Prescription Medication Knowledge Base » Of Flovent And » Chest Crushing Asthma

Chest Crushing Asthma

Question:

Jim: Have you ever had a cardiac workup? Bob

Response:

I’ve told her. She didn’t seem highly concerned. In fact, she began tapering my other meds. (My peak flow was up.) So now what? Aleta – Hide quoted text — Show quoted text – Hi! If your albuterol (which is the same thing as salbuterol) isn’t working – tell your doctor NOW! When you have a severe attack albuterol and drugs related are the first line of treatment used to get you breathing again. It is very serious if these types of drugs do not work for you as it gives the emergeny treatment team few options to use to improve your breathing quickly. Please don’t panic when you read this – there can be many reasons why it doesn’t seem to be working for you such as inhalation techniques, expiration dates, over reliance on rescue medication, etc. but do look into this now. Marion B.Sc.Pharmacy And I use Albuterol, and it’s never let me down, either. Good thing there are medications that always work! So what does it mean when your albuterol inhaler doesn’t do anything? My asthma is fairly mild, but when I get an attack, I cough and cough. Sometimes the albuterol stopes it right away, but other times it doesn’t seem to have any effect. I don’t notice any difference in the coughing between the times that it does work and when it doesn’t (which I would expect if something other than asthma caused the non-responsive cough). Aleta

Response:

Hi! If your albuterol (which is the same thing as salbuterol)

snip Marion B.Sc.Pharmacy

Hi, "Salbutamol" [not salbuterol] is the WHO recommended name generally in use outside of the USA for "Albuterol". See Asthma FAQ medications: ftp://rtfm.mit.edu/pub/usenet/news.answers/medicine/asthma/medications Colleen

Response:

Hi Colleen! I see I made a spelling error. Thanks for pointing it out, Marion – Hide quoted text — Show quoted text – Hi! If your albuterol (which is the same thing as salbuterol) snip Marion B.Sc.Pharmacy Hi, "Salbutamol" [not salbuterol] is the WHO recommended name generally in use outside of the USA for "Albuterol". See Asthma FAQ medications: ftp://rtfm.mit.edu/pub/usenet/news.answers/medicine/asthma/medications Colleen

Response:

And I use Albuterol, and it’s never let me down, either. Good thing there are medications that always work!

So what does it mean when your albuterol inhaler doesn’t do anything? My asthma is fairly mild, but when I get an attack, I cough and cough. Sometimes the albuterol stopes it right away, but other times it doesn’t seem to have any effect. I don’t notice any difference in the coughing between the times that it does work and when it doesn’t (which I would expect if something other than asthma caused the non-responsive cough). Aleta

Response:

And I use Albuterol, and it’s never let me down, either. Good thing there are medications that always work! So what does it mean when your albuterol inhaler doesn’t do anything? My asthma is fairly mild, but when I get an attack, I cough and cough. Sometimes the albuterol stopes it right away, but other times it doesn’t seem to have any effect. I don’t notice any difference in the coughing between the times that it does work and when it doesn’t (which I would expect if something other than asthma caused the non-responsive cough). Aleta

Not all cough is caused by asthma; you could have a co-existing condition contributing to the cough. See: http://www.ummed.edu/dept/pulmonary/irwin/pitfalls.htm Common Pitfalls in Managing Patients with Chronic Cough "If patients continue to complain of persistently troublesome cough even after an extensive evaluation, reconsider the following pitfalls in management as possible contributing factors: 4.not considering that more than one condition is simultaneously contributing to the cough;

Response:

Hi! If your albuterol (which is the same thing as salbuterol) isn’t working – tell your doctor NOW! When you have a severe attack albuterol and drugs related are the first line of treatment used to get you breathing again. It is very serious if these types of drugs do not work for you as it gives the emergeny treatment team few options to use to improve your breathing quickly. Please don’t panic when you read this – there can be many reasons why it doesn’t seem to be working for you such as inhalation techniques, expiration dates, over reliance on rescue medication, etc. but do look into this now. Marion B.Sc.Pharmacy – Hide quoted text — Show quoted text – And I use Albuterol, and it’s never let me down, either. Good thing there are medications that always work! So what does it mean when your albuterol inhaler doesn’t do anything? My asthma is fairly mild, but when I get an attack, I cough and cough. Sometimes the albuterol stopes it right away, but other times it doesn’t seem to have any effect. I don’t notice any difference in the coughing between the times that it does work and when it doesn’t (which I would expect if something other than asthma caused the non-responsive cough). Aleta

Response:

I seem to get a violent chest compressing asthma attack in the last few years once a day or so, that feels like somoene is sitting on my chest and I am about to strangulate. I have life long asthma and it is much worse in the spring and fall, I am on Flovent, and here is my point: Ventolin is amazing! I have used it for 20 years, but it is still amazing the little off blue inhaler buddy has saved my life hundreds of times.

Response:

Author: admin on
Category: Of Flovent And
Tags: 1

Prescription Medication Knowledge Base » Singulair And Flovent » Two years of torture and now this(NASAL POLYPS)

Two years of torture and now this(NASAL POLYPS)

Question:

On 17 Jan 2004 20:01:09 -0800, goyg…@aol.com (goygirl) wrote:

Today my NP called me and told me that the CT was abnormal and that I have either nasal polyps and or cysts (3) and she is referring me to an ENT specialist. Today was the happiest and most hopeful day I have had in my life!!!! She is dubious about this being the casuse of all my suffering but I am not. This must be the answer, please let it be. I have read alot in the last 12 hours and I believe this must be it. I cannot go on like this much longer and I have been a terrible father and husband for a long time now, Finally, my question fot the group. Now what??? Should I just go with whatever course of action this unknown Dr. suggests??

*If* they recommend surgery, I would not go right away with a randomly-chosen surgeon. Because surgery is a major thing, and can *occasionally* go wrong, and is a bit of an art, I would first see also other sinus surgeons, including one or two at a major University medical center, preferably including a conservative one such as Mayo. You can easily do this under the guise of getting "second opinions." Find them yourself though, not via asking your current doctors for names. Then, *if* you still want surgery, go with the most experienced one. They will all be glad to see you becasue sinus surgery is *big dollars*. – Hide quoted text — Show quoted text -

I am really desperate for some relief (I even posted on the net for the first time) I dont want to be anything less than aggresive with this problem which has caused me to suffer for so long.

Response:

Have you read about the "upside down sinus flooding" with peroxide/ baking soda and kosher salt for dealing with sinus disease? If you want to follow along with other sinus sufferers who are finding some relief using it, and read the documentation check out the forum at Healthboards at: http://www.healthboards.com/boards/showthread.php?t=129210 The shortness of breath after going to bed is not normally considered a "sinus condition". I get it. I let a sinus infection go too long without treatment, and it caused me to become over sensitive to things that I was only slightly allergic to before, like cotton. When I lie in bed, my heart get irritated and starts to palpitate, and I’ll get shortness of breath. If I lie on my leather recliner without sheets or blankets, my heart remains stable. ===

Larry, you wrote: "My symptoms were as follows

1. headache over my eyes from about 2-4 hours after awakening lasting the entire day and night 2. shortness of breath (this just started recently) only in the evening until sleep 3. dizziness, slight nausea 4. facial pain (I have only recently learned to distinguish this from a headache)<===

Response:

- Hide quoted text — Show quoted text -goygirl wrote:

I need help and advice with a very serious problem. For about 28 months now, I have had moderate to severe headaches and facial pain. I believed that this stemmed from an unsatisfactory lasik procedure and two dissapointing enhancements that followed shortly thereafter. I encountered boursts of severe pain in the eye in question as well, so I naturally assumed that this was the cause. I saw 3 lasik specialists and they could find nothing that would cause this pain. I was angry and depressed. I have been healthy my whole life and now this pain, every day, and it seemed I had chosen it. About six to eight months ago, the eye pain stopped, but the headaches and the facial pain persisted. I found that no OTC pain med helped me but percocet taken in small doses did take away most of the pain. OK, if noone could help me, I would address the issue with medication. I was concerned with becoming addicted to the drug, but not concerned enough to stop, the pain was too much. I had a brain MRI and went to a couple of doctors but nothing.

Who ordered the MRI? What type of doctors did you see? Did you ever see a qualified neurologist? – Hide quoted text — Show quoted text -

I was becoming more and more depressed and taking it out on my wife and kid. I decided to rededicate myself to finding out what was wrong. Finally, a nurse practicioner at my Drs office suggested I have a CT of my sinus last week and I did. I was not very hopeful because I didnt seem to have any nasal congestion and almost never get a cold or the flu but what the heck. My symptoms were as follows 1. headache over my eyes from about 2-4 hours after awakening lasting the entire day and night 2. shortness of breath (this just started recently) only in the evening until sleep 3. dizziness, sligh nausea 4. facial pain (I have only recently learned to distinguish this from a headache) Today my NP called me and told me that the CT was abnormal and that I have either nasal polyps and or cysts (3) and she is referring me to an ENT specialist. Today was the happiest and most hopeful day I have had in my life!!!! She is dubious about this being the casuse of all my suffering but I am not.

I don’t want to make you feel bad, but I have to say that I am not sure it’s the cause either. I don’t know anything about lasik, but I don’t understand how it could have triggered chronic sinusitis, unless you had developed some kind of post-operative eye infection and your surgeons should have been able to detect that. The cysts and polyps could be coincidental. Some folks have polyps for years with no symptoms. I even searched the Internet for you, to find any possible connection between sinus problems and Lasik. I haven’t found anything.

This must be the answer, please let it be. I have read alot in the last 12 hours and I believe this must be it. I cannot go on like this much longer and I have been a terrible father and husband for a long time now, Finally, my question fot the group. Now what??? Should I just go with whatever course of action this unknown Dr. suggests??

You should never do that for any course of action by any unknown doctor. Explain to this ENT all about your lasik surgery and when the problems started. After this ENT has seen your CT scan films and told you what he thinks (is it sinusitis or a complication of lasik), start researching the ENTs in your area and find a good one, and get a second opinion from him. If you haven’t seen a neurologist yet, you should see one, and show him your MRI films. — Steven L.

Response:

On 23 Jan 2004 11:35:31 -0800, goyg…@aol.com (goygirl) wrote:

p.s. I dont hink this is a neck problem

Why not?

Response:

I need help and advice with a very serious problem. For about 28 months now, I have had moderate to severe headaches and facial pain. I believed that this stemmed from an unsatisfactory lasik procedure and two dissapointing enhancements that followed shortly thereafter. I encountered boursts of severe pain in the eye in question as well, so I naturally assumed that this was the cause. I saw 3 lasik specialists and they could find nothing that would cause this pain. I was angry and depressed. I have been healthy my whole life and now this pain, every day, and it seemed I had chosen it. About six to eight months ago, the eye pain stopped, but the headaches and the facial pain persisted. I found that no OTC pain med helped me but percocet taken in small doses did take away most of the pain. OK, if noone could help me, I would address the issue with medication. I was concerned with becoming addicted to the drug, but not concerned enough to stop, the pain was too much. I had a brain MRI and went to a couple of doctors but nothing. I was becoming more and more depressed and taking it out on my wife and kid. I decided to rededicate myself to finding out what was wrong. Finally, a nurse practicioner at my Drs office suggested I have a CT of my sinus last week and I did. I was not very hopeful because I didnt seem to have any nasal congestion and almost never get a cold or the flu but what the heck. My symptoms were as follows 1. headache over my eyes from about 2-4 hours after awakening lasting the entire day and night 2. shortness of breath (this just started recently) only in the evening until sleep 3. dizziness, sligh nausea 4. facial pain (I have only recently learned to distinguish this from a headache) Today my NP called me and told me that the CT was abnormal and that I have either nasal polyps and or cysts (3) and she is referring me to an ENT specialist. Today was the happiest and most hopeful day I have had in my life!!!! She is dubious about this being the casuse of all my suffering but I am not. This must be the answer, please let it be. I have read alot in the last 12 hours and I believe this must be it. I cannot go on like this much longer and I have been a terrible father and husband for a long time now, Finally, my question fot the group. Now what??? Should I just go with whatever course of action this unknown Dr. suggests?? I am really desperate for some relief (I even posted on the net for the first time) I dont want to be anything less than aggresive with this problem which has caused me to suffer for so long. Any advice and wisdom from those with knowlede is very much appreciated Thanks, Larry

Response:

He didn’t say if he ever saw a neurologist. I would think that’s at least as important as seeing an ENT. — Steven L. as usual Steve is right again. Steve, did you learn from me or is it vice versa? The headaches he is describing can be cervical. The first division of the trigeminal nerve is affected by cervical stimuli and is felt as a V1 pain. Murray Grossan, M.D. http://www.ent-consult.com

Response:

entcons…@aol.comnospam (ENTconsult) wrote in message <news:20040119011638.22671.00000255@mb-m18.aol.com

… The symptoms you describe are often due to neck problems. Cysts of the sinuses do not give this type of pain. I have seen patients with this history cured by getting their auto seat adjusted, or getting rid of the glare when they type. I would recommend referral to a licensed physical therapist. Murray Grossan, M.D. http://www.ent-consult.com

just a quick follow -up for those who took the time to read my post. Went to the allergist 4 days ago, after much advice, prior to my ent. Tested for alleraies as well as a breathing test. Not much difference before and after the med with the breathing test and was positive for many allergies. Follow-up appt next week for results. ENT yesterday in Phoenix, finally I may get some answers on this facial pain. Gave him my history before he read my CT, tried not to leave anything out. Then he started reading me the results of my CT which I already knew. I asked him if he had read the CT and he said NO, only the report from the drs at the imaging center where it was taken. I explained that I had waited 2 weeks to see him so he could read the CT and I was dissapointed. He said he would order it by courier and call me when he had read it in a couple of days. Very dissapointing. I told him I would go get it and bring it within the hour and he said fine. Anyway when he read it, he said my sinuses looked fairly healthy and he seriously doubted that my facial pain could come from the one polyp on the right side. He gave me some Astelin and Singulair and sent me on my way. Told me to handle it with the allergist, that was where the problem probably lies. I was very dissapointed that there was not something he could spot on the CT. Im back to square one with no help from the astelin in 3 doses but will continue Any suggestions?? p.s. I dont hink this is a neck problem Larry

Response:

All your syptoms I have. I had the CT and it was sinus problems. My ENT put a tiny scope (camera) inside my nose. I have large polyps, The Ct showed a crooked septum and he said my turbinates are large. I seen another ENT for a secound opinion. He said the same thing. He used a nose spreader and a magnifier and said and showed a large polyp and bad irratation. I said I have a CT in my car and should I bring it in for him to look at. He laughed and said he never has a problem being the 2nd opinion Doctor. He looked at it and showed me each area one at a time taking plenty of time. He said it was in the severe class. Left maxillart and tube is completely blocked right side is 1/2. upper somewhat. ect. The pain gets very bad. So now its time to have it done. Get 2 Doctors and ask other people. Ask If the Doctor has done at least 200-300 sinus operations. using FESS. Well good luck

Response:

On Sun, 18 Jan 2004 15:53:40 GMT, Steven Litvintchouk <sdlit…@earthlinkNOSPAM.net

wrote: Before he goes down this track too far: Have you ever heard of any scenario in which Lasik eye surgery could possibly cause chronic sinusitis? The only thing I can think of would be a post-op eye infection, and his surgeons should have spotted that easily.

