Question:

- Hide quoted text — Show quoted text – Aloha Daltons, I do not specifically about serotonin.  But… After several years of prednisone use I now have a bone density LOSS of about 35% per Dexascan.  No one knew?? the dangers when I started the drug in 1988. It can change,  mood, body weight (moon face), and other not so good side effects.  Avoid when you can and use very carefully.  According to an Endocrinologist sp?, steroids can affect bone density in one year or less. Mele Kaliki Maka, Merry Christmas to All, Edmund, Kauai, HI I have agressivness/anger/mood problems with prednisone in a major way.  This is the most problematic side effect for me.  :(

Yeah, it can do that too. See PI Precaution: http://www.rxlist.com/cgi/generic/pred.htm#sect-Precautions Excerpt: "Precautions: General Precautions The lowest possible dose of corticosteroid should be used to control the condition under treatment, and when reduction in dosage is possible, the reduction should be gradual. Psychic derangements may appear when corticosteroids are used,  ranging from euphoria, insomnia, mood swings, personality  changes, and severe depression, to frank psychotic  manifestations. Also, existing emotional instability or  psychotic tendencies may be aggravated by corticosteroids." I try to stay away from oral steroids like prednisone; have been able to control exacerbations with very high dose inhaled steroids, which is still much less steroid than prednisone, since its targeted to the lungs. So I double, triple, or if necessary quadruple my inhaled steroids during exacerbation (per Action Plan) Note–Oral steroids probably needed for peak flows below 50% of personal best. Ellis

Response:

Aloha Daltons, I do not specifically about serotonin.  But… After several years of prednisone use I now have a bone density LOSS of about 35% per Dexascan.  No one knew?? the dangers when I started the drug in 1988. It can change,  mood, body weight (moon face), and other not so good side effects.  Avoid when you can and use very carefully.  According to an Endocrinologist sp?, steroids can affect bone density in one year or less. Mele Kaliki Maka, Merry Christmas to All, Edmund, Kauai, HI

I have agressivness/anger/mood problems with prednisone in a major way.  This is the most problematic side effect for me.  :(  

Response:

Hi all  :) Anyone know the effect prednisone has on serotonin levels?

Response:

Aloha Daltons, I do not specifically about serotonin.  But… After several years of prednisone use I now have a bone density LOSS of about 35% per Dexascan.  No one knew?? the dangers when I started the drug in 1988. It can change,  mood, body weight (moon face), and other not so good side effects.  Avoid when you can and use very carefully.  According to an Endocrinologist sp?, steroids can affect bone density in one year or less. Mele Kaliki Maka, Merry Christmas to All, Edmund, Kauai, HI

Response:

Anyone know the effect prednisone has on serotonin levels?

I don’t know about serotonin interactions. Here’s a link to PI: http://www.rxlist.com/cgi/generic/pred.htm prednisone Excerpts: "Adverse Reactions: Neurological: Increased intracranial pressure with papilledema  (pseudo-tumor cerebri) usually after treatment; Convulsions;  Vertigo; Headache Endocrine: Menstrual irregularities; Development of Cushingoid state; Secondary adrenocortical and pituitary unresponsiveness, particularly in times of stress, as in trauma,  surgery or illness; Suppression of growth in children; Decreased carbohydrate tolerance; Manifestations of latent  diabetes mellitus; Increased requirements for insulin or  oral hypoglycemic agents in diabetics Ophthalmic: Posterior subcapsular cataracts; Increased  intraocular pressure; Glaucoma; Exophthalmos" Copyright 1998 – Mosby Inc. – Mosby’s GenRx Many asthmatics on oral steroids have been able to switch to High Dose inhaled steroids like Pulmicort or Flovent 220, which results in a smaller systemic dose. Ellis

Response:

Question:

I too have mild, allergy and exercise induced asthma. I started Singulair over a year ago, and have hardly ever had to use any other medicine during that period. I am very happy this way. Erica Steve Freides heeft geschreven in bericht – Hide quoted text — Show quoted text -I changed a few medications at once a few months back, resulting in a huge improvement in my condition.  I was taking Serevent and Allegra and added Singulair and Flovent. (I didn’t add Flovent but switched from Serevent to Advair.) I know a significant number of people take Advair/Flovent but do not take Singulair.  I was wondering if many people take Singulair but not Advair/Flovent.  I’m considering trying a brief experiment of stopping Advair and seeing how I do.  My expectation is that I will miss Advair but I thought it would be interesting to give it a try. Background:  my asthma is mild and largely related to allergans and exercise, i.e., if I stay in my HEPA-filtered house and don’t exercise, I have no symptoms.  I have never been hospitalized for asthma or breathing difficulties of any kind.  I carry a Proventil inhaler for emergencies but have never needed it since I added Singulair and Advair to my routine.  I have discussed the matter with my physician who said, while he doesn’t think I should stop Advair, neither does he think it will hurt me. -S-

Response:

The lowest strength of Flovent is 50ug/pf fluticasone, usually prescribed 2 pf twice/day. This could be tapered in half to 1 pf x2; or cut in 1/4 to 1 pf/day.

I have used this method for quite sometime and have had good success.

Response:

- Hide quoted text — Show quoted text – It makes more sense to just change one drug at a time, so you can see what it’s effect is, independent of the other drugs. It would make sense to go back to Serevent and add Flovent to equal your present dose of Advair. Then taper down the Flovent to the level to control your symptoms and keep peak flows in the Green Zone on your peak flow meter. My Advair is the lowest doseage of Flovent already, so there’s nothing there to taper. The lowest dose strength of Advair is 100ug/pf fluticasone,  usually prescribed twice/day. This could be tapered in half  to 1 pf/day. The lowest strength of Flovent is 50ug/pf fluticasone, usually prescribed 2 pf twice/day. This could be tapered in half to 1 pf x2; or cut in 1/4 to 1 pf/day.

Good points.  I could try my 100/50 Advair only in the mornings, but I like the idea of separating them and trying to lower the Serevent best. -S- – Hide quoted text — Show quoted text – Ellis  I’m quite convinced that Singulair has helped me and that I may be able to get by without either Serevent or Flovent. Colin’s suggestion of separating Advair into its components then reducing the Serevent is certainly worth trying as well. I will do a bit of experimenting with what’s in-house here already and report back in a few weeks. -S- The general rule on steroid inhalers is to use the minimum dose to control the problem, especially at Moderate and High dose levels. As a more simplistic approach, you could just try reducing the puffs of Advair. [however this simultaneously reduces the salmeterol and fluticasone]. Note that Advair comes in 3 strengths; if you are not using the lowest strength version you could try switching to that. Note that Singulair only helps about 2/3 who try it; if it doesn’t help it should be dropped. In my case it helps my rhinitis more than the asthma. Ellis Background:  my asthma is mild and largely related to allergans and exercise, i.e., if I stay in my HEPA-filtered house and don’t exercise, I have no symptoms.  I have never been hospitalized for asthma or breathing difficulties of any kind.  I carry a Proventil inhaler for emergencies but have never needed it since I added Singulair and Advair to my routine.  I have discussed the matter with my physician who said, while he doesn’t think I should stop Advair, neither does he think it will hurt me. -S-

Response:

It makes more sense to just change one drug at a time, so you can see what it’s effect is, independent of the other drugs. It would make sense to go back to Serevent and add Flovent to equal your present dose of Advair. Then taper down the Flovent to the level to control your symptoms and keep peak flows in the Green Zone on your peak flow meter. My Advair is the lowest doseage of Flovent already, so there’s nothing there to taper.

The lowest dose strength of Advair is 100ug/pf fluticasone,  usually prescribed twice/day. This could be tapered in half  to 1 pf/day. The lowest strength of Flovent is 50ug/pf fluticasone, usually prescribed 2 pf twice/day. This could be tapered in half to 1 pf x2; or cut in 1/4 to 1 pf/day. Ellis  I’m quite convinced that Singulair has helped me and – Hide quoted text — Show quoted text – that I may be able to get by without either Serevent or Flovent. Colin’s suggestion of separating Advair into its components then reducing the Serevent is certainly worth trying as well. I will do a bit of experimenting with what’s in-house here already and report back in a few weeks. -S- The general rule on steroid inhalers is to use the minimum dose to control the problem, especially at Moderate and High dose levels. As a more simplistic approach, you could just try reducing the puffs of Advair. [however this simultaneously reduces the salmeterol and fluticasone]. Note that Advair comes in 3 strengths; if you are not using the lowest strength version you could try switching to that. Note that Singulair only helps about 2/3 who try it; if it doesn’t help it should be dropped. In my case it helps my rhinitis more than the asthma. Ellis Background:  my asthma is mild and largely related to allergans and exercise, i.e., if I stay in my HEPA-filtered house and don’t exercise, I have no symptoms.  I have never been hospitalized for asthma or breathing difficulties of any kind.  I carry a Proventil inhaler for emergencies but have never needed it since I added Singulair and Advair to my routine.  I have discussed the matter with my physician who said, while he doesn’t think I should stop Advair, neither does he think it will hurt me. -S-

Response:

- Hide quoted text — Show quoted text – I changed a few medications at once a few months back, resulting in a huge improvement in my condition.  I was taking Serevent and Allegra and added Singulair and Flovent. (I didn’t add Flovent but switched from Serevent to Advair.) I know a significant number of people take Advair/Flovent but do not take Singulair.  I was wondering if many people take Singulair but not Advair/Flovent.  I’m considering trying a brief experiment of stopping Advair and seeing how I do.  My expectation is that I will miss Advair but I thought it would be interesting to give it a try. It makes more sense to just change one drug at a time, so you can see what it’s effect is, independent of the other drugs. It would make sense to go back to Serevent and add Flovent to equal your present dose of Advair. Then taper down the Flovent to the level to control your symptoms and keep peak flows in the Green Zone on your peak flow meter.

Thank you and thanks to everyone else who has responded thus far. My Advair is the lowest doseage of Flovent already, so there’s nothing there to taper.  I’m quite convinced that Singulair has helped me and that I may be able to get by without either Serevent or Flovent. Colin’s suggestion of separating Advair into its components then reducing the Serevent is certainly worth trying as well. I will do a bit of experimenting with what’s in-house here already and report back in a few weeks. -S- – Hide quoted text — Show quoted text – The general rule on steroid inhalers is to use the minimum dose to control the problem, especially at Moderate and High dose levels. As a more simplistic approach, you could just try reducing the puffs of Advair. [however this simultaneously reduces the salmeterol and fluticasone]. Note that Advair comes in 3 strengths; if you are not using the lowest strength version you could try switching to that. Note that Singulair only helps about 2/3 who try it; if it doesn’t help it should be dropped. In my case it helps my rhinitis more than the asthma. Ellis Background:  my asthma is mild and largely related to allergans and exercise, i.e., if I stay in my HEPA-filtered house and don’t exercise, I have no symptoms.  I have never been hospitalized for asthma or breathing difficulties of any kind.  I carry a Proventil inhaler for emergencies but have never needed it since I added Singulair and Advair to my routine.  I have discussed the matter with my physician who said, while he doesn’t think I should stop Advair, neither does he think it will hurt me. -S-

Response:

It would make sense to go back to Serevent and add Flovent to equal your present dose of Advair. Then taper down the Flovent to the level to control your symptoms and keep peak flows in the Green Zone on your peak flow meter.

IMO, it would make more sense to taper the Serevent since Flovent prevents asthma symptoms and Serevent merely treats those symptoms. — "What Sept. 11 did was remind us that there are times when we must fight for our country, that, indeed, there are things – our liberty, our democracy, our belief in human rights and human dignity – worth fighting for." Newsday.com editorial – 27 May 2002

Response:

I take Advair and singulair with humibid.  This combination works really well for me.  I use proventil hcf for emergencies.  My dr told me that singulair is not a replacement of the inhalers only helps most.  I would recommend you go back to what your dr has told you to take and give it time to see if it works.  If the inhaler isn’t than call your pulmonary and let them know.  I mostly have myself under control with my copd and asthma.  But it take time.  UM MOM Susan

– Hide quoted text — Show quoted text – I changed a few medications at once a few months back, resulting in a huge improvement in my condition.  I was taking Serevent and Allegra and added Singulair and Flovent. (I didn’t add Flovent but switched from Serevent to Advair.) I know a significant number of people take Advair/Flovent but do not take Singulair.  I was wondering if many people take Singulair but not Advair/Flovent.  I’m considering trying a brief experiment of stopping Advair and seeing how I do.  My expectation is that I will miss Advair but I thought it would be interesting to give it a try. Background:  my asthma is mild and largely related to allergans and exercise, i.e., if I stay in my HEPA-filtered house and don’t exercise, I have no symptoms.  I have never been hospitalized for asthma or breathing difficulties of any kind.  I carry a Proventil inhaler for emergencies but have never needed it since I added Singulair and Advair to my routine.  I have discussed the matter with my physician who said, while he doesn’t think I should stop Advair, neither does he think it will hurt me. -S-

Response:

I changed a few medications at once a few months back, resulting in a huge improvement in my condition.  I was taking Serevent and Allegra and added Singulair and Flovent. (I didn’t add Flovent but switched from Serevent to Advair.) I know a significant number of people take Advair/Flovent but do not take Singulair.  I was wondering if many people take Singulair but not Advair/Flovent.  I’m considering trying a brief experiment of stopping Advair and seeing how I do.  My expectation is that I will miss Advair but I thought it would be interesting to give it a try.

