at her home with high anxiety and yet come across cheerful and calm. However, it takes great stength and energy to give the appearance of calm and control, it actually increases our anxiety and depression in the long run. It is also very hard for many people with an anxiety disorder or depression to confide in another person about their disorder. We fear rejection and judgement, all we want is acceptance and an attempt at understanding us. Perhaps that is why she didn`t tell you right away. Maybe she has been hurt by someone over this in the past. Xanax can be abused, however people who take benzo`s for anxiety disorders usually don`t abuse them. As long as she follows her doctors instructions on how to take the xanax, she should be okay. If she takes the Xanax for an extended period of time she will become dependent on them. What that means is she can never quit Xanax cold turkey, if she does it could make her quite sick. When the time comes to get off Xanax she will need to wean slowly under her doctors care, she may experience uncomfortable withdrawal symptoms. Same goes with Zoloft, she should never quit cold turkey, but to wean off them under a doctors care. I know you must feel confused by all of this. You must care alot for her for you to post at this newsgroup to learn more about her meds and disorder. The best thing you can do for her is to support her unconditionally, she will do go far with you love and support. Anger and ill spoken words( not saying you have done this) hurt more than people can imagine. She needs to feel safe. Also educate yourself about her meds and disorder, knowledge is power, you will also be able to help her better if you understand the nature of this beast. Here is a link to a great website on anxiety disorders. Make sure you check out the family and friends link on this page, you will find some info and support for the *support* person of an anxiety sufferer. http://panicdisorder.about.com/health/panicdisorder/index.htm?COB=hom… I wish the both of you much luck and take care. Jackie

Response:

- Hide quoted text — Show quoted text – Well I thought I would come to this NG for some input. My girlfriend and I have been together for three years now. When we met she was abusing volume and was on her last leg, just darn near living in her car but always had here pills. I took her in and was able to stop the pill taking execept for a few incidents. Anyhow this takes us to where we are now. A few weeks ago I noticed that she was acting the same as on volume. I was at my last string when she finally told me she had been to the doctors for anxiety attacks and depression. She claimed that she was diagnosed before we had met.  Her doctor, a few weeks ago prescribed her xanax and zoloft to there maximum dose. Now I have read a few internet sites on anxiety attacks and I have not witnessed one episode.  In fact I have not seen any depression or sadness throughout our relationship. She has told me recently that she can tell when one is coming so she just leaves to her moms to deal with it. So I guess my question is, are pills something that can be abused or should I look farther into the anxiety attacks? Can a family doctor diagnose anxiety and depression? Thanks very much for your input.         Ken My family doctor didnt know shit about panic attacks and prescribing medicine.

 he started me on too much paxil 20mgs and to little xanax.5mgs.  I called him and told him i was still having panic attacks and he told me i could up the xanax and that 20 mgs of paxil was for depression.  so then i went to 30mgs of paxil then 40mgs then 50mgs.  i had to wait 3 months to see a psychiatrist. donny – Hide quoted text — Show quoted text –

Response:

Question:

