Prescription Medication Knowledge Base » Of Flovent And » Asthma or Emphysema
Asthma or Emphysema
Question:
I am frty yrs. old and have asthma. I take accolate twice daily and use the inhalers albuterol, flovent, and combivent. My mother has same symptoms as I do, but her Doctor says hers is Emphysema she is sixty yrs old. They have told her adults dont get asthma, they get emphysema. My question is whats the difference in the two and why is it treated the same way.
Asthma is an inflammation-induced bronchoconstriction. Treatment of the bronchospasm with short- and long-acting bronchodilators, and the underlying inflammation with inhaled steroids can quell the inflammation; and permit an asthmatic to lead a near-normal life. Emphysema [which can result from long-untreated asthma] is a permanent loss of elasticity in the aveoli. They are treated the same because many of the same drugs will assist both conditions. Chris Owens – Hide quoted text — Show quoted text – Thank You [Image]
Response:
I am frty yrs. old and have asthma. I take accolate twice daily and use the inhalers albuterol, flovent, and combivent. My mother has same symptoms as I do, but her Doctor says hers is Emphysema she is sixty yrs old. They have told her adults dont get asthma, they get emphysema. My question is whats the difference in the two and why is it treated the same way.
Adults do get asthma, called adult onset asthma. Emphesema is generally contracted by smokers tho there is a hereditary version. Asthma is generally considered a reversible condition with drugs. Emphesema is only slightly reversible with drugs. Many older patients have a combination of the 2. Asthma and emphesema are not treated exactly the same way, although some drugs are used for both. Accolate would only be used for asthma–it helps about 1/2 to 2/3 who try it, if it doesn’t help it should be stopped. Combivent (albuterol + Atrovent) is primarily intended for emphesema but may benefit some asthmatics. Albuterol is used for both. Flovent is used to treat the inflammation of asthmatic bronchial tubes tho some with emphysema may benefit. Ellis
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Prescription Medication Knowledge Base » Flovent 220 » the 8 hour ER visit from hell (rant – kind of long)
the 8 hour ER visit from hell (rant – kind of long)
Question:
Weel, the doctor’s second call yesterday was basically go see a doctor, whether it’s a normal doctor or an emergency room or whatever it takes. So I went. I got there about 7:45 pm, and left about 3:40 am. That’s right, 8 hours. One ambulance after another, and I kept getting bumped. It’s kind of sad really,. I saw the triage number – I was a three. A one is someone who is critical, 2, is less critical, 3 is moderate, 4 is cuts and bruises. So I spent 45 minutes in a treatment room and 4 1/2 of those hours sitting on a gurney in the hallway, waiting for the doctor, or testing, or whatever. Two breathing treatments, some blood tests, a chest x-ray, and a dose of pred. later, I finally went home. I can actually breathe properly now, although my chest is still tight. When I was in the ER, I was at that state where you can’t breathe with your diaphram, and you only breathe with your chest muscles. I never realized how tiring that can be until last night. And now, I’m frustrated. My pulmonologist said I had done everything right, and yet I still ended up in the ER. If I had been home, it would have been an office visit, but still……I’m on probably 3-5 times the medicine I was on last summer, and actually feel worse. I was at the same peak flows last summer on 2 puffs of Vanceril twice a day. Now I’m taking 2 puffs of Flovent 220 and 2-3 puffs of Serevent twice a day. I have good relationships with both my pulmonologist and primary doctors, so when I tell them what’s going on we don’t have much discussion. In fact, the ER doctor was thrilled to find out that I had my inhalers with me, had a prescription for prednisone, had a nebulizer, had a list of all my peak flows for the last year, and a written action plan. When she started asking questions and I answered them all without too much effort, she said "you are probably the best thing to happen to me all night" – I knew what was going on, and that’s apparently a rare thing. So what else is there? For someone who has it together, knows an adequate amount about their condition to be able to converse with a doctor about it, and knows what to do when, ending up getting sick over and over again is difficult to handle. janet
Response:
Weel, the doctor’s second call yesterday was basically go see a doctor, whether it’s a normal doctor or an emergency room or whatever it takes. So I went. I got there about 7:45 pm, and left about 3:40 am. That’s right, 8 hours. One ambulance after another, and I kept getting bumped. It’s kind of sad really,. I saw the triage number – I was a three. A one is someone who is critical, 2, is less critical, 3 is moderate, 4 is cuts and bruises. So I spent 45 minutes in a treatment room and 4 1/2 of those hours sitting on a gurney in the hallway, waiting for the doctor, or testing, or whatever.
I guess that it depends on what hospital you go to (and when). When I last had to hit an ER I was literally disorentated by the speed which I was treated. I had one nurse inserting an IV, another attaching the wires for the EKG, another checking my vitals (I knew I made the right decision when she reported: "Faint breath sounds left lung – no breath sounds right lung.") and the doctor hooking me up to oxygen. (They also did a peakflow on me and I blew a 110 out of a personal best of 650). And now, I’m frustrated. My pulmonologist said I had done everything right, and yet I still ended up in the ER.
It happens. I caught a mild cold then was unexpecdly stuck outside on a cold windy day. Sometimes we just get caught in a bad situation. rare thing. So what else is there? For someone who has it together, knows an adequate amount about their condition to be able to converse with a doctor about it, and knows what to do when, ending up getting sick over and over again is difficult to handle.
We just do the best we can. There are no easy answers and asthma can (and does) get better or worse for no easily discernable reason.
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Prescription Medication Knowledge Base » Singulair And Flovent » ASTHMA AND ACID REFLUX
ASTHMA AND ACID REFLUX
Question:
I have been on Prilosec for the last two months! I use to take 5-8 tums per day. I have had 4 tums in the last three months. It is an absolute wonder drug!
I took prilosec for twenty eight days as part of the treatment to get rid of h-pylori and it is a good drug but at $3.00 per pill it was a little too much for me.
Response:
You are right that it is very expensive. I just paid $111 for 30 capsules. No wonder the drug companies have such a big advertising budget!! Luckily, my insurance reimburses me 80% but that takes several weeks. Tim Washington State
– Hide quoted text — Show quoted text – I have been on Prilosec for the last two months! I use to take 5-8 tums per day. I have had 4 tums in the last three months. It is an absolute wonder drug! I took prilosec for twenty eight days as part of the treatment to get rid of h-pylori and it is a good drug but at $3.00 per pill it was a little too much for me.
Response:
Good news here, there is a psuedo-generic in the pipeline for prilosec. I read about a month ago some company reverse engineered a drug to perform the same function as Prilosec. Prilosec maker’s sued for patent infringement and lost. Drug is supposed to be in Phase III’s in the U.S.. I hope this competition can only reduce the prices charged. We’ll see…. -Kevin
– Hide quoted text — Show quoted text – You are right that it is very expensive. I just paid $111 for 30 capsules. No wonder the drug companies have such a big advertising budget!! Luckily, my insurance reimburses me 80% but that takes several weeks. Tim Washington State I have been on Prilosec for the last two months! I use to take 5-8 tums per day. I have had 4 tums in the last three months. It is an absolute wonder drug! I took prilosec for twenty eight days as part of the treatment to get rid of h-pylori and it is a good drug but at $3.00 per pill it was a little too much for me.
Response:
A third (Aciphex) and fourth (Protonix) proton pump inhibitor has been recently introduced with more on the way. Some of the HMO’s have already written me asking me to change brands. Let’s hope a price war ensues. — CBI, M.D. Please note: It is impossible to accurately diagnose medical problems without seeing the patient and reviewing the entire history. These posts are intended to be helpful and informative. Always check with your doctor before following any advice given.
– Hide quoted text — Show quoted text – Good news here, there is a psuedo-generic in the pipeline for prilosec. I read about a month ago some company reverse engineered a drug to perform the same function as Prilosec. Prilosec maker’s sued for patent infringement and lost. Drug is supposed to be in Phase III’s in the U.S.. I hope this competition can only reduce the prices charged. We’ll see…. -Kevin You are right that it is very expensive. I just paid $111 for 30 capsules. No wonder the drug companies have such a big advertising budget!! Luckily, my insurance reimburses me 80% but that takes several weeks. Tim Washington State I have been on Prilosec for the last two months! I use to take 5-8 tums per day. I have had 4 tums in the last three months. It is an absolute wonder drug! I took prilosec for twenty eight days as part of the treatment to get rid of h-pylori and it is a good drug but at $3.00 per pill it was a little too much for me.
Response:
Her lung specialist said that at a recent conference, it appears that most kids w/asthma actually have acid reflux.
Good thing you changed doctors. Quite a few people with asthma fight acid reflux. I control mine with a tagamet before eating especially at night. Good luck with your chikd and I hope she outgrows it. I would also recommend that she be checked by an allergist.
Response:
I have been on Prilosec for the last two months! I use to take 5-8 tums per day. I have had 4 tums in the last three months. It is an absolute wonder drug! Tim Washington State
– Hide quoted text — Show quoted text – Her lung specialist said that at a recent conference, it appears that most kids w/asthma actually have acid reflux. Good thing you changed doctors. Quite a few people with asthma fight acid reflux. I control mine with a tagamet before eating especially at night. Good luck with your chikd and I hope she outgrows it. I would also recommend that she be checked by an allergist.
Response:
My 5 year old daughter is a severe asthmatic. Every time we think we get a grip on it , something new starts it up. We keep oxygen at home. She recently had her adenoids removed, maybe they were contributing. Her lung specialist said that at a recent conference, it appears that most kids w/asthma actually have acid reflux. It may be worth it for any of you to check in to. The meds she’s on are unreal: 220mcg flovent, 2 puffs 2x a day, singulair, and serevent. They also added ryna-12, which made no difference and when she catches a cold, she goes on prelone and albuterol. Talk about a mean child! Her oxygen saturation drops below 90 and we then put her on oxy. Her old lung specialist tried pulmicort and basically gave up when it didn’t work, hoping she would outgrow it. Check in to the reflux issue. Good luck.
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Prescription Medication Knowledge Base » Zoloft Xanax » Minor Setback
Minor Setback
Question:
Well, I have stumbled into a setback the last few days…I am much more functional since I started the Zoloft, and when my time is occupied I do pretty dang well…However, the last couple of days, I have been alone with not much to occupy my time…This has been difficult…Not as bad as before but difficult…Today I cannot enjoy my usual Sunday morning lounge with paper in hand…Now I am begining to worry that I have peaked in the effect I will get from the Zoloft/Xanax combo…Could this be? I am just about through with week 4 (2 weeks at 50, 2 at 100), will I see more improvement as the weeks go on…I got lots of improvement after 2 weeks, but haven’t seen any since…Need some good stuff today from you all!
Hi Charles, I can only speak from my experience with Paxil, the way I felt at week 4 was alright, the way I felt at week 8 was good. I had a slow but steady improvement from the second week on Paxil which was the beginning of April, all the way through the summer, even though I didn`t increase my dose past the beginning of May. And I do remember having a off week around week 9 or 10, it had to do with a conflict I had with a family member. And I was so afraid I was having a setback or the med stopped working, which just added to my anxiety. Being alone use to be a trigger for my anxiety, I think it was a lack of stimulation for me. I can tell you since being on Paxil, I LOVE being alone when I have the opportunity. My husband just had a business trip to Mexico, and normally I would be anxious, I enjoyed him being gone, this tells me I am really doing well( or maybe it is that he annoys the hell out of me <g ) You are having a rough week, but the Zoloft probably has not reached full effectiveness. You have to give it more time. I know this is easier said than done, but you need to occupy your mind. When I had a problem with boredom, what would happen is my thoughts turn inward, thinking about my anxiety and monitoring every sensation and twitch I was having. Even though you are having a bad time, from what you wrote I see improvement. Sometimes getting better isn`t just measured in having "good" days, but how we handle our bad days, and you say yourself, it is not as difficult as before. That tells me Zoloft is having a effect on you. Patience my dear friend, you will get there. *Hugs* P.S. And in a few weeks, if you feel you are`nt at the place you want to be, maybe increasing the Zoloft, you can go as high as 200mgs. Jackie "Grant me the serenity to accept the things I cannot change, The courage to change the things I cannot accept, And the wisdom to hide the bodies of those I had to kill today because they ticked me off and also, help me to be careful of the toes I step on today, as they may be connected to the butt I may have to kiss tomorrow.
Response:
Hi Charles! I cannot help with the meds questions, but I did want you to know that I am sending positive thoughts your way1 I hope you feel better soon! Being alone is tough, I know but you will get through it! Hang in there! Steph
Charles Writes: – Hide quoted text — Show quoted text -To all: Well, I have stumbled into a setback the last few days…I am much more functional since I started the Zoloft, and when my time is occupied I do pretty dang well…However, the last couple of days, I have been alone with not much to occupy my time…This has been difficult…Not as bad as before but difficult…Today I cannot enjoy my usual Sunday morning lounge with paper in hand…Now I am begining to worry that I have peaked in the effect I will get from the Zoloft/Xanax combo…Could this be? I am just about through with week 4 (2 weeks at 50, 2 at 100), will I see more improvement as the weeks go on…I got lots of improvement after 2 weeks, but haven’t seen any since…Need some good stuff today from you all!