I could not find anything searching the Internet.

He didn’t say if he ever saw a neurologist. I would think that’s at least as important as seeing an ENT.

I agree. Since he has a complicated problem, if he does not find a likely cause he might consider going to Mayo, which has excellent cross-disciplinary diagnostic approaches, and does not easily give up on a problem until they find the cause. Far too many other providers just rule out one cause at a time, without enough consultation across specialties.

Response:

Don and Steve Yes I did get an MRI by a qualified neurologist and he saw nothing. I might add that I did recieve Punctal Plugs to help with the Dry Eye I experienced. Any chance that may be the problem? They worked wonders for my Dry Eye but I hate to think they were tthe cause of all this pain. I aked my optomotrist friend if there is any possible connection and he said no. Larry

Response:

On 18 Jan 2004 13:13:36 -0800, goyg…@aol.com (goygirl) wrote:

Don and Steve Yes I did get an MRI by a qualified neurologist and he saw nothing. I might add that I did recieve Punctal Plugs to help with the Dry Eye I experienced. Any chance that may be the problem? They worked wonders for my Dry Eye but I hate to think they were tthe cause of all this pain. I aked my optomotrist friend if there is any possible connection and he said no.

Dry Eyes are a common complication of Lasik. They may be asssociated with pain. But one would expect the punctal plugs to help with that, not make it worse. They are very commonly used. I would see what some sinus experts think of the CT scan before anything else….. Pain *above* the eyes could correspond to the ethmoid or possibly frontal sinsuses.. Is that where the polyps are or are the in the maxillary (cheek) sinuses? Really you will know better after seeing the sinus specialist…..

Response:

The symptoms you describe are often due to neck problems. Cysts of the sinuses do not give this type of pain. I have seen patients with this history cured by getting their auto seat adjusted, or getting rid of the glare when they type. I would recommend referral to a licensed physical therapist. Murray Grossan, M.D. http://www.ent-consult.com

Response:

- Hide quoted text — Show quoted text -Don Brady wrote:

On 17 Jan 2004 20:01:09 -0800, goyg…@aol.com (goygirl) wrote: Today my NP called me and told me that the CT was abnormal and that I have either nasal polyps and or cysts (3) and she is referring me to an ENT specialist. Today was the happiest and most hopeful day I have had in my life!!!! She is dubious about this being the casuse of all my suffering but I am not. This must be the answer, please let it be. I have read alot in the last 12 hours and I believe this must be it. I cannot go on like this much longer and I have been a terrible father and husband for a long time now, Finally, my question fot the group. Now what??? Should I just go with whatever course of action this unknown Dr. suggests?? *If* they recommend surgery, I would not go right away with a randomly-chosen surgeon. Because surgery is a major thing, and can *occasionally* go wrong, and is a bit of an art, I would first see also other sinus surgeons, including one or two at a major University medical center, preferably including a conservative one such as Mayo.

Before he goes down this track too far: Have you ever heard of any scenario in which Lasik eye surgery could possibly cause chronic sinusitis? The only thing I can think of would be a post-op eye infection, and his surgeons should have spotted that easily. He didn’t say if he ever saw a neurologist. I would think that’s at least as important as seeing an ENT. — Steven L.

Response:

Author: admin on
Category: Singulair And Flovent
Tags: 1

Prescription Medication Knowledge Base » Side Effects Of Zoloft » zoloft side affects

zoloft side affects

Question:

does anyone here know what the sideaffects of zoloft are? i have been on the 100mg for a week now, well tomorrow it will be. and tonight i felt shaky inside, nervous, but yet i also felt like i was in a coma. i just didn’t want to move. thank you everyone for the great responses.

I also felt shaky..very shaky, and only at a 12.5 dose. It was like drinking 3 pots of coffee. I started at 12.5 mg, then titrated by 12.5 mg per week despite my depression being severe. All that went away. I now take 200mg with no problems and no nervousness. — The charter is available at: http://readystump.algebra.com/~asapm

Response:

Hi, Many of the meds we take do have side effects which usually will go away in time. Some could include anxiety, sleepiness… Could the coma-like state you refer to be depersonalization which is defined as a state in which one no longer perceives the reality of one’s self or one’s environment? smiles, Elise

– The charter is available at: http://readystump.algebra.com/~asapm

Response:

::does anyone here know what the sideaffects of zoloft are? i have been ::on the 100mg for a week now, well tomorrow it will be. and tonight i ::felt shaky inside, nervous, but yet i also felt like i was in a coma. i ::just didn’t want to move. thank you everyone for the great responses. ::yes i know i can’t spell lol. Dear Gina, I really hate listing side effects of a med for fear it will cause someone to anticipate them. I can tell you this, the symptoms you are experiencing are common side effects of Zoloft. They are not dangerous, just very uncomfortable. You do have some options, ask your doctor for a benzo (Xanax, Klonopin, Ativan) to be used while you acclimate to Zoloft. It can really help to tame side-effects. If you find you are just too uncomfortable and your doctor won’t prescribe a benzo, ask him to ‘temporarily’ lower your dose a bit, then wean slowly back to 100 mgs. What was your dose before your doctor increased you to 100mgs? How long had you been on that dose? Feel better soon! Jackie ~*~The glass isn’t half full or half empty… the glass is EMPTY…BONE DRY…NOTHING! ~*~ — The charter is available at: http://readystump.algebra.com/~asapm

Response:

jackie, I am just going to counseling. i started the 50mg about a month ago and went straight to 100mg after that. i started getting tickling feelings and numbness in some places, so now i am back to 50mg. my counselar thinks now maybe bipolar, but i don’t think so. gina – Hide quoted text — Show quoted text – Dear Gina, I really hate listing side effects of a med for fear it will cause someone to anticipate them. I can tell you this, the symptoms you are experiencing are common side effects of Zoloft. They are not dangerous, just very uncomfortable. You do have some options, ask your doctor for a benzo (Xanax, Klonopin, Ativan) to be used while you acclimate to Zoloft. It can really help to tame side-effects. If you find you are just too uncomfortable and your doctor won’t prescribe a benzo, ask him to ‘temporarily’ lower your dose a bit, then wean slowly back to 100 mgs. What was your dose before your doctor increased you to 100mgs? How long had you been on that dose? Feel better soon! Jackie ~*~The glass isn’t half full or half empty… the glass is EMPTY…BONE DRY…NOTHING! ~*~ — The charter is available at: http://readystump.algebra.com/~asapm

– The charter is available at: http://readystump.algebra.com/~asapm

Response:

::I am just going to counseling. i started the 50mg about a month ago and ::went straight to 100mg after that. i started getting tickling feelings ::and numbness in some places, so now i am back to 50mg. my counselar ::thinks now maybe bipolar, but i don’t think so. Dear Gina, A 50mg increase at one time is too much for someone with an anxiety disorder. When it comes to Zoloft, increasing in 12.5 or 25mg increments is the best way to go. If you decide to go for 100mgs, do it slowly. It won’t be so painful. About the Bipolar diagnosis, get a 2nd from a psychiatrist. When we are very anxious and panicky it can mimic other mental disorders, like Bipolar. Didn’ t this therapist tell you last week that she thought you had PTSD? Who is prescribing your Zoloft? Take care, Gina Jackie ~*~Acting like a witch…..Eating 14 chocolate bars…..this isn`t a holiday for — The charter is available at: http://readystump.algebra.com/~asapm

Response:

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Category: Side Effects Of Zoloft
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Prescription Medication Knowledge Base » Eessential Tremor Effexor » TREMORS

TREMORS

Question:

My left arm is really bad. If my right arm goes, I’ll be screwed. I think I tried Baclofen with no effect. Good luck!!! "Tommy Hellesto" <helle…@turbonet.com

wrote in message

news:1018sd857u5ufc5@corp.supernews.com… – Hide quoted text — Show quoted text -

I live in a care center, have gone throug every treatment options–my life is writing — I learned voice and my voice changed – ugh I take 10 mg of baclofin daily — would like to hear from others with tremor problems.

Barb

— b o’hanlon-hellesto spinner of tales/weaver of verse ^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^ ESCAPADES OF MOSTLY IRISH http://www.geocities.com/wiseheart1 POETRY http://family.palouse.net/poetry ESSAYS http://family.palouse.net/mssays/index.html ^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^ ^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^ ^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^

Response:

I live in a care center, have gone throug every treatment options–my life is writing — I learned voice and my voice changed – ugh I take 10 mg of baclofin daily — would like to hear from others with tremor problems. Barb — b o’hanlon-hellesto spinner of tales/weaver of verse ^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^ ESCAPADES OF MOSTLY IRISH http://www.geocities.com/wiseheart1 POETRY http://family.palouse.net/poetry ESSAYS http://family.palouse.net/mssays/index.html ^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^ ^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^ ^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^^

Response:

"Tommy Hellesto" <helle…@turbonet.com

wrote in message <news:1018sd857u5ufc5@corp.supernews.com… I live in a care center, have gone throug every treatment options–my life is writing — I learned voice and my voice changed – ugh I take 10 mg of baclofin daily — would like to hear from others with tremor problems. Barb

hi barb, i have tremor problems, especially with the hands. if you’ve gone through every treatment option, would that include the kinds of things neuros often prescribe for M.S.-related tremor — klonopin, topomax, tegretol? i take no meds specifically for tremor. my neuro said there are different kinds — intention tremor, which he says cannot be treated with meds, and other sorts, the names of which i forget. if the problem is mainly in your hands, you might try either holding the wrist of the shaky hand with the other hand, to steady it, or, i’ve heard that grabbing the shaky arm above the elbow and squeezing with your thumb and forefinger can also get them to stop. i’ve never taken klonopin, because my doc won’t prescribe two benzo’s simultaneously, and painful muscle spasms bother me more than the shakes, so i chose valium over klonopin. but my daughter took it for a while — a hack primary with a prescription pad decided she had an ‘anxiety disorder’ because she was anxious about her final exams, and prescribed it for her. she didn’t shake or tremble at all. he refused to ‘allow’ her to stp taking it, so she cold-turkeyed it without his ok. she’s fine. :-

are there physical therapists in the care center available to you? possibly a PT would have some how-to-deal suggestions, if the meds are not working for you? i used to be a writer as well, and had to gie it up — not because of tremors, but fatigue, mobility, and cognitive reasons. it wasn’t my LIFE, though…just the way i made mylliving. best of luck — tremors can be waaaaay bothersome. rose

Response:

I find that a low dose Beta blocker works well for me. I will sometime add a half of a Xanax or Neurontin(gabapentin) if pain develops with tremors. Jack N Dalton "Essential tremor often does not require treatment. Lifestyle changes, such as reducing stress and avoiding caffeine and alcohol, may improve symptoms. Physical therapy may help reduce essential tremor of the hands, arms, legs, and trunk, and speech therapy may be beneficial for people whose voice is affected. Severe tremor that affects the patient’s ability to perform daily tasks and interferes with their quality of life can be treated with medication or surgery. Medication Severe essential tremor can be reduced using medication in most (approx. 50-75%) cases. Beta-blockers, such as propranolol (Indural

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Category: Eessential Tremor Effexor
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Prescription Medication Knowledge Base » Zoloft Dose » Going through a hard time after many years

Going through a hard time after many years

Question:

Hi Everyone, my name is Augest. I am twenty nine and i have panic disorder and ocd sinc the age of 11. I was on zoloft fot eight years and recently weaned myself off to try and go it alone. A week ago all my symptoms returned and I have been having attacks 24/7 since then. I am so despondent. I had to drop my online college course, put my part time job on hold and delay my business I’m working on starting. All I can do is have attacks. I’m waiting for the zoloft to kick in, but I feel like a failure for having to go back on it. I have a feeling I will have to be on medication for the rest of my life if I am going to be able to function. I am so sad. Was I stupid to try and go it alone? Has anyone else tried and failed? Please write to me, as I need someone to talk to who understands. Always, Augest

Response:

Oh yeah, I am dealing with this right now. Putting the job on hold, med changes, etc. Actually, I did try to wean myself off of my AD a couple of times and not with good results. You are not a failure because you need medication. Would someone call I diabetic a failure? No. You are going to be fine. If you need your medication, there is nothing wrong at all with it. Good Luck, Vicki

Response:

Hi Augest! You could take a benzodiazepine such as Xanax for your current panic attacks until the Zoloft kicks in. Bet you wouldn’t feel like a failure if you had to go back on a blood pressure or diabetes med. You might be disappointed, but you wouldn’t feel like a failure. I have a feeling I will have to be on medication for the rest of my life if I am going to be able to function.

You never know. At this point in time, you have to go back on. I am so sad. Was I stupid to try and go it alone? Has anyone else tried and failed? Please write to me, as I need someone to talk to who understands.

I’ve tried to discontinue meds for panic disorder and depression on several occasions, but find I do best on a combo of Zoloft, desipramine, and Klonopin. Otherwise I start having panic attacks when driving on the freeway and start getting depressed. I’ve been on Zoloft for 10 years, desipramine for about 5 years, and Klonopin for 16 years. I have tried to discontinue all of these meds on one or more occasions and found I needed to stay on them. I think it’s a good idea to try to see how one does off a med from time to time. Also I have always tried to get down to the minimal effective dose for every med I’m on. Always, Augest

Take care (((Augest))) Chip

Response:

I think it’s a good idea to try to see how one does off a med from time to time. Also I have always tried to get down to the minimal effective dose for every med I’m on. Take care (((Augest))) Chip

I think you are right, Chip. A minimal dose is best. I sometimes wonder what this drug is doing to my body longterm which is why I wanted off. I’m taking xanax as I wait for the zoloft to kick in, but it is not working as effectiely as it used to in combating the panic attacks. I wish I knew why. Used to be I’d take one pill and sleep like a baby, now it barely effects me. I guess I’m in for a lot of long nights ahead. – Hide quoted text — Show quoted text -Augest

Response:

I think it’s a good idea to try to see how one does off a med from time to time. Also I have always tried to get down to the minimal effective dose for every med I’m on. I think you are right, Chip. A minimal dose is best. I sometimes wonder what this drug is doing to my body longterm which is why I wanted off.

That’s understandable. Don’t forget about the adverse effects untreated long term anxiety and depression can have on the body. To say nothing of all the suffering. I’m taking xanax as I wait for the zoloft to kick in, but it is not working as effectiely as it used to in combating the panic attacks. I wish I knew why.

Maybe when the Zoloft was in effect, you needed less Xanax for anxiety relief. Currently your baseline anxiety level is way up, so you need more Xanax. That should change once the Zoloft kicks in. Used to be I’d take one pill and sleep like a baby, now it barely effects me. I guess I’m in for a lot of long nights ahead.