It makes more sense to just change one drug at a time, so you can see what it’s effect is, independent of the other drugs. It would make sense to go back to Serevent and add Flovent to equal your present dose of Advair. Then taper down the Flovent to the level to control your symptoms and keep peak flows in the Green Zone on your peak flow meter. The general rule on steroid inhalers is to use the minimum dose to control the problem, especially at Moderate and High dose levels. As a more simplistic approach, you could just try reducing the puffs of Advair. [however this simultaneously reduces the salmeterol and fluticasone]. Note that Advair comes in 3 strengths; if you are not using the lowest strength version you could try switching to that. Note that Singulair only helps about 2/3 who try it; if it doesn’t help it should be dropped. In my case it helps my rhinitis more than the asthma. Ellis – Hide quoted text — Show quoted text – Background:  my asthma is mild and largely related to allergans and exercise, i.e., if I stay in my HEPA-filtered house and don’t exercise, I have no symptoms.  I have never been hospitalized for asthma or breathing difficulties of any kind.  I carry a Proventil inhaler for emergencies but have never needed it since I added Singulair and Advair to my routine.  I have discussed the matter with my physician who said, while he doesn’t think I should stop Advair, neither does he think it will hurt me. -S-

Response:

I changed a few medications at once a few months back, resulting in a huge improvement in my condition.  I was taking Serevent and Allegra and added Singulair and Flovent. (I didn’t add Flovent but switched from Serevent to Advair.) I know a significant number of people take Advair/Flovent but do not take Singulair.  I was wondering if many people take Singulair but not Advair/Flovent.  I’m considering trying a brief experiment of stopping Advair and seeing how I do.  My expectation is that I will miss Advair but I thought it would be interesting to give it a try. Background:  my asthma is mild and largely related to allergans and exercise, i.e., if I stay in my HEPA-filtered house and don’t exercise, I have no symptoms.  I have never been hospitalized for asthma or breathing difficulties of any kind.  I carry a Proventil inhaler for emergencies but have never needed it since I added Singulair and Advair to my routine.  I have discussed the matter with my physician who said, while he doesn’t think I should stop Advair, neither does he think it will hurt me. -S-

Response:

I was wondering if many people take Singulair but not Advair/Flovent.  I’m considering trying a brief experiment of stopping Advair and seeing how I do.  My expectation is that I will miss Advair but I thought it would be interesting to give it a try.

Here is my situation: I have had allergic and exercise induced asthma for over 10 years. Even with Albuterol, Severant, or Flovent I could not run more than a mile before having to stop, weeze, and gasp for air.  It was frustrating since I was trying to get back to running as I had done 10 years before, but couldn’t.  My saving medicine was Singulair.  It began to work the first day and has been helping me ever since I started it 2 1/2 years ago.  I got back to running a few weeks after starting Singulair and haven’t stopped since.  I’m 54 and run 4 miles about 4 times per week. Hardly olympic pace, but pretty good for someone my age.  I use my inhaler (Albuterol) about twice a week just to have ‘clear runs’ — I think this is more psychological than physiological, frankly.  I rarely (once every other month?) use my inhaler for any other reason.  I take no other asthma medication. Singulair is worth trying.  Your mileage may vary.  The following statistics come up a lot, but I’m not sure of their accuracy.  Take them as rough values.  About 1/3 of the people trying it are helped a lot (the lucky 1/3 I appear to be in),  1/3 are helped some, 1/3 are not helped at all.  I have zero side effects.  Some people have complained about vivid dreaming in Singulair (I thought I might be experiencing this from time to time, but, if so, I like it — I’m really not sure though).  A few people in this group have complained of headaches or difficulty sleeping.  Maybe others can add to this. Generally, it is free of side effects and for the most part (I’ve only seen one exception in this NG group) it does not lose its effectiveness.   Background:  my asthma is mild and largely related to allergans and exercise, i.e., if I stay in my HEPA-filtered house and don’t exercise, I have no symptoms.  I have never been hospitalized for asthma or breathing difficulties of any kind.  

Same for me, in general. — Lou Pecora   – My views are my own.

Response:

Question:

Is it possible to minimze the chances for a need to switch meds? What I am wonde

snip yes 2. So if a med doesn’t work for you, how do you know if you should increase after a period of 6-8 weeks if the med shows little benefit after you come close to or arrive at the average target dose, you move on LM

Response:

– Hide quoted text — Show quoted text – Greetings all, Two dum question: 1) Is it possible to minimze the chances for a need to switch meds? What I am wondering here is, can a good pdoc, after talking to you sufficiently long to know your problems, make a good educated suggestion which SSRI is best for you? In other words, are the choices between paxil, zoloft, effexor, etc. completely based on trial and error, or are there guidelines that a good pdoc can use to decide which one is most likely to be the best for you? I’ve noticed that some doctors recommend paxil, some zoloft and others effexor; all for the same person with same sysmptoms. Is it because some know which is best chance of working for you, or is it just a matter of choice? 2) So if a med doesn’t work for you, how do you know if you should increase the dosage or if you should switch to a new med?? Thanks.

Is it not true that the SRIs and SSRIs have been proven no more effective than TCAs? I believe this is the case. If so, wouldn’t it make more sense to start with a TCA since their side-effect and long term effect profiles are much better understood than those of the SRIs and SSRIs?    http://www.newsfeed.com       The #1 Newsgroup Service in the World! —–= Over 100,000 Newsgroups – Unlimited Fast Downloads – 19 Servers =—–

Response:

Greetings all, Two dum question: 1) Is it possible to minimze the chances for a need to switch meds? What I am wondering here is, can a good pdoc, after talking to you sufficiently long to know your problems, make a good educated suggestion which SSRI is best for you? In other words, are the choices between paxil, zoloft, effexor, etc. completely based on trial and error, or are there guidelines that a good pdoc can use to decide which one is most likely to be the best for you?

Well, I disagree with most of the posters.  Individual reactions are just about impossible to predict.  A good pdoc will start you on the one most recommended for your symptoms, taking into consideration physical problems that some drugs can aggravate (blood pressure for Effexor, liver damage for Serzone).  He will then monitor the alleviation of symptoms vs. tolerability of side effects. In other words, the answer is a VERY qualified yes. I’ve noticed that some doctors recommend paxil, some zoloft and others effexor; all for the same person with same sysmptoms. Is it because some know which is best chance of working for you, or is it just a matter of choice? 2) So if a med doesn’t work for you, how do you know if you should increase the dosage or if you should switch to a new med??

Again your doctor should be able to help with this.  Largely the decision depends on side effects, i.e. if your side effects are difficult to tolerate, raising the dosage is not likely to provide a long-term solution! — Mason Barge "People who like this sort of thing will find this the sort of thing they like."         — Abraham Lincoln

Response:

Are you saying that Effexor is more effective for depression than zoloft or paxil,

effexor mimics tricyclic medications in its actions but uses a different mechanism to acheive it that initially was purported to have fewer side effects-it just has different ones-it is useful when more selective meds like ssri’s fail to work -using it instead of a tca has some advantages in certain medical and psychological profiles-neither are better-both have specific characteristics that may hold better therapeutic value to different people. all are effective for depression, all theoretically are equally effective for anxiety-but theory and practice may be at odds Which one in your judgement has the least side effects?

currently they all have similar side effect profiles that can be remediated by using very low doses to start and being patient enough to increase them painfully slowly. Each person has their own level of  toleration of the side effects of any of them. Some meds have greater potency at the synapse and each has its own slightly different molecular stimulating characteristics  so for one person zoloft may be sedating and for another it may be stimulating-we use general characteristics to anticipate the results of each med. If benzos are used along with the ad med-one is more comfortable. LM

Response:

Hi Chip, Are you saying that Effexor is more effective for depression than zoloft or paxil, but they are all equallty effective for anxiety? Which one in your judgement has the least side effects? Cheers Rsina – Hide quoted text — Show quoted text – I believe so. I would select one with the least side effects since they (SSRIs) are all equally effective (as a group, although one might prove to be more effective for one person in particular). Or, if a person has used one SSRI in the past with good results, I would probably select that one. If he/she was depressed in addition to anxiety, I would use Effexor since that tends to be more effective for depression and equally effective for anxiety as the SSRIs.

Response:

Hi Chip, Are you saying that Effexor is more effective for depression than zoloft or paxil, but they are all equallty effective for anxiety?

Yes. Which one in your judgement has the least side effects?

That’s a tough one. Celexa is promoted as having fewer side effects, and some people on ASAP have said that has been their experience. Zoloft seems to be well tolerated. Paxil seems to make people fatigued and sleepy during the day. Prozac is too stimulating and this results in increased anxiety and insomnia. Plus Prozac has such a long half life if you needed to discontinue it because of an adverse reaction it would be around in your system for a few weeks. Plus Prozac tends to interfer with the metabolism of other meds more than the other SSRIs. Luvox seems to be very sedating. I’d be inclined to put patients on Celexa or Zoloft instead of the other SSRIs. Although I’m certain many people are on any of these SSRIs and are experiencing good results. Cheers Rsina

Chip – Hide quoted text — Show quoted text – I believe so. I would select one with the least side effects since they (SSRIs) are all equally effective (as a group, although one might prove to be more effective for one person in particular). Or, if a person has used one SSRI in the past with good results, I would probably select that one. If he/she was depressed in addition to anxiety, I would use Effexor since that tends to be more effective for depression and equally effective for anxiety as the SSRIs.

Response:

Greetings all, Two dum question: 1) Is it possible to minimze the chances for a need to switch meds? What I am wondering here is, can a good pdoc, after talking to you sufficiently long to know your problems, make a good educated suggestion which SSRI is best for you? In other words, are the choices between paxil, zoloft, effexor, etc. completely based on trial and error, or are there guidelines that a good pdoc can use to decide which one is most likely to be the best for you? I’ve noticed that some doctors recommend paxil, some zoloft and others effexor; all for the same person with same sysmptoms. Is it because some know which is best chance of working for you, or is it just a matter of choice? 2) So if a med doesn’t work for you, how do you know if you should increase the dosage or if you should switch to a new med?? Thanks.

Response:

Greetings all, Two dum question: 1) Is it possible to minimze the chances for a need to switch meds?

Yes. What I am wondering here is, can a good pdoc, after talking to you sufficiently long to know your problems, make a good educated suggestion which SSRI is best for you?

I believe so. I would select one with the least side effects since they (SSRIs) are all equally effective (as a group, although one might prove to be more effective for one person in particular). Or, if a person has used one SSRI in the past with good results, I would probably select that one. If he/she was depressed in addition to anxiety, I would use Effexor since that tends to be more effective for depression and equally effective for anxiety as the SSRIs. In other words, are the choices between paxil, zoloft, effexor, etc. completely based on trial and error, or are there guidelines that a good pdoc can use to decide which one is most likely to be the best for you? I’ve noticed that some doctors recommend paxil, some zoloft and others effexor; all for the same person with same sysmptoms. Is it because some know which is best chance of working for you, or is it just a matter of choice?

All for the same person? Or all for different persons with the same symptoms? Docs tend to prescribe meds they have prescribed before and are comfortable with. 2) So if a med doesn’t work for you, how do you know if you should increase the dosage or if you should switch to a new med??

If I got *any* response to the med, I would tend to increase the dose. If after several increases there is no response, I’d try a different med. Chip – Hide quoted text — Show quoted text – Thanks.

Response:

Question:

Hello everyone!  I haven’t posted in quite awhile, but now I have questions I hope to get some help with. I use a CPAP at 6 cm, and I’ve been sleeping fine until a few weeks ago, when I started having some pre-CPAP symptoms, especially waking up once or twice a night to use the bathroom.  Around the same time I also started experiencing insomnia, which I’ve never had a problem with before. A month ago, my neurologist started me on Effexor for migraine headache prevention.  I spent a week taking 37.5 mg daily, then bumped up to 75 mg daily, taken in the morning.  The list of side effects for Effexor includes insomnia, so I’m wondering if the drug could be responsible for that, as well as for the return of the pre-CPAP symptoms.  Thoughts? Anyone here taking Effexor? It’s helping with the headaches, and I’d like to try increasing the dosage, but not if it’s going to screw up my sleep. On to another issue: in late March, my long-term live-in relationship with my boyfriend ended.  Long story, which I won’t go into in detail. I moved out (we were living in his house). The last two months have been enormously painful and stressful, but things are beginning to settle down.  I’ve been seeing a psychologist, and the Effexor has certainly helped stabilize my moods.  No more wild roller-coaster emotions. And speaking of stress, my mother is having a recurrence of some serious health problems, and as an only child, I’m feeling pretty overwhelmed and alone in dealing with that. So…. could my sleep problems be some sort of delayed reaction to the stress of the break-up, and/or my mom’s problems?  Oddly enough, I had no sleep problems at all during late March and throughout April, when the break-up was in process and I was dealing with finding a place to live and all the hassles of moving. Finally, I’ve dropped about five or 6 pounds in the last few weeks, which I attribute to loss of appetite due to stress and some stomach upset the first couple of weeks I was in the Effexor.  But I weigh 177 pounds now, and I don’t think five pounds would be enough to necessitate a pressure change.  (For the record, I started on CPAP in September 2000 at a pressure of 7 cm, and was dropped to 6 cm last November after a second sleep study.) Is there anything besides weight loss that might require a pressure change?  I’m not sure my insurance will pay for another sleep study only eight months after the last one. I’ve been thinking about trying a small amount of an OTC sleep aid for the insomnia.  Is this a really bad idea? Well, I think that’s all my questions.  :-) Thanks! Donna sleepless in Pa.