Hi All, I’m seeing my PCP about my concerns with Zoloft. I’v been on it for maybe three months now and the only positive thing I can say is that it was a far cry better for me than Wellbutrin. I couldn’t tell if the Zoloft eased the anxiety at the switch or if just stopping the W did it. Now for the problems–obviously not initial side effects. Weight gain and unable to lose it not matter what I do–I’m not in to fads, just a good diet and as much excersize as I can tolerate. I’ve tried low fat, then low carb–all smart and balanced as I don’t want it to be in vain as soon as I start eating normally again. But I get no results. This is chipping away at my self esteem (and this has never happened to me before and I’m in my 40’s). Gritting/clenching my teeth. At first I thought it was recent dental work (crowns) but it is getting to be so severe that it is causing headaches and I can’t chew anything more firm than cooked rice. Meat? Forget it! I have been back to the dentist twice and though I haven’t completely let him off the hook, I think since I notice the teeth clenching all day long, I have to take some responsibility and look into the Zoloft possibility. I have small involuntary twitching in my arms and legs. It’s unnerving–I hate it. I fear parkinsons or something similar though, again, it started after I was on the Zoloft for a few months. Heightened anxiety all of a sudden. I was down to .75mgs daily and now am up to twice that–conciously I think for the teeth clenching–it seems to help a little–but also my entire disposition, mood, all over feel. I have horrible nightmares every nightl. I can not even bring myself to tell you the content. They seem to last for ever and if you consider the worst possible thing that could happen to a parent, that is what I am dealing with almost every night. I seem to sob all night long, though I know dreams are very short. Consequently, I wake up with a horrible yet relieved feeling–but very exhausted. I used to get canker sores as a child. NOT COLD SORES–they are so often confused with one another. My mom took me to many doctors and there was nothing they could do back then–I’m hoping medicine has made some progress in this area. This has to be some of the worst pain I have ever had to endure and they seem to be nonstop–two or three coming on the heels of another two or three just healing. I am guaranteed a canker sore (mine always result from trauma) if I eat chips, crisp french bread, if I bite the inside of my cheek when eating. They last a good 1 1/2 to 2 weeks and I realize that the Zoloft may not be to blame but I like to be informed when I see the doc. I have seen a few studies posted here recently about the teeth clenching. Truly, I don’t know if I benefit at all from the Z. I am taking it for anxiety not depression. If anyone has any suggestions or has heard of any one else with a similar story. Any links to pertinent info also greatly appreciated. Finally, does anyone know how well Buspar seems to be working for GAD-ites. Since it’s not a member of the SSRI family—I read somewhere that pre-existing conditions can be exaserbated–something to do with the dopamine????? Obviously, I need some intelligent help here LOL.

Response:

I have small involuntary twitching in my arms and legs. It’s unnerving–I hate it. I fear parkinsons or something similar though,

Hi.. I see you are in your mid 40s,, just have to ask, are you female?? I have found out that many of my symptoms including my anxiety ( which manifests itself in many ways) are all peri/menopause related… have you checked that out?? it does not matter if you still are regular, your hormones can start fluctuating and cause all kinds of symptoms… just consider it , unless you are male of course! Martha

Response:

Hi All,

Hi Little bear I’m seeing my PCP about my concerns with Zoloft. I’v been on it for maybe three months now and the only positive thing I can say is that it was a far cry better for me than Wellbutrin. I couldn’t tell if the Zoloft eased the anxiety at the switch or if just stopping the W did it. Now for the problems–obviously not initial side effects. Weight gain and unable to lose it not matter what I do–I’m not in to fads, just a good diet and as much excersize as I can tolerate. I’ve tried low fat, then low carb–all smart and balanced as I don’t want it to be in vain as soon as I start eating normally again. But I get no results. This is chipping away at my self esteem (and this has never happened to me before and I’m in my 40’s).

Unfortunately alot of the anti-depressants can cause weight gain. Gritting/clenching my teeth. At first I thought it was recent dental work (crowns) but it is getting to be so severe that it is causing headaches and I can’t chew anything more firm than cooked rice. Meat? Forget it! I have been back to the dentist twice and though I haven’t completely let him off the hook, I think since I notice the teeth clenching all day long, I have to take some responsibility and look into the Zoloft possibility.

You can clench your teeth when your anxious, angry, or in pain. It might be a symptom of your anxiety or perhaps the dental work. A few hours after my sister`s accident I started clenching my teeth. It was causing pain in my temples and at times it was so bad I was close to tears. It seemed the more I focused on the clenching the worse it got. Believe it or not, chewing gum seemed to help me. What does your doctor say when you tell him you can`t eat anything harder than rice? I have small involuntary twitching in my arms and legs. It’s unnerving–I hate it. I fear parkinsons or something similar though, again, it started after I was on the Zoloft for a few months.

Twitching is a very common symptom of anxiety. I have had twitches in my arms and legs, the most annoying place to get a twitch is my eyelids. When I went on Paxil they stopped. Maybe your Zoloft dose is just not enough to relieve your anxiety. I think the only way to find out if it is anxiety or the Zoloft causing these symptoms is to get off of it and see what happens. Heightened anxiety all of a sudden. I was down to .75mgs daily and now am up to twice that–conciously I think for the teeth clenching–it seems to help a little–but also my entire disposition, mood, all over feel.