I’d use the Xanax in generous enough doses to knock the anxiety level way down and block panic attacks untill the Zoloft kicks in. Chip

Response:

Hi Augest, I’ve been where you are now. I tried lowering my Zoloft dose a few times to see if I still needed it. The panic attacks did return at the lower dose. Your body is adjusting to the Zoloft now and that may be adding to your anxiety. How much Zoloft are you starting at ? Your "ride" may be smoother if you gradually go up in 50 mg increments every 2 weeks. If you’re in a hurry and can "tough it out", then maybe you can go up in higher doses. Follow your doctor’s directions and keep him/her updated. Maybe you need a benzo like clonazepam or xanax to relieve your anxiety right now. Tell your doc how you’re feeling and see what he/she recommends. Take it easy : ) Tony

Response:

Maybe you need a benzo like clonazepam or xanax to relieve your anxiety right now. Tell your doc how you’re feeling and see what he/she recommends. Take it easy : ) Tony

Hi Tony, I got the xanax, but it isn’t as effective on me as it used to be. I’m trying to tough this out. I’m hoping I can keep my zoloft levels low. I started at 50mg two days ago. I can feel the zoloft trying to work, but there just isn’t enough of it in my system yet to be effective. My doctor said the same thing as you, to increase in two weeks. I’m going to do that. I’d like to stay under my old dose of 100mg though. I didn’t like the side effects. We’ll see what happens. Thanks for the support. – Hide quoted text — Show quoted text -Augest

Response:

Hi Augest, I’d hate to throw a monkey wrench into your progress but I have made the switch from Zoloft to Effexor XR because it seemed that Zoloft had stopped working after about 6 years. This probably won’t happen to you. I may have just been completely burned out from constant stress at work for many years. Anyway, I have found that Effexor XR is a very smooth med, does not mute my emotions and doesn’t have sexual side effects. That’s my case, it may not be the same for you. For instance, I initially went from Zoloft to Lexapro and was incredibly tired all the time from the Lexapro. You may fare well on Lexapro. Effexor XR is an SNRI (Serotonin and Norepinephrine Reuptake Inhibitor). Good luck with the Zoloft. 100 mg was my therapeutic dose although I did have some success at 50 mg when my stress levels were low. Tony

Response:

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Category: Zoloft Dose
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Prescription Medication Knowledge Base » Do Xanax And Zoloft Hinder Libido » new shrink? advice Pls

new shrink? advice Pls

Question:

— Andy

– Hide quoted text — Show quoted text – Hi Andy, I’ve seen three "shrinks" and all three give me something different to work with. Each one though fizzled out, couldn’t get much more after the first few visits. YMMV and IME Charla Hi Guy’s I’m starting to think that maybe I should find a new shrink. I pretty much have everything sorted out now, I can deal with the PA’s if I have to, and if I don’t have to, or don’t feel like sitting through one I go home….. to easy. I’ve got off the Xanax and Zoloft which was only making me worse and am now on Luvox and serapax, which works great. So everything is pretty cruzzy apart from the odd up and down. The problem I’m stuck with now I guess is best described as mild depression / mild constant background anxiety / mild emotional distress, no big problem, just slightly annoying. The thing is, I go to the Pdoc every week and go "this is how I feel and this is what’s going on ect" , but I don’t seem to be getting any new answers. Its always, take the meds, go to places for exposure and desensitisation of the PA’s, CBT, exercise, meditate and stop yourself as soon as you start getting in to any negative thought patterns. I feel like I talk, he listens, but doesn’t say much and what he does say I already know, and am doing it. Should I be getting more answers, and more response from him? or is that about all there is to it…. just keep going as I am and give things more time? The reason I’m asking is because I don’t want to spend more time and money building a repour with new Pdoc’s if the answers are going to be the same. Thanks. — Andy

Response:

- Hide quoted text — Show quoted text – Its always, take the meds, go to places for exposure and desensitisation of the PA’s, CBT, exercise, meditate and stop yourself as soon as you start getting in to any negative thought patterns. I feel like I talk, he listens, but doesn’t say much and what he does say I already know, and am doing it. Should I be getting more answers, and more response from him? or is that about all there is to it…. just keep going as I am and give things more time? The reason I’m asking is because I don’t want to spend more time and money building a repour with new Pdoc’s if the answers are going to be the same. Thanks. — Andy

dump him therapy is a collaborative event that is involving and goal oriented-listening is not productive to getting things done-the goal is to learn coping techniques and various ways to recover. LM

Response:

Dear Andy, In my experience it has always been the same. I went to this one shrink. 12 visits and each time it was the same. I listened to him describe HIS phobias. I’d love to splash his name all over the place, but i won’t. What did help me was group therapy. Have you tried this? If not you may want to check it out Debbie

Response:

- Hide quoted text — Show quoted text – Hi Guy’s I’m starting to think that maybe I should find a new shrink. I pretty much have everything sorted out now, I can deal with the PA’s if I have to, and if I don’t have to, or don’t feel like sitting through one I go home….. to easy. I’ve got off the Xanax and Zoloft which was only making me worse and am now on Luvox and serapax, which works great. So everything is pretty cruzzy apart from the odd up and down. The problem I’m stuck with now I guess is best described as mild depression / mild constant background anxiety / mild emotional distress, no big problem, just slightly annoying. The thing is, I go to the Pdoc every week and go "this is how I feel and this is what’s going on ect" , but I don’t seem to be getting any new answers. Its always, take the meds, go to places for exposure and desensitisation of the PA’s, CBT, exercise, meditate and stop yourself as soon as you start getting in to any negative thought patterns. I feel like I talk, he listens, but doesn’t say much and what he does say I already know, and am doing it. Should I be getting more answers, and more response from him? or is that about all there is to it…. just keep going as I am and give things more time? The reason I’m asking is because I don’t want to spend more time and money building a repour with new Pdoc’s if the answers are going to be the same. Thanks. — Andy

I agree with his referral to CBT. It seems just what you need now. I am glad that you

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Category: Do Xanax And Zoloft Hinder Libido
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Prescription Medication Knowledge Base » Effexor Xr With » Get on Chocolate!

Get on Chocolate!

Question:

I am not sure why I am telling all of you this, I guess I am ready to have some of you know you are not alone in this misery, it may manifest itself in different ways but we are all in a place that isn’t funny…my rants or laughter at most craziness in my life is just a way for me to cope with all the crap that has happened.

Thankyou Cherly I am not sure why you posted this but I am glad you did. I have posted some off my hell here and revealed a bit more on anx/pan. One day I hope to be able to reveal all off me but I am not ready for that yet. A big milestone for me was putting my pic on the ASAP gallery. I love your posts and your very naturalness, your pure humanity. Simon

Response:

guarding angel. Love Cathy — P.H.O.B.I.A. People Helping Others Become Independent Again Off-line Self Help Support Group, NJ http://community.nj.com/cc/phobia Anxiety Treatment Options http://www.members.tripod.com/~PhobiaGroup/index.html

– Hide quoted text — Show quoted text – It started when they put a big fat tube in my abdominal cavityfor peritoneal dialysis…then when things got bad(I got very very ill) they put a nice catheter in my upper chest and told me not to get that wet(infection) so taking a shower was not an option…For some reason, don’t ask my why,I became so germophobic with all of these tubes hanging out of me and recent surgery on my left arm(to make an access for hemodialysis) just rendered me simple. I made my step dad take out the shower doors and then we put up a curtain and I would hand shower with the thing open freezing my ass off but that is how I did it. It took me HOURS to get into the shower, I had to pop pain pills after awhile to escape the fear and quirks I was developing. I finally would have such a "icky" phobia I could barely touch Christa, Ted, any human or any surface..I would just have others help out while I sat and rocked in my chair. It was a hell I will never go back to I don’t care what I have to take or do. Finally I made myself just get in there and that took a long time to conquer, the removal of all tubes was of course, another breakthrough. While I was doing this I was digging at my head, tearing my head up just to feel something. I had so many sores on my head I had to let my hair grow long as I couldn’t even brush it. Only Margrove and a couple of others knows this. He helped me get over through it and it’s nice to have my hair short and my head free of pain. It hurt me so much I would get migraines I would wake up with blood everywhere…my poor husband was just at a loss. So when some idiot tells me I should kick the benzo or SSRI thing I just want to take him back to the time I sat in a chair every day for a fucking year with bloody nails, dirty body and depression that was leading to suicide and make him or her sit with me. I wish more than anything I could have done it myself or without meds, but I couldn’t. But yes, you are not alone with the shower thing… I am so happy to be as far as I am. I am thankful to God that I can run my hands through my hair and not feel potholes of blood. I am not sure why I am telling all of you this, I guess I am ready to have some of you know you are not alone in this misery, it may manifest itself in different ways but we are all in a place that isn’t funny…my rants or laughter at most craziness in my life is just a way for me to cope with all the crap that has happened. Cheryl love, you *have* come a very long way indeed…..you’re a real survivor and such a sweet and witty and lovable person. It’s a joy to know you. Our learned friend Margrove – sometimes it *must* be said – is a true marvel. He helped so many here both in public and in private email… we had *professionals* here before but never like this, engaging into ASAP dynamics and giving so much without ever being patronizing and you can even have fun with him. I’ll stop here because otherwise he might get too big for his boots <g but I think we all should realize what a true *treasure* we have for a friend…. Philip — TC3 ~~snipped~~ I would spend six hours trying to get into my shower and probably spend the rest of my life in this condo without ever leaving. Ahhhh, so I am NOT strange to hate the shower now!! I feel much better knowing it isn’t just me! R Til Later…. ~~R "What makes us discontented with our condition is the absurdly exaggerated idea we have of the happiness of others" -Proverbs

Response:

Oh Cheryl honey, I never knew things were that bad for you. I commend you on your openness and courage. These anti-benzo people have no idea how they are effecting us. Right now I am tapering off Effexor XR with the help of a Benzo, if I didn’t have my Xanax I would be in the ER every night. Love Ya Cathy — P.H.O.B.I.A. People Helping Others Become Independent Again Off-line Self Help Support Group, NJ http://community.nj.com/cc/phobia Anxiety Treatment Options http://www.members.tripod.com/~PhobiaGroup/index.html

– Hide quoted text — Show quoted text – It started when they put a big fat tube in my abdominal cavityfor peritoneal dialysis…then when things got bad(I got very very ill) they put a nice catheter in my upper chest and told me not to get that wet(infection) so taking a shower was not an option…For some reason, don’t ask my why,I became so germophobic with all of these tubes hanging out of me and recent surgery on my left arm(to make an access for hemodialysis) just rendered me simple. I made my step dad take out the shower doors and then we put up a curtain and I would hand shower with the thing open freezing my ass off but that is how I did it. It took me HOURS to get into the shower, I had to pop pain pills after awhile to escape the fear and quirks I was developing. I finally would have such a "icky" phobia I could barely touch Christa, Ted, any human or any surface..I would just have others help out while I sat and rocked in my chair. It was a hell I will never go back to I don’t care what I have to take or do. Finally I made myself just get in there and that took a long time to conquer, the removal of all tubes was of course, another breakthrough. While I was doing this I was digging at my head, tearing my head up just to feel something. I had so many sores on my head I had to let my hair grow long as I couldn’t even brush it. Only Margrove and a couple of others knows this. He helped me get over through it and it’s nice to have my hair short and my head free of pain. It hurt me so much I would get migraines I would wake up with blood everywhere…my poor husband was just at a loss. So when some idiot tells me I should kick the benzo or SSRI thing I just want to take him back to the time I sat in a chair every day for a fucking year with bloody nails, dirty body and depression that was leading to suicide and make him or her sit with me. I wish more than anything I could have done it myself or without meds, but I couldn’t. But yes, you are not alone with the shower thing… I am so happy to be as far as I am. I am thankful to God that I can run my hands through my hair and not feel potholes of blood. I am not sure why I am telling all of you this, I guess I am ready to have some of you know you are not alone in this misery, it may manifest itself in different ways but we are all in a place that isn’t funny…my rants or laughter at most craziness in my life is just a way for me to cope with all the crap that has happened. — TC3 ~~snipped~~ I would spend six hours trying to get into my shower and probably spend the rest of my life in this condo without ever leaving. Ahhhh, so I am NOT strange to hate the shower now!! I feel much better knowing it isn’t just me! R Til Later…. ~~R "What makes us discontented with our condition is the absurdly exaggerated idea we have of the happiness of others" -Proverbs

Response:

Hi, Dot, Squid – YUK! but I have always said whatever it would take to overcome pd would be something I would do – even if it meant squid… You know what I mean. smiles, elise

– Hide quoted text — Show quoted text – {{{{{Dot}}}}}} Could you imagine ingesting squid when the PA hit? GAG. Thank you Dot, coming from you makes this special. And you know what, all of you could do what I did, it took a lot of praying, yakking away on here and of course, bugging Margrove to death. :o) Love Cheryl — TC3 If squid with Grey Poupon(sp) on rice cakes cured this misery, I would eat it three times a day. IF Snickers was a cure…oh my…I won’t even go there! I think we are all unique, some can do this without meds, some of us can’t, I can’t. If I go off at this point I will end up doing a destructive behavior that was difficult to stop, I would spend six hours trying to get into my shower and probably spend the rest of my life in this condo without ever leaving. Fuck that(excuse my dirty mouth) I will stick to my meds until *I* know it’s time to try to fly alone. That may not be ever so I am willing to deal with THAT later. I have been through too much in the physical sense too and with that came issues of dying and other life threatening scenes, if ativan and remeron keep me from living and not dwelling on dying then so be it. And yes, laughter is the very best medicine and VERY addicting… :o) — TC3 sorry to make light, just trying to make you all laugh a bit. We are all so differently made, unique in many ways, isn’t that the fun part of the human race? Again, many different kinds of people with varied pasts and experiences.. .many differently types of treatments, therapies, and meds. Hmmm. . . . — David (swirling_eddies) Very well spoken, Cheryl. Dealing with your physical problems in addition to PD would be more than I could take, I’m afraid. We are so lucky to live at a time when there are good meds (and good transplants)! I don’t know about the squid though… Love, Dot Before you buy.

Response:

- Hide quoted text — Show quoted text – It started when they put a big fat tube in my abdominal cavityfor peritoneal dialysis…then when things got bad(I got very very ill) they put a nice catheter in my upper chest and told me not to get that wet(infection) so taking a shower was not an option…For some reason, don’t ask my why,I became so germophobic with all of these tubes hanging out of me and recent surgery on my left arm(to make an access for hemodialysis) just rendered me simple. I made my step dad take out the shower doors and then we put up a curtain and I would hand shower with the thing open freezing my ass off but that is how I did it. It took me HOURS to get into the shower, I had to pop pain pills after awhile to escape the fear and quirks I was developing. I finally would have such a "icky" phobia I could barely touch Christa, Ted, any human or any surface..I would just have others help out while I sat and rocked in my chair. It was a hell I will never go back to I don’t care what I have to take or do. Finally I made myself just get in there and that took a long time to conquer, the removal of all tubes was of course, another breakthrough. While I was doing this I was digging at my head, tearing my head up just to feel something. I had so many sores on my head I had to let my hair grow long as I couldn’t even brush it. Only Margrove and a couple of others knows this. He helped me get over through it and it’s nice to have my hair short and my head free of pain. It hurt me so much I would get migraines I would wake up with blood everywhere…my poor husband was just at a loss. So when some idiot tells me I should kick the benzo or SSRI thing I just want to take him back to the time I sat in a chair every day for a fucking year with bloody nails, dirty body and depression that was leading to suicide and make him or her sit with me. I wish more than anything I could have done it myself or without meds, but I couldn’t. But yes, you are not alone with the shower thing… I am so happy to be as far as I am. I am thankful to God that I can run my hands through my hair and not feel potholes of blood. I am not sure why I am telling all of you this, I guess I am ready to have some of you know you are not alone in this misery, it may manifest itself in different ways but we are all in a place that isn’t funny…my rants or laughter at most craziness in my life is just a way for me to cope with all the crap that has happened.