Response:

Donna Higgins <Do…@Misty.com

wrote:

My experience with Effexor was pre-CPAP. I didn’t have any problem falling asleep, but you can’t draw any conclusions from that. But you’re experiencing migraines, nocturia, and (recently) having problems coping, these are all well known side effects of OSA. Clean your filters and check for leaks. If everything’s ok, then I’d talk to your doctor about going back to your original pressure, you shouldn’t need a re-test. Most OTC sleep aids contain the same active ingredients as Benadryl, it’s a very good temporary sleep aid. Just pick up a bottle of the cheapest generic equivalent at your local drug store. (Avoid the Non-Drowsy versions, you _want_ drowsy.) Tom – Hide quoted text — Show quoted text -

Hello everyone!  I haven’t posted in quite awhile, but now I have questions I hope to get some help with. I use a CPAP at 6 cm, and I’ve been sleeping fine until a few weeks ago, when I started having some pre-CPAP symptoms, especially waking up once or twice a night to use the bathroom.  Around the same time I also started experiencing insomnia, which I’ve never had a problem with before. A month ago, my neurologist started me on Effexor for migraine headache prevention.  I spent a week taking 37.5 mg daily, then bumped up to 75 mg daily, taken in the morning.  The list of side effects for Effexor includes insomnia, so I’m wondering if the drug could be responsible for that, as well as for the return of the pre-CPAP symptoms.  Thoughts? Anyone here taking Effexor? It’s helping with the headaches, and I’d like to try increasing the dosage, but not if it’s going to screw up my sleep. On to another issue: in late March, my long-term live-in relationship with my boyfriend ended.  Long story, which I won’t go into in detail. I moved out (we were living in his house). The last two months have been enormously painful and stressful, but things are beginning to settle down.  I’ve been seeing a psychologist, and the Effexor has certainly helped stabilize my moods.  No more wild roller-coaster emotions. And speaking of stress, my mother is having a recurrence of some serious health problems, and as an only child, I’m feeling pretty overwhelmed and alone in dealing with that. So…. could my sleep problems be some sort of delayed reaction to the stress of the break-up, and/or my mom’s problems?  Oddly enough, I had no sleep problems at all during late March and throughout April, when the break-up was in process and I was dealing with finding a place to live and all the hassles of moving. Finally, I’ve dropped about five or 6 pounds in the last few weeks, which I attribute to loss of appetite due to stress and some stomach upset the first couple of weeks I was in the Effexor.  But I weigh 177 pounds now, and I don’t think five pounds would be enough to necessitate a pressure change.  (For the record, I started on CPAP in September 2000 at a pressure of 7 cm, and was dropped to 6 cm last November after a second sleep study.) Is there anything besides weight loss that might require a pressure change?  I’m not sure my insurance will pay for another sleep study only eight months after the last one. I’ve been thinking about trying a small amount of an OTC sleep aid for the insomnia.  Is this a really bad idea? Well, I think that’s all my questions.  :-) Thanks! Donna sleepless in Pa.

Response:

On Wed, 12 Jun 2002 13:34:25 -0400, Donna Higgins <Do…@Misty.com

wrote:

Hello everyone!  I haven’t posted in quite awhile, but now I have questions I hope to get some help with. A month ago, my neurologist started me on Effexor for migraine headache prevention.  I spent a week taking 37.5 mg daily, then bumped up to 75 mg daily, taken in the morning.  The list of side effects for Effexor includes insomnia, so I’m wondering if the drug could be responsible for that, as well as for the return of the pre-CPAP symptoms.   Anyone here taking Effexor? Thoughts?

I was on it until the XR form came out… then my doctor switched me so I had fewer pills. The list of side effects for Effexor also includes somnolence.

It’s helping with the headaches, and I’d like to try increasing the dosage, but not if it’s going to screw up my sleep.

I’d say it might be worth a try… Effexor gets out of your system fairly quickly (unlike that darn Prozac).

Finally, I’ve dropped about five or 6 pounds in the last few weeks, which I attribute to loss of appetite due to stress and some stomach upset the first couple of weeks I was in the Effexor.  

Effexor also seems to have a mild anorexiant effect for some patients.

I’ve been thinking about trying a small amount of an OTC sleep aid for the insomnia.  Is this a really bad idea?

It might work, if you do it occasionally. — Found elsewhere on USENET: "yes invite more — but PLEASSSSSSSE NOT Jjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjjulie"

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Question:

Was diagnosed with low testosterone after stopping Effexor, never had this problem before but believe it to be related to the drug for a whole bunch of reasons that I won’t go into here.  Has this happened to anyone else?  My urologist believes my pitutatary gland has some how got out of whack, now I am not only depressed but have this to deal with.  Wish I had never taken the drug, Wellbutrin is much better. I read on one of these posts that a user of effexor who quit taking it was told by his doctor that the drug had completely rewired his brain.   Has anyone else heard of permanent side effects from Effexor?

Response:

- Hide quoted text — Show quoted text – << Was diagnosed with low testosterone after stopping Effexor, never had this problem before but believe it to be related to the drug for a whole bunch of reasons that I won’t go into here.  Has this happened to anyone else?  My urologist believes my pitutatary gland has some how got out of whack, now I am not only depressed but have this to deal with.  Wish I had never taken the drug, Wellbutrin is much better. I read on one of these posts that a user of effexor who quit taking it was told by his doctor that the drug had completely rewired his brain.   Has anyone else heard of permanent side effects from Effexor? Sounds like bullshit to me. But when dealing with medicine and drugs, I suppose anything is possible. Its also possible that your testosterone was already low before starting Effexor, you just didnt know it yet and neither did your doctor. Low testosterone levels can cause depression all by itself. In fact, up at Columbia/Presbyterian psychiatry in NYC, there are some experimental clinical trials that use testosterone supplements (anabolic steroids) to "augment" SSRIs in refractory depressed men. Abnormally low levels of testosterone can no doubt cause depression. Anabolic steroids (testosterone) are said to have strong antidepressant effects. So you are on track..correct your low testosterone levels first, then if you still need an AD go back on the Effexor or an SSRI. Eric Steroids caused my depression…prednisone should be used conservatively http://groups.yahoo.com/group/FactsAndFallaciesOfDepression MIBS (Minimally Invasive Brain Stimulation) http://www.musc.edu/psychiatry/fnrd/tms.htm

I am really sure I never had low testosterone before effexor, the effects of having this are pretty dramatic, hot flashes, tired all the time, no libido, very erratic mood swings.  After I went on Effexor I started getting these symptoms.  At first I thought it was the drug so I went off of it, after a few months of being off of it and the side effects staying I realized something was really wrong.  I found another person who had this happen by searching through some old postings, that makes 2, how many more are there?

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Question:

- Hide quoted text — Show quoted text -Nancy wrote….. I went for my physical today.  I sure am glad to get it over with.  He wants me to have cholestrol test done not for anything other than high c runs in the family.  He’s also booking me for a brain scan because my mother has anuerisms and they can sometimes run in the family.  My blood pressure was good and my heart rate was good.  This suprised me because it was thumping like a wild think while I was in the waiting room! He doubled up my dose of Zoloft to 50mg and gave me some more ativan.  Thank God for ativan it seems to be the only thing that is keeping me sane these days. Oh also I am off work for at least another month.  *Phew*  I was worried about that because I am just not ready to go back there yet. I had a nice surprise visit from my brother tonight (who has only been to my place twice before in the past 8 years).  It was a really pleasant visit.  I really like him but we have never had a close relationship. I told the doctor that I had a good day on Sunday but then relapsed on Monday and ever since.  He saw that as a good sign.  At least I had one good day.  I really like him, he is our new family doctor and I only started seeing him when I got this bought of PA he seems pretty thorough.

Dear Nancy, I`m glad to hear that your doctor visit went well. I agree with your doctor that your good day even though it was followed by a setback, is a good thing. You can`t have a setback unless you had made some progress to begin with. The 50 mg increase in your Zoloft dose is a big increase at one time for a person with an anxiety disorder. Just wanted to point that out in case your anxiety or side-effects increase a bit during the next few days. Make sure to use your Ativan during this period. Take care Jackie ~*~The world breaks us all. Afterward, some are stronger at the broken places.

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Hi Nancy! I’m happy that things went well at the doctor’s office.  It’s better to get these tests out of the way and be able to relax afterwards.  It’s great you had such a nice visit with your brother.  I hope you have many more of them. I’m with you about Ativan. Hugs, Di

– Hide quoted text — Show quoted text – Hi All, I went for my physical today.  I sure am glad to get it over with.  He wants me to have cholestrol test done not for anything other than high c runs in the family.  He’s also booking me for a brain scan because my mother has anuerisms and they can sometimes run in the family.  My blood pressure was good and my heart rate was good.  This suprised me because it was thumping like a wild think while I was in the waiting room! He doubled up my dose of Zoloft to 50mg and gave me some more ativan. Thank God for ativan it seems to be the only thing that is keeping me sane these days. Oh also I am off work for at least another month.  *Phew*  I was worried about that because I am just not ready to go back there yet. I had a nice surprise visit from my brother tonight (who has only been to my place twice before in the past 8 years).  It was a really pleasant visit. I really like him but we have never had a close relationship. I told the doctor that I had a good day on Sunday but then relapsed on Monday and ever since.  He saw that as a good sign.  At least I had one good day.  I really like him, he is our new family doctor and I only started seeing him when I got this bought of PA he seems pretty thorough. Sorry for the length, Nancy Depression is merely anger without enthusiasm.

Response:

This is good that you are having all of these tests and that so far, they are showing that you are doing well.  This will take a big load off your mind once all the tests come back negative.  Having the next month off will give you a chance to get used to the Zoloft at a higher dose and let everything settle. Take care, Liz – Hide quoted text — Show quoted text – Hi All, I went for my physical today.  I sure am glad to get it over with.  He wants me to have cholestrol test done not for anything other than high c runs in the family.  He’s also booking me for a brain scan because my mother has anuerisms and they can sometimes run in the family.  My blood pressure was good and my heart rate was good.  This suprised me because it was thumping like a wild think while I was in the waiting room! He doubled up my dose of Zoloft to 50mg and gave me some more ativan.   Thank God for ativan it seems to be the only thing that is keeping me sane these days. Oh also I am off work for at least another month.  *Phew*  I was worried about that because I am just not ready to go back there yet. I had a nice surprise visit from my brother tonight (who has only been to my place twice before in the past 8 years).  It was a really pleasant visit.  I really like him but we have never had a close relationship. I told the doctor that I had a good day on Sunday but then relapsed on Monday and ever since.  He saw that as a good sign.  At least I had one good day.  I really like him, he is our new family doctor and I only started seeing him when I got this bought of PA he seems pretty thorough. Sorry for the length, Nancy Depression is merely anger without enthusiasm.

– Problems are only opportunities in work clothes.                            –Henry Kaiser

Response:

Hi All, I went for my physical today.  I sure am glad to get it over with.  He wants me to have cholestrol test done not for anything other than high c runs in the family.  He’s also booking me for a brain scan because my mother has anuerisms and they can sometimes run in the family.  My blood pressure was good and my heart rate was good.  This suprised me because it was thumping like a wild think while I was in the waiting room! He doubled up my dose of Zoloft to 50mg and gave me some more ativan.  Thank God for ativan it seems to be the only thing that is keeping me sane these days. Oh also I am off work for at least another month.  *Phew*  I was worried about that because I am just not ready to go back there yet. I had a nice surprise visit from my brother tonight (who has only been to my place twice before in the past 8 years).  It was a really pleasant visit.  I really like him but we have never had a close relationship. I told the doctor that I had a good day on Sunday but then relapsed on Monday and ever since.  He saw that as a good sign.  At least I had one good day.  I really like him, he is our new family doctor and I only started seeing him when I got this bought of PA he seems pretty thorough. Sorry for the length, Nancy Depression is merely anger without enthusiasm.

Response:

Question:

Hi Dianne, I have been taking Zoloft for nearly 12 months. I feel that it is helping me, and would not stop its use. I take 100 mg per day. I have no pain, my circulation in my legs are better. My fatigue level has improved, and in general I feel great. You have to allow it to be in your system for about 4 weeks though, before you start feeling the effects.  I have had no side effects with this medication either. Email me if you like and I will explain in details my improvements to you.   Hope I have helped, Heather. In Australia

Response:

I am currently taking Zoloft.  It makes me feel jumpy and nervous.  Haven’t noticed any improvement as far as fatigue though.  Not sleeping well but I am not sure that is from the Zoloft either.  My 2 cents worth. |     /|   —-    —–       |   /  |  |     |  |     |                      ~~~~~~~~BECK~~~~~~~~ |       |  |     |  |     |                   "Faith ends where worry begins" |       |   —-     —-            

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G’day Diane, I’ve been on Zoloft for over a year now, and my parents tell me it’s made me much easier to live with.  The medication does not start working immediately, so you should wait at least a month before you decide it’s not doing any good.  The starting dosage recommended here in Australia is 50mg daily, so I think your doc has sort of ‘gone the hack’ a bit.  I’m on 100mg and doing fine.  Wish you the best of luck, whatever you decide to do. Catch ya later, Pete Johnson Frankston, Victoria, Australia

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Diane, I was taking Zoloft 100 mg per day for the last 3 yrs for depression and just recently stopped taking it, I chose to stop taking it because I hate taking so many meds and thought I would see if I could do without it. I am doing fine. I never had any side efeects from it and it helped a lot, but like everyone said it takes a few weeks to notice a difference. I also take Amantadine for fatigue since March and it helped alot at first but I am finding I am getting tired again in the afternoon. I was also taking Baclofen for spasms but stopped because it was not helping. You didn’t say how long you have been trying Zoloft, but take it for atleast a month before deciding if it works, because it does take time. Be Well! Denise

Response:

On 28 Sep 1998 22:51:26 GMT, schi…@aol.com (SCHIF99) wrote:

Would like to know if anyone is taking Zoloft….Was taking Elavil, but had too many side effects…so doc switched me to Zoloft 200 mg every day…said it should help the fatigue and the pain…I don’t think it’s working that well at all…still have lots of pain,

I have taken prozac and paxil which are similar SSRI’s.  They take about four weeks to kick in.  They really helped depression, but were less reliable for pain.  However, with the depression under control, I was much more able to cope with the pain. Today my most serious pain is in my back from osteoporosis fractures and the arthritis caused by their healing.  No way would I take any more steroid — let alone monthly.   Be sure that you are getting regular bone density scans. Kate

Response:

Diane – I have taken Zoloft for a few years – find it works well – I take it for the depress- ion – I also have lots of pain – all over – along with sciatica – which I see a chiropractor for about twice a week – the pain is all over – yet my neuro says MS doesn’t include pain – had a bad episode a year ago – went on prednisone – it stopped the pain – but zapped me- felt like I had the flu – could barely get out of bed – would like to learn more about your pain – and what meds you have taken along with their results – thanks so much Brenda

Response:

Would like to know if anyone is taking Zoloft….Was taking Elavil, but had too many side effects…so doc switched me to Zoloft 200 mg every day…said it should help the fatigue and the pain…I don’t think it’s working that well at all…still have lots of pain, still take amantadine for fatigue….problem is i’m really not sure if its worth switching to try something else….I do IV solumedrol once a month (1000 mg)…and sort of look forward to that to cover up my pain for a while…but really don’t want to do that forever either!! Would be great to hear from anyone with any zoloft experience….thanks in advance…diane

Response:

I have been taking Zoloft, 25mg (very low dose) for the depression and fatigue.  It works for me but I also have a lot of shoulder and back spasms and pain which I’ve attributed to MS.  I just found this site that asks questions about antidepressants and low and behold back spasms and pain are side effects of Zoloft sometimes!!