Has increasing the dose helped with the symptoms and the heightened anxiety? I have horrible nightmares every nightl. I can not even bring myself to tell you the content. They seem to last for ever and if you consider the worst possible thing that could happen to a parent, that is what I am dealing with almost every night. I seem to sob all night long, though I know dreams are very short. Consequently, I wake up with a horrible yet relieved feeling–but very exhausted.

When my anxiety is high for a extended period, I get terrible nightmares. I know what you are going through, I use to be afraid to go to sleep for fear of what I would dream. ((((((Little bear))))) I used to get canker sores as a child. NOT COLD SORES–they are so often confused with one another. My mom took me to many doctors and there was nothing they could do back then–I’m hoping medicine has made some progress in this area. This has to be some of the worst pain I have ever had to endure and they seem to be nonstop–two or three coming on the heels of another two or three just healing. I am guaranteed a canker sore (mine always result from trauma) if I eat chips, crisp french bread, if I bite the inside of my cheek when eating. They last a good 1 1/2 to 2 weeks and

Hmmm, did the jaw clenching start after you started getting canker sores? I would bet that your jaw clenching is related to the cankers, indirectly. You said yourself it is some of the worst pain you have endured You might be clenching due to the pain in your mouth. You should tell your doctor about these sores, he may be able to give you a ointment to help with the inflammation. Avoid citrus fruit, tomato`s and nuts. I also heard that many of the toothpaste we use can cause cankers in sensitive individuals. I realize that the Zoloft may not be to blame but I like to be informed when I see the doc. I have seen a few studies posted here recently about the teeth clenching. Truly, I don’t know if I benefit at all from the Z. I am taking it for anxiety not depression. If anyone has any suggestions or has heard of any one else with a similar story. Any links to pertinent info also greatly appreciated. Finally, does anyone know how well Buspar seems to be working for GAD-ites. Since it’s not a member of the SSRI family—I read somewhere that pre-existing conditions can be exaserbated–something to do with the dopamine????? Obviously, I need some intelligent help here LOL.

Buspar is effective for generalized anxiety disorder, which is what I think you said you have. You don`t suffer from panic attacks, right? I don`t think it would hurt to try the Buspar.

really think for your best interest you should see a psych doctor for diagnosis and treatment. Most MD`s  just don`t have the knowledge to treat anxiety disorders properly. Take care and good luck tomorrow. *Hugs* Jackie

Response:

Question:

The name "Slipper" ain’t a pet name.  It is a version of an old family name handed down over the years to the "chosen" ones who exhibited certain qualities.  "Slipper" is a Hebrew term for, "She who is great".  My great, great grandmother, also a chosen one,  was 1/2 American Indian and was called "She who is great", but in indian it was pronounced, "Spaz-twista-shake". That does not fit on contemporary birth certificates. Therefore it was shown in Hebrew, pronouced "Slipper". Yaw show some respect, okay! Jeeeeeeeeeeeeeese!!!!!! -Slipper

Thanks, Slipper.  I needed that …except it hurts to laugh!  You reminded me of a professor I had in grad school who had Parkinson’s. On those wonderful occassions when we would teach together, he would enter the room first with me trailing (and flailing). We would finally get to the front of the lecture hall and he’d introduce us.  "Hi. They call me ‘Old Shaky’ and this is my partner, ‘Spaz’." Shalom, Chana Mitzvah g’dolah l’hiyot b’simcha. "It is a great mitzvah to exist in a state of joy."

Response:

This is so cool.  Here I am, aspiring to become a writer; I answer a newsgroup post and now I’m gonna be in print all over!!!  And more than anything, I’ll have the ultimate "last word" on a multitude of physicians via my pals, the dystoniacs. The name "Slipper" ain’t a pet name.  It is a version of an old family name handed down over the years to the "chosen" ones who exhibited certain qualities.  "Slipper" is a Hebrew term for, "She who is great".  My great, great grandmother, also a chosen one,  was 1/2 American Indian and was called "She who is great", but in indian it was pronounced, "Spaz-twista-shake".  That does not fit on contemporary birth certificates. Therefore it was shown in Hebrew, pronouced "Slipper". Yaw show some respect, okay!  Jeeeeeeeeeeeeeese!!!!!! -Slipper