Cheryl love, you *have* come a very long way indeed…..you’re a real survivor and such a sweet and witty and lovable person. It’s a joy to know you. Our learned friend Margrove – sometimes it *must* be said – is a true marvel. He helped so many here both in public and in private email… we had *professionals* here before but never like this, engaging into ASAP dynamics and giving so much without ever being patronizing and you can even have fun with him. I’ll stop here because otherwise he might get too big for his boots <g but I think we all should realize what a true *treasure* we have for a friend…. Philip – Hide quoted text — Show quoted text – — TC3 ~~snipped~~ I would spend six hours trying to get into my shower and probably spend the rest of my life in this condo without ever leaving. Ahhhh, so I am NOT strange to hate the shower now!! I feel much better knowing it isn’t just me! R Til Later…. ~~R "What makes us discontented with our condition is the absurdly exaggerated idea we have of the happiness of others" -Proverbs

Response:

Rita, From what I understand you start with a small dose – perhaps 1 Milky Way a day for 2 or 3 days then up the dose until you are feeling human again (Cheryl, Snickers can be used in place of the Milky Way)… Unfortunately, you must do this for the rest of your life if you like it or not! smiles, Elise

– Hide quoted text — Show quoted text – Dear Eddie, oops, David…you said "get on chocolate." Is that some sort of new med? How long does it take to work and are there any side- effects? What is the starting dose and will I become addicted to it? Inquiring minds want to know. Love, Rita sorry to make light, just trying to make you all laugh a bit. We are all so differently made, unique in many ways, isn’t that the fun part of the human race? Again, many different kinds of people with varied pasts and experiences.. .many differently types of treatments, therapies, and meds. Hmmm. . . . — David (swirling_eddies) Before you buy.

Response:

Cheryl, Your post is very sad but I appreciate the honesty and trust you have shared with us. I am sorry you had to deal with such a difficult and ugly period in your life. I totally agree, if it weren’t for meds I might as well not be here… Life is easier to live with the meds but deep down inside of me everyday I wish I didn’t have to take them but it is a small price to pay for some happiness. You have beenthrough SO much and I am proud of how you have handled everything life has sent your way. smiles, elise

– Hide quoted text — Show quoted text – It started when they put a big fat tube in my abdominal cavityfor peritoneal dialysis…then when things got bad(I got very very ill) they put a nice catheter in my upper chest and told me not to get that wet(infection) so taking a shower was not an option…For some reason, don’t ask my why,I became so germophobic with all of these tubes hanging out of me and recent surgery on my left arm(to make an access for hemodialysis) just rendered me simple. I made my step dad take out the shower doors and then we put up a curtain and I would hand shower with the thing open freezing my ass off but that is how I did it. It took me HOURS to get into the shower, I had to pop pain pills after awhile to escape the fear and quirks I was developing. I finally would have such a "icky" phobia I could barely touch Christa, Ted, any human or any surface..I would just have others help out while I sat and rocked in my chair. It was a hell I will never go back to I don’t care what I have to take or do. Finally I made myself just get in there and that took a long time to conquer, the removal of all tubes was of course, another breakthrough. While I was doing this I was digging at my head, tearing my head up just to feel something. I had so many sores on my head I had to let my hair grow long as I couldn’t even brush it. Only Margrove and a couple of others knows this. He helped me get over through it and it’s nice to have my hair short and my head free of pain. It hurt me so much I would get migraines I would wake up with blood everywhere…my poor husband was just at a loss. So when some idiot tells me I should kick the benzo or SSRI thing I just want to take him back to the time I sat in a chair every day for a fucking year with bloody nails, dirty body and depression that was leading to suicide and make him or her sit with me. I wish more than anything I could have done it myself or without meds, but I couldn’t. But yes, you are not alone with the shower thing… I am so happy to be as far as I am. I am thankful to God that I can run my hands through my hair and not feel potholes of blood. I am not sure why I am telling all of you this, I guess I am ready to have some of you know you are not alone in this misery, it may manifest itself in different ways but we are all in a place that isn’t funny…my rants or laughter at most craziness in my life is just a way for me to cope with all the crap that has happened. — TC3 ~~snipped~~ I would spend six hours trying to get into my shower and probably spend the rest of my life in this condo without ever leaving. Ahhhh, so I am NOT strange to hate the shower now!! I feel much better knowing it isn’t just me! R Til Later…. ~~R "What makes us discontented with our condition is the absurdly exaggerated idea we have of the happiness of others" -Proverbs

Response:

– TC3

– Hide quoted text — Show quoted text – | If squid with Grey Poupon(sp) on rice cakes cured | this misery, I would eat it three times a day. | IF Snickers was a cure…oh my…I won’t even | go there! I think we are all unique, some can | do this without meds, some of us can’t, I can’t. | If I go off at this point I will end up doing a destructive | behavior that was difficult to stop, I would spend | six hours trying to get into my shower and probably | spend the rest of my life in this condo without ever | leaving. Fuck that(excuse my dirty mouth) I will | stick to my meds until *I* know it’s time to | try to fly alone. That may not be ever so I am | willing to deal with THAT later. I have been | through too much in the physical sense too and | with that came issues of dying and other life | threatening scenes, if ativan and remeron keep | me from living and not dwelling on dying then | so be it. And yes, laughter is the very best medicine | and VERY addicting… :o) | | — | TC3 Cheryl:

No squid? LOL I hate it myself… I choose to take the benzo’s because they are giving me a vacation from the terror inside and giving my pdoc time to address the causative issues.

Exactly! I am not seeing anyone right now…but I think the whole being sick thing and my daughter being sick thing was my triggers for this problem…. Don’t worry about the dirty mouth, I am sure your teeth are clean, and sometimes, that’s the only way to get the point across.

I brush frequently and floss like a maniac. Happy Harry Drug stores(in Del) have this floss that lasts for like twenty years and the box is the SAME size as the normal stuff…and I floss constantly~ My mom is always saying, "you are such a nice funny girl, do you have to say fuck all of the time?" I can’t help it. It’s like saying "the" or "of" you know? Damn. Hell. Shit. Poop. Kaka. Dirt. Mud. Manure. Peepee. Air Pollution. Rat shit, damnit, crap.

Reminds me of a George Carlin cheer we use to say in nursing school, Rat shit bat shit dirty old twat(I wince here) 69 assholes tied in a knot hurray lizard shit FUCK~ All of the above are only apart of how I feel about this disorder and the pain it has caused millions.

Ugh, I hate this more than I hated dialysis, believe me. Rock on girl!

Like a rolling stone, You too ~~~~ Keep the fun on ASAP, it keeps our sanity. Love Cheryl – Hide quoted text — Show quoted text – David

Response:

Chocolate is addicting…… )) Love Cathy — P.H.O.B.I.A. People Helping Others Become Independent Again Off-line Self Help Support Group, NJ http://community.nj.com/cc/phobia Anxiety Treatment Options http://www.members.tripod.com/~PhobiaGroup/index.html – Hide quoted text — Show quoted text – sorry to make light, just trying to make you all laugh a bit. We are all so differently made, unique in many ways, isn’t that the fun part of the human race? Again, many different kinds of people with varied pasts and experiences.. .many differently types of treatments, therapies, and meds. Hmmm. . . . — David (swirling_eddies)

Response:

I just went to the store for milk and got two big ones…(Snickers that is! ) Love Cheryl — TC3

– Hide quoted text — Show quoted text – | Dear Eddie, oops, David…you said "get on chocolate." Is that some | sort of new med? How long does it take to work and are there any side- | effects? What is the starting dose and will I become addicted to it? | Inquiring minds want to know. | | Love, | Rita | | Dear Silver, I mean Rita: The great thing about chocolate is that you never are addicted in any way, although it might affect your shape and form depending on what dosage you take. The other great thing about chocolate is that there are so many varieties and combinations, just about everyone can be satisfied. Furthermore, all medical evidence from years of study of chocolate lovers tell us that it not only increases the amount of endorphins in our body, but is an aphrodisiac as well. Finally, chocolate has no side effects, no nausea (unless you eat too much), no dizziness (unless taken with wine after great sex), no disorientation (unless you are trying to unwrap a Hershey’s Kiss on the highway), does not cause sleeplessness (unless you take with a Coke while watching a horror movie and you realize you just ate the whole one pound bag of kisses in fear), and is generally prescribed by doctors, chiropractors, religious leaders, philosophers, educators, and everyone else, with the exception of dentists, of whom we all hate and fear anyway because they usually know NOTHING of panic disorder to begin with thereby nullifying their inclusion into our group of those who see the vital and necessary place the chocolate plays in our lives. Ahhhh, Toblerone. . .Snickers. . .Kisses. . . .Crunch. . .Chocolate Sheet Cake. . . Chocolate Meringue Pie. . .Chocolate Covered Cherries. . . Cherry Covered Chocolate. . Cereal. . . Chocolate Cover Xanax. . . The lust, I mean list goes on and on. David ps: the only drawback. . .weight and see

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OH Rita, one big fat Snickers oughta do it!! Cheryl xo — TC3

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Seeing him in person was quite a treat…I never laughed so hard. — TC3 – Hide quoted text — Show quoted text – I love George Carlin. He is the Gary Larson of comics. David

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{{{{{Dot}}}}}} Could you imagine ingesting squid when the PA hit? GAG. Thank you Dot, coming from you makes this special. And you know what, all of you could do what I did, it took a lot of praying, yakking away on here and of course, bugging Margrove to death. :o) Love Cheryl — TC3

– Hide quoted text — Show quoted text – If squid with Grey Poupon(sp) on rice cakes cured this misery, I would eat it three times a day. IF Snickers was a cure…oh my…I won’t even go there! I think we are all unique, some can do this without meds, some of us can’t, I can’t. If I go off at this point I will end up doing a destructive behavior that was difficult to stop, I would spend six hours trying to get into my shower and probably spend the rest of my life in this condo without ever leaving. Fuck that(excuse my dirty mouth) I will stick to my meds until *I* know it’s time to try to fly alone. That may not be ever so I am willing to deal with THAT later. I have been through too much in the physical sense too and with that came issues of dying and other life threatening scenes, if ativan and remeron keep me from living and not dwelling on dying then so be it. And yes, laughter is the very best medicine and VERY addicting… :o) — TC3 sorry to make light, just trying to make you all laugh a bit. We are all so differently made, unique in many ways, isn’t that the fun part of the human race? Again, many different kinds of people with varied pasts and experiences.. .many differently types of treatments, therapies, and meds. Hmmm. . . . — David (swirling_eddies) Very well spoken, Cheryl. Dealing with your physical problems in addition to PD would be more than I could take, I’m afraid. We are so lucky to live at a time when there are good meds (and good transplants)! I don’t know about the squid though… Love, Dot Before you buy.

Response:

It started when they put a big fat tube in my abdominal cavityfor peritoneal dialysis…then when things got bad(I got very very ill) they put a nice catheter in my upper chest and told me not to get that wet(infection) so taking a shower was not an option…For some reason, don’t ask my why,I became so germophobic with all of these tubes hanging out of me and recent surgery on my left arm(to make an access for hemodialysis) just rendered me simple. I made my step dad take out the shower doors and then we put up a curtain and I would hand shower with the thing open freezing my ass off but that is how I did it. It took me HOURS to get into the shower, I had to pop pain pills after awhile to escape the fear and quirks I was developing. I finally would have such a "icky" phobia I could barely touch Christa, Ted, any human or any surface..I would just have others help out while I sat and rocked in my chair. It was a hell I will never go back to I don’t care what I have to take or do. Finally I made myself just get in there and that took a long time to conquer, the removal of all tubes was of course, another breakthrough. While I was doing this I was digging at my head, tearing my head up just to feel something. I had so many sores on my head I had to let my hair grow long as I couldn’t even brush it. Only Margrove and a couple of others knows this. He helped me get over through it and it’s nice to have my hair short and my head free of pain. It hurt me so much I would get migraines I would wake up with blood everywhere…my poor husband was just at a loss. So when some idiot tells me I should kick the benzo or SSRI thing I just want to take him back to the time I sat in a chair every day for a fucking year with bloody nails, dirty body and depression that was leading to suicide and make him or her sit with me. I wish more than anything I could have done it myself or without meds, but I couldn’t. But yes, you are not alone with the shower thing… I am so happy to be as far as I am. I am thankful to God that I can run my hands through my hair and not feel potholes of blood. I am not sure why I am telling all of you this, I guess I am ready to have some of you know you are not alone in this misery, it may manifest itself in different ways but we are all in a place that isn’t funny…my rants or laughter at most craziness in my life is just a way for me to cope with all the crap that has happened. — TC3

~~snipped~~ I would spend six hours trying to get into my shower and probably spend the rest of my life in this condo without ever leaving. Ahhhh, so I am NOT strange to hate the shower now!! I feel much better knowing it isn’t just me! R Til Later…. ~~R "What makes us discontented with our condition is the absurdly exaggerated

idea we have of the happiness of others" -Proverbs

Response:

LOLOLOLOLOLOLOL….this is too good not to print up. You are so special and I love your sense of humor. This is definitely going in my Favorites File. Love, Rita

disorientation (unless – Hide quoted text — Show quoted text – you are trying to unwrap a Hershey’s Kiss on the highway), does not cause sleeplessness (unless you take with a Coke while watching a horror movie and you realize you just ate the whole one pound bag of kisses in fear), and is generally prescribed by doctors, chiropractors, religious leaders, philosophers, educators, and everyone else, with the exception of dentists, of whom we all hate and fear anyway because they usually know NOTHING of panic disorder to begin with thereby nullifying their inclusion into our group of those who see the vital and necessary place the chocolate plays in our lives. Ahhhh, Toblerone. . .Snickers. . .Kisses. . . .Crunch. . .Chocolate Sheet Cake. . . Chocolate Meringue Pie. . .Chocolate Covered Cherries. . . Cherry Covered Chocolate. . Cereal. . . Chocolate Cover Xanax. . . The lust, I mean list goes on and on. David ps: the only drawback. . .weight and see

Before you buy.