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What’s the URL for the site? Dick Stephens – Hide quoted text — Show quoted text -

I have been taking Zoloft, 25mg (very low dose) for the depression and fatigue. It works for me but I also have a lot of shoulder and back spasms and pain which I’ve attributed to MS.  I just found this site that asks questions about antidepressants and low and behold back spasms and pain are side effects of Zoloft sometimes!!

Response:

KFryk wrote:

I have been taking Zoloft, 25mg (very low dose) for the depression and fatigue.  It works for me but I also have a lot of shoulder and back spasms and pain which I’ve attributed to MS.  I just found this site that asks questions about antidepressants and low and behold back spasms and pain are side effects of Zoloft sometimes!!

On the other hand, my Zoloft was increased when I was having severe headaches, due to muscle spasticity in my neck. Lo & behold, the spasticity in my neck & the headaches have stopped! The moral of this story: everyone reacts differently to meds. Lin ~~ You can tune a piano, but you can’t tuna fish ~~ My header never changes…..look carefully & don’t be fooled by forgeries!

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Question:

Has anyone found that they shake a little after taking there ventolin  inhaler? Janel

Response:

Thanks for your replys. Acctually, I have had asthma since I was two, and now I am 14, but I still get the shakes after using it for 9 years. It just recently though that my heart has started to race once in a while. I find it just annoying, but it scares me too. Anyways, keep on smiling! Janel

Response:

Has anyone found that they shake a little after taking there ventolin   inhaler? Janel

yup, there’s been a discussion going on recently about it….I get the shakes with Proventil, which is also albuterol like Ventolin

Response:

Has anyone found that they shake a little after taking there ventolin inhaler? Janel

Yes, when I first started taking it 8-9 Years ago.  Your system becomes accustomed to it.  Though I do find that if I need to take albuterol nebs that still makes me very shaky.  I wouldn’t be too concerned unless your heart really starts to race.  Then I’d ask the dr. Helen

Response:

I always experience an accelerated hearbeat and feel a little shaky after using my inhaler.  This is normal and you will get used to this side affect.

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Hi Jane, You do indeed shake a bit after taking Ventoline or Bricanyl or anyone of the medecines that contains the same particles. You can also become tired and lightheaded, this is all part of the deal! Brit – Hide quoted text — Show quoted text – Has anyone found that they shake a little after taking there ventolin  inhaler? Janel

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Yes–all the time!  And, I have a racing heart

Response:

I have the same thing with the shaking…I went to a neurologist and she said it was called a "benign hand tremor" or "essential tremor" anyway, it does have something to do with diabetes. I had another doctor say it was a type of nerve damage in my hands…there are medicines for it! Good luck!

Response:

Hi, I was wondering if shaking really bad has anything to do with diabetes? I have been shaking really bad for the last three days. It has been hard to type without redoing it because my hands are always shaking. It is like a person who is really nervous would shake all over. I check my BG but it is usually really good around 120 sometimes just a little higher. Does anyone else do this? Thanks for any input. Diana — People Ask Me Why I Love God? Because He First Loved Me

Response:

Diana,    Any new symptom that interferes with your life should be discussed with your doctor.  It could be something simple, like fatigue, stress, too much coffee.   It could be your glucose levels dropped very quickly.   It could also be drug-induced.  Are you taking any new meds for your MPS?   I met a woman a few months who had a very strong tremor in her hands from an anti-depressant.     Shaking can also be a symptom of any number of other things that can be identified or ruled out by your physician.  Have it checked – much better than to keep guessing and worrying.    Yes, I’ve had that happen.  Back in the old days, before I was diabetic, I went through the shakes almost every day,  because I was so busy taking care of the babies,  I forgot to feed me!!   Now, it’s the CFIDS telling me I way overdid.  I wish it would tell me before it was too late!!!  Take care of yourself.  We care.. melodymom AKA Denise – Hide quoted text — Show quoted text – Hi, I was wondering if shaking really bad has anything to do with diabetes? I have been shaking really bad for the last three days. It has been hard to type without redoing it because my hands are always shaking. It is like a person who is really nervous would shake all over. I check my BG but it is usually really good around 120 sometimes just a little higher. Does anyone else do this? Thanks for any input. Diana — People Ask Me Why I Love God? Because He First Loved Me

Response:

Diana I dont know if you are continually shaking or perhaps you are not eating your meals at the right times. Whatever, three days of shaking should be told to your doctor and let him tell you what it is.  Do you feel nervous about anything.  Call your doctor because no matter what anyone says here, we cannot diagose what is wrong and even if we have shakes, which in the rare instancesI I dont eat,I can get the shakes,  it does not mean you have the same condition. Please call the doctor. Loretta

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p.s.   I hope you are better at taking my excellent advice than I am.          Also, I love your signature thingy. Hugs, me melodymom wrote – Hide quoted text — Show quoted text -Diana,   Any new symptom that interferes with your life should be discussed with your doctor.  It could be something simple, like fatigue, stress, too melodymom AKA Denise People Ask Me Why I Love God? Because He First Loved Me

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Hi Rene Tiger Lily was telling me it could be my antidepressant that I was put on a month ago. I didn’t start shaking until recently and it is annoying because I feel like I am going to shake out of my body. I am on Zoloft for depression and it may not be the right one for me. I am going to let my doctor know. Caffeine has never been a problem for me so I don’t think it would be that. I don’t drink coffee except on rare occasions. The shaking does wake me up too. I too have the awful nausea that is so overwhelming I can hardly stand it. I can’t even take my meds when I first need to because I know they wouldn’t stay put. I didn’t start that until right before my diagnosis. My doctor has been told of the severe nausea but she doesn’t address it. I wish she would though because it double me over every day. I do it first thing in the morning and again later in the day. If you are on an antidepressant I would ask the doctor if maybe you need a different one. My BGs have been good except the past few days I have been depressed more than usual and that is when I eat the most. But I have to stop this stuff. I can’t go on abusing my health like this. I am a mood eater and it is so hard when I am mad or depressed not to eat. I don’t eat out of boredom or anything so it isn’t that either. If you too find out finally about the shaking let me know too OK? Thanks Diana — People Ask Me Why I Love God? Because He First Loved Me – Hide quoted text — Show quoted text – Diana, I am a 32 yr old type 1 for 10yr diabetic. I started having problems at the beginning of this year with a nauseated stomach.  I got real worried and have had trouble getting better. I notice that I experience a nervous shaking sort of like when you have way too much caffine.  It seems to get me even with normal blood sugars.  I wake up alot at about 5 in the morning and feel this way and have a hard time getting to sleep.  If you figure out what is wrong please let me know.  My doctor is still trying to figure out what is wrong. your not alone Rene Garza p.s. :  please respond Hi, I was wondering if shaking really bad has anything to do with diabetes? I have been shaking really bad for the last three days. It has been hard to type without redoing it because my hands are always shaking. It is like a person who is really nervous would shake all over. I check my BG but it is usually really good around 120 sometimes just a little higher. Does anyone else do this? Thanks for any input. Diana — People Ask Me Why I Love God? Because He First Loved Me

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Hi, I was wondering if shaking really bad has anything to do with diabetes?

For me, when my bgs are TOO low I feel shakey, but I can’t see shakey unless I’m under about 85. I don’t remember how your bgs were running last month but maybe you’ve come down so much your body is adjusting. Caffeine can make you shaky if you’re taking asperin or something like that. Is it all over or just in your hands?  If it wasn’t Saturday night, I’d suggest its worth a call to your doctors office. I’m not sure its an emergency. Does your doctor or hospital have a 24 hour nurse on duty for these type of questions? Carol  I – Hide quoted text — Show quoted text – have been shaking really bad for the last three days. It has been hard to type without redoing it because my hands are always shaking. It is like a person who is really nervous would shake all over. I check my BG but it is usually really good around 120 sometimes just a little higher. Does anyone else do this? Thanks for any input. Diana — People Ask Me Why I Love God? Because He First Loved Me

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I’m on Pentasa and Imuran and taking Propanolol for the shaking.  It’s generally gotten worse over the years and so has slurred speach and just in general problems that are similar.  I’ve seen a neurologist and they have no clue.  I’m seeing a new doctor as I’ve moved and think he may turn something up.  My blood pressure is fine but sugar intake may be an idea of something to look into.  I am a sugar junky though.  I tend to have to eat something in the morning or vomit (bile I think, its yellow, tastes horrible).  Really thats all thats wrong as I have been in fairly good health other than fatigue (thank god for red bull).  Thanks for the ideas everyone! – Hide quoted text — Show quoted text – I get the same way. Not to often but one time I passed out. Man that was the worse headache I have ever had. When I worked I would carry peanut butter crackers in the car for the ride home. I worked 50 miles from home, and I would eat the crackers in traffic, and I would be alright. If I forgot, I would get the shakes so bad I would puke out my car door at times. It is not fun when your body is not happy with you. It’s hypoglycemia.  I used to pass out, too, until I changed my eating habits.  Cut down on the sweets and alcohol, especially on an empty stomach.  Eat protein and healthy fats instead.  If you must eat sweets make sure there is some fat in the mix, it slows down the blood sugar rise and then the falloff afterwards.  It’s the falloff afterwards that makes you pass out.  I had to give up alcohol altogether.

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Well soon the 16 a day Pentasa go away! Yeah! LOL so hopeful that will cut my count down some.  Right now I am not taking a few of them, with my drs knowledge, until we get to the bottom of this.  He doesn’t want to stop the Pentasa until after we do the last of the tests an decide what meds is the best for me at this time.  The Pentasa isn’t stopping the bleeding and so forth but it could be helping the bleeding not get to excessive for such a short time I need to be on it.  So, can’t see where this will hurt.   I just want to get on to the plan already!   I did catch the bleeding early which is good.  He now really believes I know my body and what is norm and abnormal most of the time.  But he is just being real cautious and  I like this part of it.  This way he will know exactly where the problem is and what would be best to start me with to try to get control of everything.  UM MOM Susan – Hide quoted text — Show quoted text – ok, ok, i give up….lol.  you eat meds for meals…i am close, between meds and vitamins, i am usually too full to eat breakfast in the mornings….lol. jeffy I take more than you Jeff.  I call walking the tic tac syndrome!  UM MOM Susan no, that is why i rattle when i walk. jeff With that many meds is there any room for the blood???;-)))) Tony i am 10 meds, plus remicade, plus allergy shots. the tacrolimus is doing it, is a known side effect of tacro. jeffy some immunomodulators cause this, i know i have a little, but i doubt that is your issue.  tacrolimus causes shakes as well as cyclosplorine. jeffy Another question, I have over the years been suffering from shaking and tremors (like Parkisons) and my doctors are unsure if this is related to the crohns/colitis or anotehr problem.  Anyone else have this issue.  Its been getting worse over time and I have been prednisone free for well over 3 years. I get the shakes but put it down to high doses of pred. Should not bother you after 3 years.  What other meds u on? Tony — Outgoing mail is certified Virus Free. So check it anyway!! No attachments unless advised in body of email. Checked by AVG anti-virus system (http://www.grisoft.com). 10/03/2003 — Outgoing mail is certified Virus Free. So check it anyway!! No attachments unless advised in body of email. Checked by AVG anti-virus system (http://www.grisoft.com).

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ok, ok, i give up….lol.  you eat meds for meals…i am close, between meds and vitamins, i am usually too full to eat breakfast in the mornings….lol. jeffy

– Hide quoted text — Show quoted text – I take more than you Jeff.  I call walking the tic tac syndrome!  UM MOM Susan no, that is why i rattle when i walk. jeff With that many meds is there any room for the blood???;-)))) Tony i am 10 meds, plus remicade, plus allergy shots. the tacrolimus is doing it, is a known side effect of tacro. jeffy some immunomodulators cause this, i know i have a little, but i doubt that is your issue.  tacrolimus causes shakes as well as cyclosplorine. jeffy Another question, I have over the years been suffering from shaking and tremors (like Parkisons) and my doctors are unsure if this is related to the crohns/colitis or anotehr problem.  Anyone else have this issue.  Its been getting worse over time and I have been prednisone free for well over 3 years. I get the shakes but put it down to high doses of pred. Should not bother you after 3 years.  What other meds u on? Tony — Outgoing mail is certified Virus Free. So check it anyway!! No attachments unless advised in body of email. Checked by AVG anti-virus system (http://www.grisoft.com). — Outgoing mail is certified Virus Free. So check it anyway!! No attachments unless advised in body of email. Checked by AVG anti-virus system (http://www.grisoft.com).