Thanks, — Charles Phipps
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Prescription Medication Knowledge Base » Venlafaxine Effexor » sibutramine studies
sibutramine studies
Question:
Recently I read a study on sibutramine (Meridia). I had read several others, but not recently. In this study patients on 5 mg lost more weight than those on placebo. Patients taking 20 mg lost far more than those taking 5 mg or placebo. All patients were consuming structured diets, using behavioral modification, and mild exercise. My question is this: since the drug appears useful in weight reduction (which I guess it’d have to be, to have ever been approved) why are so many people not seeing results with it? I know a few people have seen results, but the majority, myself included, have been disappointed. Why would prior phen-fen use make one less likely to benefit from Meridia (which seems to be the common opinion)? I only took Meridia for 4 weeks; I didn’t want to fork out that much money for another month if it wasn’t doing anything. Do the effects increase with time? The study I refer to was only a 12-week study, although none of the participants were currently using other meds, so phen users would have been excluded from the study. Any ideas? Adria
Response:
I’ve been on 10mg per day of Meridia for two weeks and I’ve lost 8 pounds. As a purely subjective speculation, I wonder if it may be effective for so few people because it may work on just a single cause of obesity, that being due to an out-of-whack appetite. For as long as I can remember I’ve been able to look at what most people would consider a normal sized portion of food and know before I ever start eating that my appetite won’t be satisfied until I eat two or three times that amount. This is even more of a problem with sweet and/or fatty foods than it is with things like fruits and vegetables. I also tend to think about food very frequently throughout the day and as a result eat frequent snacks. This is independent of habit, mood, emotional or physical condition or any other variable I can think of. The bottom line is I just seem to be hard-wired to overeat. The Meridia seems to have almost magically "reset" my perception of how much food is enough. I prepare small portions of relatively healthful, varied kinds of foods, and even though sometimes my stomach feels physically hungry, I can easily resist what is now a much weakened urge to snack or overeat. And although it’s a distant secondary consideration, the price of the medication is a motivating factor, too! I’d hate to be spending so much money on something that turned out to be ineffective. Of course I realize 2 weeks isn’t very long, but since my doctor is concerned about my gradually but steadily increasing blood pressure and has told me a weight loss of even 10 or 20 pounds will likely prevent my having to control it with medication, even the weight I’ve already lost is of beneft.
<most of reply snipped – Hide quoted text — Show quoted text -4) In the Meridia studies, patients did the best on the larger doses (20 and 30 mg), but the blood pressure results were unacceptable. The largest dose Knoll could get approved was 15 mg. Of the surveys I’ve gotten (something like 300 of them), I’d say about 80 percent of the people were not satisfied with the results they got. Barbara Barbara Hirsch, Publisher Obesity Meds and Research News OMR Web Site: http://www.obesity-news.com
Response:
Why would prior phen-fen use make one less likely to benefit from Meridia (which seems to be the common opinion)?
Here are a few reasons: 1) Phentermine and fenfluramine are releasers and reuptake inhibitors, Meridia is only a reuptake inhibitor of norepinephrine and serotonin. 2) Phentermine works on dopamine, whereas Meridia has a very small action on dopamine (which is one of the reasons some folks get sleepy on it). 3) Most people develop some what of a tolerance to obesity medications after a while. So if you develop a tolerance, and you start taking a weaker drug, you are likely to see poor results. Of course, every one’s receptors are different, and YMMV. 4) In the Meridia studies, patients did the best on the larger doses (20 and 30 mg), but the blood pressure results were unacceptable. The largest dose Knoll could get approved was 15 mg. Of the surveys I’ve gotten (something like 300 of them), I’d say about 80 percent of the people were not satisfied with the results they got. Barbara Barbara Hirsch, Publisher Obesity Meds and Research News OMR Web Site: http://www.obesity-news.com
Response:
I’ve been on 10mg per day of Meridia for two weeks and I’ve lost 8 pounds. As a purely subjective speculation, I wonder if it may be effective for so few people because it may work on just a single cause of obesity, that being due to an out-of-whack appetite.
Meridia doesn’t work on any cause of obesity, it’s an appetite suppressant, and the serotonin component *may* help with OCD. But the jury is still out on that. But phen/fen didn’t work on a cause of obesity either. At this point in time researchers conclude that a variety of "susceptibility genes" cause people to be obese. The only way you could accurately treat an obese person is by knowing what those genes were, and then develop drugs or gene therapy to treat. We are many, many years from that point. I can easily resist what is now a much weakened urge to snack or overeat. And although it’s a distant secondary consideration, the price of the medication is a motivating factor, too! I’d hate to be spending so much money on something that turned out to be ineffective.
I’m glad it’s working for you. There’s no arguing with success <G! Of course I realize 2 weeks isn’t very long
No it isn’t. Let me know how you feel in another six months. If you still think it’s effective. Barbara Barbara Hirsch, Publisher Obesity Meds and Research News OMR Web Site: http://www.obesity-news.com
Response:
– Hide quoted text — Show quoted text – Recently I read a study on sibutramine (Meridia). I had read several others, but not recently. In this study patients on 5 mg lost more weight than those on placebo. Patients taking 20 mg lost far more than those taking 5 mg or placebo. All patients were consuming structured diets, using behavioral modification, and mild exercise. My question is this: since the drug appears useful in weight reduction (which I guess it’d have to be, to have ever been approved) why are so many people not seeing results with it? I know a few people have seen results, but the majority, myself included, have been disappointed. Why would prior phen-fen use make one less likely to benefit from Meridia (which seems to be the common opinion)? I only took Meridia for 4 weeks; I didn’t want to fork out that much money for another month if it wasn’t doing anything. Do the effects increase with time? The study I refer to was only a 12-week study, although none of the participants were currently using other meds, so phen users would have been excluded from the study.
My own belief is that the mechanisms involved are quite different. If you were having success with phen/fen, this points heavily in the direction of problems with serotonin levels (Phen increases the release of serotonin, fen slows down the reabsobtion). Meridia does not greatly affect the serotonin levels – it works (when it works) in other ways. So it PROBABLY would be true in the other direction as well – IF you are helped by Meridia the odds would be good that Phen/Fen wouldn’t help you much (if you could get it).
Response:
My own belief is that the mechanisms involved are quite different. If you were having success with phen/fen, this points heavily in the direction of problems with serotonin levels (Phen increases the release of serotonin, fen slows down the reabsobtion).
Phentermine is thought to act by releasing dopamine and retarding its reuptake. I’ve never heard of it affecting serotonin. Meridia does not greatly affect the serotonin levels – it works (when it works) in other ways.
Siburamine is, like venlafaxine (Effexor), a NE/SRI, reducing the reuptake of both norepinephrine and serotonin. — Steve Dyer
Response:
Harold, I read what you wrote about Phentermine. You got it all wrong. I’d suggest reading the articles on Phentermine on the web site for Rx on the Internet. Love your Dutch name. I am Dutch also. John Bowen Nipomo, California http://www.thegrid.net/jhbowen/life.htm "Too bad the only people who know how to run this country are too busy driving cabs and cutting hair." — George Burns
Response:
phentermine releases stored norepinephrine. Main site of activity appears to be thecerebral cortex and the reticular activating system. Promotes nerve impulse transmissions by releasing stored norepinephrine from nerve terminals in the brain.
I always understood amphetamine, phentermine and the like worked (to the extent that we know how any of these drugs "work") by enhancing the release and reducing the reuptake of dopamine, not NE. — Steve Dyer
Response:
phentermine releases stored norepinephrine. Main site of activity appears to be thecerebral cortex and the reticular activating system. Promotes nerve impulse transmissions by releasing stored norepinephrine from nerve terminals in the brain.
Response:
Steve, Since sibutramine inhibits re-uptake of serotonin and dopamine, do you think that Wellbutrin (buproprion) would also work for weight loss since it is a dopamine-reuptake inhibitor? Thanks! Cindy – Hide quoted text — Show quoted text – phentermine releases stored norepinephrine. Main site of activity appears to be thecerebral cortex and the reticular activating system. Promotes nerve impulse transmissions by releasing stored norepinephrine from nerve terminals in the brain. I always understood amphetamine, phentermine and the like worked (to the extent that we know how any of these drugs "work") by enhancing the release and reducing the reuptake of dopamine, not NE. — Steve Dyer
Response:
Since sibutramine inhibits re-uptake of serotonin and dopamine, do you
Serotonin and norepinephrine. think that Wellbutrin (buproprion) would also work for weight loss since it is a dopamine-reuptake inhibitor?
Although bupropion is one of the few antidepressants that rarely causes weight gain, and often causes a slight amount of weight loss in people taking it for depression, and even though it’s chemically related to the anorectic drug diethylpropion (Tenuate), I don’t think it’s a very powerful drug when it comes to weight loss. — Steve Dyer
Response:
If one is already taking Prozac, is it safe to try Meridia? I used Fen/Phen and Prozac successfully with no side affects and had good results in weight loss, FM pain relief, and depression control. My doctor is recommending Meridia, but would like to have me discontinue the Prozac, I’m worried about removing the Prozac. Have been advised by other doctors not to stop taking it because of previous "crashes" following attempts to come off it.
Response:
If one is already taking Prozac, is it safe to try Meridia?
Meridia product info specifically states "no Prozac." My doctor said the same thing. Weening off Prozac should help "crashes." This is conjecture…I "crashed" big time 4 weeks after stopping cold (only 20mg dose/day). It was not fun, but only lasted about 2 weeks. Waited another week before starting Meridia and am not having any difficulty. I used Fen/Phen and Prozac successfully with no side affects and had good results in weight loss, FM pain relief, and depression control. My doctor is recommending Meridia, but would like to have me discontinue the Prozac, I’m worried about removing the Prozac. Have been advised by other doctors not to stop taking it because of previous "crashes" following attempts to come off it.
– Mary
Response:
I don’t know about Meridia, but if it’s like Phentermine you CAN’T take Prozac with it. Please refer to an MIT study posted at: http://drugawareness.org/MIT.html Appetite suppressants are MAO inhibitors and cause an internal battlefield when paired with anti-depressant drugs such as Prozac (or fenfluramine, the phen/fen combo we all know and love.) From the article: "Maher said that the information that appears on drug labels, in the Physician’s Desk Reference and on package inserts that reach consumers is negotiated between the manufacturer and the FDA."When the labels for phentermine and Sudafed were negotiated, their MAO inhibitory activity was not known or appreciated or considered to be important. And apparently there was no requirement for phentermine’s label to be updated 20 years ago when it was first shown to be an MAO inhibitor," he said. The new findings also probably explain why only a handful of the tens of millions of patients outside America who took drugs in the fenfluramine family without phentermine developed pulmonary hypertension or heart valve lesions, and almost all of these people were also taking other drugs that we have found are unrecognized MAO inhibitors," he said." So, my advice would be to find out if Meridia (like all other appetite suppresants is an MAO inhibitor). If so, Prozac and Meridia can be a dangerous combination. Good luck – Hide quoted text — Show quoted text – If one is already taking Prozac, is it safe to try Meridia? Meridia product info specifically states "no Prozac." My doctor said the same thing. Weening off Prozac should help "crashes." This is conjecture…I "crashed" big time 4 weeks after stopping cold (only 20mg dose/day). It was not fun, but only lasted about 2 weeks. Waited another week before starting Meridia and am not having any difficulty. I used Fen/Phen and Prozac successfully with no side affects and had good results in weight loss, FM pain relief, and depression control. My doctor is recommending Meridia, but would like to have me discontinue the Prozac, I’m worried about removing the Prozac. Have been advised by other doctors not to stop taking it because of previous "crashes" following attempts to come off it. — Mary
Response:
I don’t know about Meridia, but if it’s like Phentermine you CAN’T take Prozac with it.
There’s no absolute contraindication in taking phentermine with Prozac. Please refer to an MIT study posted at: http://drugawareness.org/MIT.html Appetite suppressants are MAO inhibitors and cause an internal battlefield when paired with anti-depressant drugs such as Prozac (or fenfluramine, the phen/fen combo we all know and love.)
Appetite suppressants like amphetamine and phentermine are "MAO inhibitors" only in an extremely restricted sense; one with unproven clinical relevance, despite the claims on that web page. The reason you wouldn’t want to take Prozac and Meridia together is that they both act as serotonin-reuptake inhibitors (with Meridia also acting as a norepinephrine-reuptake inhibitor.) — Steve Dyer
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Prescription Medication Knowledge Base » Zoloft Withdrawal » Zoloft-Withdrawal Symptoms & HRT
Zoloft-Withdrawal Symptoms & HRT
Question:
Please help! I’m trying to find anyone who has any anecdotal evidence of the following symptoms after stopping Zoloft while on continuous HRT: -Almost symultaneous return of menses and all the lovely side effects, like cramps, bloating, sore breasts. -Nightmares and wakefulness, poor sleep -joint aches -PMS No other changes in medicine. Don’t want to go back on Zoloft because of other well-known unpleasant "side effect." Any evidence that Prozak or another similar could help symptoms without "side effect". While on HRT and Zoloft I experienced no periods and none of the above. My GYN has never heard of this and doesn’t believe there could be a connection. No other symptoms of withdrawal from Zoloft. He wanted to reduce Premarin dosage from .9 to .625. Did that–no improvement, but I may be too impatient. Any help or info, please let me know at ZKTN…@PRODIGY.COM. Thanks so much.