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OH YEA!!!! LOL Di

Response:

| Dear Eddie, oops, David…you said "get on chocolate." Is that some | sort of new med? How long does it take to work and are there any side- | effects? What is the starting dose and will I become addicted to it? | Inquiring minds want to know. | | Love, | Rita | | Dear Silver, I mean Rita: The great thing about chocolate is that you never are addicted in any way, although it might affect your shape and form depending on what dosage you take. The other great thing about chocolate is that there are so many varieties and combinations, just about everyone can be satisfied. Furthermore, all medical evidence from years of study of chocolate lovers tell us that it not only increases the amount of endorphins in our body, but is an aphrodisiac as well. Finally, chocolate has no side effects, no nausea (unless you eat too much), no dizziness (unless taken with wine after great sex), no disorientation (unless you are trying to unwrap a Hershey’s Kiss on the highway), does not cause sleeplessness (unless you take with a Coke while watching a horror movie and you realize you just ate the whole one pound bag of kisses in fear), and is generally prescribed by doctors, chiropractors, religious leaders, philosophers, educators, and everyone else, with the exception of dentists, of whom we all hate and fear anyway because they usually know NOTHING of panic disorder to begin with thereby nullifying their inclusion into our group of those who see the vital and necessary place the chocolate plays in our lives. Ahhhh, Toblerone. . .Snickers. . .Kisses. . . .Crunch. . .Chocolate Sheet Cake. . . Chocolate Meringue Pie. . .Chocolate Covered Cherries. . . Cherry Covered Chocolate. . Cereal. . . Chocolate Cover Xanax. . . The lust, I mean list goes on and on. David ps: the only drawback. . .weight and see

Response:

~~snipped~~ I would spend six hours trying to get into my shower and probably spend the rest of my life in this condo without ever leaving.

Ahhhh, so I am NOT strange to hate the shower now!! I feel much better knowing it isn’t just me! R Til Later…. ~~R "What makes us discontented with our condition is the absurdly exaggerated idea we have of the happiness of others" -Proverbs

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I love George Carlin. He is the Gary Larson of comics. David

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sorry to make light, just trying to make you all laugh a bit. We are all so differently made, unique in many ways, isn’t that the fun part of the human race? Again, many different kinds of people with varied pasts and experiences.. .many differently types of treatments, therapies, and meds. Hmmm. . . . — David (swirling_eddies)

Yea, what a bunch!!! Just kidding. This is a great bunch we have here. Hugs, Di

Response:

Dear Eddie, oops, David…you said "get on chocolate." Is that some sort of new med? How long does it take to work and are there any side- effects? What is the starting dose and will I become addicted to it? Inquiring minds want to know. Love, Rita sorry to make light, just trying to make you all laugh a bit. We are all so differently made, unique in many ways, isn’t that the fun part of the human race? Again, many different kinds of people with varied pasts and experiences.. .many differently types of treatments, therapies, and meds. Hmmm. . . . — David (swirling_eddies)

Before you buy.

Response:

Very well spoken, Cheryl. Dealing with your physical problems in addition to PD would be more than I could take, I’m afraid. We are so lucky to live at a time when there are good meds (and good transplants)! I don’t know about the squid though… Love, Dot Before you buy.

Response:

| If squid with Grey Poupon(sp) on rice cakes cured | this misery, I would eat it three times a day. | IF Snickers was a cure…oh my…I won’t even | go there! I think we are all unique, some can | do this without meds, some of us can’t, I can’t. | If I go off at this point I will end up doing a destructive | behavior that was difficult to stop, I would spend | six hours trying to get into my shower and probably | spend the rest of my life in this condo without ever | leaving. Fuck that(excuse my dirty mouth) I will | stick to my meds until *I* know it’s time to | try to fly alone. That may not be ever so I am | willing to deal with THAT later. I have been | through too much in the physical sense too and | with that came issues of dying and other life | threatening scenes, if ativan and remeron keep | me from living and not dwelling on dying then | so be it. And yes, laughter is the very best medicine | and VERY addicting… :o) | | — | TC3 Cheryl: I choose to take the benzo’s because they are giving me a vacation from the terror inside and giving my pdoc time to address the causative issues. Don’t worry about the dirty mouth, I am sure your teeth are clean, and sometimes, that’s the only way to get the point across. Damn. Hell. Shit. Poop. Kaka. Dirt. Mud. Manure. Peepee. Air Pollution. Rat shit, damnit, crap. All of the above are only apart of how I feel about this disorder and the pain it has caused millions. Rock on girl! David

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If squid with Grey Poupon(sp) on rice cakes cured this misery, I would eat it three times a day. IF Snickers was a cure…oh my…I won’t even go there! I think we are all unique, some can do this without meds, some of us can’t, I can’t. If I go off at this point I will end up doing a destructive behavior that was difficult to stop, I would spend six hours trying to get into my shower and probably spend the rest of my life in this condo without ever leaving. Fuck that(excuse my dirty mouth) I will stick to my meds until *I* know it’s time to try to fly alone. That may not be ever so I am willing to deal with THAT later. I have been through too much in the physical sense too and with that came issues of dying and other life threatening scenes, if ativan and remeron keep me from living and not dwelling on dying then so be it. And yes, laughter is the very best medicine and VERY addicting… :o) — TC3 – Hide quoted text — Show quoted text – sorry to make light, just trying to make you all laugh a bit. We are all so differently made, unique in many ways, isn’t that the fun part of the human race? Again, many different kinds of people with varied pasts and experiences.. .many differently types of treatments, therapies, and meds. Hmmm. . . . — David (swirling_eddies)

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Author: admin on
Category: Effexor Xr With
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Prescription Medication Knowledge Base » Eessential Tremor Effexor » Botox B

Botox B

Question:

Hi Andy: It’s been a while. I am in the Bot B study too and recieved 10,000 U the 1st time and had maybe 10 days that seemed to be some improvement, but only with the tremor not the spasms. 11 weeks later, now 2 weeks ago, I recieved 12,500 U and once again, it was only a small improvement. It is kinda dissapointing! Like you, I have antibodies to A. I will be in Nashville this weekend and am looking forward to hearing some other ideas. Although, my MDS at Emory here in Atlanta, really keeps up and in discouraging the Selective Deneration procedure. One of the surgeons here is doing the Deep Brain Stimulation on Parkinson’s and essential tremor with wonderful results. I guess that is my hope! My MDS tried to find him(Dr, Jerry Vitek) today so I could talk to him about when he was going to start this procedure on Dystonia patients and we couldn’t hook up with him, so my doc is suppose to talk to him about it. Did you have any symptoms of dry mouth or difficulty swallowing after the Bot B? I did, and became very excited believing it was going to help and it did some but only a short period of time (2 weeks). Just thought I would share that with you! Take care, Kathie Nsta of GA

Response:

Dear Andy, I’m so sorry about the Botox B not working for you. As Elf already asked, I too thought that the B was made specifically for those who had antibodies for the A. I can’t know for sure how you feel, but can imagine that your hopes were very high. Again, I’m so sorry and sad that it didn’t work for you. Take Care, Gina

Response:

BOTULINUM TOXIN TYPE A Botulinum toxin type A (BOT-yoo-lye-num) is used to treat certain eye conditions, such as: Blepharospasm — A condition in which the eyelid will not stay open, because of a spasm of a muscle of the eye. Strabismus — A condition in which the eyes do not line up properly. Botulinum toxin type A is injected into the surrounding muscle or tissue of the eye, but not into the eye itself. Depending on your condition, more than one treatment may be required. This medicine is to be administered only by, or under the immediate supervision of, your doctor. It is available in the following dosage form: Parenteral-Local Injection (U.S. and Canada) Before Receiving This Medicine In deciding to receive a medicine, the risks of receiving the medicine must be weighed against the good it will do. This is a decision you and your doctor will make. For botulinum toxin type A, the following should be considered: Allergies – Tell your doctor if you have ever had any unusual or allergic reaction to botulinum toxin type A. Also tell your health care professional if you are allergic to any other substances. Pregnancy — Studies on effects in pregnancy have not been done in either humans or animals. Breast-feeding — It is not known whether botulinum toxin type A passes into the breast milk. However, this medicine has not been reported to cause problems in nursing babies. Children – Studies on this medicine have been done only in adult patients, and there is no specific information comparing use of botulinum toxin type A in children up to 12 years of age with use in other age groups. Older adults — Many medicines have not been studied specifically in older people. Therefore, it may not be known whether they work exactly the same way they do in younger adults. Although there is no specific information comparing use of botulinum toxin type A in the elderly with use in other age groups, this medicine is not expected to cause different side effects or problems in older people than it does in younger adults. Other medicines – Although certain medicines should not be used together at all, in other cases two different medicines may be used together even if an interaction might occur. In these cases, your doctor may want to change the dose, or other precautions may be necessary. Tell your health care professional if you are using any other ophthalmic prescription or nonprescription (over-the-counter [OTC]) medicine. Other medical problems – The presence of other medical problems may affect the use of botulinum toxin type A. Make sure you tell your doctor if you have any other medical problems, especially: Heart problems or other medical conditions that may worsen with rapidly increasing activity — Treatment with botulinum toxin type A may give you better vision and the desire to become more active in your daily life; this may put a strain on your heart and body. Infection with Clostridium botulinum toxin (botulism poisoning), history of — Persons with a history of infection with Clostridium botulinum toxin (botulism poisoning) may have produced antibodies that may interfere with botulinum toxin type A therapy and make it less effective. Proper Use of This Medicine Dosing — The dose of botulinum toxin type A will be different for different patients. The following information includes only the average doses of botulinum toxin type A. For injection dosage form: – For certain eye conditions: Adults and children 12 years of age and older — One or more injections into the muscles around the eyes one or more times, depending on the condition being treated. Children up to 12 years of age — Use and dose must be determined by your doctor. Precautions After Receiving This Medicine. After you have received this medicine and your vision is better, you may find that you are a lot more active than you were before. You should increase your activities slowly and carefully to allow your heart and body time to get stronger. Also, before you start any exercise program, check with your doctor. Side Effects of This Medicine. Along with its needed effects, a medicine may cause some unwanted effects. Although not all of these side effects may occur, if they do occur they may need medical attention. Check with your doctor as soon as possible if any of the following side effects occur: More common Dryness of the eye; inability to close the eyelid completely. Less common or rare. Decreased blinking; irritation of the cornea (colored portion) of the eye; turning outward or inward of the edge of the eyelid. Other side effects may occur that usually do not need medical attention. These side effects may go away as your body adjusts to the medicine. However, check with your doctor if any of the following side effects continue or are bothersome: More common Blue or purplish bruise on eyelid; drooping of the upper eyelid; eye pointing upward or downward instead of straight ahead; irritation or watering of the eye; sensitivity of the eye to light. Less common or rare. Difficulty finding the location of objects; double vision; skin rash; swelling of the eyelid skin. Other side effects not listed above may also occur in some patients. If you notice any other effects, check with your doctor.

Response:

I heard the final phase for Botox B will be in March or April and then probably a year later for FDA approval. FYI Andy

Response:

Hi Kathie, Thanks for all the info. on Botox B. I’m really interested in this, as Botox A has never really worked for me and I feel it’s even made my dystonia worse. Do you know if ‘they’ are checking out the possibility of symtems getting worse like with the ‘A’ ? Keep us posted !! Gina

Response:

Hi Everyone: Just wanted to let you know that I am in the Bot B (NeuroBloc) study here in Atlanta at Emory. I am in the dose escalation study. 1st time, I recieved 10,000units (equal to about 200units of A), for me I developed hoarseness the next day, some difficulty swallowing for about 2 weeks, and a very dry mouth-like you get with the anti-cholinergics(Artane)), I have a very active dystonic tremor more than a pulling and it helped with the tremor for about 2-3 weeks the 1st time. I didn’t recieve that much effect with the pain level though. 2nd series (12,500 unitsgiven=250 of A) was 4 weeks ago,that was 11 weeks after the 1st. I had a more positive effect this time- the tremor is more diminished, the pain is decreased and so far at 4 weeks, it is still effective. I had developed antibodies to A after 3 years, and that was in 1994 so this has been a tremendous relief to me. It seems that the dose range with the B is what they are trying to determine, also the safety factor. For me, it does not seem to help quite as much as A did for me but my dstonia has progressed in the last 3 years. It is hard to pull out of my MDS much info about other patients he is treating with the B. I have the info from the first double blind trials with B, and they were not using a large enough dose to see a lot of improvement,but there was more when they used the 10,000u (that was the highest dose they gave at Emory) so there is hope. I will keep you all updated on my progress. By the way, you can e-mail Aethna Neurosciences and they will send you info on the 1st study. You all are a great bunch of people at a.s.d., I don’t get to check the posts often but when I do I can feel the love and support through my p.c. I was in Nashville for the Symposium. It was great! By the way, everyone at the sym. was given a copy of the PSA that was done about dystonia by LA Lakers Jerry West, has anyone heard if that is being run anywhere? Much thanks to David Stein(who does the 1-800-HURTFUL calls for NSTA) he was the one who arranged the PSA. Also, thanks to Deb who posted the highlights from Nashville here-I wasn’t attentive enough to catch all of that!!! Best wishes to everyone, Kathie

Response:

Oxford (UK) is just about to start trials for Botox B. What have the results been like in USA/Canada? is it something to get excited about? Any different side effects? Thanks – Chris Usenet

If I remember right, Botox B is not quite as good as the original, but if you develop anti-bodies to the original, it is a very good option. Ray T.

Response:

Chris, I just got back from the NSTA supposium (well the 1st day that is:) and they did address Botox B (which will be marketed as "NeuroBloc") …. Some of their patients are seeing results …. ?? I don’t know personally though… Andy might be able to "share" some information with you <G I’ll let him "tell ya". Elf in Tn…Romona – Hide quoted text — Show quoted text – Oxford (UK) is just about to start trials for Botox B. What have the results been like in USA/Canada? is it something to get excited about? Any different side effects? Thanks – Chris

Response:

Oxford (UK) is just about to start trials for Botox B. What have the results been like in USA/Canada? is it something to get excited about? Any different side effects? Thanks – Chris

Response:

Hi gang, It has been awhile since I posted. No luck with Botox B for me.