Response:

I take more than you Jeff.  I call walking the tic tac syndrome!  UM MOM Susan – Hide quoted text — Show quoted text – no, that is why i rattle when i walk. jeff With that many meds is there any room for the blood???;-)))) Tony i am 10 meds, plus remicade, plus allergy shots. the tacrolimus is doing it, is a known side effect of tacro. jeffy some immunomodulators cause this, i know i have a little, but i doubt that is your issue.  tacrolimus causes shakes as well as cyclosplorine. jeffy Another question, I have over the years been suffering from shaking and tremors (like Parkisons) and my doctors are unsure if this is related to the crohns/colitis or anotehr problem.  Anyone else have this issue.  Its been getting worse over time and I have been prednisone free for well over 3 years. I get the shakes but put it down to high doses of pred. Should not bother you after 3 years.  What other meds u on? Tony — Outgoing mail is certified Virus Free. So check it anyway!! No attachments unless advised in body of email. Checked by AVG anti-virus system (http://www.grisoft.com). — Outgoing mail is certified Virus Free. So check it anyway!! No attachments unless advised in body of email. Checked by AVG anti-virus system (http://www.grisoft.com).

Response:

no, that is why i rattle when i walk. jeff – Hide quoted text — Show quoted text – With that many meds is there any room for the blood???;-)))) Tony i am 10 meds, plus remicade, plus allergy shots. the tacrolimus is doing it, is a known side effect of tacro. jeffy some immunomodulators cause this, i know i have a little, but i doubt that is your issue.  tacrolimus causes shakes as well as cyclosplorine. jeffy Another question, I have over the years been suffering from shaking and tremors (like Parkisons) and my doctors are unsure if this is related to the crohns/colitis or anotehr problem.  Anyone else have this issue.  Its been getting worse over time and I have been prednisone free for well over 3 years. I get the shakes but put it down to high doses of pred. Should not bother you after 3 years.  What other meds u on? Tony — Outgoing mail is certified Virus Free. So check it anyway!! No attachments unless advised in body of email. Checked by AVG anti-virus system (http://www.grisoft.com). — Outgoing mail is certified Virus Free. So check it anyway!! No attachments unless advised in body of email. Checked by AVG anti-virus system (http://www.grisoft.com).

Response:

With that many meds is there any room for the blood???;-)))) Tony – Hide quoted text — Show quoted text – i am 10 meds, plus remicade, plus allergy shots. the tacrolimus is doing it, is a known side effect of tacro. jeffy some immunomodulators cause this, i know i have a little, but i doubt that is your issue.  tacrolimus causes shakes as well as cyclosplorine. jeffy Another question, I have over the years been suffering from shaking and tremors (like Parkisons) and my doctors are unsure if this is related to the crohns/colitis or anotehr problem.  Anyone else have this issue.  Its been getting worse over time and I have been prednisone free for well over 3 years. I get the shakes but put it down to high doses of pred. Should not bother you after 3 years.  What other meds u on? Tony — Outgoing mail is certified Virus Free. So check it anyway!! No attachments unless advised in body of email. Checked by AVG anti-virus system (http://www.grisoft.com).

— Outgoing mail is certified Virus Free. So check it anyway!! No attachments unless advised in body of email. Checked by AVG anti-virus system (http://www.grisoft.com).

Response:

This is interesting. I have CD. I also have low blood sugar and low blood pressure. I don’t know how they fit togather, if indeed they do. If I don’t eat properly I get lightheaded and then get the shakes soon after. I usually have a chocolate bar within reach, just in case.

I had low blood pressure too, until the pred did its thing… Tony — Outgoing mail is certified Virus Free. So check it anyway!! No attachments unless advised in body of email. Checked by AVG anti-virus system (http://www.grisoft.com).

Response:

I get the same way. Not to often but one time I passed out. Man that was the worse headache I have ever had. When I worked I would carry peanut butter crackers in the car for the ride home. I worked 50 miles from home, and I would eat the crackers in traffic, and I would be alright. If I forgot, I would get the shakes so bad I would puke out my car door at times. It is not fun when your body is not happy with you.

It’s hypoglycemia.  I used to pass out, too, until I changed my eating habits.  Cut down on the sweets and alcohol, especially on an empty stomach.  Eat protein and healthy fats instead.  If you must eat sweets make sure there is some fat in the mix, it slows down the blood sugar rise and then the falloff afterwards.  It’s the falloff afterwards that makes you pass out.  I had to give up alcohol altogether. — Clark Zahn Registered linux user 267087

Response:

This is interesting. I have CD. I also have low blood sugar and low blood pressure. I don’t know how they fit togather, if indeed they do. If I don’t eat properly I get lightheaded and then get the shakes soon after. I usually have a chocolate bar within reach, just in case.

Response:

I get the same way. Not to often but one time I passed out. Man that was the worse headache I have ever had. When I worked I would carry peanut butter crackers in the car for the ride home. I worked 50 miles from home, and I would eat the crackers in traffic, and I would be alright. If I forgot, I would get the shakes so bad I would puke out my car door at times. It is not fun when your body is not happy with you. Allison – Hide quoted text — Show quoted text – now that you mention it, I used to shake badly & when I ate the shakes went away.  Ended up I used to carry some sweets around with me all the time & if I started shaking I ate some until I could have a meal. Tony I was having the shakes when I got run down. I started to use sugar as a pick me up. I became hypo-glosumic. I don’t think I spelled that right. The shaking had to do with my sugar levels. I now eat 4 to 5 meals a day and this shaking I was experiencing has gone away. Another question, I have over the years been suffering from shaking and tremors (like Parkisons) and my doctors are unsure if this is related to the crohns/colitis or anotehr problem.  Anyone else have this issue.  Its been getting worse over time and I have been prednisone free for well over 3 years. — Outgoing mail is certified Virus Free. So check it anyway!! No attachments unless advised in body of email. Checked by AVG anti-virus system (http://www.grisoft.com).

Response:

now that you mention it, I used to shake badly & when I ate the shakes went away.  Ended up I used to carry some sweets around with me all the time & if I started shaking I ate some until I could have a meal. Tony

I was having the shakes when I got run down. I started to use sugar as a pick me up. I became hypo-glosumic. I don’t think I spelled that right. The shaking had to do with my sugar levels. I now eat 4 to 5 meals a day and this shaking I was experiencing has gone away. Another question, I have over the years been suffering from shaking and tremors (like Parkisons) and my doctors are unsure if this is related to the crohns/colitis or anotehr problem.  Anyone else have this issue.  Its been getting worse over time and I have been prednisone free for well over 3 years.

— Outgoing mail is certified Virus Free. So check it anyway!! No attachments unless advised in body of email. Checked by AVG anti-virus system (http://www.grisoft.com).

Response:

i am 10 meds, plus remicade, plus allergy shots. the tacrolimus is doing it, is a known side effect of tacro. jeffy – Hide quoted text — Show quoted text – some immunomodulators cause this, i know i have a little, but i doubt that is your issue.  tacrolimus causes shakes as well as cyclosplorine. jeffy Another question, I have over the years been suffering from shaking and tremors (like Parkisons) and my doctors are unsure if this is related to the crohns/colitis or anotehr problem.  Anyone else have this issue.  Its been getting worse over time and I have been prednisone free for well over 3 years. I get the shakes but put it down to high doses of pred. Should not bother you after 3 years.  What other meds u on? Tony — Outgoing mail is certified Virus Free. So check it anyway!! No attachments unless advised in body of email. Checked by AVG anti-virus system (http://www.grisoft.com).

Response:

I was having the shakes when I got run down. I started to use sugar as a pick me up. I became hypo-glosumic. I don’t think I spelled that right. The shaking had to do with my sugar levels. I now eat 4 to 5 meals a day and this shaking I was experiencing has gone away.

– Hide quoted text — Show quoted text – Another question, I have over the years been suffering from shaking and tremors (like Parkisons) and my doctors are unsure if this is related to the crohns/colitis or anotehr problem.  Anyone else have this issue.  Its been getting worse over time and I have been prednisone free for well over 3 years.

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my hands sometimes shake a tiny little bit. I think it could be related to blood pressure maybe. Sarah

– Hide quoted text — Show quoted text – Another question, I have over the years been suffering from shaking and tremors (like Parkisons) and my doctors are unsure if this is related to the crohns/colitis or anotehr problem.  Anyone else have this issue.  Its been getting worse over time and I have been prednisone free for well over 3 years.

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I can get shakes fairly good aswell. i mainly get it with pain but the odd time i just get shaky. i don’t know why.

– Hide quoted text — Show quoted text – Another question, I have over the years been suffering from shaking and tremors (like Parkisons) and my doctors are unsure if this is related to the crohns/colitis or anotehr problem.  Anyone else have this issue.  Its been getting worse over time and I have been prednisone free for well over 3 years.

Response:

some immunomodulators cause this, i know i have a little, but i doubt that is your issue.  tacrolimus causes shakes as well as cyclosplorine. jeffy Another question, I have over the years been suffering from shaking and tremors (like Parkisons) and my doctors are unsure if this is related to the crohns/colitis or anotehr problem.  Anyone else have this issue.  Its been getting worse over time and I have been prednisone free for well over 3 years.

I get the shakes but put it down to high doses of pred. Should not bother you after 3 years.  What other meds u on? Tony — Outgoing mail is certified Virus Free. So check it anyway!! No attachments unless advised in body of email. Checked by AVG anti-virus system (http://www.grisoft.com).

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You need to see a neurologist. Debs – Hide quoted text — Show quoted text – Another question, I have over the years been suffering from shaking and tremors (like Parkisons) and my doctors are unsure if this is related to the crohns/colitis or anotehr problem.  Anyone else have this issue.  Its been getting worse over time and I have been prednisone free for well over 3 years.

Response:

some immunomodulators cause this, i know i have a little, but i doubt that is your issue.  tacrolimus causes shakes as well as cyclosplorine. jeffy

– Hide quoted text — Show quoted text – Another question, I have over the years been suffering from shaking and tremors (like Parkisons) and my doctors are unsure if this is related to the crohns/colitis or anotehr problem.  Anyone else have this issue.  Its been getting worse over time and I have been prednisone free for well over 3 years.

Response:

Another question, I have over the years been suffering from shaking and tremors (like Parkisons) and my doctors are unsure if this is related to the crohns/colitis or anotehr problem.  Anyone else have this issue.  Its been getting worse over time and I have been prednisone free for well over 3 years.

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Question:

David responds: You are lucky that you only felt a little wired! Approximately 25% of people who have used Zoloft and Prozac type meds have experienced some of the MANY side effects listed on the rap sheet available at the pharmacy. Of those 25% I experienced a reaction several hours after taking my first pill; nausea and diarrhea. The next day, after taking my second pill, I plunged headlong into every known side effect listed by the pharmaceutical company and then some. I was not predisposed to expect any; in fact my GP made it sound like this was a miracle drug, cure-all and I couldn’t wait to take it in anticipation of relief from PD. After the second pill I experienced the following violent reactions: -Severe nausea without vomitting -Six substantial bowel discharges of pink water only -Vertigo so severe, that I had to crawl to the toilet -Stabbing pinpoint pain in the back of my head, lower left side -Severe chills while sweating profusely alternating with… -Severe hot flashes, while my skin was contracting into goosebumps -Total body weakness -Body spasms -Upon closing my eyes, pictures of brilliantly coloured (dazzling) mundane objects would rotate through my ‘mind’s eye’, akin to what people have described while on a bad LSD trip. -Uncontrollable shaking and trembling -Inability to sleep for two full nights It took three days to recuperate enough to be able to get up and around again. I checked with my doctor and pharmacist and both claimed that none of these symtoms were unusual but said that most people who do experience side effects, only have one or two at most. However, my supervisor at work had taken Zoloft a year prior to me and had never spoken about his experience till I told him mine. He had suffered the same reactions on the day of his second pill. Just recounting my experience brought him to tears, thinking back to how bad his reaction had been. I was switched to Paxil and then to Manerix (sp??) Both of those drugs caused lesser but totally intolerable side effects mostly in the GI tract. One year after my encounter with Zoloft, a young woman at the office was prescribed the same drug and dosage and she only experienced nausea for the first week and then was perfectly fine. However, three years into her therapy and still on Zoloft, she has not conquered one symptom of PD and is now on long term disability insurance, unable to work and suffering severely from agoraphobia.  She considers it a triumph to get out of her flat once a month, with the help of two friends; one on either side of her. Three years of Zoloft and at thirty three she has been reduced to a fearful, agoraphobic, unemployed and suicidal mess. While I agree that different drug therapies and also combinations of therapies are needed based on the individual rather than the disorder, I would tend to agree that benzos are most efficient for PD. My specialist agrees and only uses Paxil or Zoloft if firstly, the patient can tolerate it, and secondly, they have chronic depression as well as PD. He has been treating PD exclusively for 25 years and finds that almost everyone who cannot tolerate Prozac family of drugs for depression, can tolerate Imipramine. Unfortunately one must go through 4-6 weeks of  extremely light sleep before tolerating it. This is the reason that Imipramine was prescribed at one time for children who were bed-wetters. It kept them from achieving deep levels of sleep, given in short, periodic doses. I think you will find great success with the benzo route but do not be discouraged if  Klonopin is not the one which works for you and your body chemistry. I had miraculous freedom from severe PD in a three stage therapy starting with Xanax (extremely fast acting, short lived), euphoric relief with Lectopam (medium lasting) as my doctor brought me down to Rivotril (very long lasting) which keeps the symtoms at bay but not as effectively as the fast acting benzos. My advice would be that if the Klonopin is not working to your satisfction within ten days, it probably is not the drug you need and you should try a new one. Good luck with your new meds.!! David To other readers; I am not knocking Zoloft as a med. I just feel that people should be aware that they MIGHT be unfortunate enough to experience mild to severe side effects. – Hide quoted text — Show quoted text – I guess Zoloft and I were not a match made in heaven.  After just three days I found myself so wired last night, I felt like I had eaten an entire package of No Doz!  This was entirely different than the generalized anxiety I often feel.  I called the p-doc around 10:30 and he told me to stop taking it.  I’m seeing him Friday to talk about what’s next. Probably benzos.  Most likely Klonopin.  So, all of you Klonopin success stories–I’d love to hear them! Iris —