Response:
From: ZKTN…@prodigy.com (D Race)
Date: 26 Aug 1997 01:37:01 GMT Message-id: <5ttbvt$13dg$1@newssvr01-int.news.prodigy.com
Please help! I’m trying to find anyone who has any anecdotal evidence of the following symptoms after stopping Zoloft while on continuous HRT: -Almost symultaneous return of menses and all the lovely side effects, like cramps, bloating, sore breasts. -Nightmares and wakefulness, poor sleep -joint aches -PMS No other changes in medicine.<<< I don’t know if this will help, but, interestingly enough, I noticed that there’s a web site called something like "Ask A Woman Doctor". Anyway, I stumbled across it one time and there was info on various drugs, one was prozac, which, like zoloft, is an SRRI. The M.D. who has the web site ( of course, I don’t know if this is accurate info.. but you might try looking up the site) said that one rare side effect of prozac was ….. MENOPAUSE. So maybe there is some evidence somewhere that the SRRI’s can stop ovulation/ and/or menses. I don’t know, but I thought I’d share that with you.
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Prescription Medication Knowledge Base » Effexor Withdrawal » I'm not a doctor :(
I'm not a doctor :(
Question:
After a couple wrestless nights, a few fights with my concience, and an exchange of words with a few good detectives, I’ve decided to appologize for being untruthfull and misleading. In a recent post I signed my name as Dr. Robert T. Kralik MD. The truth is, I don’t even have my first degree. But I swear by the good grace of God, someday I will have my Ph.D in mental health, and I will be truely helpfull to my community. I’ve confessed, and I’m sorry, but now it’s up to you to find it in your heart to forgive me. Signed, plain old rob kralik
Hi Rob, It took a lot of courage to post the above. Sure you are forgiven. You have a talent for writing and sometimes we who are depressed help each other almost as much as our docs help us. Hang in there. J9 "The future is ‘NOW’" Warner Wolf…Imus In The Morning (IITM)
Response:
Signed, plain old rob kralik
Just because you’re not a doctor does not mean you don’t deserve to capitalize on what you have already going for you. try writing "Robert Kralik" and stand back and take a look at it. Looks good to me.
Response:
Found a fellow named GOSH! posted this to the ASAD NG, yet it is missing here. Good possibility it was cancelled, so I will post it here for him. I think it’s a good and worthwile post.
Sure Rob, I hold no grudge, and I do wish you a load of luck cause you’l need it. Your appology a response to the tiger twisting your scrotum till your balls popped out may help your memory. Balls or not, many won’t forget your name for a long time. Putting PhD after it down the road will evoke many recalls, or restimulations, which you will learn about down that same road. What’s the real fix Robert? I don’t know, but you sure got yourself into a genuine "Fix". Sure glad for Willie Bell’s stories, and Mom reading Uncle Rhemus to me and that I never grabbed that tar baby, BTW Rob, dreams are our greatest friends, and motivators. We must remember what "Only In your dreams" means, (Discriminate) and learn how to make the good ones come "TRUE." Good Luck with your studies, your intellect, appropriately harnessed, will carry you far GOSH! GOSH! After a couple wrestless nights, a few fights with my concience, and an exchange of words with a few good detectives, I’ve decided to appologize for being untruthfull and misleading. In a recent post I signed my name as Dr. Robert T. Kralik MD. The truth is, I don’t even have my first degree. But I swear by the good grace of God, someday I will have my Ph.D in mental health, and I will be truely helpfull to my community. I’ve confessed, and I’m sorry, but now it’s up to you to find it in your heart to forgive me. Signed, plain old rob kralik – Hide quoted text — Show quoted text – After a couple wrestless nights, a few fights with my concience, and an exchange of words with a few good detectives, I’ve decided to appologize for being untruthfull and misleading. In a recent post I signed my name as Dr. Robert T. Kralik MD. The truth is, I don’t even have my first degree. But I swear by the good grace of God, someday I will have my Ph.D in mental health, and I will be truely helpfull to my community. I’ve confessed, and I’m sorry, but now it’s up to you to find it in your heart to forgive me. Signed, plain old rob kralik
Response:
whoa…wait a sec….the fact that one would propagate such untruths in the first place that robert may have a disturbance of character! and he wants a phd in mental health?….. — Jon Mankowski, L.C.S.W. Far Point Rural Behavioral Health Northern California FAX- 916-474-1693 – Hide quoted text — Show quoted text – After a couple wrestless nights, a few fights with my concience, and an exchange of words with a few good detectives, I’ve decided to appologize for being untruthfull and misleading. In a recent post I signed my name as Dr. Robert T. Kralik MD. The truth is, I don’t even have my first degree. But I swear by the good grace of God, someday I will have my Ph.D in mental health, and I will be truely helpfull to my community. I’ve confessed, and I’m sorry, but now it’s up to you to find it in your heart to forgive me. That’s "restless", "conscience", "truly" . You’ve got the handwriting part down already. I forsee a great future for you in politics… — Alex Colvin
Response:
After a couple wrestless nights, a few fights with my concience, and an exchange of words with a few good detectives, I’ve decided to appologize for being untruthfull and misleading. In a recent post I signed my name as Dr. Robert T. Kralik MD. The truth is, I don’t even have my first degree. But I swear by the good grace of God, someday I will have my Ph.D in mental health, and I will be truely helpfull to my community. I’ve confessed, and I’m sorry, but now it’s up to you to find it in your heart to forgive me.
That’s "restless", "conscience", "truly" . You’ve got the handwriting part down already. I forsee a great future for you in politics… — Alex Colvin
Response:
- Hide quoted text — Show quoted text – After a couple wrestless nights, a few fights with my concience, and an exchange of words with a few good detectives, I’ve decided to appologize for being untruthfull and misleading. In a recent post I signed my name as Dr. Robert T. Kralik MD. The truth is, I don’t even have my first degree. But I swear by the good grace of God, someday I will have my Ph.D in mental health, and I will be truely helpfull to my community. I’ve confessed, and I’m sorry, but now it’s up to you to find it in your heart to forgive me. Signed, plain old rob kralikDoes this mean my Rx is no good?
Response:
whoa…wait a sec….the fact that one would propagate such untruths in the first place that robert may have a disturbance of character! and he wants a phd in mental health?…..
I have to agree that although I bear no grudge against Robert for making a mistake and then apologizing for it, it is essential that he figure out what allowed him to do it in the first place and resolve that problem BEFORE getting into a position where people need to trust him with, in some cases, their lives. In other words, he’s OK by me, but in his present condition I don’t think he’s a safe risk as a mental health professional. Gotta solve his own problems FIRST. – Hide quoted text — Show quoted text — Jon Mankowski, L.C.S.W. Far Point Rural Behavioral Health Northern California FAX- 916-474-1693 After a couple wrestless nights, a few fights with my concience, and an exchange of words with a few good detectives, I’ve decided to appologize for being untruthfull and misleading. In a recent post I signed my name as Dr. Robert T. Kralik MD. The truth is, I don’t even have my first degree. But I swear by the good grace of God, someday I will have my Ph.D in mental health, and I will be truely helpfull to my community. I’ve confessed, and I’m sorry, but now it’s up to you to find it in your heart to forgive me. That’s "restless", "conscience", "truly" . You’ve got the handwriting part down already. I forsee a great future for you in politics… — Alex Colvin
Don Stauffer | Email is welcome except solicitation, which | | will be forwarded to domain Administrators. |
Response:
This is a multi-part message in MIME format. Content-Type: text/plain; charset=ISO-8859-1 Content-Transfer-Encoding: 7bit I think I need to agree with Jon here. I think it is commendable that Rob was able to come forward and confess his mistake and his goals and aspirations for an advanced degree in mental health are equally commendable. However, as many hinted here, people are extremely vulnerable and often naive in many ways. A false posting can sometimes be detrimental to the health of an individual if posted by someone claiming a certain level of expertise and responsibility. This is not to say that anyone with the title "doctor" is without fault. Certainly, we all know this to be the contrary. Just as it is important to receive feedback and criticism from a group or individual, it is equally important to be able to understand and identify the source of such feedback. Specific feedback from a doctor or a proclaimed "doctor" should be weighed from that perspective, while that from a fellow patient should also be weighed. Each is with tremendous merits and drawbacks. To Rob: apology accepted and welcome. good luck in your studies, I am sure that you will do well. Remember, that one’s degree and station in life holds far more connotations and responsibility than simply a set of initials. As much as the letters MD or Ph.D. may seem to be a statement of status and accomplishment, they are laden with heavy responsibility as well and not to be taken lightly. Respectfully, Michael J. Higgins, MD (effective May 1997) http://www.erols.com/drhiggy Joint Capital Area Family Practice-Psychiatry Residency Program After a couple wrestless nights, a few fights with my concience, and an exchange of words with a few good detectives, I’ve decided to appologize for being untruthfull and misleading. In a recent post I signed my name as Dr. Robert T. Kralik MD. The truth is, I don’t even have my first degree. But I swear by the good grace of God, someday I will have my Ph.D in mental health, and I will be truely helpfull to my community. I’ve confessed, and I’m sorry, but now it’s up to you to find it in your heart to forgive me. Signed, plain old rob kralik
Content-Type: text/html; charset=ISO-8859-1 Content-Transfer-Encoding: quoted-printable <html<head</head<BODY bgcolor=3D"#FFFFFF"<p<font size=3D2 = color=3D"#000000" face=3D"Rockwell"	I think I need to agree with = Jon here. I think it is commendable that Rob was able to come = forward and confess his mistake and his goals and aspirations for an = advanced degree in mental health are equally commendable. However, = as many hinted here, people are extremely vulnerable and often naive in = many ways. A false posting can sometimes be detrimental to the = health of an individual if posted by someone claiming a certain level of = expertise and responsibility. This is not to say that anyone with = the title "doctor" is without fault. Certainly, we all = know this to be the contrary. Just as it is important to receive = feedback and criticism from a group or individual, it is equally = important to be able to understand and identify the source of such = feedback. Specific feedback from a doctor or a proclaimed = "doctor" should be weighed from that perspective, while that = from a fellow patient should also be weighed. Each is with = tremendous merits and drawbacks. <br<br	To Rob: = apology accepted and welcome. good luck in your studies, I = am sure that you will do well. Remember, that one’s degree and = station in life holds far more connotations and responsibility than = simply a set of initials. As much as the letters MD or Ph.D. = may seem to be a statement of status and accomplishment, they are laden = with heavy responsibility as well and not to be taken = lightly.<br<brRespectfully,<br<brMichael J. Higgins, MD = (effective May = Capital Area Family Practice-Psychiatry Residency = Program<br<br<br<br<br<brRobert Kralik <<font = color=3D"#000000"> wrote in article <<font = net.mb.ca</u<font color=3D"#000000">…<br> <br> After a = couple wrestless nights, a few fights with my concience, and an <br> = exchange of words with a few good detectives, I’ve decided to appologize = <br> for being untruthfull and misleading. In a recent post I signed = my name <br> as Dr. Robert T. Kralik MD. The truth is, I don’t even = have my first <br> degree. But I swear by the good grace of God, = someday I will have my Ph.D in <br> mental health, and I will be = truely helpfull to my community. I’ve <br> confessed, and I’m sorry, = but now it’s up to you to find it in your heart <br> to forgive = me.<br> Signed, plain old rob kralik<br> </p </font</font</font</font</font</body</html
Response:
Dear Stewart and a few others: I’m rather surprised that Jon is the only one who has expressed anger over this. Or at least *seems* to be the only one.
Sorry. I did not take Jon to task for being angry with Robert (yikes, you really gotta follow this thread to understand this post). I took Jon to task for suggesting that someone with a clinical psychological problem would not make a good mental health professional. (You might want to read "Welcome to my country", a really good easy to read book that helps to shorten the distance between "us" and "them".) I think I was probably as angry with Robert as Jon was. I actually sent a copy of an earlier (IMHO) obnoxious post of Robert’s to his ISP. I posted a copy of what I had done to the newsgroup (alt.support.depression) and someone there e-mailed me some personal information/speculation about Robert. I told Robert in e-mail that I was seriously thinking of sending a copy of his impersonation of an MD to his ISP. I asked him if he was an MD, an MD with a mood disorder, or perhaps just someone with a mood disorder. I was in no hurry. He e-mailed me an appology and posted one. He told me a bit about his personal life. *I* felt that was enough to invite him to post more about himself to alt.support.depression. I did NOT say that I was not angry with his posts, nor did I mean to suggest it. I just took one thing at a time. Sorry I didn’t give you more background with my last posts. Sincerely Stewart — The Metaphor Man
Response:
Relax, old buddy. I’m writing to you from alt.support.attn-deficit. Normally I wold trim my header, but I don’t know what is your "home base" NG. Maybe what’s-his-name’s apology was sincere, maybe it wasn’t. Maybe he is sincere today and maybe tomorrow will be different. Your skepticism was a useful expression of what hundreds, maybe thousands, of others probably thought, but didn’t post. A number of others apparently had different reactions. Golly. Just sorta like real life to be so ambiguous. You seem to be a stand-up type of guy. Don’t go wishy-washy now. "Often wrong, but never in doubt," is my motto. As far as I’m concerned, you are more than welcome to express any of your opinions in alt.support.attn-deficit whenever you wish. Even, or especially, the ones with which I may not agree. As a group, however, we tend to not be respecters of credentials and I have observed a tendency to mock "authority". Makes for a lively discussion. In other words, I forgive you for not forgiving what’s-his-name, and proceed at your own risk Mr. L.C.S.W. Best wishes, Tom Fox – Hide quoted text — Show quoted text -lookie here… a lot of folks on this list are vulnerable. Vulnerable to grasping at nearly anyhing to allieviate their pain. What i saw on this list were people too quick to forgive an imposter This bothered me so i made a remark regarding his character. Look closely at his mea culpa. i was not "throwing stones" at the fellow. yet i did not want to see him get off the hook so easily. Afterall, he was looking outside himself for forgiveness when in fact he appears to have a lot of his own character searching to do. — Jon Mankowski, L.C.S.W. Far Point Rural Behavioral Health Northern California FAX- 916-474-1693 Oh, dear, whoa…wait a sec….the fact that one would propagate such untruths in the first place that robert may have a disturbance of character! and he wants a phd in mental health?….. — Jon Mankowski, L.C.S.W. Far Point Rural Behavioral Health Northern California FAX- 916-474-1693 After a couple wrestless nights, a few fights with my concience, and an exchange of words with a few good detectives, I’ve decided to appologize for being untruthfull and misleading. In a recent post I signed my name as Dr. Robert T. Kralik MD. The truth is, I don’t even have my first degree. But I swear by the good grace of God, someday I will have my Ph.D in mental health, and I will be truely helpfull to my community. I’ve confessed, and I’m sorry, but now it’s up to you to find it in your heart to forgive me. That’s "restless", "conscience", "truly" . You’ve got the handwriting part down already. I forsee a great future for you in politics… — Alex Colvin jon. I guess I’d better come clean – I’m Not really a Goddess. (Although Toci is, and I’m using her name.) Or are you just kidding, and not really a social worker?