Sorry to read this, Andy. I hadn’t heard from you for a while and figured everything was okay. You mentioned stress. I found stress was "the great exacerbater" of muscle spasms, so much so, that I had to stop working. I am an accountant by profession. On a few occasions, I thought of returning back to work and, every time, memories of what it was like at the office made me turn into a cold sweat. Dystonia made my life miserable, I think that at one point, at least this is what a psychologist mentioned, there was a danger of suicide. Living this way, in constant pain, and the pressures at work, was too much. Sorry for bringing this up, but if there are any out there who feel this way, and feel guilty about having second thoughts regarding their careers, my advice to you is don’t feel this way. Dystonia is a serious syndrome, don’t let anyone tell you differently. Regarding Phenol, I think you may find what you are looking for at: http://www.rehabnet.com/monographs/nblock.htm Regards, Gene http://personal.nbnet.nb.ca/ev or http://personal.nbnet.nb.ca/ev/index.html

Response:

I am going to try to beat Tommye to this one, Teresa! What are facets? Do they fasten your ribs to the rest of you? Do they hook your knees to your legs? I do not think I have any facets, could be my problem–LOL–Sue

Response:

Hi gang, It has been awhile since I posted. No luck with Botox B for me. I tried it twice and the second time getting the maxium allowed under the study. I have heard that it has helped other ST’ers. So, that is good! I am trying Mexiletane now to see if this helps. I don’t know if Botox B is not working becuase of the stress I am under (work, personnal) or that I have antibodies to Botox A and still have them for Botox B. Stress is killing me. I hope I can relax a little in 98. Will see. Doctor thinks antibodies… Lucky me. Just thought I would keep you posted. New: Well my doctor is going to start his own study with Phenol (don’t know about this just like ITX which no one is trying yet) because it destorys the nerves to the muscles (they way I understand it). It may be good for some people but me I don’t want to destory nothing at this time. Also, he wants to try some of the new Parkinsons medication approved by FDA as well. Will keep you posted. Andy

Response:

(APENFAN) writes: It has been awhile since I posted. No luck with Botox B for me. I tried it

twice and the second time getting the maxium allowed under the study. Andy! We have missed you! So glad you are back with us, although the botox debacle is a bummer! Post again, okay? Love, Mary Beth

Response:

Stress and dystonia is wierd for me. There are times when, under great stress, that my spasms are not any worse at all; then at other times, with the same level of stress, by spasms go bozonkers! Take care- Gina

Odd, isn’t it? What works for one, won’t for another. Stress, as you say, exacerbates "at times". It’s as if dystonia is responding to exterior forces, and what it is I haven’t got a clue. Dr. Joseph Tsui, in conversation with Professor Eugene Smith, discussed this delema. Here is how it went: If dystonia symptoms originate because of a problem in the brain, have you neurologists studied the brain enough to know what’s really going on there? Attempts have been done. This is a conditiontion of motor control and therefore lots of programs in motor control are involved with that. There have been recent publications on the use of PET scans–PET meaning positro emission tomography –in writer’s cramp, for example. When you activate certain movements, the certain areas of the brain can light up. They pick up some very subtle abnormalities–that is, a little deviating compared with the normal. But all these are so embryonic in their development that they are so difficult to interprets. We don’t even have a good pattern for normal. What we understand currently I can only put into a very simple example. The basal ganglia is likened to something like a computer–a computer chip. To simplify it, it seems to contain all the complex movement patterns of the body and store them in terms of programs. These programs are stored there when we’re young. You learn certain complex movements. You learn to play a piano and when you’re young the basal ganglia is a very plastic structure. It accepts all sorts of programming, but once the programs are there, and as one grows older, this plasticity is lost. That is, you learn things with much more difficulty when you are getting older. These programs are interconnected with each other, executing through the cortex so we can do several things at the same time. I can talk to you, but I can also get my hand and play around with it without even thinking about it. Then I am just pulling on a few switches. These are all activated like computer switches. But in dystonia some of these programs go wrong, particularly in focal dystonia. In writer’s cramp, for example, the writing program goes wrong, but the hand is completely normal doing any other things. When you want to flip on the switch of writing, it starts going crazy. The interesting issue is that there are at least two writing programs–one using the wrist and fingers, the other by using more proximal shoulder movements. Now most patients with writer’s cramp when they write have problems, but when they use chalk to write on a blackboard, they all right. They can write perfectly well. So all this helps us to understand that it is actually much more complex than a computer–that there are motor-programming problems within the basal ganglia, and, if something goes wrong there, the action will be abnormal. That area also governs the normal posture of different parts of the body, so if that program goes wrong and it decides that the neck should be twisted, then unfortunately the brain would have to listen to this program. So we believe that it is probably a biochemical abnormality, but even that conclusion is standing on shaky grounds. Because right now if you believe in the connections, maybe the biochemical substance there is correct but the connections are wrong. but the theory about this biochemical imbalance is that, in some patients with dystonia, you can improve the dystonia by giving them therapeutic agents like anti-cholinergic drugs, and therefore we think that it may be a biochemical imbalance. But unfortunately not all patients respond to the same drugs. A well-known example is that –if you know the transmitter called dopamine for Parkinson’s disease–some patients respond very well to dopamine, that is, a drug that enhances dopamine. But some other patients respond to drugs that oppose dopamine, and so we are completely at a loss. We are confused. Drugs that work in totally different directions can be beneficial in one patient and vice versa in another patient, and it is only dopamine. The we come to talk about cholinergic substances. People have been using anti-cholinergic drugs, and there has been a report on cholinergic substances–that is again a different direction–that work well in the same kind of illness. The more convincing issue is that some patients with neck dystonia can come with a history that initially the head turns to the left and after a while turns to the right. So we don’t really know what everything means. In writer’s cramp, for example, some patients will start off having problems with the right hand, then shift to the use of the left hand to write. A small proportion of these patients actually after years develop the same problem in the other hand. This also helps to support the fact that it may be a central problem rather than a more peripheral problem. the theories are not very well founded. It could be a biochemical imbalance, but I suspect that in some patients, particularly in specific problems, it may be something more subtle than a biochemical imbalance. Well, if you don’t know what causes dystonia, or if it has more than one possible cause, how can you treat it? Or do you sometimes have to say, "You will just have to live with it"? Anything short of knowledge of the underlying cause we really cannot provide a cure for the condition. Symptomatic treatments for the condition with all the medications have been very unsatisfactory. Most patients get temporary relief but the side-effects are so bad that most of them would finally give up the medications, and therefore it is not good at all. Although it is not a cure, botulinum toxin provides a very good symptomatic relief for many patients. It has provided at least some hope and also given the doctors something to do to help the patient. And that actually significantly improved the awareness of the condition. Lots of research has been done, and the funding agencies have paid more attention to funding research in dystonia. Botulism: the first reported case was in 1897. The word comes from the Latin word for sausages-food poisoning from sausages, bad sausage. Two types of neurotoxins have been identified initially-type A and type B neurotoxin. More and more protein types of the toxin have been found-to 1970 up to 7 types described: A, B, C, D, E, F, G (C further subdivided into I and 2). In 1924 the bacterium was finally given a name, clostridium botulinum. All neurotoxins are inactivated by boiling, and only A, B, E, F have been shown to give rise to human clinical botulism. Only type A has been a marketed drug, though type F was recently investigated and shown to be effective in patients who have grown resistant to type A; the duration of effectiveness was much shorter weeks rather than months. Type B toxin is currently being investigated in a multi-center study. What the toxin does in the body is to go to a junction between nerves and muscles, and it blocks the impulses between nerves and muscles. Normally what happens is that, when you want the arm to move or want to contract a certain muscle of the arm, your brain sets off an electrical impulse that is conducted by a nerve like a piece of wire right down to the junction between the nerve and the muscle. But it is not electricity that goes through to the muscle. At the end of the nerve it releases a chemical, and that chemical goes on to tell the muscle to contract. Botulinum toxin actually stops this process. It prevents the release of this chemical from the nerve endings and as a result it gives rise to paralysis or weakness of the muscle, depending on the dose. The toxin attaches itself to the nerve terminals; it is something like ingested by the nerve terminal and then within the nerve cell it exerts its action to prevent the release of the substance called acetylcholine. About the history of the toxin I think full credit has to be given to Alan Scott, who collaborated with the bacteriologist Edward Shantz. They worked together in the development of the toxin. Alan Scott is an ophthalmologist in San Francisco. He had been always longing to develop a method to replace surgery to treat a condition called strabismus, which is a condition of crossed eyes in children. In these children the eyes actually look in different directions, and the way to help them is to cut away one muscle that pulls the eye to one side and therefore the eyes can be restored to look straight ahead. This procedure, he thought, might be replaced by an injection of a substance which could temporarily weaken the muscle. As the child growsup, the condition may be self-correcting, so if they are left with a normal muscle they probably will end up better. He had been working on that, and in 1973 in a publication we found out that this botullnum toxin A had been able to do that. That is, the substance is quite safe. It does not produce any generalized bad reactions. It does not produce any local reactions, and it can also give rise to a rather predictable weakness for a period of time, ranging from several months up to eight months in the monkey. With that he worked on to actually apply it in the human, and in 1980 he made the first publication of its use as an alternative to surgery in children, and he was quite successful with that. The story would have just ended there, but there’s another condition called blepharospasm. This condition, now classified as a neurological condition, is a focal dystonia. But because the symptoms occur in the eyelids, most patients go to see eye doctors because the eyes are

Response:

Andy, I’m so sorry that Botox just doesn’t work for you!!! I’d really do some major research before I go the "phenol route"–but if you pain is bad enough, you will get to the point you will try anything, but Let’s just hope and pray that it doesn’t get that bad!! I’m here if you need a shoulder…you know, sometimes we all do. Keep us informed on yourself, please. Love Ya, Tommye – Hide quoted text — Show quoted text – Andy, Long time no hear from kiddo …. I’m so sorry to hear about the second round of Botox B (max dose) not working….:::major sad face::: Phenol … I’ve read about that … Gene sent a post with url(s) a few months ago …. hum ..guess I need to go back and re-read it. I knew that it could cause "damage" … but a niggling of memory is there …isn’t he phenol a effective treatment in managing some of the symptoms … ????? Good luck at the next dr.s appt … keep us updated on how everything is going …the good, bad and duckly(opps that wouldn’t apply since your with Dr.B:) …many hugs and lots of love from all the "elves" here in TN…Romona

Response:

Andy, Long time no hear from kiddo …. I’m so sorry to hear about the second round of Botox B (max dose) not working….:::major sad face::: Phenol … I’ve read about that … Gene sent a post with url(s) a few months ago …. hum ..guess I need to go back and re-read it. I knew that it could cause "damage" … but a niggling of memory is there …isn’t he phenol a effective treatment in managing some of the symptoms … ????? Good luck at the next dr.s appt … keep us updated on how everything is going …the good, bad and duckly(opps that wouldn’t apply since your with Dr.B:) …many hugs and lots of love from all the "elves" here in TN…Romona

Response:

Gang, I had to add my 2 cents worth on this one-lol. I, as everyone else have tried conventional and other medicine. I had the facets in my upper lumbar spine fractured (I believe by chiropractor) years ago. I worked for and was also treated by a Pain Specialist last year. He used Phenol on the nerves going to the facets. I STILL HAVE NO PAIN THERE!!!!!!! I had some weird reaction in my knee and leg muscles on that side for a day or two – did not last long – no other problems. You might want to consider giving it a try. If I had that choice, with my limited experience and success – I would try it. Teresa

Response:

Wow Gene!! What an excellent response – Thank You!! Gina – Hide quoted text — Show quoted text – Stress and dystonia is wierd for me. There are times when, under great stress, that my spasms are not any worse at all; then at other times, with the same level of stress, by spasms go bozonkers! Take care- Gina Odd, isn’t it? What works for one, won’t for another. Stress, as you say, exacerbates "at times". It’s as if dystonia is responding to exterior forces, and what it is I haven’t got a clue. Dr. Joseph Tsui, in conversation with Professor Eugene Smith, discussed this delema. Here is how it went: If dystonia symptoms originate because of a problem in the brain, have you neurologists studied the brain enough to know what’s really going on there? Attempts have been done. This is a conditiontion of motor control and therefore lots of programs in motor control are involved with that. There have been recent publications on the use of PET scans–PET meaning positro emission tomography –in writer’s cramp, for example. When you activate certain movements, the certain areas of the brain can light up. They pick up some very subtle abnormalities–that is, a little deviating compared with the normal. But all these are so embryonic in their development that they are so difficult to interprets. We don’t even have a good pattern for normal. What we understand currently I can only put into a very simple example. The basal ganglia is likened to something like a computer–a computer chip. To simplify it, it seems to contain all the complex movement patterns of the body and store them in terms of programs. These programs are stored there when we’re young. You learn certain complex movements. You learn to play a piano and when you’re young the basal ganglia is a very plastic structure. It accepts all sorts of programming, but once the programs are there, and as one grows older, this plasticity is lost. That is, you learn things with much more difficulty when you are getting older. These programs are interconnected with each other, executing through the cortex so we can do several things at the same time. I can talk to you, but I can also get my hand and play around with it without even thinking about it. Then I am just pulling on a few switches. These are all activated like computer switches. But in dystonia some of these programs go wrong, particularly in focal dystonia. In writer’s cramp, for example, the writing program goes wrong, but the hand is completely normal doing any other things. When you want to flip on the switch of writing, it starts going crazy. The interesting issue is that there are at least two writing programs–one using the wrist and fingers, the other by using more proximal shoulder movements. Now most patients with writer’s cramp when they write have problems, but when they use chalk to write on a blackboard, they all right. They can write perfectly well. So all this helps us to understand that it is actually much more complex than a computer–that there are motor-programming problems within the basal ganglia, and, if something goes wrong there, the action will be abnormal. That area also governs the normal posture of different parts of the body, so if that program goes wrong and it decides that the neck should be twisted, then unfortunately the brain would have to listen to this program. So we believe that it is probably a biochemical abnormality, but even that conclusion is standing on shaky grounds. Because right now if you believe in the connections, maybe the biochemical substance there is correct but the connections are wrong. but the theory about this biochemical imbalance is that, in some patients with dystonia, you can improve the dystonia by giving them therapeutic agents like anti-cholinergic drugs, and therefore we think that it may be a biochemical imbalance. But unfortunately not all patients respond to the same drugs. A well-known example is that –if you know the transmitter called dopamine for Parkinson’s disease–some patients respond very well to dopamine, that is, a drug that enhances dopamine. But some other patients respond to drugs that oppose dopamine, and so we are completely at a loss. We are confused. Drugs that work in totally different directions can be beneficial in one patient and vice versa in another patient, and it is only dopamine. The we come to talk about cholinergic substances. People have been using anti-cholinergic drugs, and there has been a report on cholinergic substances–that is again a different direction–that work well in the same kind of illness. The more convincing issue is that some patients with neck dystonia can come with a history that initially the head turns to the left and after a while turns to the right. So we don’t really know what everything means. In writer’s cramp, for example, some patients will start off having problems with the right hand, then shift to the use of the left hand to write. A small proportion of these patients actually after years develop the same problem in the other hand. This also helps to support the fact that it may be a central problem rather than a more peripheral problem. the theories are not very well founded. It could be a biochemical imbalance, but I suspect that in some patients, particularly in specific problems, it may be something more subtle than a biochemical imbalance. Well, if you don’t know what causes dystonia, or if it has more than one possible cause, how can you treat it? Or do you sometimes have to say, "You will just have to live with it"? Anything short of knowledge of the underlying cause we really cannot provide a cure for the condition. Symptomatic treatments for the condition with all the medications have been very unsatisfactory. Most patients get temporary relief but the side-effects are so bad that most of them would finally give up the medications, and therefore it is not good at all. Although it is not a cure, botulinum toxin provides a very good symptomatic relief for many patients. It has provided at least some hope and also given the doctors something to do to help the patient. And that actually significantly improved the awareness of the condition. Lots of research has been done, and the funding agencies have paid more attention to funding research in dystonia. Botulism: the first reported case was in 1897. The word comes from the Latin word for sausages-food poisoning from sausages, bad sausage. Two types of neurotoxins have been identified initially-type A and type B neurotoxin. More and more protein types of the toxin have been found-to 1970 up to 7 types described: A, B, C, D, E, F, G (C further subdivided into I and 2). In 1924 the bacterium was finally given a name, clostridium botulinum. All neurotoxins are inactivated by boiling, and only A, B, E, F have been shown to give rise to human clinical botulism. Only type A has been a marketed drug, though type F was recently investigated and shown to be effective in patients who have grown resistant to type A; the duration of effectiveness was much shorter weeks rather than months. Type B toxin is currently being investigated in a multi-center study. What the toxin does in the body is to go to a junction between nerves and muscles, and it blocks the impulses between nerves and muscles. Normally what happens is that, when you want the arm to move or want to contract a certain muscle of the arm, your brain sets off an electrical impulse that is conducted by a nerve like a piece of wire right down to the junction between the nerve and the muscle. But it is not electricity that goes through to the muscle. At the end of the nerve it releases a chemical, and that chemical goes on to tell the muscle to contract. Botulinum toxin actually stops this process. It prevents the release of this chemical from the nerve endings and as a result it gives rise to paralysis or weakness of the muscle, depending on the dose. The toxin attaches itself to the nerve terminals; it is something like ingested by the nerve terminal and then within the nerve cell it exerts its action to prevent the release of the substance called acetylcholine. About the history of the toxin I think full credit has to be given to Alan Scott, who collaborated with the bacteriologist Edward Shantz. They worked together in the development of the toxin. Alan Scott is an ophthalmologist in San Francisco. He had been always longing to develop a method to replace surgery to treat a condition called strabismus, which is a condition of crossed eyes in children. In these children the eyes actually look in different directions, and the way to help them is to cut away one muscle that pulls the eye to one side and therefore the eyes can be restored to look straight ahead. This procedure, he thought, might be replaced by an injection of a substance which could temporarily weaken the muscle. As the child growsup, the condition may be self-correcting, so if they are left with a normal muscle they probably will end up better. He had been working on that, and in 1973 in a publication we found out that this botullnum toxin A had been able to do that. That is, the substance is quite safe. It does not produce any generalized bad reactions. It does not produce any local reactions, and it can also give rise to a rather predictable weakness for a period of time, ranging from several months up to eight months in the monkey. With that he worked on to actually apply it in the human, and in 1980 he made the