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IMO, we should all become our own doctors as it’s our bodies.  No, I don’t mean not to consult an actual doctor; you know what I mean. Love and hugs to the whooooole board.  Janie. I entirely agree with you, Janie – that we need to educate ourselves to the maximum about our conditions and then work *with* our doctors

Not that you would ever be encouraged by any doctor to actually do so of course…  Job security and all that. Iris —

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I’m becoming more convinced of that everyday.  Based on what I’ve read here and elsewhere, it seems benzos have the better track record by far. That’s not to discount SSRI’s or any AD, but for dealing with the disabling panic quickly, benzos seem to be the way to go.  My thought now is to deal with the panic and anticipatory anxiety which is crippling me right now.  Then, if I find some underlying depression, or things still a

Iris, even when I took SSRI’s for Depression, they made me so agitated that I had to take them with Klonopin. this was way before I had PD. So I have strong opinions about treating PD with SSRIs as the first step. Benzos would seem a much wiser way to go. As Cooper said, there is no proven link between Serotonin and PD as there is with Serotonin and Depression. That’s why my Doc back in Boston was adamant about my going on Parnate, an MAO, and sticking with the Benzos. He does nothing but research in psychopharmacology and really knows this stuff backwards and forwards. And he’s been following me from a distance and hooking me up with good docs wherever I move to,  for 17 years, even though I’ve been gone from Boston all that time. As us Jews say, this is a real "mensch". This means MAN in Yiddish. As in good, responsible, kind, etc.. Listen, this guy is a genius. his name is Dr. Harrison Pope. He’s at McLean Hospital in Belmont. He does 99% research but he does have one patient. I call it his private private private practice. At the very least he could refer you to someone who knows PD inside and out. He knows everyone in and out of Boston who’s in the field. This may not be covered by insurance but it would be worth it to talk to someone who really cares and really knows his stuff. He was in the Esquire "most promising people under 40" section. Has been on 20/20, etc. Sorry to extoll his virtues ad nauseum but I don’t like or trust many people and he’s one of those few. If you want, e-mail me and I will hook you up with him. He’s a doll and he listens and he cares. I’m sorry I didn’t think of this sooner. I only recently figured out that you live in Boston and that you were only on an AD. I really believe that that Benzos will help you, Iris. You deserve to sleep and have some quality of life. If the doc you have doesn’t listen to you or doesn’t seem knowledgeable, then let me know. All of us in here are praying for you, Iris. all our love, Veronica et al WRITER/CATCH MY TRAIN OF THOUGHT "You can’t have everything. Where would you put it?" (Steven Wright)

Response:

David responds: – Hide quoted text — Show quoted text – (Casamiro) writes: own doctor! Iris IMO, we should all become our own doctors as it’s our bodies.  No, I don’t mean not to consult an actual doctor; you know what I mean.   ME TOO.  In fact, my own doctor believes this as well.  He thinks people need to read up and be informed of what is going on, as not all doctors do.  He also left the option to take xanax as my choice, since he told me it was ‘addictive’ and I would need to be weaned off of it.

My doctor has been treating PD for over twenty-five years and he encourages  his patients to participate in their meds therapy. As a responsible and caring doctor, he encourages all patients who are able, to become their own ’specialist’ by providing as much info as possible about PD and about the meds. In his book on PD he lists several pages of treatment therapies based on how the PD is manifesting, by sypmtoms. He also speaks harshly about people (doctors and researchers included)  who say that certain meds such as Xanax are "addictive". The analogy is; is insulin addictive given that a diabetic needs it every day and suffers seriously if the drug is withdrawn?  The same applies to Xanax, one of the most beneficial drugs in fighting PD. So much bullshit is put on the ‘net about Xanax and people love to recount their horror stories of coming "off" the drug. If someone has an allergic reaction, I can sympathize since I am allergic to many meds including pain killers, but this is a different issue.  The problem with Xanax is that it is clean, efficient, fast acting and not only controls PD but eliminates it for the short duration that it stays active in one’s body. The sad part is that most GPs will only prescribe .5 mg. three times per day, when the American Psychiatric Ass. recommends that up to 6-9 mg. may be required to effectively control PD. One of the reasons that doctors try to get patients off Xanax and on a slow acting benzo is simply to eliminate the need to take pills every two to three hours.  I feel sorry for those who recount all the terrible withdrawal symptoms and the living hell they went through coming off Xanax, when in fact all that really happened was a reoccurrence of PD symptoms. It’s sad that people with PD can’t recognize the symptoms of their own disorder and try to blame them on drug withdrawal. One more reason that we need to be ‘our own doctors’. Not by securing drugs without the consent of a doctor, but by becoming aware of the nature of PD and each of the many symptoms it creates. – Hide quoted text — Show quoted text – Lee

Response:

Hi, Iris. I just tried to send you email but it bounced.  Do you have spam-preventing characters in your address, perchance? Thanks — –Kathleen — "Hope is the thing with feathers" — Emily Dickinson Delete * in address to reply by e-mail

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(Casamiro) writes: own doctor! Iris

IMO, we should all become our own doctors as it’s our bodies.  No, I don’t mean

not to consult an actual doctor; you know what I mean.

  ME TOO.  In fact, my own doctor believes this as well.  He thinks people need to read up and be informed of what is going on, as not all doctors do.  He also left the option to take xanax as my choice, since he told me it was ‘addictive’ and I would need to be weaned off of it. Lee A little snogging goes a long way… <EG

Response:

I guess Zoloft and I were not a match made in heaven.  After just three days I found myself so wired last night, I felt like I had eaten an entire package of No Doz!  This was entirely different than the generalized anxiety I often feel.  I called the p-doc around 10:30 and he told me to

stop taking it.  I’m seeing him Friday to talk about what’s next.

Probably benzos.  Most likely Klonopin.  So, all of you Klonopin success

stories–I’d love to hear them!   Sorry to hear this Iris.  But at least now you know you can take medication. That in itself is something to celebrate.  Good luck with the next one :):) Lee A little snogging goes a long way… <EG

Response:

David responds: You are lucky that you only felt a little wired! Approximately 25% of people who have used Zoloft and Prozac type meds have experienced some of the MANY side effects listed on the rap sheet available at the pharmacy. Of those 25% I experienced a reaction several hours after taking my first pill; nausea and diarrhea. The next day, after taking my second pill, I plunged headlong into every known side effect listed by the pharmaceutical company and then some. I was not predisposed to expect any; in fact my GP made it sound like this was a miracle drug, cure-all and I couldn’t wait to take it in anticipation of relief from PD. After the second pill I experienced the following violent reactions: -Severe nausea without vomitting -Six substantial bowel discharges of pink water only -Vertigo so severe, that I had to crawl to the toilet -Stabbing pinpoint pain in the back of my head, lower left side -Severe chills while sweating profusely alternating with… -Severe hot flashes, while my skin was contracting into goose bumps -Total body weakness -Body spasms -Upon closing my eyes, pictures of brilliantly coloured (dazzling) mundane objects would rotate through my ‘mind’s eye’, akin to what people have described while on a bad LSD trip. -Uncontrollable shaking and trembling -Inability to sleep for two full nights It took three days to recuperate enough to be able to get up and around again. I checked with my doctor and pharmacist and both claimed that none of these symptoms were unusual but said that most people who do experience side effects, only have one or two at most. However, my supervisor at work had taken Zoloft a year prior to me and had never spoken about his experience till I told him mine. He had suffered the same reactions on the day of his second pill. Just recounting my experience brought him to tears, thinking back to how bad his reaction had been. I was switched to Paxil and then to Manerix (sp??) Both of those drugs caused lesser but totally intolerable side effects mostly in the GI tract. One year after my encounter with Zoloft, a young woman at the office was prescribed the same drug and dosage and she only experienced nausea for the first week and then was perfectly fine. However, three years into her therapy and still on Zoloft, she has not conquered one symptom of PD and is now on long term disability insurance, unable to work and suffering severely from agoraphobia.  She considers it a triumph to get out of her flat once a month, with the help of two friends; one on either side of her. Three years of Zoloft and at thirty three she has been reduced to a fearful, agoraphobic, unemployed and suicidal mess. While I agree that different drug therapies and also combinations of therapies are needed based on the individual rather than the disorder, I would tend to agree that benzos are most efficient for PD. My specialist agrees and only uses Paxil or Zoloft if firstly, the patient can tolerate it, and secondly, they have chronic depression as well as PD. He has been treating PD exclusively for 25 years and finds that almost everyone who cannot tolerate Prozac family of drugs for depression, can tolerate Imipramine. Unfortunately one must go through 4-6 weeks of  extremely light sleep before tolerating it. This is the reason that Imipramine was prescribed at one time for children who were bed-wetters. It kept them from achieving deep levels of sleep, given in short, periodic doses. I think you will find great success with the benzo route but do not be discouraged if  Klonopin is not the one which works for you and your body chemistry. I had miraculous freedom from severe PD in a three stage therapy starting with Xanax (extremely fast acting, short lived), euphoric relief with Lectopam (medium lasting) as my doctor brought me down to Rivotril (very long lasting) which keeps the symtoms at bay but not as effectively as the fast acting benzos. My advice would be that if the Klonopin is not working to your satisfaction within ten days, it probably is not the drug you need and you should try a new one. Good luck with your new meds.!! David To other readers; I am not knocking Zoloft as a med. I just feel that people should be aware that they MIGHT be unfortunate enough to experience mild to severe side effects. – Hide quoted text — Show quoted text – I guess Zoloft and I were not a match made in heaven.  After just three days I found myself so wired last night, I felt like I had eaten an entire package of No Doz!  This was entirely different than the generalized anxiety I often feel.  I called the p-doc around 10:30 and he told me to stop taking it.  I’m seeing him Friday to talk about what’s next. Probably benzos.  Most likely Klonopin.  So, all of you Klonopin success stories–I’d love to hear them! Iris —

Response:

The doctor put me on zoloft for depression and panic attacks with agorophobia and the result was like magic, at least with respect to the panic attacks: after 24 hours (1 dose!) NO MORE PANIC ATTACKS and no more AGOROPHOBIA!  The depression remains and I continue to take the Zoloft for it.  The major side effect that I experience is insomnia (can’t get to sleep) but once I get to sleep I sleep better than ever. I just got some Ambien for sleep — I’ll try the first pill tonight.   I just hope that it works for my depression.  I have read that it takes between 7 and 28 days to see the antidepressant effects of Zoloft.  I’m taking only 50 mg a day.

I’m very glad you are able to take the Zoloft with such success.  However, I don’t know if it is that effective after just one dose. When I took Zoloft, the big buzz would set in 10-12 hours after I took it.  I was taking my dose in the morning, but in retrospect, taking it at night would have been better.  If you think about when the drug affects you most and adjust the timing of your dose accordingly, it may help. Sorry I can’t be more optimistic re: Zoloft.  I only took it 4 days but I couldn’t stand the way it made me feel. Iris —

Response:

doctor! Iris

IMO, we should all become our own doctors as it’s our bodies.  No, I don’t mean not to consult an actual doctor; you know what I mean. Love and hugs to the whooooole board.  Janie.

Response:

I’m becoming more convinced of that everyday.  Based on what I’ve read here and elsewhere, it seems benzos have the better track record by far. That’s not to discount SSRI’s or any AD, but for dealing with the disabling panic quickly, benzos seem to be the way to go.  My thought now is to deal with the panic and anticipatory anxiety which is crippling me right now.  Then, if I find some underlying depression, or things still aren’t "right" I’d consider the AD.  In this case, most likely Prozac since I have two family members who have taken it for depression with no side effects (three, if you count our dog!).  Also, Prozac can be taken in liquid form, so I could start with as little as 2-5 mg and work my way up.

Actually, that’s a very good point, Iris. A long while ago, the reminder that Prozac is available in liquid form was commonly given on this NG and we’ve rather let that drop of late. It could be the ideal way for people starting Prozac to begin. Sheesh–I"m becoming my own doctor!

Who else would you trust? — Gary Cooper

Response:

IMO, we should all become our own doctors as it’s our bodies.  No, I don’t mean not to consult an actual doctor; you know what I mean. Love and hugs to the whooooole board.  Janie.

I entirely agree with you, Janie – that we need to educate ourselves to the maximum about our conditions and then work *with* our doctors — Gary Cooper

Response:

The doctor put me on zoloft for depression and panic attacks with agorophobia and the result was like magic, at least with respect to the panic attacks: after 24 hours (1 dose!) NO MORE PANIC ATTACKS and no more AGOROPHOBIA!  The depression remains and I continue to take the Zoloft for it.  The major side effect that I experience is insomnia (can’t get to sleep) but once I get to sleep I sleep better than ever. I just got some Ambien for sleep — I’ll try the first pill tonight.   I just hope that it works for my depression.  I have read that it takes between 7 and 28 days to see the antidepressant effects of Zoloft.  I’m taking only 50 mg a day.

Response:

Boy, I hope Klonopin has fewer side effects!  I’m just now, at 4 pm the next day, starting to feel more "normal" (whatever normal is for a PD sufferer).  I’m just realizing how jittery I felt the last few days

Sorry this didn’t work for you, Iris but at least you tried and I know that was a big step for you. I hope you are giving yourself credit for that. I just got a lecture from a friend of mine who was on Xanax and Zoloft for quite some time.  She’s off the Xanax now, but still on Zoloft.  She told me she thought benzos wouldn’t solve the problem as they don’t affect serotonin levels, etc., etc.  I told her she might not have been able to stand the Zoloft if she hadn’t been on Xanax first.