Response:
lookie here… A lot of folks on this list are vulnerable. Vulnerable to grasping at nearly anyhing to allieviate their pain.
I am sure it does not matter, but I do not know what list/group you are reading this in. I am reading alt.support.depression (ASD). We get lots and LOTS of trolls. Some times it is best to invite them to join the group as a "member" rather than as a troll. On the other hand, we also make a fine troll stew with SPAM salad. We work with what we have. What I saw on this list were people too quick to forgive an imposter This bothered me so i made a remark regarding his character. Look closely at his mea culpa. I was not "throwing stones" at the fellow.
Here I think you are wrong. I think you made a really snide comment about how he shouldn’t aspire to work in the mental health field since he has problems of his own. It sure sounded to me like you picked up a stone from your own yard and through it at his window. Yet I did not want to see him get off the hook so easily. Afterall, he was looking outside himself for forgiveness when in fact he appears to have a lot of his own character searching to do.
Here I think you are right. I too think he has a lot of his own character searching to do. However, given what he did initially (pose in a relatively poorly hidden manner as an MD on a usenet newsgroup), I think he did the perfectly correct thing to appologize. Now did he learn anything from this episode?? My guess is probably the same as your guess. Not much, but maybe a little. Just my 2 cents. Sincerely Stewart — The Metaphor Man
Response:
After a couple wrestless nights, a few fights with my concience, and an exchange of words with a few good detectives, I’ve decided to appologize for being untruthfull and misleading. In a recent post I signed my name as Dr. Robert T. Kralik MD. The truth is, I don’t even have my first degree. But I swear by the good grace of God, someday I will have my Ph.D in mental health, and I will be truely helpfull to my community. I’ve confessed, and I’m sorry, but now it’s up to you to find it in your heart to forgive me. Signed, plain old rob kralik
I don’t know about the other groups, or the other people on alt.support.depression (ASD). I only speak for myself. Welcome to the group Rob. Pull up a chair. Tell us what is going on with you. Sincerely Stewart — The Metaphor Man
Response:
whoa…wait a sec….the fact that one would propagate such untruths in the first place that robert may have a disturbance of character! and he wants a phd in mental health?….. — Jon Mankowski, L.C.S.W. Far Point Rural Behavioral Health
So Jon, do you think that your response here was the sensitive and caring sort of thing that want to see from our "Far Point Rural Behavioral Health" professionals?? How does that people in glass houses thing go again??? Sincerely Stewart — The Metaphor Man
Response:
lookie here… a lot of folks on this list are vulnerable. Vulnerable to grasping at nearly anyhing to allieviate their pain. What i saw on this list were people too quick to forgive an imposter This bothered me so i made a remark regarding his character. Look closely at his mea culpa. i was not "throwing stones" at the fellow. yet i did not want to see him get off the hook so easily. Afterall, he was looking outside himself for forgiveness when in fact he appears to have a lot of his own character searching to do. — Jon Mankowski, L.C.S.W. Far Point Rural Behavioral Health Northern California FAX- 916-474-1693 – Hide quoted text — Show quoted text – Oh, dear, whoa…wait a sec….the fact that one would propagate such untruths in the first place that robert may have a disturbance of character! and he wants a phd in mental health?….. — Jon Mankowski, L.C.S.W. Far Point Rural Behavioral Health Northern California FAX- 916-474-1693 After a couple wrestless nights, a few fights with my concience, and an exchange of words with a few good detectives, I’ve decided to appologize for being untruthfull and misleading. In a recent post I signed my name as Dr. Robert T. Kralik MD. The truth is, I don’t even have my first degree. But I swear by the good grace of God, someday I will have my Ph.D in mental health, and I will be truely helpfull to my community. I’ve confessed, and I’m sorry, but now it’s up to you to find it in your heart to forgive me. That’s "restless", "conscience", "truly" . You’ve got the handwriting part down already. I forsee a great future for you in politics… — Alex Colvin jon. I guess I’d better come clean – I’m Not really a Goddess. (Although Toci is, and I’m using her name.) Or are you just kidding, and not really a social worker?
Response:
Oh, dear, – Hide quoted text — Show quoted text – whoa…wait a sec….the fact that one would propagate such untruths in the first place that robert may have a disturbance of character! and he wants a phd in mental health?….. — Jon Mankowski, L.C.S.W. Far Point Rural Behavioral Health Northern California FAX- 916-474-1693 After a couple wrestless nights, a few fights with my concience, and an exchange of words with a few good detectives, I’ve decided to appologize for being untruthfull and misleading. In a recent post I signed my name as Dr. Robert T. Kralik MD. The truth is, I don’t even have my first degree. But I swear by the good grace of God, someday I will have my Ph.D in mental health, and I will be truely helpfull to my community. I’ve confessed, and I’m sorry, but now it’s up to you to find it in your heart to forgive me. That’s "restless", "conscience", "truly" . You’ve got the handwriting part down already. I forsee a great future for you in politics… — Alex Colvin
jon. I guess I’d better come clean – I’m Not really a Goddess. (Although Toci is, and I’m using her name.) Or are you just kidding, and not really a social worker?
Response:
Sorry to spoil your "provider fantasies" Jon but many of us think our mental health providers are much more in need of intervention than we are. Carma – Hide quoted text — Show quoted text – Oh, dear, whoa…wait a sec….the fact that one would propagate such untruths in the first place that robert may have a disturbance of character! and he wants a phd in mental health?….. — Jon Mankowski, L.C.S.W. Far Point Rural Behavioral Health Northern California FAX- 916-474-1693 After a couple wrestless nights, a few fights with my concience, and an exchange of words with a few good detectives, I’ve decided to appologize for being untruthfull and misleading. In a recent post I signed my name as Dr. Robert T. Kralik MD. The truth is, I don’t even have my first degree. But I swear by the good grace of God, someday I will have my Ph.D in mental health, and I will be truely helpfull to my community. I’ve confessed, and I’m sorry, but now it’s up to you to find it in your heart to forgive me. That’s "restless", "conscience", "truly" . You’ve got the handwriting part down already. I forsee a great future for you in politics… — Alex Colvin jon. I guess I’d better come clean – I’m Not really a Goddess. (Although Toci is, and I’m using her name.) Or are you just kidding, and not really a social worker?
Response:
Jon, It must have been nice to be so pure and perfect your entire life. When you go to confess your sins I guess you won’t have anything to say. Anything is possible. People make mistakes and learn from them. Why shouldn’t he? Would you hold it against him forever? "Let he whom has not sinned cast the first stone" (or something like that), remember Mr. Mankowski? I don’t know why I’ve been so kind lately, I’m disgusting myself. I’m going to have to be nasty to even it out so people will like me again. Watch out everyone!;-) Cambela You suck! (Its a start) – Hide quoted text — Show quoted text – whoa…wait a sec….the fact that one would propagate such untruths in the first place that robert may have a disturbance of character! and he wants a phd in mental health?….. — Jon Mankowski, L.C.S.W. Far Point Rural Behavioral Health Northern California FAX- 916-474-1693 After a couple wrestless nights, a few fights with my concience, and an exchange of words with a few good detectives, I’ve decided to appologize for being untruthfull and misleading. In a recent post I signed my name as Dr. Robert T. Kralik MD. The truth is, I don’t even have my first degree. But I swear by the good grace of God, someday I will have my Ph.D in mental health, and I will be truely helpfull to my community. I’ve confessed, and I’m sorry, but now it’s up to you to find it in your heart to forgive me. That’s "restless", "conscience", "truly" . You’ve got the handwriting part down already. I forsee a great future for you in politics… — Alex Colvin
Response:
While I was busy reporting email solicitations on Tue, 22 Apr 1997 My mom worked as Office Administrator for County Mental Health for 25 years…. can’t tell you how many times she has said to me (paraphrasing), "The reason they are so good at helping people is because they have been or are screwed up themselves. Therefore, they are very good at understanding why the rest of us are screwed up."
… but haven’t got a clue what to do about it. – Hide quoted text — Show quoted text – lookie here… A lot of folks on this list are vulnerable. Vulnerable to grasping at nearly anyhing to allieviate their pain. I am sure it does not matter, but I do not know what list/group you are reading this in. I am reading alt.support.depression (ASD). We get lots and LOTS of trolls. Some times it is best to invite them to join the group as a "member" rather than as a troll. On the other hand, we also make a fine troll stew with SPAM salad. We work with what we have. What I saw on this list were people too quick to forgive an imposter This bothered me so i made a remark regarding his character. Look closely at his mea culpa. I was not "throwing stones" at the fellow. Here I think you are wrong. I think you made a really snide comment about how he shouldn’t aspire to work in the mental health field since he has problems of his own. It sure sounded to me like you picked up a stone from your own yard and through it at his window. Yet I did not want to see him get off the hook so easily. Afterall, he was looking outside himself for forgiveness when in fact he appears to have a lot of his own character searching to do. Here I think you are right. I too think he has a lot of his own character searching to do. However, given what he did initially (pose in a relatively poorly hidden manner as an MD on a usenet newsgroup), I think he did the perfectly correct thing to appologize. Now did he learn anything from this episode?? My guess is probably the same as your guess. Not much, but maybe a little. Just my 2 cents. Sincerely Stewart — The Metaphor Man
Don Stauffer | Email is welcome except solicitation, which | | will be forwarded to domain Administrators. |
Response:
In article After a couple wrestless nights, a few fights with my concience, and an exchange of words with a few good detectives, I’ve decided to appologize for being untruthfull and misleading. In a recent post I signed my name as Dr. Robert T. Kralik MD. The truth is, I don’t even have my first degree. But I swear by the good grace of God, someday I will have my Ph.D in mental health, and I will be truely helpfull to my community. I’ve confessed, and I’m sorry, but now it’s up to you to find it in your heart to forgive me.
I forgive you. Mental health, ay?? You *OBVIOUSLY* picked the right field! Do us *BOTH* a big fat favor, dont do something *THAT* damned stupid agian. I forgive you.. were all human.. *JUST DONT DO THAT AGIAN!!* Signed, plain old rob kralik
– The *REAL* Internet users prayer: "Lord, I pray that spam will disappare from the Internet. Lord, I ask if this is to be done, may it be soon. Lord, you know how fustrating it is to find real and valuable information while wadeing throught the garbage. Thank you Lord, Aman"
Response:
whoa…wait a sec….the fact that one would propagate such untruths in the first place that robert may have a disturbance of character! and he wants a phd in mental health?….. — Jon Mankowski, L.C.S.W. Far Point Rural Behavioral Health So Jon, do you think that your response here was the sensitive and caring sort of thing that want to see from our "Far Point Rural Behavioral Health" professionals?? How does that people in glass houses thing go again??? Sincerely Stewart
Dear Stewart and a few others: I’m rather surprised that Jon is the only one who has expressed anger over this. Or at least *seems* to be the only one. Now I had no involvement with the individual who lied so I wasn’t hurt or so much as bothered by his actions. On the other hand, if I had been involved and had trusted the so called credentials, I would have been terribly hurt and quite possibly angry as hell. I just wonder if anyone was truly harmed or not. I think in the short run it once again points out how easily the "anonymity" of the Net can be abused. Therefore we should be as careful here as in the outside world when choosing who to confide in. One other thing. The comment in regards to Jon’s job. I used to be a mechanic, in fact, a damn good one until my hands were damaged. Many people were quite happy with the work I did and I had no worries about holding a job. On the other hand, if you were to have seen my car you would have wondered who is the idiot who would drive that piece of crap. What Jon does professionally and what he does personally can and probably is two different things. I really don’t think dragging Jon’s job in here will achieve anything other then aggravating the situation. Just my thoughts on the matter. Peter Something Evil this way comes.