Response:

(GGMCJP) writes: Stress and dystonia is wierd for me. There are times when, under great stress,

that my spasms are not any worse at all; then at other times, with the same

level of stress, by spasms go bozonkers! Take care- Gina I am also that way. There have been moments when people would of thought I’d be jerking/spasms really bad and I’m cool. Then something else comes up and wammo. Thats the problem you just never know for sure. And, at times I can’t recall anything in particular happening and wammo! Where not boring, thats for sure! Anne

Response:

Hi Teresa, Do you happen to know ‘off hand’ if a person would qualify if they (me) are receiving a ‘widows pension’? Even though I’ve remarried, I still receive this income from my late husband’s place of employment. I worked for over 20 years, but haven’ worked in the last 4 years. Just curious, but probably need to contact my local SSD office. Thanks in advance, should you have any info on this! Gina – Hide quoted text — Show quoted text – Mary Beth, You cannot be working at all to apply and get SSI and SSD. However, once you get it you can get up $499.99 per month working part-time. So whatever you do, file before you go back to work. That is what I am going to try to do. If I finally get it, work part time, if I can. Teresa

Response:

MB your SSD is Social Security Disability that you will be entitled to from so many quarters you’ve worked (nothing to do with income) but, SSI, depends on income–Jimmy and I together make too much so I can’t get it. When I get 65 yrs old, My SSD will just turn into Social Security and my employer disability insurance stops completely and retirement starts. If you aren’t sure, you might better start out part-time—-full-time is very hard if you’re in a lot of pain especially–or, you may just not have the energy to work full time. Something to think about, though. My MDS says that I’ll never work again, even though I already knew it. Love Ya, Tommye – Hide quoted text — Show quoted text – Mary Beth, I’d think that starting out part time would be a good idea. If you’re doing well, you can always increase your hours, days and workload. It’s much more difficult to begin with full time work and then have to cut back. Also, IMO I think this might be a less stressful approach. Take care = Gina Please excuse some ‘outloud’ processing here, my friends…but does all this posting regarding how difficult working full-time can be, mean that I maybe need to reconsider my stubborn determination to return to working full-time after 8 years of ‘freedom’? Maybe I should consider part-time? If it were true, and I am NOT admitting to that, I can no longer maintain the stamina of working, would I be able to qualify for SSD or SSI or does one have to be without resources in order to do this? I can’t believe that I am actually writing this and sending it even…OY! MB Gene, before I quit work, it was almost too much for me, too!! I really worked longer than I should have tried to-was in constant horrible pain, having to take pain med in order to even work and getting reprimanded for taking med at work. I gave it up (work) at 2:30 on a Mon afternoon-I finally just broke down and knew that I couldn’t go any farther…..then, my supervisor called me that night to see how I was doing and if I thought I’d be at work the next morning. LOL then, I told her that I wasn’t coming back that I had finally give up—that was a terrible feeling, but, yes, stress plays a major role in dystonia!!!

Response:

Mary Beth, You cannot be working at all to apply and get SSI and SSD. However, once you get it you can get up $499.99 per month working part-time. So whatever you do, file before you go back to work. That is what I am going to try to do. If I finally get it, work part time, if I can. Teresa

Response:

Yes, Yes, Gene, we will win this war against dystonia!!! The only way that we can and are even supposed to live is one day at a time and hope and pray for a cure—if not in our generation, then, the next one for sure!! but, I’m looking for it to happen in our generation, aren’t you??? Love Ya, Tommye – Hide quoted text — Show quoted text – Gene, before I quit work, it was almost too much for me, too!! I really worked longer than I should have tried to-was in constant horrible pain, having to take pain med in order to even work and getting reprimanded for taking med at work. I gave it up (work) at 2:30 on a Mon afternoon-I finally just broke down and knew that I couldn’t go any farther…..then, my supervisor called me that night to see how I was doing and if I thought I’d be at work the next morning. LOL then, I told her that I wasn’t coming back that I had finally give up—that was a terrible feeling, but, yes, stress plays a major role in dystonia!!! Love Ya, Tommye Having read the above, it brought back so many memories. Strange how we squirrel away bad moments! It seems to over shadow all good recollections. I was listening to a scientist philosopher type talk about the mind yesterday. And, he made reference to the very subject. According to him, it seems that the moment we are born, it’s downhill from there because there are so many diseases, and potential for accidents, etc. It’s as if all the odds were against us. But, it says something about the human spirit doesn’t it? People with dystonia are survivors. We will win this war, even though many battles have been lost, in the end, we will win. The trick is to never give up, there is always another day ahead, and it might just be the day that a cure is discovered. Gene http://personal.nbnet.nb.ca/ev or http://personal.nbnet.nb.ca/ev/index.html

Response:

Hey Tommye Girl!! Did I miss something here? Gina – Hide quoted text — Show quoted text – OK "Miss SuzyQ", you beat me to it this time, but have you found out yet what are "facets"?? ROFLOL If I have any, mine must not be working, either!! LOL couldn’t be "faucets" could it?? I’ve got many of those!! Harry and Charlie!!! (ref: Ralph and Louie) LOL Love Ya, Tommye I am going to try to beat Tommye to this one, Teresa! What are facets? Do they fasten your ribs to the rest of you? Do they hook your knees to your legs? I do not think I have any facets, could be my problem–LOL–Sue

Response:

Gene, You are just a fountain of information – don’t know what we’d do without you! Thanks for all the website(s) information on just about everything. Gina Hi Dan, So sorry about the Botox B not working. This is just so frustrating! I’m sorry to ask this if you’ve already posted about it, but have you tried the new batch of Botox A? I’ve been ‘botoxed’ with the old A and found it to be pretty useless for me. But (for me) this new batch of ‘A’ is just so awesome! I hope there are others out there who have seen good results with the new A, and others yet, who will try it. Stress and dystonia is wierd for me. There are times when, under great stress, that my spasms are not any worse at all; then at other times, with the same level of stress, by spasms go bozonkers! Take care- Gina – Hide quoted text — Show quoted text – Hi gang, It has been awhile since I posted. No luck with Botox B for me. Sorry to read this, Andy. I hadn’t heard from you for a while and figured everything was okay. You mentioned stress. I found stress was "the great exacerbater" of muscle spasms, so much so, that I had to stop working. I am an accountant by profession. On a few occasions, I thought of returning back to work and, every time, memories of what it was like at the office made me turn into a cold sweat. Dystonia made my life miserable, I think that at one point, at least this is what a psychologist mentioned, there was a danger of suicide. Living this way, in constant pain, and the pressures at work, was too much. Sorry for bringing this up, but if there are any out there who feel this way, and feel guilty about having second thoughts regarding their careers, my advice to you is don’t feel this way. Dystonia is a serious syndrome, don’t let anyone tell you differently. Regarding Phenol, I think you may find what you are looking for at: http://www.rehabnet.com/monographs/nblock.htm Regards, Gene http://personal.nbnet.nb.ca/ev or http://personal.nbnet.nb.ca/ev/index.html

Response:

Teresa, thanks for the information…. I swear I had never heard of such a thing but I bet mine are beauts in my neck! Sue

Response:

Gene, before I quit work, it was almost too much for me, too!! I really worked longer than I should have tried to-was in constant horrible pain, having to take pain med in order to even work and getting reprimanded for taking med at work. I gave it up (work) at 2:30 on a Mon afternoon-I finally just broke down and knew that I couldn’t go any farther…..then, my supervisor called me that night to see how I was doing and if I thought I’d be at work the next morning. LOL then, I told her that I wasn’t coming back that I had finally give up—that was a terrible feeling, but, yes, stress plays a major role in dystonia!!! Love Ya, Tommye

Having read the above, it brought back so many memories. Strange how we squirrel away bad moments! It seems to over shadow all good recollections. I was listening to a scientist philosopher type talk about the mind yesterday. And, he made reference to the very subject. According to him, it seems that the moment we are born, it’s downhill from there because there are so many diseases, and potential for accidents, etc. It’s as if all the odds were against us. But, it says something about the human spirit doesn’t it? People with dystonia are survivors. We will win this war, even though many battles have been lost, in the end, we will win. The trick is to never give up, there is always another day ahead, and it might just be the day that a cure is discovered. Gene http://personal.nbnet.nb.ca/ev or http://personal.nbnet.nb.ca/ev/index.html

Response:

Please excuse some ‘outloud’ processing here, my friends…but does all this posting regarding how difficult working full-time can be, mean that I maybe need to reconsider my stubborn determination to return to working full-time after 8 years of ‘freedom’? Maybe I should consider part-time? If it were true, and I am NOT admitting to that, I can no longer maintain the stamina of working, would I be able to qualify for SSD or SSI or does one have to be without resources in order to do this? I can’t believe that I am actually writing this and sending it even…OY! MB Gene, before I quit work, it was almost too much for me, too!! I really

worked longer than I should have tried to-was in constant horrible pain,

having to take pain med in order to even work and getting reprimanded for

taking med at work. I gave it up (work) at 2:30 on a Mon afternoon-I

finally just broke down and knew that I couldn’t go any farther…..then,

my supervisor called me that night to see how I was doing and if I thought

I’d be at work the next morning. LOL then, I told her that I wasn’t coming

back that I had finally give up—that was a terrible feeling, but, yes,

stress plays a major role in dystonia!!!

Response:

OK "Miss SuzyQ", you beat me to it this time, but have you found out yet what are "facets"?? ROFLOL If I have any, mine must not be working, either!! LOL couldn’t be "faucets" could it?? I’ve got many of those!! Harry and Charlie!!! (ref: Ralph and Louie) LOL Love Ya, Tommye – Hide quoted text — Show quoted text – I am going to try to beat Tommye to this one, Teresa! What are facets? Do they fasten your ribs to the rest of you? Do they hook your knees to your legs? I do not think I have any facets, could be my problem–LOL–Sue

Response:

Hi, I’m sorry that you had to quit work today. I was diagnosed with Dystonia July 1996 and was terminated by my employer in September 1997 because I was unable to perform by duties. The pain is so bad not to mention the embarrassment. I wish you lots of luck. Have you applied for disability?

Response:

Wasn’t it also a major relief to finally say "Enough"? Gina – Hide quoted text — Show quoted text – Gene, before I quit work, it was almost too much for me, too!! I really worked longer than I should have tried to-was in constant horrible pain, having to take pain med in order to even work and getting reprimanded for taking med at work. I gave it up (work) at 2:30 on a Mon afternoon-I finally just broke down and knew that I couldn’t go any farther…..then, my supervisor called me that night to see how I was doing and if I thought I’d be at work the next morning. LOL then, I told her that I wasn’t coming back that I had finally give up—that was a terrible feeling, but, yes, stress plays a major role in dystonia!!! Love Ya, Tommye Hi gang, It has been awhile since I posted. No luck with Botox B for me. Sorry to read this, Andy. I hadn’t heard from you for a while and figured everything was okay. You mentioned stress. I found stress was "the great exacerbater" of muscle spasms, so much so, that I had to stop working. I am an accountant by profession. On a few occasions, I thought of returning back to work and, every time, memories of what it was like at the office made me turn into a cold sweat. Dystonia made my life miserable, I think that at one point, at least this is what a psychologist mentioned, there was a danger of suicide. Living this way, in constant pain, and the pressures at work, was too much. Sorry for bringing this up, but if there are any out there who feel this way, and feel guilty about having second thoughts regarding their careers, my advice to you is don’t feel this way. Dystonia is a serious syndrome, don’t let anyone tell you differently. Regarding Phenol, I think you may find what you are looking for at: http://www.rehabnet.com/monographs/nblock.htm Regards, Gene http://personal.nbnet.nb.ca/ev or http://personal.nbnet.nb.ca/ev/index.html

Response:

Yes, Gina, goma doll, it surely was!! the next day I started paperwork for my employee disability, as my district supervisor came to my house and brought all of the paperwork, we filled everything out, and it was just final–so fast!! then I got pay for short term disability, built up sick days and 3 weeks vacation!! and was able to keep my hospital ins. until I’m 65 by paying it myself and they were real great….they let me keep $10,000 of $80,000 life insurance that I had. Of course, they still have my retirement, I’m considering getting out and putting into something else because if I didn’t, Jimmy will only get half of it, if I don’t get it out!! It was a wonderful releif to know that I wouldn’t have to sit there 8-9 hrs a day with my head down all day–at about 2:00 every afternoon, the pain was horrible from then on the rest of the day. Love Ya, Tommye – Hide quoted text — Show quoted text – Wasn’t it also a major relief to finally say "Enough"? Gina Gene, before I quit work, it was almost too much for me, too!! I really worked longer than I should have tried to-was in constant horrible pain, having to take pain med in order to even work and getting reprimanded for taking med at work. I gave it up (work) at 2:30 on a Mon afternoon-I finally just broke down and knew that I couldn’t go any farther…..then, my supervisor called me that night to see how I was doing and if I thought I’d be at work the next morning. LOL then, I told her that I wasn’t coming back that I had finally give up—that was a terrible feeling, but, yes, stress plays a major role in dystonia!!! Love Ya, Tommye Hi gang, It has been awhile since I posted. No luck with Botox B for me. Sorry to read this, Andy. I hadn’t heard from you for a while and figured everything was okay. You mentioned stress. I found stress was "the great exacerbater" of muscle spasms, so much so, that I had to stop working. I am an accountant by profession. On a few occasions, I thought of returning back to work and, every time, memories of what it was like at the office made me turn into a cold sweat. Dystonia made my life miserable, I think that at one point, at least this is what a psychologist mentioned, there was a danger of suicide. Living this way, in constant pain, and the pressures at work, was too much. Sorry for bringing this up, but if there are any out there who feel this way, and feel guilty about having second thoughts regarding their careers, my advice to you is don’t feel this way. Dystonia is a serious syndrome, don’t let anyone tell you differently. Regarding Phenol, I think you may find what you are looking for at: http://www.rehabnet.com/monographs/nblock.htm Regards, Gene http://personal.nbnet.nb.ca/ev or http://personal.nbnet.nb.ca/ev/index.html