Response:

The name "Slipper" ain’t a pet name.  It is a version of an old family name handed down over the years to the "chosen" ones who exhibited certain qualities.  "Slipper" is a Hebrew term for, "She who is great".  My great, great grandmother, also a chosen one,  was 1/2 American Indian and was called "She who is great", but in indian it was pronounced, "Spaz-twista-shake". That does not fit on contemporary birth certificates. Therefore it was shown in Hebrew, pronouced "Slipper". Yaw show some respect, okay! Jeeeeeeeeeeeeeese!!!!!! -Slipper Thanks, Slipper.  I needed that …except it hurts to laugh!  You reminded me of a professor I had in grad school who had Parkinson=

’s. On those wonderful occassions when we would teach together, he would enter the room first with me trailing (and flailing). We wo= uld finally get to the front of the lecture hall and he’d introduce us.  "Hi. They call me ‘Old Shaky’ and this is my partner, ‘Spaz= ‘." Shalom, Chana Mitzvah g’dolah l’hiyot b’simcha. "It is a great mitzvah to exist in a state of joy."

Oh me…It is the Chana & Slipper show!!  How fun!  And Chana, your post also appeared as one long line on my server…it is only when I do a ‘post reply’ that your post and Slipper’s take on ‘normal’ form!!  Wonder if it is moi or yoi…<<<VBG MB

Response:

Hi gang. Yes, I feel like I have found a "special" place.  I moved from VA to TX 2 years ago leaving behind family and friends that had been thru it all with me.  That was quite a loss and have been depressed since. (though my husband and daughter are wonderful ) Thanks for all your responses.  I have laughed and cried. I am sure you understand what a.s.d. means to me already. I had my botox shots last Wednesday (300 units) and dr. started me on Klonopin (1 mg). Sure hoping this helps my spasms which for some reason have gotten worse lately. Thanks again.  Talk to yall soon.    Bonnie

Response:

 <SNIP…   Ahhh, but Roger has already warned Slipper of the infamous Mary Beth–NO FAIR, Roger!!!  Now I cannot pounce and be taken seriously <<VBG C’mon now MB! That’s "I cannot pounce OR be taken seriously!"

OOPS!!  Grammar check failed me…what to do, what to do?? Now I tell you, has anyone in any of the countries to which our group us ever taken an MB pounce seriously. (Slipper, it’s those innocent approaches you will have to watch.

John you know me too well!  Now Slipper will just be a lil devil and the Den Mom will have to grin and bear it.  What trouble you do cause, Sir John!! Giving MB the Slip<per I remain, Your humble servant  John  :-)

No, no…I raised your rank above =8-} – Hide quoted text — Show quoted text –

Response:

  <SNIP…       Ahhh, but Roger has already warned Slipper of the infamous Mary Beth–NO FAIR, Roger!!!  Now I cannot pounce and be taken seriously <<VBG

C’mon now MB! That’s "I cannot pounce OR be taken seriously!" Now I tell you, has anyone in any of the countries to which our group us ever taken an MB pounce seriously. (Slipper, it’s those innocent approaches you will have to watch. Giving MB the Slip<per I remain, Your humble servant   John  :-)

Response:

– Hide quoted text — Show quoted text – Believe us when we say we have "superior intelligence".  You know how many doctors it takes to diagnosis dystonia? Ten: One to explain that doctors are not magicians; One to say that you have fribromyalgia; One to say you have slight scoliosis; One to say you have a headache and some endurance problems; One to say you have TMJ One to say you have a Benign Essential Tremor and rigidity; One to say you are suffering from a psychogenic disorder aka depression; Two to hold the neurological textbooks at the public library open for you while you diagnosis yourself using American Online’s Medline; And one to follow your instructions when you decide which medications you need to take. SLIPPER I thought I had read this somewhere before,then I seen the name in the address. Glad you found us. Everyone meet slipper. We have become friends through e-mail recently. Slipper meet the gang, just watch out for that Mary Beth. Good to see you have joined our online family. Roger