Response:
My mom worked as Office Administrator for County Mental Health for 25 years…. can’t tell you how many times she has said to me (paraphrasing), "The reason they are so good at helping people is because they have been or are screwed up themselves. Therefore, they are very good at understanding why the rest of us are screwed up." – Hide quoted text — Show quoted text – lookie here… A lot of folks on this list are vulnerable. Vulnerable to grasping at nearly anyhing to allieviate their pain. I am sure it does not matter, but I do not know what list/group you are reading this in. I am reading alt.support.depression (ASD). We get lots and LOTS of trolls. Some times it is best to invite them to join the group as a "member" rather than as a troll. On the other hand, we also make a fine troll stew with SPAM salad. We work with what we have. What I saw on this list were people too quick to forgive an imposter This bothered me so i made a remark regarding his character. Look closely at his mea culpa. I was not "throwing stones" at the fellow. Here I think you are wrong. I think you made a really snide comment about how he shouldn’t aspire to work in the mental health field since he has problems of his own. It sure sounded to me like you picked up a stone from your own yard and through it at his window. Yet I did not want to see him get off the hook so easily. Afterall, he was looking outside himself for forgiveness when in fact he appears to have a lot of his own character searching to do. Here I think you are right. I too think he has a lot of his own character searching to do. However, given what he did initially (pose in a relatively poorly hidden manner as an MD on a usenet newsgroup), I think he did the perfectly correct thing to appologize. Now did he learn anything from this episode?? My guess is probably the same as your guess. Not much, but maybe a little. Just my 2 cents. Sincerely Stewart — The Metaphor Man
Response:
Sure, I’d love to tell all about myself to you guys, but you’ll have to give it some time. Unfortunately I am suffering from severe depression and effexor withdrawal simultaneously dispite the fact that I’m tapering. A funny thing is, I have develloped a kinship with this depression, does this mean I am a masochist? Rabbio
No problem. We all deal with our cycles of activity and inactivity. Post when you can. Yup, after a while depression becomes a part of you. I say "I have a cold", meaning it is separate from me. Something that *I* "have", like I have a pair of shoes. But I say "I am depressed", because it is a part of who I am. So how do I get rid of part of who I am without dying just a little?? It is scarry stuff to change. How do I know there is anything there behind my depression. What if I lose the depression only to find that I have lost EVERYTHING?? It is NOT easy stuff to change. The people who says it is, have not changed anything but their shoes recently. Just my 2 cents of course…. Sincerely Stewart — The Metaphor Man
Response:
You were brave to confess. You did the right thing by doing it publically. If others condemn you for it, don’t listen to them. I wish I had friends like you. mari
Response:
I was sincere yesterday, and I’m sincere today. I’m still sorry.
Robert, to reduce the clutter I have started a new thread and kept it to ASD only. So, you want to tell us anything more about yourself other than that you are sorry?? Sincerely Stewart — The Metaphor Man
Response:
Just drop me an email if you’d like to subscribe and get the full newsletter. Brian Living with Schizophrenia – A Free Periodic Newsletter Brought to you by http://www.schizophrenia.com Issue #47 – April 22nd, 1997 A Summary of Schizophrenia News and Events Note: Please forward this newsletter to others who might benefit. To Subscribe or Unsubscribe send a note to Brian Chiko Back issues of this newsletter are available at the following web address: http://www.schizophrenia.com/news/NEWS1.html Contents: Letters to the Editor: Avoiding weight problems associated with anti-psychotic medications? Your assistance needed in Research Effort in Schizophrenia Genetics Success Stories – Nick’s Story Info Needed on Effectiveness of New Medications – Fighting Health Care Changes MH Providers Bring ANTITRUST Suit Against Nine MH Managed Care Groups Working Memory and Schizophrenia – from Pittsburgh Post-Gazette New Janssen Person to Person program for Schizophrenia – Covered by DJ Jaffe
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Hello, I'm New To This
Question:
The name "Slipper" ain’t a pet name. It is a version of an old family name handed down over the years to the "chosen" ones who exhibited certain qualities. "Slipper" is a Hebrew term for, "She who is great". My great, great grandmother, also a chosen one, was 1/2 American Indian and was called "She who is great", but in indian it was pronounced, "Spaz-twista-shake". That does not fit on contemporary birth certificates. Therefore it was shown in Hebrew, pronouced "Slipper". Yaw show some respect, okay! Jeeeeeeeeeeeeeese!!!!!! -Slipper
Thanks, Slipper. I needed that …except it hurts to laugh! You reminded me of a professor I had in grad school who had Parkinson’s. On those wonderful occassions when we would teach together, he would enter the room first with me trailing (and flailing). We would finally get to the front of the lecture hall and he’d introduce us. "Hi. They call me ‘Old Shaky’ and this is my partner, ‘Spaz’." Shalom, Chana Mitzvah g’dolah l’hiyot b’simcha. "It is a great mitzvah to exist in a state of joy."
Response:
This is so cool. Here I am, aspiring to become a writer; I answer a newsgroup post and now I’m gonna be in print all over!!! And more than anything, I’ll have the ultimate "last word" on a multitude of physicians via my pals, the dystoniacs. The name "Slipper" ain’t a pet name. It is a version of an old family name handed down over the years to the "chosen" ones who exhibited certain qualities. "Slipper" is a Hebrew term for, "She who is great". My great, great grandmother, also a chosen one, was 1/2 American Indian and was called "She who is great", but in indian it was pronounced, "Spaz-twista-shake". That does not fit on contemporary birth certificates. Therefore it was shown in Hebrew, pronouced "Slipper". Yaw show some respect, okay! Jeeeeeeeeeeeeeese!!!!!! -Slipper
Response:
The name "Slipper" ain’t a pet name. It is a version of an old family name handed down over the years to the "chosen" ones who exhibited certain qualities. "Slipper" is a Hebrew term for, "She who is great". My great, great grandmother, also a chosen one, was 1/2 American Indian and was called "She who is great", but in indian it was pronounced, "Spaz-twista-shake". That does not fit on contemporary birth certificates. Therefore it was shown in Hebrew, pronouced "Slipper". Yaw show some respect, okay! Jeeeeeeeeeeeeeese!!!!!! -Slipper Thanks, Slipper. I needed that …except it hurts to laugh! You reminded me of a professor I had in grad school who had Parkinson=
’s. On those wonderful occassions when we would teach together, he would enter the room first with me trailing (and flailing). We wo= uld finally get to the front of the lecture hall and he’d introduce us. "Hi. They call me ‘Old Shaky’ and this is my partner, ‘Spaz= ‘." Shalom, Chana Mitzvah g’dolah l’hiyot b’simcha. "It is a great mitzvah to exist in a state of joy."
Oh me…It is the Chana & Slipper show!! How fun! And Chana, your post also appeared as one long line on my server…it is only when I do a ‘post reply’ that your post and Slipper’s take on ‘normal’ form!! Wonder if it is moi or yoi…<<<VBG MB
Response:
Hi gang. Yes, I feel like I have found a "special" place. I moved from VA to TX 2 years ago leaving behind family and friends that had been thru it all with me. That was quite a loss and have been depressed since. (though my husband and daughter are wonderful
) Thanks for all your responses. I have laughed and cried. I am sure you understand what a.s.d. means to me already. I had my botox shots last Wednesday (300 units) and dr. started me on Klonopin (1 mg). Sure hoping this helps my spasms which for some reason have gotten worse lately. Thanks again. Talk to yall soon. Bonnie
Response:
<SNIP… Ahhh, but Roger has already warned Slipper of the infamous Mary Beth–NO FAIR, Roger!!! Now I cannot pounce and be taken seriously <<VBG C’mon now MB! That’s "I cannot pounce OR be taken seriously!"
OOPS!! Grammar check failed me…what to do, what to do?? Now I tell you, has anyone in any of the countries to which our group us ever taken an MB pounce seriously. (Slipper, it’s those innocent approaches you will have to watch.
John you know me too well! Now Slipper will just be a lil devil and the Den Mom will have to grin and bear it. What trouble you do cause, Sir John!! Giving MB the Slip<per I remain, Your humble servant John :-)
No, no…I raised your rank above =8-} – Hide quoted text — Show quoted text –
Response:
<SNIP… Ahhh, but Roger has already warned Slipper of the infamous Mary Beth–NO FAIR, Roger!!! Now I cannot pounce and be taken seriously <<VBG
C’mon now MB! That’s "I cannot pounce OR be taken seriously!" Now I tell you, has anyone in any of the countries to which our group us ever taken an MB pounce seriously. (Slipper, it’s those innocent approaches you will have to watch. Giving MB the Slip<per I remain, Your humble servant John :-)
Response:
– Hide quoted text — Show quoted text – Believe us when we say we have "superior intelligence". You know how many doctors it takes to diagnosis dystonia? Ten: One to explain that doctors are not magicians; One to say that you have fribromyalgia; One to say you have slight scoliosis; One to say you have a headache and some endurance problems; One to say you have TMJ One to say you have a Benign Essential Tremor and rigidity; One to say you are suffering from a psychogenic disorder aka depression; Two to hold the neurological textbooks at the public library open for you while you diagnosis yourself using American Online’s Medline; And one to follow your instructions when you decide which medications you need to take. SLIPPER I thought I had read this somewhere before,then I seen the name in the address. Glad you found us. Everyone meet slipper. We have become friends through e-mail recently. Slipper meet the gang, just watch out for that Mary Beth. Good to see you have joined our online family. Roger
I LOVE THIS GROUP!!!!!!! With Roger’s ‘Stamp of Approval’, this new one ‘Slipper’ has an easy road <<giggle Of course the fact that what was posted is completely Wonderful has something to do with it! Like Chana, I have also printed it out to disperse among friends & doctors. Ahhh, but Roger has already warned Slipper of the infamous Mary Beth–NO FAIR, Roger!!! Now I cannot pounce and be taken seriously <<VBG Anyhow, welcome Slipper, be ye male, female, or…well, OK I’ll say it… Slipper kinda sounds like a pet’s name, as in ‘here Slipper, Slipper’ Sorry Roger, you always bring out my ‘best’ side!! MB
Response:
- Hide quoted text — Show quoted text – Believe us when we say we have "superior intelligence". You know how many doctors it takes to diagnosis dystonia? Ten: One to explain that doctors are not magicians; One to say that you have fribromyalgia; One to say you have slight scoliosis; One to say you have a headache and some endurance problems; One to say you have TMJ One to say you have a Benign Essential Tremor and rigidity; One to say you are suffering from a psychogenic disorder aka depression; Two to hold the neurological textbooks at the public library open for you while you diagnosis yourself using American Online’s Medline; And one to follow your instructions when you decide which medications you need to take.
I LOVE THIS!!! There is someone else out there who is brilliant and funny just like the rest of us! We ARE a smart bunch, no? Chana P.S. I’m sending a copy of this to my neurologist and family friend and physician. I know that, at least, the latter will ROFL… Mitzvah g’dolah l’hiyot b’simcha. "It is a great mitzvah to exist in a state of joy."
Response:
Believe us when we say we have "superior intelligence". You know how many doctors it takes to diagnosis dystonia? Ten: One to explain that doctors are not magicians; One to say that you have fribromyalgia; One to say you have slight scoliosis; One to say you have a headache and some endurance problems; One to say you have TMJ One to say you have a Benign Essential Tremor and rigidity; One to say you are suffering from a psychogenic disorder aka depression; Two to hold the neurological textbooks at the public library open for you while you diagnosis yourself using American Online’s Medline; And one to follow your instructions when you decide which medications you need to take.
SLIPPER I thought I had read this somewhere before,then I seen the name in the address. Glad you found us. Everyone meet slipper. We have become friends through e-mail recently. Slipper meet the gang, just watch out for that Mary Beth. Good to see you have joined our online family. Roger
Response:
Believe us when we say we have "superior intelligence". You know how many doctors it takes to diagnosis dystonia? Ten: One to explain that doctors are not magicians; One to say that you have fribromyalgia; One to say you have slight scoliosis; One to say you have a headache and some endurance problems; One to say you have TMJ One to say you have a Benign Essential Tremor and rigidity; One to say you are suffering from a psychogenic disorder aka depression; Two to hold the neurological textbooks at the public library open for you while you diagnosis yourself using American Online’s Medline; And one to follow your instructions when you decide which medications you need to take.
Response:
Hi! Bonnie I just read your post and I’m also excited about finding all this on my new computer. I’m had Dystonia since I was a teenager and I am a NSTA support leader in Atlanta, Georgia. I would love to correspond with you and maybe we could compare notes, this is a GREAT newsgroup and you will love it. Best wishes, Kathie
Response:
Welcome Bonnie! If you’ve got a sense of humor, you’ve found the right place! As serious as we can be, most of us can find SOMEthing to laugh at! Have you thought of contacting your regional coordinator from the Dystonia Medical Research Foundation in starting a support group?=
I’ve just come back from one of their conventions and we sure do have a lot to offer? MB will pipe in with more information and h= I’m a bit older than yourself but just beginning my ‘relationship’ with the diagnosis of dystonia … even though I’ve had dystonia=
since I can remember. Personally, I think we were given ’superior intelligence’ to make up for our differences. <<grin Looking forward to hearing from you again. Chana Mitzvah g’dolah l’hiyot b’simcha. "It is a great mitzvah to exist in a state of joy."