Response:

Well, I thought if Ralph is "right" and Louie is "left" then, Charlie would be "cold water" and Harry would be "hot water"–LOL make any sense??? thought not, as I’m on one of my crazy "modes"!!! Love Ya, Tommye – Hide quoted text — Show quoted text – Hey Tommye Girl!! Did I miss something here? Gina OK "Miss SuzyQ", you beat me to it this time, but have you found out yet what are "facets"?? ROFLOL If I have any, mine must not be working, either!! LOL couldn’t be "faucets" could it?? I’ve got many of those!! Harry and Charlie!!! (ref: Ralph and Louie) LOL Love Ya, Tommye I am going to try to beat Tommye to this one, Teresa! What are facets? Do they fasten your ribs to the rest of you? Do they hook your knees to your legs? I do not think I have any facets, could be my problem–LOL–Sue

Response:

Mary Beth, I’d think that starting out part time would be a good idea. If you’re doing well, you can always increase your hours, days and workload. It’s much more difficult to begin with full time work and then have to cut back. Also, IMO I think this might be a less stressful approach. Take care = Gina – Hide quoted text — Show quoted text – Please excuse some ‘outloud’ processing here, my friends…but does all this posting regarding how difficult working full-time can be, mean that I maybe need to reconsider my stubborn determination to return to working full-time after 8 years of ‘freedom’? Maybe I should consider part-time? If it were true, and I am NOT admitting to that, I can no longer maintain the stamina of working, would I be able to qualify for SSD or SSI or does one have to be without resources in order to do this? I can’t believe that I am actually writing this and sending it even…OY! MB Gene, before I quit work, it was almost too much for me, too!! I really worked longer than I should have tried to-was in constant horrible pain, having to take pain med in order to even work and getting reprimanded for taking med at work. I gave it up (work) at 2:30 on a Mon afternoon-I finally just broke down and knew that I couldn’t go any farther…..then, my supervisor called me that night to see how I was doing and if I thought I’d be at work the next morning. LOL then, I told her that I wasn’t coming back that I had finally give up—that was a terrible feeling, but, yes, stress plays a major role in dystonia!!!

Response:

– Hide quoted text — Show quoted text – Article: 8240 of alt.support.dystonia Path: betanews.compulink.co.uk!news.cix.co.uk!not-for-mail Newsgroups: alt.support.dystonia Organization: CIX – Compulink Information eXchange Lines: 5 NNTP-Posting-Host: oare.compulink.co.uk Xref: betanews.compulink.co.uk alt.support.dystonia:8240 Just re-joined this conference after a break. My son has been told that he will be part of a trial of Botox B in the UK, having become immune to Botox A. What is the current opinion about the effectiveness of Botox B? Barry

Anyone suggest where I should look to find more about Botox B please? Barry

Response:

Just re-joined this conference after a break. My son has been told that he will be part of a trial of Botox B in the UK, having become immune to Botox A. What is the current opinion about the effectiveness of Botox B? Barry

Response:

I had Bot B injx last month. I, too, was more sore than with Botox A. I think there is a lot more of the Bot B solution that has to be injected so this may explain part of it. Also, seems like they missed a muscle and hit my salivary gland, as I’ve had almost no saliva since the toxin kicked in. They called it a "side effect". Oh, well. Given this torture, its still worth it so far. – Hide quoted text — Show quoted text – I wrote a message about Myobloc, but maybe its the wrong name. I just got the new Botox injections. I am really sore and having strange feelings. Wondered how anyone else felt. I have read many posts of people trying the Myobloc and none of them seems satisfied with it yet. Can’t help but wonder if the doctors should have experimented a little more with it. Hope you soon start to feel better. Good luck, Anna

Response:

I have had the same problem after injections in my neck ,side effects of Botox …during about one week and it was finished . Eat and drink in the same time , not very polite ,but we have to survive ! marie:) LaBeeJay a

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Category: Eessential Tremor Effexor
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Prescription Medication Knowledge Base » Zoloft Sertraline » Zoloft and alcohol. Is there any real danger?

Zoloft and alcohol. Is there any real danger?

Question:

John, Not to be too dysphoric but some of us litle ole bipolars are smart enough to know the difference between depression and a CNS depressant. Amazing tho that may seem.

From the evidence of my eyes and memory, a lot of depressed people don’t. The information is probably news to someone reading it, old hat though it was to you. — The opinions given above may be mine. They might also just be what I feel like saying right now, okay?

Response:

Can anyone tell me what the dangers are of taking Zoloft and alcohol together? Is it just that the Zoloft may not be affective, or are there physical dangers? Well, Zoloft is an antidepressant. Alcohol is a CNS depressant. Your call. Danny

It is possible to have seizures and also strokes when combining alcohol and zoloft. TheDelser

Response:

: OUCH! nothing more to say…;) : I’ve taken Zoloft for 3 years and drank for 3+ years. Zoloft has helped, and has been therapeutic. I no longer take Zoloft, but I still have my beers. will

Response:

Ahcohol is a depressant, no matter what else you think about how good it makes you feel. It interferes with you Zoloft. Carma – Hide quoted text — Show quoted text – Can anyone tell me what the dangers are of taking Zoloft and alcohol together? Is it just that the Zoloft may not be affective, or are there physical dangers?

Response:

Excellent response. I really wish someone had given me this advice before I got into it. SNIP Many to totally stupid and embarassing things in public.

That would be me. This may get you taked about but not in a light you would like.

And how. The danger is that you don’t know what will happen. For damn sure don’t have to plan on driving. I went into a corn field one night on two Vodka martinis, sound asleep at the wheel. They check for the level and it was only .15. But the combination of that and my BP pills knocked my but out.

Okay, are you sure you mean .15? Legally drunk is .10, you know… Just checking. G. – Hide quoted text — Show quoted text -SNIP

Response:

Can anyone tell me what the dangers are of taking Zoloft and alcohol together? Is it just that the Zoloft may not be affective, or are there physical dangers?

Zoloft (sertraline) is an antidepressant; alcohol is a central nervous system depressant, so the expectation would likely be that drinking while depressed would not be helpful to recovery. This is not to say that an occasional sip of alcohol would hurt, but it is always wise to speak with your own physician about these drinking while on psychiatric medications. I no longer drink while taking medications. I used to. Didn’t help at all to drink, in fact made it worse, so I quit. -jim

Response:

Can anyone tell me what the dangers are of taking Zoloft and alcohol together? Is it just that the Zoloft may not be affective, or are there physical dangers?

Response:

: Ahcohol is a depressant, no matter what else you think about how good : it makes you feel. It interferes with you Zoloft. The term "depressant", when used in reference to alcohol, means that it slows you down, NOT that it causes the condition known as "depression". Alcohol *CAN* be dangerous with zoloft; it can make you MUCH drowsier/drunker than you expect, and long term alcohol use *CAN* cause depression (not because it’s a "depressant", but because of other changes that heavy use of alcohol causes in your body) But light drinking is fairly safe. The reason you’re told to avoid alcohol on zoloft is because you don’t have carte blanche freedom to drink as much as you want.

Response:

Hi all, I’d like to mention an additional danger besides the one listed. Zoloft (as do ALL antidepressants) tends to lower the seizure threshold (i.e. make it easier to have a seizure) as does alcohol. For most people this might not be a problem, but if you’re borderline seizure oriented, or especially overtired, be VERY careful of this combination. I’d remind people as well, that this being cough/cold season, LIQUID nyquil is 50 proof or 25% alcohol. Email welcome. John Abeel — John Abeel, R.P.H. http://www.servtech.com/public/rxman " He who hath no scruples isn’t worth a dram " – Hide quoted text — Show quoted text – : John, : Not to be too dysphoric but some of us litle ole bipolars are smart : enough to know the difference between depression and a CNS depressant. : Amazing tho that may seem. Why, then, didn’t you use the term "depressant" correctly in the following post that you made? : : Ahcohol is a depressant, no matter what else you think about how good : : it makes you feel. It interferes with you Zoloft.

Response:

While on ADs, the effects of alcohol on my system are unpredictable. I

The effects of alcohol on bipolar people, on AD or not, is unpredictable. |Home page:http://reality.sgi.com/employees/chokshi_clubfed/ |Silicon Graphics, Inc., voice: (301) 572-1678, fax: (301) 572-8778 |—Mortal, why doth thou live like thou art immortal?

Response:

Can anyone tell me what the dangers are of taking Zoloft and alcohol together? Is it just that the Zoloft may not be affective, or are there physical dangers?

Well, Zoloft is an antidepressant. Alcohol is a CNS depressant. Your call. Danny

Response:

: It is possible to have seizures and also strokes when combining alcohol : and zoloft. Strangely, this is NOT mentioned in any of the literature on zoloft. Care to substantiate this claim, oh ignoble bullshitter?

Response:

John, Not to be too dysphoric but some of us litle ole bipolars are smart enough to know the difference between depression and a CNS depressant. Amazing tho that may seem. Carma – Hide quoted text — Show quoted text – : Ahcohol is a depressant, no matter what else you think about how good : it makes you feel. It interferes with you Zoloft. The term "depressant", when used in reference to alcohol, means that it slows you down, NOT that it causes the condition known as "depression". Alcohol *CAN* be dangerous with zoloft; it can make you MUCH drowsier/drunker than you expect, and long term alcohol use *CAN* cause depression (not because it’s a "depressant", but because of other changes that heavy use of alcohol causes in your body) But light drinking is fairly safe. The reason you’re told to avoid alcohol on zoloft is because you don’t have carte blanche freedom to drink as much as you want.

Response:

Well let’s see perhaps it is just I’ve been studying the wrong books but the last time I checked all forms of ETOH were listed as major central nervous system depressants and the formula 1 CNSD + 1 CNSD still looks like too drugged to cogitate properly let alone breath. – Hide quoted text — Show quoted text – : John, : Not to be too dysphoric but some of us litle ole bipolars are smart : enough to know the difference between depression and a CNS depressant. : Amazing tho that may seem. Why, then, didn’t you use the term "depressant" correctly in the following post that you made? : : Ahcohol is a depressant, no matter what else you think about how good : : it makes you feel. It interferes with you Zoloft.

Response:

: John, : Not to be too dysphoric but some of us litle ole bipolars are smart : enough to know the difference between depression and a CNS depressant. : Amazing tho that may seem. Why, then, didn’t you use the term "depressant" correctly in the following post that you made? : : Ahcohol is a depressant, no matter what else you think about how good : : it makes you feel. It interferes with you Zoloft.

Response:

OUCH! nothing more to say…;)

Response:

Zoloft affects Serotonin, while alcohol affects GABA transmission and recption. Unless there’s effects we’re not aware of.

Response:

Can anyone tell me what the dangers are of taking Zoloft and alcohol together? Is it just that the Zoloft may not be affective, or are there physical dangers?

You may get drunk a LOT faster. Then again, you may not. Charlie’s Sneaker Pages: http://sneakers.pair.com/ Best Value in Airplanes: http://www.boeing.com/

Response:

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Category: Zoloft Sertraline
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Prescription Medication Knowledge Base » Do Xanax And Zoloft Hinder Libido » My Story and The American Tinnitus Association

My Story and The American Tinnitus Association

Question:

Hello to everyone. I am new to this and am so glad to find support from many others suffering from tinnitus. It seems that nobody in my family or any of my friends understand just how troublesome tinnitus can be. I only have T in my left ear and it absolutely drives me crazy! Sometimes I think that my sinuses cause the T to be worse (like today for instance – I live in Michigan and the humidity is 100% – YUCK!) Other times I think that my TMJ is causing the T since it is only on the left side of my jaw. And then I wonder if some of the medications that I am taking could be attributing to my T. I take zoloft and xanax for anxiety. I know that zoloft can cause tinnitus, but I have been taking it for a year now and I can’t just stop taking it. I have to taper myself off of the medicine. I also take two different medications for sinuses (claritin and rutuss) and high blood pressure medicine (atenelol). Yes, I know, I sound like a real mess! And I’m only 27 years old! I just recently went to a health food store and purchased some herbs to try to help some of my problems. I HATE being dependant on drugs! Not only that, but most of them don’t even seem to work! The sad thing is, I know that I am grasping at straws to try and find the answer to where my T is coming from. Some people seem to know exactly when their T started, but I can’t attribute the start of my tinnitus to an illness, taking aspirin, or anything else. I have read a lot of messages from people who are wondering if xanax is a good medication to take for T. If I may be blunt – PLEASE do not try xanax if you don’t absolutely have to. I have been on it for a little over a year for anxiety and my body has become chemically dependant upon it. My doctor is trying to slowly wean me off of it, but it is VERY DIFFICULT! Every day I tell myself that this is the day that I am just going to stop taking my xanax! But every day I end up taking 1 or 2, especially before I go to bed at night! Anyway, not only is my body chemically dependant on xanax, but it doesn’t help my T AT ALL! Just recently I called the American Tinnitus Association to order the publication of the International Tinnitus Seminar which occured on July 12-15th, 1995. The seminar was held in Portland and many tinnitus specialists attended, contributing their findings and treatments regarding tinnitus. The publication costs $25.00 plus Shipping and Handling. While I was on the phone, I was asked if I would like to subscribe to the American Tinnitus Association. This includes Tinnitus magazines that come out 4 times a year and all sorts of information, books, an audio tape, and other things that come up throughout the year. This was also $25.00. I just thought that I would share this information. It is about 1:20 A.M. and I couldn’t sleep due to a strange pulsing ringing in my ear. Gee, I wonder what that could be? If anyone would like the address, it is: American Tinnitus Association P.O. Box 5 Portland, OR 97207-0005 Or you can call and charge by phone at (503) 248-9985. If anyone else can’t sleep due to ringing in their ears, feel free to e-mail me anytime – I’ll probably be up and I love getting email! Leslie Grobbel

Response:

I too take Xanax and Zoloft. I too only have T on my left side. I too had not been bothered by T until about 4 months ago. It just started….no reason I can think of. ENT did a work up and said it is due to hearing loss and will probably get worse. I am not buying his explanation for a few reasons, one of which is that I felt the "brush off" cuz T isn’t that exciting to an ENT. I am trying Zinc and B12 sublingual. No noticable difference. My computer seems to make the T worse and I have taken to wearing earplugs when working on the computer. My T sort of "comes and goes"….silent (or barely audible) for a few days….loud as heck for a few more. You are correct about Xanax…very hard to get off once you start and I have been taking it for 3 years, so obviously if it was gonna work for T, it would have. I plan on just checking in periodically and dealing with this thing best I can. Good Luck Steve

Response:

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Category: Do Xanax And Zoloft Hinder Libido
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