Good response and sounds like someone you might need to tune out a bit in your quest for what works for you. Sigh.  I don’t know what the right answer is.

If only it was the same for all of us.  I suppose it’s whatever works for me, isn’t it?

Yup, and you will find it.  I think you will find the benzos much more…user friendly.  Good luck! Gwen

Response:

Hi Iris I have a suggestion.  My Dr. has discussed using prozac for me eventually.  Now he knows of my fear of meds and I have not been able to get on an AD so far. The way he told me we would do it is to take a 10 mg prozac and open it into a 4oz baby bottle of apple juice.  That way I can start on a very very low dosage 1/2 oz a day and then 1 oz a day etc…  He said I would feel less side effects that way and the meds would build up slowly plus it gives me some control over the med.  Maybe you could mention this to your dr. and see if it would be an option for you also.  It will take longer to get to a therapeutic dosage but at least it would help with the side effects Blessings, Kelly

Response:

Boy, I hope Klonopin has fewer side effects!  I’m just now, at 4 pm the next day, starting to feel more "normal" (whatever normal is for a PD sufferer).  I’m just realizing how jittery I felt the last few days.  By last night I wasn’t even able to think straight.  My 7 year old beat me in checkers around 3pm.  By 7pm I was climbing the walls.  I didn’t sleep all night.  I woke up wired.  I can’t stand that "buzzed" feeling.  I’m hoping for better results with a benzo.  My p-doc says he might still want to try an AD on me–perhaps Prozac since my sister was on it with no side effects.  Perhaps we’ll see.  If Klonopin can do the trick right now, so be it.

Hi, Iris – I’d have thought there’s every chance that Klonopin will do the trick. To be honest, I grow more sceptical by the day about the current policy of resorting to SSRIs first. The worst Klonopin is likely to do is make you drowsy, IMO. I just got a lecture from a friend of mine who was on Xanax and Zoloft for quite some time.  She’s off the Xanax now, but still on Zoloft.  She told me she thought benzos wouldn’t solve the problem as they don’t affect serotonin levels, etc., etc.  I told her she might not have been able to stand the Zoloft if she hadn’t been on Xanax first.

Your friend’s wrong. There is no certainty that serotonin is the implicated chemical in A/PD – it could be one of several, including GABA, which is what benzos work on. This is a case of YMMV and what worked for her simply may not be right for you. Sigh.  I don’t know what the right answer is.  I suppose it’s whatever works for me, isn’t it?

Cetainly is – good luck! — Gary Cooper

Response:

Hi, Iris – I’d have thought there’s every chance that Klonopin will do the trick. To be honest, I grow more sceptical by the day about the current policy of resorting to SSRIs first. The worst Klonopin is likely to do is make you drowsy, IMO.

I’m becoming more convinced of that everyday.  Based on what I’ve read here and elsewhere, it seems benzos have the better track record by far. That’s not to discount SSRI’s or any AD, but for dealing with the disabling panic quickly, benzos seem to be the way to go.  My thought now is to deal with the panic and anticipatory anxiety which is crippling me right now.  Then, if I find some underlying depression, or things still aren’t "right" I’d consider the AD.  In this case, most likely Prozac since I have two family members who have taken it for depression with no side effects (three, if you count our dog!).  Also, Prozac can be taken in liquid form, so I could start with as little as 2-5 mg and work my way up. Sheesh–I"m becoming my own doctor! Iris I just got a lecture from a friend of mine who was on Xanax and Zoloft for quite some time.  She’s off the Xanax now, but still on Zoloft.  She told me she thought benzos wouldn’t solve the problem as they don’t affect serotonin levels, etc., etc.  I told her she might not have been able to stand the Zoloft if she hadn’t been on Xanax first. Your friend’s wrong. There is no certainty that serotonin is the implicated chemical in A/PD – it could be one of several, including GABA, which is what benzos work on. This is a case of YMMV and what worked for her simply may not be right for you.

She had terrible depression as well, which at this point, I haven’t seen in myself. Iris —

Response:

– Hide quoted text — Show quoted text – Hi Iris I have a suggestion.  My Dr. has discussed using prozac for me eventually.  Now he knows of my fear of meds and I have not been able to get on an AD so far. The way he told me we would do it is to take a 10 mg prozac and open it into a 4oz baby bottle of apple juice.  That way I can start on a very very low dosage 1/2 oz a day and then 1 oz a day etc…  He said I would feel less side effects that way and the meds would build up slowly plus it gives me some control over the med.  Maybe you could mention this to your dr. and see if it would be an option for you also.  It will take longer to get to a therapeutic dosage but at least it would help with the side effects Blessings, Kelly

Good suggestion. As I posted earlier in response to Gary’s post, I’m going to get on the benzo first, see how that goes, then review whether or not I need the AD.  If so, Prozac may be a good choice for me. Iris —

Response:

I guess Zoloft and I were not a match made in heaven.  After just three days I found myself so wired last night, I felt like I had eaten an entire package of No Doz!  This was entirely different than the generalized anxiety I often feel.  I called the p-doc around 10:30 and he told me to stop taking it.  I’m seeing him Friday to talk about what’s next. Probably benzos.  Most likely Klonopin.  So, all of you Klonopin success stories–I’d love to hear them! Iris —

Response:

I’ve been maintained on Klonopin for at least 8 years.  I was able to start attending college.  Hey, I was even able to SIT in the class without running for the nearest door…. I can tell you some stories about speech class!  Talk about being shaky, but I made it.  Hopefully, it will work for you, too.

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I couldnt tolerate Zoloft either.  Klonopin has helped anxiety, not a cure by any means, but it helps without any side effects.  Good luck PETER

Response:

I guess Zoloft and I were not a match made in heaven.  After just threedays I

found myself so wired last night, I felt like I had eaten an entirepackage of No Doz!  This was entirely different than the generalizedanxiety I often feel.  I called the p-doc around 10:30 and he told me tostop taking it.  I’m seeing him Friday to talk about what’s next. Probably benzos.  Most likely Klonopin.  So, all of you Klonopin success stories–I’d love to hear them! Iris Been on Klonopin for about 10 yrs – - currently on .5(1/2mg.) 3 x per day (a

low dose IMO) for panic and generalized anxiety.  I’m also on 20 mg Paxil for depression.  Doing well on these dosages except when I have to do something out of the ordinary, like today I’m going to a new gym so I know I will have a huge amount of anxiety.   My vote’s for Klonopin!  Good luck.  Love, Janie. – Hide quoted text — Show quoted text –

Response:

I guess Zoloft and I were not a match made in heaven.  After just three days I found myself so wired last night, I felt like I had eaten an entire package of No Doz!  This was entirely different than the generalized anxiety I often feel.  I called the p-doc around 10:30 and he told me to stop taking it.  I’m seeing him Friday to talk about what’s next. Probably benzos.  Most likely Klonopin.  So, all of you Klonopin success stories–I’d love to hear them!

Sorry to hear it didn’t work out, Iris I’m one of those who also had a lot of problems with Zoloft and had to give it up – I’m sure you’ll be lots better with Klonopin, though as it has very few side effects. Good luck! — Gary Cooper

Response:

– Hide quoted text — Show quoted text – I guess Zoloft and I were not a match made in heaven.  After just three days I found myself so wired last night, I felt like I had eaten an entire package of No Doz!  This was entirely different than the generalized anxiety I often feel.  I called the p-doc around 10:30 and he told me to stop taking it.  I’m seeing him Friday to talk about what’s next. Probably benzos.  Most likely Klonopin.  So, all of you Klonopin success stories–I’d love to hear them! Sorry to hear it didn’t work out, Iris I’m one of those who also had a lot of problems with Zoloft and had to give it up – I’m sure you’ll be lots better with Klonopin, though as it has very few side effects. Good luck! — Gary Cooper

Boy, I hope Klonopin has fewer side effects!  I’m just now, at 4 pm the next day, starting to feel more "normal" (whatever normal is for a PD sufferer).  I’m just realizing how jittery I felt the last few days.  By last night I wasn’t even able to think straight.  My 7 year old beat me in checkers around 3pm.  By 7pm I was climbing the walls.  I didn’t sleep all night.  I woke up wired.  I can’t stand that "buzzed" feeling.  I’m hoping for better results with a benzo.  My p-doc says he might still want to try an AD on me–perhaps Prozac since my sister was on it with no side effects.  Perhaps we’ll see.  If Klonopin can do the trick right now, so be it. I just got a lecture from a friend of mine who was on Xanax and Zoloft for quite some time.  She’s off the Xanax now, but still on Zoloft.  She told me she thought benzos wouldn’t solve the problem as they don’t affect serotonin levels, etc., etc.  I told her she might not have been able to stand the Zoloft if she hadn’t been on Xanax first. Sigh.  I don’t know what the right answer is.  I suppose it’s whatever works for me, isn’t it? Iris —

Response:

Sorry to hear it didn’t work out, Iris I’m one of those who also had a lot of problems with Zoloft and had to give it up – I’m sure you’ll be lots better with Klonopin, though as it has very few side effects. Good luck! Gary Cooper Boy, I hope Klonopin has fewer side effects!  I’m just now, at 4 pm thenext

day, starting to feel more "normal" (whatever normal is for a PDsufferer). I’m just realizing how jittery I felt the last few days.  Bylast night I wasn’t even able to think straight.  My 7 year old beat me incheckers around 3pm.  By 7pm I was climbing the walls.  I didn’t sleep allnight.  I woke up wired.  I can’t stand that "buzzed" feeling.  I’m hopingfor better results with a benzo.  My p-doc says he might still want to tryan AD on me–perhaps Prozac since my sister was on it with no sideeffects.  Perhaps we’ll see.  If Klonopin can do the trick right now, sobe it. I just got a lecture from a friend of mine who was on Xanax and Zoloft

forquite some time.  She’s off the Xanax now, but still on Zoloft.  She toldme she thought benzos wouldn’t solve the problem as they don’t affectserotonin levels, etc., etc.  I told her she might not have been able tostand the Zoloft if she hadn’t been on Xanax first. Sigh.  I don’t know what the right answer is.  I suppose it’s whateverworks for me, isn’t it? Iris

Iris, I needed the Klonopin to control my GAD and PD.  Janie. – Hide quoted text — Show quoted text –

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Question:

Hi group, the question about acid reflux got me thinking. It seems to me that quite a few in this NG have other medical problems besides migraines. Are migraineurs as a group more susceptible to other problems? Are our systems weakened by the chronic pain so that we are not able to fight off other illnesses as well? Or are other illnesses present that pre-dispose us to migraines? If you all are interested, I’d be willing to compile answers in a spreadsheet format. If you feel that’s not appropriate let me know. Otherwise, e-mail me personally and I’ll get going on this. Obviously, I don’t need names for this, just illnesses. What do you think? Ingrid

Ingrid, most of your questions I can’t answer and wouldn’t try to for the group but I cn tell you that most of my health probloms seratonin plays a major factor in.  Don’t knpe if that helps or not Karen

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(blushing from ignorance) what is geographic tongue? Jane in AZ

Jane, I had never heard of geographic tongue either, so I looked it up in my handy-dandy Taber’s Medical Dictionary: One possessing white, raised areas resembling mountain ranges on a relief map.  Areas consist of heaped-up epithelium surrounding areas of atrophy.   The next entry after geographic tongue was hairy tongue. Hmmmm, hairy tongue vs. geograpic tongue!  Both seem kind of nasty, in my book. Mary – Hide quoted text — Show quoted text – Ingrid, I nver get sick.  I nver get the flu. ( I cannot spell I have a HA) I figure some deal was made that I suffer w/migraine, so that’s enough. But I do get IBS when stressed out.  Oh! and I have geographic tongue (anyone have that?! please!) and reynauds disease (sp?) which is ice ice cold fingers or toes……any connections ya think?

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: Ingrid, : I nver get sick.  I nver get the flu. ( I cannot spell I have a HA) I : figure some deal was made that I suffer w/migraine, so that’s enough. : But : I do get IBS when stressed out.  Oh! and I have geographic tongue (anyone : have that?! please!) and reynauds disease (sp?) which is ice ice cold : fingers or toes……any connections ya think? Patty,  I assume if you have Reynauds that you can’t take any vasoconstrictors? diane : Hi group, : the question about acid reflux got me thinking. It seems to me that quite : a : few in this NG have other medical problems besides migraines. Are : migraineurs as a group more susceptible to other problems? Are our : systems : weakened by the chronic pain so that we are not able to fight off other : illnesses as well? Or are other illnesses present that pre-dispose us to : migraines? If you all are interested, I’d be willing to compile answers : in : a spreadsheet format. If you feel that’s not appropriate let me know. : Otherwise, e-mail me personally and I’ll get going on this. Obviously, I : don’t need names for this, just illnesses. : What do you think? : Ingrid : —

Response:

Patty, I have had that too since I was a kid.  I’ve found that acidophillus and b6 usually take care of it.  In my experience it’s caused by an lask of intestinal flora. diane

: No blushing necessary!  Every so often I get inflammations on my tongue, " : raised margins" on the surface that are red and sore.  they are patches : that are in (sort of) weird shapes.  Per Dr. and Med. book: no known cause : or treatment!  :) Sometimes irritated by some foods, but seems to be : cyclical in some way.  My sister has it too as well as migraines, both : things we just discovered about eachother (we are 15 yrs apart) So that’s : geographic tongue.  Just try and look that up on the net and see what kind : of sites you end up in! : Patty : : (blushing from ignorance) what is geographic tongue? : Jane in AZ : – - I hope to be the kind of person my dog thinks I am – -

: Ingrid, : I nver get sick.  I nver get the flu. ( I cannot spell I have a HA) I : figure some deal was made that I suffer w/migraine, so that’s enough. : But : I do get IBS when stressed out.  Oh! and I have geographic tongue : (anyone : have that?! please!) and reynauds disease (sp?) which is ice ice cold : fingers or toes……any connections ya think? : —

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And do they turn dead white?  It’s often just one or two of them.  My husband calls it the finger of death, it’s so white against the others. Hurts too. – Hide quoted text — Show quoted text – patty, i  also have the ice cold fingers and/or toes.  i also experience fingers and/or toes that loose their feelings but hurt like the devil… ronnie queen of hugs                

Response:

No blushing necessary!  Every so often I get inflammations on my tongue, " raised margins" on the surface that are red and sore.  they are patches that are in (sort of) weird shapes.  Per Dr. and Med. book: no known cause or treatment!  :) Sometimes irritated by some foods, but seems to be cyclical in some way.  My sister has it too as well as migraines, both things we just discovered about eachother (we are 15 yrs apart) So that’s geographic tongue.  Just try and look that up on the net and see what kind of sites you end up in! Patty – Hide quoted text — Show quoted text – (blushing from ignorance) what is geographic tongue? Jane in AZ – - I hope to be the kind of person my dog thinks I am – - Ingrid, I nver get sick.  I nver get the flu. ( I cannot spell I have a HA) I figure some deal was made that I suffer w/migraine, so that’s enough. But I do get IBS when stressed out.  Oh! and I have geographic tongue (anyone have that?! please!) and reynauds disease (sp?) which is ice ice cold fingers or toes……any connections ya think?