Golly, I feel like I am being paged again!! Yes, Chana, here I am at your service <<giggle Actually, Bonnie! Chana has a wonderful point which I completely overlooked [I am really scattered presently]. There is a support group called the ‘Dallas-Fort Worth’ Support Group in Cedar Hill TX. Leader is Patricia Foreman and her home # is 214 299-5715. You might want to touch base with her OR the Regional Cordinator for that regon is Bill Rapp in New Orleans and Bill’s # is 504 254-2455. Good Luck, Bonnie! MB
Response:
Welcome Bonnie! If you’ve got a sense of humor, you’ve found the right place! As serious as we can be, most of us can find SOMEthing to laugh at! I’m a bit older than yourself but just beginning my ‘relationship’ with the diagnosis of dystonia … even though I’ve had dystonia since I can remember. Personally, I think we were given ’superior intelligence’ to make up for our differences. <<grin Looking forward to hearing from you again. Chana Mitzvah g’dolah l’hiyot b’simcha. "It is a great mitzvah to exist in a state of joy."
Response:
My name is Bonnie and have had dystonia since I was 18 (now 41). I receive Botox injections (ST) also have problems with left foot and writers cramp with scolosis and degenerative disc disease. Whew!!! But keeping a positive attitude and a sense of humor is the only way to deal with this. So glad I got a computer in Dec.; never expected to find anything when I typed in dystonia for web search ;boy, was I suprised. This is great. Well, I could write a book of my experiences over the years. Just wanted to say hello and this has been a godsend. I have never encounted anyone else with dystonia; have joined NSTA and talked with my doctor yesterday about starting a support group in my area (Ft. Worth, TX). She has other patients she is contacting for me anf if they are interested will give them my #. I sure hope this works out. If I can help any one, please do not hesitiate to post or e-mail me. Thanks and remember you are not alone. Bonnie
Welcome Bonnie!! We are so glad you have found us and are willing to post! Another Texan…hmmmm, we are blessed with Canadians and Texans, aren’t we? Good luck with the support group…if ya happen to speak with either Jan Richter or Patricia Murray, say hi from Mary Beth (MB). And please keep posting, your experience is invaluable! TTYS, MB
Response:
My name is Bonnie and have had dystonia since I was 18 (now 41). I receive Botox injections (ST) also have problems with left foot and writers cramp with scolosis and degenerative disc disease. Whew!!! But keeping a positive attitude and a sense of humor is the only way to deal with this. So glad I got a computer in Dec.; never expected to find anything when I typed in dystonia for web search ;boy, was I suprised. This is great. Well, I could write a book of my experiences over the years. Just wanted to say hello and this has been a godsend. I have never encounted anyone else with dystonia; have joined NSTA and talked with my doctor yesterday about starting a support group in my area (Ft. Worth, TX). She has other patients she is contacting for me anf if they are interested will give them my #. I sure hope this works out. If I can help any one, please do not hesitiate to post or e-mail me. Thanks and remember you are not alone. Bonnie
Response:
This is so cool. Here I am, aspiring to become a writer; I answer a newsgroup post and now I’m gonna be in print all over!!! And more than anything, I’ll have the ultimate "last word" on a multitude of physicians via my pals, the dystoniacs. The name "Slipper" ain’t a pet name. It is a version of an old family name handed down over the years to the "chosen" ones who exhibited certain qualities. "Slipper" is a Hebrew term for, "She who is great". My great, great grandmother, also a chosen one, was 1/2 American Indian and was called "She who is great", but in indian it was pronounced, "Spaz-twista-shake". That does not fit on contemporary birth certificates. Therefore it was shown in Hebrew, pronouced "Slipper". Yaw show some respect, okay! Jeeeeeeeeeeeeeese!!!!!! -Slipper
Oh Great Slipper, I would like to respectfully welcome you to the alt.support.dystonia news group on the part of those of us living in the maritime provinces:-) I am sure our charming Mary Beth Chan will be officially welcoming you shortly. Gene
Response:
<<snip – Hide quoted text — Show quoted text -Oh me…It is the Chana & Slipper show!! How fun! And Chana, your post also appeared as one long line on my server…it is only when I do a ‘post reply’ that your post and Slipper’s take on ‘normal’ form!! Wonder if it is moi or yoi…<<<VBG MB MB I have the same problem. I always find this very baffling as most of the post I can read on my screen but there are one or two that seem to go past the right hand margin. Mally made a suggestion of what I should do but I have never been able to get it to work. Glad to have the company. Faye
If you are using Free Agent, try this: Click Options, then Posting, then pick the "General." tab. There is a choice for Line length. Choose 70, then click OK. Other newsreaders should have similar options. Jeff Jeff H.
Response:
I am curious about your post itself…it came onto my server as one long line and then a line that appeared to be typed and typed over-top-of many times. This happened to Chana’s posts too, still is on my server at least. AOL is having more trouble? Or what? Ideas anybody? In any case, no matter how your posts ‘look’, I really enjoy having you with us! MB
MB, I just finished describing this problem to Chana… I guess if others are having it too, I should redo it publically. The problem lies within the AOL newsreader. It appears to not know how to insert a carraige return to wrap a line, and so those posting from AOL are indeed writing one *very* long line instead of a paragraph. Those who can read the messages fine are using newsreaders that are able to fake-out the problem and wrap the lines to fit that user’s screen. This is why some people are able to read these posting no problem but others are having troubles and seeing only one line. We need those using AOL to manually insert carriage returns when they come to the end of a line on their screen (and continue their sentence on the next line). They will need to do this for every line of text for their whole posting as the problem will occur any time they don’t hit that ol’ "return" key. Other than that, people having troubles can see about any "line wrap" options in their own software that they can turn on when they come across a one-line AOL posting, or other means of justifying the message so it is readable in a paragraph format (such as saving the message and opening it up in another program such as a word processor.) Cathy. — (—-) (—-) " " http://www.cuug.ab.ca:8001/~collisoc " "
Response:
I have the same problem. I always find this very baffling as most of the post I can read on my screen but there are one or two that seem to go past the right hand margin. Mally made a suggestion of what I should do but I have never been able to get it to work. Glad to have the company. Faye
Someone mention my name? Hi Faye! <waving away at you
Depending on what newsreader you’re using, search through your menu lists for "word wrap". In Free Agent, if you click on that, it will stay "clicked" – a check mark will appear beside it. Then any post that goes off the side of your screen will get "wrapped" automatically. IOW, it will fit into the margins you have set in your default. You may find that you will then half lines followed by "=" or some such weird little squiggles or symbols. Just ignore those, they are the "line breaks" showing up as symbols. Hokey? For those whose posts are too wide, check in your "Page Setup" for margins – usually found under "File". Do this while you are in "Post" or "Reply" mode/screen. Mally :)
Response:
– Hide quoted text — Show quoted text – The name "Slipper" ain’t a pet name. It is a version of an old family name handed down over the years to the "chosen" ones who exhibited certain qualities. "Slipper" is a Hebrew term for, "She who is great". My great, great grandmother, also a chosen one, was 1/2 American Indian and was called "She who is great", but in indian it was pronounced, "Spaz-twista-shake". That does not fit on contemporary birth certificates. Therefore it was shown in Hebrew, pronouced "Slipper". Yaw show some respect, okay! Jeeeeeeeeeeeeeese!!!!!! -Slipper Thanks, Slipper. I needed that …except it hurts to laugh! You reminded me of a professor I had in grad school who had Parkinson= ’s. On those wonderful occassions when we would teach together, he would enter the room first with me trailing (and flailing). We wo= uld finally get to the front of the lecture hall and he’d introduce us. "Hi. They call me ‘Old Shaky’ and this is my partner, ‘Spaz= ‘." Shalom, Chana Mitzvah g’dolah l’hiyot b’simcha. "It is a great mitzvah to exist in a state of joy." Oh me…It is the Chana & Slipper show!! How fun! And Chana, your post also appeared as one long line on my server…it is only when I do a ‘post reply’ that your post and Slipper’s take on ‘normal’ form!! Wonder if it is moi or yoi…<<<VBG MB
MB I have the same problem. I always find this very baffling as most of the post I can read on my screen but there are one or two that seem to go past the right hand margin. Mally made a suggestion of what I should do but I have never been able to get it to work. Glad to have the company. Faye
Response:
This is so cool. Here I am, aspiring to become a writer; I answer a newsgroup post and now I’m gonna be in print all over!!! And more than anything, I’ll have the ultimate "last word" on a multitude of physicians via my pals, the dystoniacs. The name "Slipper" ain’t a pet name. It is a version of an old family name handed down over the years to the "chosen" ones who exhibited certain qualities. "Slipper" is a Hebrew term for, "She who is great". My great, great grandmother, also a chosen one, was 1/2 American Indian and was called "She who is great", but in indian it was pronounced, "Spaz-twista-shake". That does not fit on contemporary birth certificates. Therefore it was shown in Hebrew, pronouced "Slipper". Yaw show some res -Slipper
Spaz-twista-shake,hey that fits me oh she who is great. I thought that was a nick name you had,and here I thought I knew you. Well I’ll talh to you later. Roger
Response:
Hi Bonnie- Greetings to you from Chicago! Just a quick note to welcome you to the "family." I wanted to ensure that you are also familiar with our organization, The Dystonia Medical Research Foundation. We are the largest international organizations for dystonia-affected persons and their families (over 25,000 members!) Our Foundation has a 3-fold mission: to support dystonia-specific medical research (we have supported over $14 million to-date), to increase public and physician awareness of dystonia, and to sponsor educational and support programs for affected individuals and their families. If you are not familiar with our gladly send them to you. We also have a support group manual that may help you to get things started in Ft. Worth. Take care, Jennifer Molski Dystonia Medical Research Foundation
Response:
– Hide quoted text — Show quoted text – This is so cool. Here I am, aspiring to become a writer; I answer a newsgroup post and now I’m gonna be in print all over!!! And = more than anything, I’ll have the ultimate "last word" on a multitude of physicians via my pals, the dystoniacs. The name "Slipper" ain’t a pet name. It is a version of an old family name handed down over the years to the "chosen" ones who exh= ibited certain qualities. "Slipper" is a Hebrew term for, "She who is great". My great, great grandmother, also a chosen one, was= 1/2 American Indian and was called "She who is great", but in indian it was pronounced, "Spaz-twista-shake". That does not fit on = contemporary birth certificates. Therefore it was shown in Hebrew, pronouced "Slipper". Yaw show some respect, okay! Jeeeeeeeeeeeee= ese!!!!!! -Slipper Hi Slipper, So I am understanding that you are part Jew, part American Indian? WOW!! What a wonderful combination
I am curious about your post itself…it came onto my server as one long line and then a line that appeared to be typed and typed over-top-of many times. This happened to Chana’s posts too, still is on my server at least. AOL is having more trouble? Or what? Ideas anybody? In any case, no matter how your posts ‘look’, I really enjoy having you with us! MB
Shoot!! First it would not post and then it posted twice!! Sorry! MB
Response:
This is so cool. Here I am, aspiring to become a writer; I answer a newsgroup post and now I’m gonna be in print all over!!! And =
more than anything, I’ll have the ultimate "last word" on a multitude of physicians via my pals, the dystoniacs. The name "Slipper" ain’t a pet name. It is a version of an old family name handed down over the years to the "chosen" ones who exh=
ibited certain qualities. "Slipper" is a Hebrew term for, "She who is great". My great, great grandmother, also a chosen one, was= 1/2 American Indian and was called "She who is great", but in indian it was pronounced, "Spaz-twista-shake". That does not fit on = contemporary birth certificates. Therefore it was shown in Hebrew, pronouced "Slipper". Yaw show some respect, okay! Jeeeeeeeeeeeee= ese!!!!!! -Slipper
Hi Slipper, So I am understanding that you are part Jew, part American Indian? WOW!! What a wonderful combination
I am curious about your post itself…it came onto my server as one long line and then a line that appeared to be typed and typed over-top-of many times. This happened to Chana’s posts too, still is on my server at least. AOL is having more trouble? Or what? Ideas anybody? In any case, no matter how your posts ‘look’, I really enjoy having you with us! MB
Response:
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New Person Here…
Question:
~~<snipping throughout~~ Hi Beth i did quit my job and quit driving and just ran away from all the things that i thought were making me nervous. not healthy, eh?
Know what you mean – I did exactly the same. Wish I’d quit driving though coz instead I just took to crashing the car!
a lot of things on my mind right now. and , i’m REALLY suffering for it in the panic/anxiety department. my stomach has been a mess for months..and has been ESPECIALLY bad over the past month. my nerves are rather frayed. i am starting to be more afraid of the fear than ofwhat’s causing the fear..and i’m trying to find a single cause of this anxiety so i can just kick it out of my life and get on..but it ISN’T just one thing. i’m jus scared in general. i’m afraid of not being able to cope w/ life.
Beth, if there’s no obvious cause then don’t waste any more time looking. Try to accept the way you feel right now and work on that. Don’t get angry about it coz that won’t help. I know you’re scared but it’ll get better and you’ll get through. Be kind to yourself. so, that’s kind of a synopsis of what’s going on and some histry. i just wanted to give that before i start participating in this group. i just wantt o talk w/ people who are in a similar boat as i am..because as much as some of my friends care and want to help ,they just don’t know how bad it feels to be so nervous that you’re gagging and your mind is spinning at 24000 RPM. ya know?
Only 24000 RPM? How do you get it to go that slow?