I LOVE THIS GROUP!!!!!!!  With Roger’s ‘Stamp of Approval’, this new one ‘Slipper’ has an easy road <<giggle Of course the fact that what was posted is completely Wonderful has something to do with it!  Like Chana, I have also printed it out to disperse among friends & doctors. Ahhh, but Roger has already warned Slipper of the infamous Mary Beth–NO FAIR, Roger!!!  Now I cannot pounce and be taken seriously <<VBG Anyhow, welcome Slipper, be ye male, female, or…well, OK I’ll say it… Slipper kinda sounds like a pet’s name, as in ‘here Slipper, Slipper’ Sorry Roger, you always bring out my ‘best’ side!! MB

Response:

- Hide quoted text — Show quoted text – Believe us when we say we have "superior intelligence".  You know how many doctors it takes to diagnosis dystonia? Ten: One to explain that doctors are not magicians; One to say that you have fribromyalgia; One to say you have slight scoliosis; One to say you have a headache and some endurance problems; One to say you have TMJ One to say you have a Benign Essential Tremor and rigidity; One to say you are suffering from a psychogenic disorder aka depression; Two to hold the neurological textbooks at the public library open for you while you diagnosis yourself using American Online’s Medline; And one to follow your instructions when you decide which medications you need to take.

I LOVE THIS!!!  There is someone else out there who is brilliant and funny just like the rest of us!  We ARE a smart bunch, no? Chana P.S.  I’m sending a copy of this to my neurologist and family friend and physician.  I know that, at least, the latter will ROFL… Mitzvah g’dolah l’hiyot b’simcha. "It is a great mitzvah to exist in a state of joy."

Response:

Believe us when we say we have "superior intelligence".  You know how many doctors it takes to diagnosis dystonia? Ten: One to explain that doctors are not magicians; One to say that you have fribromyalgia; One to say you have slight scoliosis; One to say you have a headache and some endurance problems; One to say you have TMJ One to say you have a Benign Essential Tremor and rigidity; One to say you are suffering from a psychogenic disorder aka depression; Two to hold the neurological textbooks at the public library open for you while you diagnosis yourself using American Online’s Medline; And one to follow your instructions when you decide which medications you need to take.

SLIPPER I thought I had read this somewhere before,then I seen the name in the address. Glad you found us. Everyone meet slipper. We have become friends through e-mail recently. Slipper meet the gang, just watch out for that Mary Beth. Good to see you have joined our online family. Roger

Response:

Believe us when we say we have "superior intelligence".  You know how many doctors it takes to diagnosis dystonia? Ten: One to explain that doctors are not magicians; One to say that you have fribromyalgia; One to say you have slight scoliosis; One to say you have a headache and some endurance problems; One to say you have TMJ One to say you have a Benign Essential Tremor and rigidity; One to say you are suffering from a psychogenic disorder aka depression; Two to hold the neurological textbooks at the public library open for you while you diagnosis yourself using American Online’s Medline; And one to follow your instructions when you decide which medications you need to take.

Response:

Hi! Bonnie I just read your post and I’m also excited about finding all this on my new computer.  I’m had Dystonia since I was a teenager and I am a NSTA support leader in Atlanta, Georgia.  I would love to correspond with you and maybe we could compare notes, this is a GREAT newsgroup and you will love it. Best wishes, Kathie

Response:

Welcome Bonnie! If you’ve got a sense of humor, you’ve found the right place!  As serious as we can be, most of us can find SOMEthing to laugh at! Have you thought of contacting your regional coordinator from the Dystonia Medical Research Foundation in starting a support group?=

  I’ve just come back from one of their conventions and we sure do have a lot to offer?  MB will pipe in with more information and h= I’m a bit older than yourself but just beginning my ‘relationship’ with the diagnosis of dystonia … even though I’ve had dystonia=

 since I can remember.  Personally, I think we were given ’superior intelligence’ to make up for our differences. <<grin Looking forward to hearing from you again. Chana Mitzvah g’dolah l’hiyot b’simcha. "It is a great mitzvah to exist in a state of joy."