Response:

– Hide quoted text — Show quoted text – Hi group, the question about acid reflux got me thinking. It seems to me that quite a few in this NG have other medical problems besides migraines. Are migraineurs as a group more susceptible to other problems? Are our systems weakened by the chronic pain so that we are not able to fight off other illnesses as well? Or are other illnesses present that pre-dispose us to migraines? If you all are interested, I’d be willing to compile answers in a spreadsheet format. If you feel that’s not appropriate let me know. Otherwise, e-mail me personally and I’ll get going on this. Obviously, I don’t need names for this, just illnesses. What do you think? Ingrid It is not uncommon for migraineurs to have lower than normal vitals. This is not usaully a medical problem, per say.  My normal BP is 90/60 and my body temp usually runs 95-96 degrees.  For years I thought this was an oddity isolated to just me, but when I first came to this ng, I found others with the same low numbers. Mary

Yes, and just off the top of my head, motion sickness, depression, OCD, else? Sage

Response:

patty, i  also have the ice cold fingers and/or toes.  i also experience fingers and/or toes that loose their feelings but hurt like the devil… ronnie Hey Gang,

So do I, they call it Raynouds (spelling?_) Disease. My Sister, Barb, the one who was Murdered in a Domestic Violence, had it also. About 10 years for me now. Hurts like a Son of a Gun, and I have gotten the ulcers when it has gotten real bad. One consolation, it keeps my mind of my Migraine ! Ha HA queen of hugs

– LOVE AND HUGS             NOT DRUGS AND SLUGS          Carol Lee                   Dozer MOM of    Dutchess     10 year old Viszla’s                   Lil’ Lady                                &                      Jer’Mia       18 year old Baby Kitty                                   St. Paul, Minn. http://www.goldengate.net/~efolsom/clee.htm

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snipped

 So that’s geographic tongue.  Just try and look that up on the net and see what kind of sites you end up in! Patty

I think I am too afraid to look it up on the web!  (You know how often one can find those unpleasant sites by accident! Jane in AZ – - I hope to be the kind of person my dog thinks I am – -

Response:

patty, i  also have the ice cold fingers and/or toes.  i also experience fingers and/or toes that loose their feelings but hurt like the devil… ronnie queen of hugs                

Response:

(blushing from ignorance) what is geographic tongue? Jane in AZ – - I hope to be the kind of person my dog thinks I am – - – Hide quoted text — Show quoted text – Ingrid, I nver get sick.  I nver get the flu. ( I cannot spell I have a HA) I figure some deal was made that I suffer w/migraine, so that’s enough. But I do get IBS when stressed out.  Oh! and I have geographic tongue (anyone have that?! please!) and reynauds disease (sp?) which is ice ice cold fingers or toes……any connections ya think? Hi group, the question about acid reflux got me thinking. It seems to me that quite a few in this NG have other medical problems besides migraines. Are migraineurs as a group more susceptible to other problems? Are our systems weakened by the chronic pain so that we are not able to fight off other illnesses as well? Or are other illnesses present that pre-dispose us to migraines? If you all are interested, I’d be willing to compile answers in a spreadsheet format. If you feel that’s not appropriate let me know. Otherwise, e-mail me personally and I’ll get going on this. Obviously, I don’t need names for this, just illnesses. What do you think? Ingrid

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Ingrid, I nver get sick.  I nver get the flu. ( I cannot spell I have a HA) I figure some deal was made that I suffer w/migraine, so that’s enough. But I do get IBS when stressed out.  Oh! and I have geographic tongue (anyone have that?! please!) and reynauds disease (sp?) which is ice ice cold fingers or toes……any connections ya think? – Hide quoted text — Show quoted text – Hi group, the question about acid reflux got me thinking. It seems to me that quite a few in this NG have other medical problems besides migraines. Are migraineurs as a group more susceptible to other problems? Are our systems weakened by the chronic pain so that we are not able to fight off other illnesses as well? Or are other illnesses present that pre-dispose us to migraines? If you all are interested, I’d be willing to compile answers in a spreadsheet format. If you feel that’s not appropriate let me know. Otherwise, e-mail me personally and I’ll get going on this. Obviously, I don’t need names for this, just illnesses. What do you think? Ingrid

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Hi group, the question about acid reflux got me thinking. It seems to me that quite a few in this NG have other medical problems besides migraines. Are migraineurs as a group more susceptible to other problems? Are our systems weakened by the chronic pain so that we are not able to fight off other illnesses as well? Or are other illnesses present that pre-dispose us to migraines? If you all are interested, I’d be willing to compile answers in a spreadsheet format. If you feel that’s not appropriate let me know. Otherwise, e-mail me personally and I’ll get going on this. Obviously, I don’t need names for this, just illnesses. What do you think? Ingrid

It is not uncommon for migraineurs to have lower than normal vitals. This is not usaully a medical problem, per say.  My normal BP is 90/60 and my body temp usually runs 95-96 degrees.  For years I thought this was an oddity isolated to just me, but when I first came to this ng, I found others with the same low numbers. Mary

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I have no other major illnesses. Migraine is it. I’m active physically, and mentally. I try to fill my no pain days and enjoy them. I figure migraine may take 1 to 6 days at a time away from me, but it will not have the other days. Caroline – Hide quoted text — Show quoted text – Hi group, the question about acid reflux got me thinking. It seems to me that quite a few in this NG have other medical problems besides migraines. Are migraineurs as a group more susceptible to other problems? Are our systems weakened by the chronic pain so that we are not able to fight off other illnesses as well? Or are other illnesses present that pre-dispose us to migraines? If you all are interested, I’d be willing to compile answers in a spreadsheet format. If you feel that’s not appropriate let me know. Otherwise, e-mail me personally and I’ll get going on this. Obviously, I don’t need names for this, just illnesses. What do you think? Ingrid

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Hi group, the question about acid reflux got me thinking. It seems to me that quite a few in this NG have other medical problems besides migraines. Are migraineurs as a group more susceptible to other problems? Are our systems weakened by the chronic pain so that we are not able to fight off other illnesses as well? Or are other illnesses present that pre-dispose us to migraines? If you all are interested, I’d be willing to compile answers in a spreadsheet format. If you feel that’s not appropriate let me know. Otherwise, e-mail me personally and I’ll get going on this. Obviously, I don’t need names for this, just illnesses. What do you think? Ingrid

  Hi Ingrid, Don’t think I am unusual (except for being unique like all humans) but only have migraine. Don’t seem to have any other chronic conditions and have otherwise been healthy all my life and am still fighting fit and functioning on all levels at 66. Isn’t it possible that these other conditions, digestive, visual, auditory etc are all part of a wider migraine syndrome. Is there a specific thing called migraine, or is it an umbrella term which still defies close definition? Don’t have the answer..just ask the question!!

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Hi group, the question about acid reflux got me thinking. It seems to me that quite a few in this NG have other medical problems besides migraines. Are migraineurs as a group more susceptible to other problems? Are our systems weakened by the chronic pain so that we are not able to fight off other illnesses as well? Or are other illnesses present that pre-dispose us to migraines? If you all are interested, I’d be willing to compile answers in a spreadsheet format. If you feel that’s not appropriate let me know. Otherwise, e-mail me personally and I’ll get going on this. Obviously, I don’t need names for this, just illnesses. What do you think? Ingrid

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I guess we never think about what could be happening (at least my eyes have been opened!)  I have a HIGHER than normal temp (at 99 always – just call me Major Major Major, for those of you who read Catch 22)

LOL!  Your promotion is in the mail <evil grin   (btw, Closing Time’s pretty good too) <ramble I was working in the enrolment office here one holidays, & checking off official exam results against claimed exam results (on student’s applications) up came the name "Irving Washington" — his ethnicity was Yossarian, his permanent address was 22 Catch St, Heller, Auckland, and he planned to live in an air force tent during the year… No-one would believe me when I said HOAX!!!  They printed off an ID card & everything, waiting for him to turn up and verify his identity. But they sent his application off to the accomodation office, with a note saying present accomodation should suit him fine Then at the end of the year the lecturer of one of the courses he’d "enrolled" in had notices up asking him to get in touch ASAP, because he’d been handing in work – and getting it marked! – but wasn’t on the official class list! </ramble , but lower than normal BP (at 90/60 on a good day).  I also have cold hands always, even in the 122 degree heat Phoenix is famous for, and even with the raised body temp.

My BP’s always pretty low (dizziness, etc.), temperature I don’t know about.  And I’d have to convert it to fahrenheit anyway, wouldn’t I? butting (t’ lazy) — Bryce Utting                          http://www.cs.waikato.ac.nz/~butting                 the cross before me, the world behind me                              no turning back

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It seems to me that quite a few in this NG have other medical problems besides migraines. Ingrid

Hi Ingrid, I can count on one hand the number of times I got a flu/cold, my blood pressure is ok, colesterol ok, sugar in the blood ok, my teeth are all here and in good shape, all organs seem to be in good shape, I even sleep well. If I can point one thing that should be better it would be me constipation, but I’m taking care of that too. Soooooooo…… I iz a migraineur who just have migraines. peace Mario Daily Hemicrain – My Migraine Homepage http://www.bekkoame.or.jp/~kukobuka/migraine.html

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Yes, and just off the top of my head, motion sickness, depression, OCD, else? Sage

Yep Sage – I get the depression – the sulphue allergy and the anxiety Anne (UK) – Hide quoted text — Show quoted text –

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Wow, I never even thought about others having these things. I just always knew my blood pressure is low and so is my temp. I rarely get a fever, and my feet are always cold. Melissa got me slippers that have gel packs you heat in the microwave and then put in a pocket in the slippers. My feet ’still’ get cold! Cyndi

– Hide quoted text — Show quoted text -It is not uncommon for migraineurs to have lower than normal vitals. This is not usaully a medical problem, per say.  My normal BP is 90/60 and my body temp usually runs 95-96 degrees.  For years I thought this was an oddity isolated to just me, but when I first came to this ng, I found others with the same low numbers. Mary I too have a lower than norm temp. Mine is usually around 96. And I rarely get a fever, even when I have the flu. I may feel sweaty and cold, but the thermometer says I don’t have a fever. Strange. Take care, Jackie k

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I guess we never think about what could be happening (at least my eyes have been opened!)  I have a HIGHER than normal temp (at 99 always – just call me Major Major Major, for those of you who read Catch 22), but lower than normal BP (at 90/60 on a good day).  I also have cold hands always, even in the 122 degree heat Phoenix is famous for, and even with the raised body temp. (learning as I go along!) Jane in AZ – - I hope to be the kind of person my dog thinks I am – -

– Hide quoted text — Show quoted text -Mary I too have a lower than norm temp. Mine is usually around 96. And I rarely get a fever, even when I have the flu. I may feel sweaty and cold, but the thermometer says I don’t have a fever. Strange. Take care, Jackie k

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It is not uncommon for migraineurs to have lower than normal vitals. This is not usaully a medical problem, per say.  My normal BP is 90/60 and my body temp usually runs 95-96 degrees.  For years I thought this was an oddity isolated to just me, but when I first came to this ng, I found others with the same low numbers. Mary

I too have a lower than norm temp. Mine is usually around 96. And I rarely get a fever, even when I have the flu. I may feel sweaty and cold, but the thermometer says I don’t have a fever. Strange. Take care, Jackie k

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Thanks for the input. Gathering dribs and drabs of info in a textfile right now. Once I have a significant number of responses, I’ll put in in spreadsheet format or whatever format you all can read. Ingrid – Hide quoted text — Show quoted text – x-no-archive: yes migraines major depression, chronic (over 10 years on meds) seizure disorder chronic sinusitis benign essential tremor ibs pms arthritis in hands, maybe raynouds wonder if this helps….sounds like an interesting undertaking, ingrid…let us know what you discover. tn Things are not always what they appear to be unless they appear to be hopeless & futile. x-no-archive: yes

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I wanna meet this guy!!!! name "Irving Washington" — his ethnicity

was Yossarian, his permanent address was 22 Catch St, Heller, Auckland, how funny – the TV series had an episode of Hawkeye making up a guy – I am surprised he didn’t use something like this (can’t remember the name of the guy he made up off hand) My mother grounded me when she caught me reading the book – and I was nineteen years old!!! Bryce you are a card!  (an ACE!!!!) Jane – - I hope to be the kind of person my dog thinks I am – -

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Hi!  In regard to your poll of what we migraineurs might have in common, I normally have very low blood pressure– 90 over 60. Also cold hands and feet most of the time. Also very touchy digestive system, particularly my stomach. Barb

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