Just think of all the extra thinking you can do in that time which your friends can’t. One day you might find that speed-thinking is an asset! As you probably know the gastric problems are caused by your body preparing you to fight a sabre-toothed tiger. Part of the blood flow is re-routed from your digestive system to your muscles (for running/fighting) and your brain (for quick thinking/staying alive). That’s why you feel nauseous, jumpy and your head spins. Personally I’d suggest that you look into relaxation exercises or biofeedback to reduce the level of background anxiety. This will also help reduce all that *noise* going on in your head. Through periods of proper relaxation you can convince your body that the *danger* has passed and give it the opportunity to settle down. well, thanks for the open ear/eye. i’m goign to check this group out some more and i hope i can offer something good for it and get somethign good out of it. okay? -Beth
Nice to hear from you and wishing you all the best. Sounds like you’ve got a lot going on in your life right now but things will settle down in time. Good luck — ROB… "high mileage but reliable!"
Response:
Hi Gary, I wondered if you have read or even heard of Lucinda Bassett’s new book "From panic to power", I’ve just started reading it and so far it seems pretty good! Any comments, thanks Rocco Rocco
Response:
: Sounds like you’re definitely "one of us", which is rotten luck : for you, but good in as much as you’ve found the right place. : I hope you get as much support and encouragement from ASAP : as I have
yup, i guess i am. = / this has been an ongoing problem since iwas younger. i’m goign through a rather rough spot right now. i was pretty much off all of my meds and feelign pretty damn good until about 2 months ago. then , shit just went downhill. i’m just in need of support wherever i can get it..and, from some of the email i’ve been getting, i am finding that my strange phobias and paranoias aren’t unique. that’s encouraging as hell. at least i’m not hte only one. thanks again. i think i’m going to stick around here for a while. -Beth ** some esoteric quote from some pretentious band or writer pasted here ** (check out beffie’s homepage: http://www.aracnet.com/~martine/bethie.html)
Response:
Hi Gary, I wondered if you have read or even heard of Lucinda Bassett’s new book "From panic to power", I’ve just started reading it and so far it seems pretty good!
Can I just remind people to *please* not post *and* e-mail? I replied to Rocco’s message earlier, as I received it via e-mail, not realising he’d also posted it here as well. This isn’t a flame – just a plea to avoid duplication of effort
— Gary Cooper
Response:
i have lurked in this group and commented a tad a while back…but i was on a good upswing w/ my anxiety problems at the time and didn’t feel that i needed to be adding my $.02 at that time. ya know? anyhow, i’m back because i’ve been feeling a tremendous amount of anxiety about some major changes in my life.
Hi, welcome to ASAP
<words deleted to save space so, that’s kind of a synopsis of what’s going on and some histry. i just wanted to give that before i start participating in this group. i just wantt o talk w/ people who are in a similar boat as i am..because as much as some of my friends care and want to help ,they just don’t know how bad it feels to be so nervous that you’re gagging and your mind is spinning at 24000 RPM. ya know? well, thanks for the open ear/eye. i’m goign to check this group out some more and i hope i can offer something good for it and get somethign good out of it. okay?
Sounds like you’re definitely "one of us", which is rotten luck for you, but good in as much as you’ve found the right place. I hope you get as much support and encouragement from ASAP as I have
— Gary Cooper
Response:
hi there, i have lurked in this group and commented a tad a while back…but i was on a good upswing w/ my anxiety problems at the time and didn’t feel that i needed to be adding my $.02 at that time. ya know? anyhow, i’m back because i’ve been feeling a tremendous amount of anxiety about some major changes in my life. let me give a little background: i’m 23. i’ve been suffering from general anxiety and panic stuff since i was a littler kid (say, about 8 years old or so). i had my first hardcore panic attacks when iwas about 16..and then a really bad episode when iwas 18 and ended up shutting myself inside forabout 3 months so iwas basically agoraphobic(sp?). i got a good case about a year ago too, when my parents moved out of state. i’ve been off and on medication for all of this: norpramine (for depression and anxiety), xanax and, more recently, zoloft. xanax and zoloft work wonders for me but i don’t like the side effects of zoloft thati feel. so, i quit zoloft last march or so. my anxiety hits me in the bowels and stomach. i start gagging and can’t stand the smell of food. my body either wants to puke or shit or both. pretty icky, if you must know. = b i’ve been seeing a good therapist and a good doctor lately to help w/ this all. the doctor has me taking a lot of stomach/intestine meds which help that end..and xanax for when the panic or the nerves get overwhelming. so, i’m on my way to recovery..it’s just taking a while. i’m having trouble eating still..and if i don’t keep myself busy, my brain just tries to eat itself and runs in circles, causing more and more anxiety. i ususally start having a good bout of what i call the "heebie jeebies" in my life when i’m going through a lot of change. when iwas 16, there was about 5 new things going on in my life: moving away from my hometown, coming out, my dad remarrying, new job, newly licensed to drive. so, i got overwhelmed and started having anxiety attacks. i got stabilized but was not really ever formally treated for these attacks because i was functioning okay and at least gong to school. i did quit my job and quit driving and just ran away from all the things that i thought were making me nervous. not healthy, eh? then, when i was 18, well, i graduated from highschool and i just totally freaked. it took a long time to get over that one. i was a mess and a half over that summer, didn’t barely leave the house, was having paraniod thoughts, the works. my family deicded that it was probaly a good idea to send me to a psychiatrist, who put me on xanax and norpramine. it really worked. i went to commnity college and did well and slowly learned to face my fears. it took a lot of time, though. the episode of major anxiety i felt a year ago was over my paretns moving to texas and my grades slipping here at UCD. i promply went to see a shrink and worked it out…as usual, it took a while. and then there’s now: i’m goign to be graduating from college in 2 quarters. my parents are out of state. i have a new relationship that started out very intense becuase of distance factors (she’s up in oregon and i’m down here). i have to figure out what i’m goin to do after graduation..a lot of things on my mind right now. and , i’m REALLY suffering for it in the panic/anxiety department. my stomach has been a mess for months..and has been ESPECIALLY bad over the past month. my nerves are rather frayed. i am starting to be more afraid of the fear than ofwhat’s causing the fear..and i’m trying to find a single cause of this anxiety so i can just kick it out of my life and get on..but it ISN’T just one thing. i’m jus scared in general. i’m afraid of not being able to cope w/ life. so, that’s kind of a synopsis of what’s going on and some histry. i just wanted to give that before i start participating in this group. i just wantt o talk w/ people who are in a similar boat as i am..because as much as some of my friends care and want to help ,they just don’t know how bad it feels to be so nervous that you’re gagging and your mind is spinning at 24000 RPM. ya know? well, thanks for the open ear/eye. i’m goign to check this group out some more and i hope i can offer something good for it and get somethign good out of it. okay? -Beth ** some esoteric quote from some pretentious band or writer pasted here ** (check out beffie’s homepage: http://www.aracnet.com/~martine/bethie.html)
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Need info for my mom
Question:
Hi Rhenda, The office help at your mom’s doctor’s office is deplorable. As someone else mentioned, perhaps this dr. doesn’t have enough patients who need Botox to keep a sufficient supply around. What to do? Try all the suggestions offered, also consider this one. The neurologists at the large university hospital where I get Botox, set aside only a couple of days to do nothing but give injections – the hospital obtains a supply of the poison. However, a couple of the doctors have suggested to some dystonics in my support group, that if they prefer, their pharmacist possible could order Botox for them. The patient would then bring the vial(s) with them to their doctor for the injections. This seems to be advisable or suggested to those people whose insurance likes it that way. But, why would this not work for your mother – for whatever reason!? If she can obtain Botox herself, maybe the neuro would be willing to inject her…that is if she can by-pass the rude office help. Maybe worth a try. I know of at least two people who obtain their serum directly from their pharmacist. One problem of course, would be that she would have to get an Rx for the stuff. Keep trying! Best Regards, Nancy
Response:
– Hide quoted text — Show quoted text -Hi Rhenda, The office help at your mom’s doctor’s office is deplorable. As someone else mentioned, perhaps this dr. doesn’t have enough patients who need Botox to keep a sufficient supply around. What to do? Try all the suggestions offered, also consider this one. The neurologists at the large university hospital where I get Botox, set aside only a couple of days to do nothing but give injections – the hospital obtains a supply of the poison. However, a couple of the doctors have suggested to some dystonics in my support group, that if they prefer, their pharmacist possible could order Botox for them. The patient would then bring the vial(s) with them to their doctor for the injections. This seems to be advisable or suggested to those people whose insurance likes it that way. But, why would this not work for your mother – for whatever reason!? If she can obtain Botox herself, maybe the neuro would be willing to inject her…that is if she can by-pass the rude office help. Maybe worth a try. I know of at least two people who obtain their serum directly from their pharmacist. One problem of course, would be that she would have to get an Rx for the stuff. Keep trying! Best Regards, Nancy
Nancy, your idea is great and might provide an avenue around this mess. One problem, though, many trained neuro. at Univ. will NOT inject unless the vials come from their freezer. The problem is legal in nature. I tried to get the vials oversees (price is much less in UK & France). They would have been packaged and remain in a frozen state but the FDA does not allow out-of-country medicine to be used in U.S. Maybe the antibodies I have to BOTOX A & F are a blessing in disguise! — ——-Dystonia Foundation’s co-Webmaster—— ** (312) 755-0198 [v], (312) 803-0138 [fx], ** ** http://www.zipnet.net/users/dystonia/ ** ** One East Wacker Drive – Chicago, IL 60601 **
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– Hide quoted text — Show quoted text -Hello all, I found this newsgroup in a search for information for my mother. I have read the messages available on my server today, but have not searched for an archive or FAQ, or lurked for a decent time before my first post because I’m in a hurry. Everybody is these days, but this is MY MOM. My mother, the most assertive, confident, intelligent person I know, suffers from debilitating spasmodic torticollis. I could go on for a page or two about her history and symptoms, but for now I will try to be brief. Mom has been receiving Botox injections since 1992. They provide her enough relief that she is able to travel with my dad around the country and visit the kids & grandkids. She was at my house in late May and traveled home in considerable pain expecting to get her next injection soon. Her treatment has been postponed indefinately by the doctor’s office and they will only tell her that they cannot get the medicine at present and don’t know when more will come in. She has been sitting at home for six weeks now waiting on word that she can get her treatment. Calls to the clinic have been met with rude treatment from the woman-in-charge. She will not tell mom why they can’t get the Botox, or when they expect to. Nothing. She even yelled at MY MOTHER. Well, I’m ready to drive down there and confront the bunch, but mom won’t hear of it. She has "forbidden" me to even call and talk to the doctor’s staff to try and get more info. She wouldn’t even give me his name. She is scared to death they will refuse her treatment when they do get the medicine if I piss them off. This is incredible behavior from her (see the first sentence of paragraph two above). I am trying to help in the least obtrusive way I can. Mom said, "I forbid you to call them!" So, I got on the internet. I knew the name of the university medical center where she goes, so now I know the Doc’s name, his nurse’s name, his email address, the entire history of Botox development and production, all about the Orphan Drug Act, and Allergan. What I don’t know is why my mother’s clinic doesn’t have the medicine for her. My dad suspects this is a ruse, that the doc is stalling because he went out of town or something. My mom suspects it may be bureaucratic bungling at the university hospital. Someone lost or destroyed the last batch, they have to go through the red tape to get more. But it would help her a lot if I could find out something. Her last communication with the clinic was a talk with the woman-in-charge who said "I’m going on vacation until August 12. If we have the Botox when I get back, I’ll call you to schedule an appointment. There’s no point in bothering anyone until then, there’s nothing we can do." I really want to yell at that woman. But, I promised my mother. So…I said all of that to say this: Does anyone know why, or even if the Botox supply has been interrupted? Thanks, Rhenda
Hi Rhenda and welcome!! Sounds as though you are going through a tough time…good grief! I don’t know a thing about the situation with Botox. I’d almost be tempted to telephone Allergan and ask them. The treatment your mom is receiving from the drs office is inexcusable IMHO. However, it is your mom’s dr so it makes the situation delicate for you to say the least. Hopefully others who are more up on Botox will respond to your post. In the meantime, it wouldn’t hurt to e-mail the Dystonia Medical Research Foundation and ask whether there have been any recent problems that they one recommended by the Foundation…perhaps a mention of situation would be warranted here, although it sounds like the office staff leaves much to be desired moreso than the dr. I wish you luck and a good ending to your mom’s situation. MB
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- Hide quoted text — Show quoted text – Hello all, I found this newsgroup in a search for information for my mother. I have read the messages available on my server today, but have not searched for an archive or FAQ, or lurked for a decent time before my first post because I’m in a hurry. Everybody is these days, but this is MY MOM. My mother, the most assertive, confident, intelligent person I know, suffers from debilitating spasmodic torticollis. I could go on for a page or two about her history and symptoms, but for now I will try to be brief. Mom has been receiving Botox injections since 1992. They provide her enough relief that she is able to travel with my dad around the country and visit the kids & grandkids. She was at my house in late May and traveled home in considerable pain expecting to get her next injection soon. Her treatment has been postponed indefinately by the doctor’s office and they will only tell her that they cannot get the medicine at present and don’t know when more will come in. She has been sitting at home for six weeks now waiting on word that she can get her treatment. Calls to the clinic have been met with rude treatment from the woman-in-charge. She will not tell mom why they can’t get the Botox, or when they expect to. Nothing. She even yelled at MY MOTHER. Well, I’m ready to drive down there and confront the bunch, but mom won’t hear of it. She has "forbidden" me to even call and talk to the doctor’s staff to try and get more info. She wouldn’t even give me his name. She is scared to death they will refuse her treatment when they do get the medicine if I piss them off. This is incredible behavior from her (see the first sentence of paragraph two above). I am trying to help in the least obtrusive way I can. Mom said, "I forbid you to call them!" So, I got on the internet. I knew the name of the university medical center where she goes, so now I know the Doc’s name, his nurse’s name, his email address, the entire history of Botox development and production, all about the Orphan Drug Act, and Allergan. What I don’t know is why my mother’s clinic doesn’t have the medicine for her. My dad suspects this is a ruse, that the doc is stalling because he went out of town or something. My mom suspects it may be bureaucratic bungling at the university hospital. Someone lost or destroyed the last batch, they have to go through the red tape to get more. But it would help her a lot if I could find out something. Her last communication with the clinic was a talk with the woman-in-charge who said "I’m going on vacation until August 12. If we have the Botox when I get back, I’ll call you to schedule an appointment. There’s no point in bothering anyone until then, there’s nothing we can do." I really want to yell at that woman. But, I promised my mother. So…I said all of that to say this: Does anyone know why, or even if the Botox supply has been interrupted? Thanks, Rhenda
I would e-mail the dystonia foundation with cc to the hospital. I would e-mail or write allergen and cc the hospital. Let the hospital know te enths you ar going to to get the botox for THEM. I think people with a power trip take the phones at clinics. Either that or the sheer volume of calls make them misanthropes.