Golly, I feel like I am being paged again!!  Yes, Chana, here I am at your service <<giggle Actually, Bonnie!  Chana has a wonderful point which I completely overlooked [I am really scattered presently].  There is a support group called the ‘Dallas-Fort Worth’ Support Group in Cedar Hill TX.  Leader is Patricia Foreman and her home # is 214 299-5715.  You might want to touch base with her OR the Regional Cordinator for that regon is Bill Rapp in New Orleans and Bill’s # is 504 254-2455.  Good Luck, Bonnie! MB

Response:

Welcome Bonnie! If you’ve got a sense of humor, you’ve found the right place!  As serious as we can be, most of us can find SOMEthing to laugh at! I’m a bit older than yourself but just beginning my ‘relationship’ with the diagnosis of dystonia … even though I’ve had dystonia since I can remember.  Personally, I think we were given ’superior intelligence’ to make up for our differences. <<grin Looking forward to hearing from you again. Chana Mitzvah g’dolah l’hiyot b’simcha. "It is a great mitzvah to exist in a state of joy."

Response:

My name is Bonnie and have had dystonia since I was 18 (now 41).  I receive Botox injections (ST) also have problems with left foot and writers cramp with scolosis and degenerative disc disease. Whew!!! But keeping a positive attitude and a sense of humor is the only way to deal with this.  So glad I got a computer in Dec.; never expected to find anything when I typed in dystonia for web search ;boy, was I suprised. This is great.  Well, I could write a book of my experiences over the years.  Just wanted to say hello and this has been a godsend.  I have never encounted anyone else with dystonia; have joined NSTA and talked with my doctor yesterday about starting a support group in my area (Ft. Worth, TX).  She has other patients she is contacting for me anf if they are interested will give them my #.  I sure hope this works out.  If I can help any one, please do not hesitiate to post or e-mail me. Thanks and remember you are not alone.      Bonnie

Welcome Bonnie!!  We are so glad you have found us and are willing to post!  Another Texan…hmmmm, we are blessed with Canadians and Texans, aren’t we? Good luck with the support group…if ya happen to speak with either Jan Richter or Patricia Murray, say hi from Mary Beth (MB). And please keep posting, your experience is invaluable! TTYS, MB

Response:

My name is Bonnie and have had dystonia since I was 18 (now 41).  I receive Botox injections (ST) also have problems with left foot and writers cramp with scolosis and degenerative disc disease. Whew!!! But keeping a positive attitude and a sense of humor is the only way to deal with this.  So glad I got a computer in Dec.; never expected to find anything when I typed in dystonia for web search ;boy, was I suprised. This is great.  Well, I could write a book of my experiences over the years.  Just wanted to say hello and this has been a godsend.  I have never encounted anyone else with dystonia; have joined NSTA and talked with my doctor yesterday about starting a support group in my area (Ft. Worth, TX).  She has other patients she is contacting for me anf if they are interested will give them my #.  I sure hope this works out.  If I can help any one, please do not hesitiate to post or e-mail me. Thanks and remember you are not alone.      Bonnie

Response:

This is so cool.  Here I am, aspiring to become a writer; I answer a newsgroup post and now I’m gonna be in print all over!!!  And more than anything, I’ll have the ultimate "last word" on a multitude of physicians via my pals, the dystoniacs. The name "Slipper" ain’t a pet name.  It is a version of an old family name handed down over the years to the "chosen" ones who exhibited certain qualities.  "Slipper" is a Hebrew term for, "She who is great".  My great, great grandmother, also a chosen one,  was 1/2 American Indian and was called "She who is great", but in indian it was pronounced, "Spaz-twista-shake".  That does not fit on contemporary birth certificates. Therefore it was shown in Hebrew, pronouced "Slipper". Yaw show some respect, okay!  Jeeeeeeeeeeeeeese!!!!!! -Slipper

Oh Great Slipper, I would like to respectfully welcome you to the alt.support.dystonia news group on the part of those of us living in the maritime provinces:-) I am sure our charming Mary Beth Chan will be officially welcoming you shortly. Gene

Response:

<<snip – Hide quoted text — Show quoted text -Oh me…It is the Chana & Slipper show!!  How fun!  And Chana, your post also appeared as one long line on my server…it is only when I do a ‘post reply’ that your post and Slipper’s take on ‘normal’ form!!  Wonder if it is moi or yoi…<<<VBG MB MB I have the same problem.  I always find this very baffling as most of the post I can read on my screen but there are one or two that seem to go past the right hand margin.  Mally made a suggestion of what I should do but I have never been able to get it to work. Glad to have the company. Faye

If you are using Free Agent, try this: Click Options, then Posting, then pick the "General." tab.  There is a choice for Line length.  Choose 70, then click OK. Other newsreaders should have similar options. Jeff Jeff H.