Response:
– Hide quoted text — Show quoted text -Thanks for the suggestion, Mary Beth. Public thanks also to Sherrie and Becky who were kind enough to send very nice email messages with helpful suggestions. And each of you added a different piece of information! My next challenge is to get mom on the Internet. She has a new electronic typewriter and thinks it’s the "cat’s meow". I tried to get her interested when she was here, but she said she’s too old (62! that used to be "old" when I was 21, but now I’m 41 so it’s not) to learn this new "widget" and it hurt to hold her head still and look at the screen. (She has essential tremor which she has had since her late teens. It is familial. She has had a few "supermarket" diagnoses of Parkinson’s from absolute strangers. I still can’t believe the stupidity of someone who would offer up unsolicited outrageously inaccurate advice on a medical problem to a total stranger, but I digress.) I wish I had found this newsgroup before I was trying to turn Mom on to the wonders of the ‘Net. She’ll be back this fall, I hope. If we can get the damned Meanwhile, I am calling her up (long distance) and reading your email to her. Rhenda
Hey Rhenda!! Tell your Mom that I am 52 and just began with a computer in late 1993, so it is never too late to learn…as you say, 62 is young
Rhenda, you are one spunky gal!! I just want to keep yelling, "Go Girl"!!! I am certain with you on Mom’s team, she can’t go wrong! But the doctors sure can–tee hee! Take care, MB
Response:
Tell your Mom that I am 52 and just began with a computer in late 1993, so it is never too late to learn…as you say, 62 is young
My future mother-in-law is 63 and has been using a computer for about a year now. We got her "addicted" through games and word processing, and now she’s into email and the internet. My Grannie, at 76 is quite keen on learning the internet and email as well. Maybe your Mom just isn’t old enough yet. <g Cathy. — (—-) (—-) " " http://www.cuug.ab.ca:8001/~collisoc " "
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writes: You know BOTOX is very expensive. Clinics have to buy in bulk as it is cheaper to purchase it this way. When clinics buy in bulk like this they usually have a set day which they give the injections. Perhaps your Mother’s clinic feels that there aren’t enough people coming to the clinic to warrent purchasing the BOTOX. My suggestion to you is why don’t you call the DYSTONIA FOUNDATION Headquarters in Chicago (312) 755-0198 — explain your Mother’s situation and find out what other clinics in your Mother’s area are giving BOTOX injections. Life is too short and sweet to go thru unnecessary hassle. Your Mother needs attention now and not whenever… Hope this helps some. Cheerio, Becky
I was wondering how to post what I wanted to pass along to you then I read the above portion of Becky’s post. There is a company called ATHENA RX HOME PHARMACY. The number is 1-800-528-4362. They have Botox listed in thier Neurolgy Products catalog that I have. They don’t give a price for it,say’s to call for price. Maybe your mother can call and get some information from them and then call doctors office and tell them to give her an injection date and she can have the botox there. See how fast they get some Botox in then. Might be worth checking into. I got the information on Athena from some stuff I got at the symposium. Good luck Roger
Response:
- Hide quoted text — Show quoted text – writes: You know BOTOX is very expensive. Clinics have to buy in bulk as it is cheaper to purchase it this way. When clinics buy in bulk like this they usually have a set day which they give the injections. Perhaps your Mother’s clinic feels that there aren’t enough people coming to the clinic to warrent purchasing the BOTOX. My suggestion to you is why don’t you call the DYSTONIA FOUNDATION Headquarters in Chicago (312) 755-0198 — explain your Mother’s situation and find out what other clinics in your Mother’s area are giving BOTOX injections. Life is too short and sweet to go thru unnecessary hassle. Your Mother needs attention now and not whenever… Hope this helps some. Cheerio, Becky I was wondering how to post what I wanted to pass along to you then I read the above portion of Becky’s post. There is a company called ATHENA RX HOME PHARMACY. The number is 1-800-528-4362. They have Botox listed in thier Neurolgy Products catalog that I have. They don’t give a price for it,say’s to call for price. Maybe your mother can call and get some information from them and then call doctors office and tell them to give her an injection date and she can have the botox there. See how fast they get some Botox in then. Might be worth checking into. I got the information on Athena from some stuff I got at the symposium. Good luck Roger
Thanks for sharing this bit of info with us, Roger. Had I gone to the New York Symposium in May, you better believe I would have grabbed *any* BOTOX info there. I do know that BOTOX is *VERY* expensive because I see the charges on my health insurance bills. The reason BOTOX is expensive is because only one company makes it – as the one you mentioned in your msg. I may be wrong, but I don’t think the company would issue the medicine to one dr alone unless s/he is associated with a ‘BOTOX’ clinic. This is a good idea — to call the company and find out if the particular clinic is still giving BOTOX injections and when the injections are given. But, by the same token, you could also ask where the other ‘BOTOX’ clinics are in the area — if the company would give out such priviledge info. BUT, then finding another dr would be a ‘hassle’ in this process. Anyway, hassle or no, it is worth the effort to track things down if you feel the particulars are helpful to you. There, I’ve said my 2%…. Cheerio, Becky
Response:
Hi All: Just wanted to let you all know that I’m alive alive and well. Just took a ‘computer break’ to write a paper and other things to prepare fore a job that I might be hire for in the Fall… But, I’ll make my present known on this n/g ASAP… Anyway, just wanted to share with you my answer to Rhenda that I personally answered with you all. Yes, MB, I practically said the same thing you said, but added my 2% worth… I do lurk on here now and then no matter how *busy* I am. I know what’s going on… <<<VBG – Hide quoted text — Show quoted text – Hello all, I found this newsgroup in a search for information for my mother. I have read the messages available on my server today, but have not searched for an archive or FAQ, or lurked for a decent time before my first post because I’m in a hurry. Everybody is these days, but this is MY MOM. My mother, the most assertive, confident, intelligent person I know, suffers from debilitating spasmodic torticollis. I could go on for a page or two about her history and symptoms, but for now I will try to be brief. Mom has been receiving Botox injections since 1992. They provide her enough relief that she is able to travel with my dad around the country and visit the kids & grandkids. She was at my house in late May and traveled home in considerable pain expecting to get her next injection soon. Her treatment has been postponed indefinately by the doctor’s office and they will only tell her that they cannot get the medicine at present and don’t know when more will come in. She has been sitting at home for six weeks now waiting on word that she can get her treatment. Calls to the clinic have been met with rude treatment from the woman-in-charge. She will not tell mom why they can’t get the Botox, or when they expect to. Nothing. She even yelled at MY MOTHER. Well, I’m ready to drive down there and confront the bunch, but mom won’t hear of it. She has "forbidden" me to even call and talk to the doctor’s staff to try and get more info. She wouldn’t even give me his name. She is scared to death they will refuse her treatment when they do get the medicine if I piss them off. This is incredible behavior from her (see the first sentence of paragraph two above). I am trying to help in the least obtrusive way I can. Mom said, "I forbid you to call them!" So, I got on the internet. I knew the name of the university medical center where she goes, so now I know the Doc’s name, his nurse’s name, his email address, the entire history of Botox development and production, all about the Orphan Drug Act, and Allergan. What I don’t know is why my mother’s clinic doesn’t have the medicine for her. My dad suspects this is a ruse, that the doc is stalling because he went out of town or something. My mom suspects it may be bureaucratic bungling at the university hospital. Someone lost or destroyed the last batch, they have to go through the red tape to get more. But it would help her a lot if I could find out something. Her last communication with the clinic was a talk with the woman-in-charge who said "I’m going on vacation until August 12. If we have the Botox when I get back, I’ll call you to schedule an appointment. There’s no point in bothering anyone until then, there’s nothing we can do." I really want to yell at that woman. But, I promised my mother. So…I said all of that to say this: Does anyone know why, or even if the Botox supply has been interrupted? Thanks, Rhenda
[ Rhenda 5K ]
– Hide quoted text — Show quoted text – Hello all, I found this newsgroup in a search for information for my mother. I have read the messages available on my server today, but have not searched for an archive or FAQ, or lurked for a decent time before my first post because I’m in a hurry. Everybody is these days, but this is MY MOM. My mother, the most assertive, confident, intelligent person I know, suffers from debilitating spasmodic torticollis. I could go on for a page or two about her history and symptoms, but for now I will try to be brief. Mom has been receiving Botox injections since 1992. They provide her enough relief that she is able to travel with my dad around the country and visit the kids & grandkids. She was at my house in late May and traveled home in considerable pain expecting to get her next injection soon. Her treatment has been postponed indefinately by the doctor’s office and they will only tell her that they cannot get the medicine at present and don’t know when more will come in. She has been sitting at home for six weeks now waiting on word that she can get her treatment. Calls to the clinic have been met with rude treatment from the woman-in-charge. She will not tell mom why they can’t get the Botox, or when they expect to. Nothing. She even yelled at MY MOTHER. Well, I’m ready to drive down there and confront the bunch, but mom won’t hear of it. She has "forbidden" me to even call and talk to the doctor’s staff to try and get more info. She wouldn’t even give me his name. She is scared to death they will refuse her treatment when they do get the medicine if I piss them off. This is incredible behavior from her (see the first sentence of paragraph two above). I am trying to help in the least obtrusive way I can. Mom said, "I forbid you to call them!" So, I got on the internet. I knew the name of the university medical center where she goes, so now I know the Doc’s name, his nurse’s name, his email address, the entire history of Botox development and production, all about the Orphan Drug Act, and Allergan. What I don’t know is why my mother’s clinic doesn’t have the medicine for her. My dad suspects this is a ruse, that the doc is stalling because he went out of town or something. My mom suspects it may be bureaucratic bungling at the university hospital. Someone lost or destroyed the last batch, they have to go through the red tape to get more. But it would help her a lot if I could find out something. Her last communication with the clinic was a talk with the woman-in-charge who said "I’m going on vacation until August 12. If we have the Botox when I get back, I’ll call you to schedule an appointment. There’s no point in bothering anyone until then, there’s nothing we can do." I really want to yell at that woman. But, I promised my mother. So…I said all of that to say this: Does anyone know why, or even if the Botox supply has been interrupted? Thanks, Rhenda
Hi Rhenda: I’m sorry your Mother has been having a frustrating time — I know what it’s like to go without my BOTOX injections — and I have injections not only to my neck, but also my vocal chords and face. …And it must be very frustrating for you as well not knowing what to do about your Mother’s situation, especially when she *FORBIDS* you not to intercede. Since when does a loving daughter always obey her Mother??? I know I can relate to your situation as I live with my 90 yr old Mother. Mother’s can be VERY stubborn at times! Anyway, back to your problem with drs and BOTOX. I’ve been to many a dr and would like to kick some of them in the butt. Some drs have very poor ‘bedside’ manners. And their secretaries are like a drill sargeant — if you can get past them you’re lucky… BUT, there’s no reason for a clinic to act in such a non-professional way. The only thing I can say here is maybe the clinic is giving up the ‘BOTOX program’ because of budget problems (yeah! that ’song’ has a ring to it, doesn’t it?). Still, they should have alerted the patients to this. You know BOTOX is very expensive. Clinics have to buy in bulk as it is cheaper to purchase it this way. When clinics buy in bulk like this they usually have a set day which they give the injections. Perhaps your Mother’s clinic feels that there aren’t enough people coming to the clinic to warrent purchasing the BOTOX. My suggestion to you is why don’t you call the DYSTONIA FOUNDATION Headquarters in Chicago (312) 755-0198 — explain your Mother’s situation and find out what other clinics in your Mother’s area are giving BOTOX injections. Life is too short and sweet to go thru unnecessary hassle. Your Mother needs attention now and not whenever… Hope this helps some. Cheerio, Becky <<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<< |Rebecca Ladew |"Watch me disappear!" CLICK. | |70323,722 (Compuserve) | | <<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<<
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