Response:

I am curious about your post itself…it came onto my server as one long line and then a line that appeared to be typed and typed over-top-of many times.  This happened to Chana’s posts too, still is on my server at least.  AOL is having more trouble?  Or what? Ideas anybody? In any case, no matter how your posts ‘look’, I really enjoy having you with us! MB

MB, I just finished describing this problem to Chana… I guess if others are having it too, I should redo it publically. The problem lies within the AOL newsreader.  It appears to not know how to insert a carraige return to wrap a line, and so those posting from AOL are indeed writing one *very* long line instead of a paragraph.  Those who can read the messages fine are using newsreaders that are able to fake-out the problem and wrap the lines to fit that user’s screen.  This is why some people are able to read these posting no problem but others are having troubles and seeing only one line. We need those using AOL to manually insert carriage returns when they come to the end of a line on their screen (and continue their sentence on the next line).  They will need to do this for every line of text for their whole posting as the problem will occur any time they don’t hit that ol’ "return" key. Other than that, people having troubles can see about any "line wrap" options in their own software that they can turn on when they come across a one-line AOL posting, or other means of justifying the message so it is readable in a paragraph format (such as saving the message and opening it up in another program such as a word processor.) Cathy. —  (—-)                                                     (—-)   "  "         http://www.cuug.ab.ca:8001/~collisoc          "  "

Response:

I have the same problem.  I always find this very baffling as most of the post I can read on my screen but there are one or two that seem to go past the right hand margin.  Mally made a suggestion of what I should do but I have never been able to get it to work. Glad to have the company. Faye

Someone mention my name?  Hi Faye!  <waving away at you Depending on what newsreader you’re using, search through your menu lists for "word wrap".  In Free Agent, if you click on that, it will stay "clicked" – a check mark will appear beside it.  Then any post that goes off the side of your screen will get "wrapped" automatically.  IOW, it will fit into the margins you have set in your default.  You may find that you will then half lines followed by "=" or some such weird little squiggles or symbols.  Just ignore those, they are the "line breaks" showing up as symbols.  Hokey? For those whose posts are too wide, check in your "Page Setup" for margins – usually found under "File".  Do this while you are in "Post" or "Reply" mode/screen. Mally  :)

Response:

– Hide quoted text — Show quoted text – The name "Slipper" ain’t a pet name.  It is a version of an old family name handed down over the years to the "chosen" ones who exhibited certain qualities.  "Slipper" is a Hebrew term for, "She who is great".  My great, great grandmother, also a chosen one,  was 1/2 American Indian and was called "She who is great", but in indian it was pronounced, "Spaz-twista-shake". That does not fit on contemporary birth certificates. Therefore it was shown in Hebrew, pronouced "Slipper". Yaw show some respect, okay! Jeeeeeeeeeeeeeese!!!!!! -Slipper Thanks, Slipper.  I needed that …except it hurts to laugh!  You reminded me of a professor I had in grad school who had Parkinson= ’s. On those wonderful occassions when we would teach together, he would enter the room first with me trailing (and flailing). We wo= uld finally get to the front of the lecture hall and he’d introduce us.  "Hi. They call me ‘Old Shaky’ and this is my partner, ‘Spaz= ‘." Shalom, Chana Mitzvah g’dolah l’hiyot b’simcha. "It is a great mitzvah to exist in a state of joy." Oh me…It is the Chana & Slipper show!!  How fun!  And Chana, your post also appeared as one long line on my server…it is only when I do a ‘post reply’ that your post and Slipper’s take on ‘normal’ form!!  Wonder if it is moi or yoi…<<<VBG MB

MB I have the same problem.  I always find this very baffling as most of the post I can read on my screen but there are one or two that seem to go past the right hand margin.  Mally made a suggestion of what I should do but I have never been able to get it to work. Glad to have the company. Faye

Response:

This is so cool.  Here I am, aspiring to become a writer; I answer a newsgroup post and now I’m gonna be in print all over!!!  And more than anything, I’ll have the ultimate "last word" on a multitude of physicians via my pals, the dystoniacs. The name "Slipper" ain’t a pet name.  It is a version of an old family name handed down over the years to the "chosen" ones who exhibited certain qualities.  "Slipper" is a Hebrew term for, "She who is great".  My great, great grandmother, also a chosen one,  was 1/2 American Indian and was called "She who is great", but in indian it was pronounced, "Spaz-twista-shake".  That does not fit on contemporary birth certificates. Therefore it was shown in Hebrew, pronouced "Slipper". Yaw show some res -Slipper

Spaz-twista-shake,hey that fits me oh she who is great. I thought that was a nick name you had,and here I thought I knew you. Well I’ll talh to you later. Roger

Response:

Hi Bonnie- Greetings to you from Chicago!  Just a quick note to welcome you to the "family."  I wanted to ensure that you are also familiar with our organization, The Dystonia Medical Research Foundation.  We are the largest international organizations for dystonia-affected persons and their families (over 25,000 members!)  Our Foundation has a 3-fold mission:  to support dystonia-specific medical research (we have supported over $14 million to-date), to increase public and physician awareness of dystonia, and to sponsor educational and support programs for affected individuals and their families.  If you are not familiar with our gladly send them to you.  We also have a support group manual that may help you to get things started in Ft. Worth.   Take care, Jennifer Molski Dystonia Medical Research Foundation

Response:

– Hide quoted text — Show quoted text – This is so cool.  Here I am, aspiring to become a writer; I answer a newsgroup post and now I’m gonna be in print all over!!!  And = more than anything, I’ll have the ultimate "last word" on a multitude of physicians via my pals, the dystoniacs. The name "Slipper" ain’t a pet name.  It is a version of an old family name handed down over the years to the "chosen" ones who exh= ibited certain qualities.  "Slipper" is a Hebrew term for, "She who is great".  My great, great grandmother, also a chosen one,  was= 1/2 American Indian and was called "She who is great", but in indian it was pronounced, "Spaz-twista-shake".  That does not fit on = contemporary birth certificates. Therefore it was shown in Hebrew, pronouced "Slipper". Yaw show some respect, okay!  Jeeeeeeeeeeeee= ese!!!!!! -Slipper Hi Slipper, So I am understanding that you are part Jew, part American Indian?  WOW!! What a wonderful combination I am curious about your post itself…it came onto my server as one long line and then a line that appeared to be typed and typed over-top-of many times.  This happened to Chana’s posts too, still is on my server at least.  AOL is having more trouble?  Or what? Ideas anybody? In any case, no matter how your posts ‘look’, I really enjoy having you with us! MB

Shoot!!  First it would not post and then it posted twice!!  Sorry! MB

Response:

This is so cool.  Here I am, aspiring to become a writer; I answer a newsgroup post and now I’m gonna be in print all over!!!  And =

more than anything, I’ll have the ultimate "last word" on a multitude of physicians via my pals, the dystoniacs. The name "Slipper" ain’t a pet name.  It is a version of an old family name handed down over the years to the "chosen" ones who exh=

ibited certain qualities.  "Slipper" is a Hebrew term for, "She who is great".  My great, great grandmother, also a chosen one,  was=  1/2 American Indian and was called "She who is great", but in indian it was pronounced, "Spaz-twista-shake".  That does not fit on = contemporary birth certificates. Therefore it was shown in Hebrew, pronouced "Slipper". Yaw show some respect, okay!  Jeeeeeeeeeeeee= ese!!!!!! -Slipper

Hi Slipper, So I am understanding that you are part Jew, part American Indian?  WOW!! What a wonderful combination I am curious about your post itself…it came onto my server as one long line and then a line that appeared to be typed and typed over-top-of many times.  This happened to Chana’s posts too, still is on my server at least.  AOL is having more trouble?  Or what? Ideas anybody? In any case, no matter how your posts ‘look’, I really enjoy having you with us! MB

Response: