Question:

After reading your post on the allergy group a while back I tried adding a couple ml of hydrogen peroxide to a half bottle of Ocean salt water spray. This worked fine and seemed to really help. However after I ran out of this bottle and mixed up a batch myself, I either added too much hydrogen peroxide or my sinus infection was already well established as the second bottle seemed to irritate my already inflamed sinuses. I’ll try again with a weaker formulation after my sinuses heal. Thanks for the suggestions. — "Dissent is the highest form of patriotism"   Thomas Jefferson "CanDo" <rasm1…@bellsouth.net

wrote in message

news:rcwic.2918$7a5.2178@bignews6.bellsouth.net… – Hide quoted text — Show quoted text -

After suffering with multiple sinus infections, year after year, for decades, I experimented with flooding my sinuses with a mixture of diluted 3% hydrogen peroxide, baking soda and kosher salt. I kept my forehead down for quite a while, hoping that the anti-infective mixture could get to the infected area(s) within my sinuses and nasal passages.  . It worked! I have been sinus infection free for about 30 months.  . I have fully documented my experience and how I did it at Healthboards.com. There are posts over there by people who have tried my "upside down sinus flooding", and by who don’t think that it is a good idea. I have no connection at all with Healthboards. I consider it to be the best facility for discussing  health problems on the Internet.  . To find out more, select one of the following links:  . Here is the link to a discussion about the "Upside Down Sinus Flooding": . http://www.healthboards.com/boards/showthread.php?t=129210  . Here is the link to the detailed documentation of the "Upside Down Sinus Flooding" and also some discussion:  . http://www.healthboards.com/boards/showthread.php?t=139765

Response:

NorthShoreCEO wrote:

What is the long term effect of hydrogen peroxide on tissue?  Does anyone know?

If you believe that the decomposition of h2o2 produces free radicals and you believe that free radicals can cause cancer then you may be inclined to believe that cancer could be a long term effect. I certainly wouldn’t take a chance being so close to the brain.

Response:

"knob" <h…@dontemailme.com

wrote in message

news:Ouajc.10$Q5.7@fe39.usenetserver.com…

NorthShoreCEO wrote: What is the long term effect of hydrogen peroxide on tissue?  Does anyone know? If you believe that the decomposition of h2o2 produces free radicals and you believe that free radicals can cause cancer then you may be inclined to believe that cancer could be a long term effect. I certainly wouldn’t take a chance being so close to the brain.

3% Hydrogen Peroxide has been used for decades by millions of people, for cuts and for gargling, to prevent infection and to help remove mucus and phlegm. It is readily available at most super markets, discount stores, retail stores, etc. There are no health warnings on the bottles. If you feel that it is a cancer risk, you should get in touch with the proper authorities and warn them.

Response:

- Hide quoted text — Show quoted text -CanDo wrote:

"knob" <h…@dontemailme.com wrote in message news:Ouajc.10$Q5.7@fe39.usenetserver.com… NorthShoreCEO wrote: What is the long term effect of hydrogen peroxide on tissue?  Does anyone know? If you believe that the decomposition of h2o2 produces free radicals and you believe that free radicals can cause cancer then you may be inclined to believe that cancer could be a long term effect. I certainly wouldn’t take a chance being so close to the brain. 3% Hydrogen Peroxide has been used for decades by millions of people, for cuts and for gargling, to prevent infection and to help remove mucus and phlegm. It is readily available at most super markets, discount stores, retail stores, etc. There are no health warnings on the bottles. If you feel that it is a cancer risk, you should get in touch with the proper authorities and warn them.

I didn’t say hydrogen peroxide was a cancer risk.

Response:

"CanDo" <rasm1…@bellsouth.net

wrote in message

news:pE9jc.9861$oN1.256@bignews5.bellsouth.net…

I know that you are looking for more scientific feedback, or feedback from the medical community, but I figured I’d offer my personal experience.

Thanks for sharing your experience.  Yes, I was looking for more scientific feedback, but also for use on longer term use than 30 months.  With all the research I do, I’ve not been able to find anything substantive.

Response:

Hydrogen peroxide can’t be too awfully toxic. I used to got to an alt. med MD who also did IV chelation therapy and I saw many patients in his office do large IV drips of hydrogen peroxide solution and this wasn’t the 3% variety. I think they were doing the IVs to protect their heart. I can’t remember the specific rational because it’s been 10 years or so. I’m sure a Google search would tell you whatever their theory was behind ingesting hydrogen peroxide. I remember some of the patients also drank hydrogen peroxide. — "Dissent is the highest form of patriotism"   Thomas Jefferson "NorthShoreCEO" <NorthShore…@aol.com

wrote in message

news:Mp7jc.39999$w96.2823833@attbi_s54… – Hide quoted text — Show quoted text -

What is the long term effect of hydrogen peroxide on tissue?  Does anyone know?

Response:

Before western culture learned of it, 3,000 years ago the Yoga did rapid in and out sniffing of saline. They did it very rapidly at a low pressure. Which, essentially is what the Hydro Pulse does . This rapid in and out did stimulate cilia and did remove dust and pollen. Try to teach this today ! good luck. Most patients this gentle low pressure means about 70 PSI which will damage the nose. Murray Grossan, M.D. http://www.ent-consult.com

Response:

"Steven Litvintchouk" <sdlit…@earthlinkNOSPAM.net

wrote in message

news:pvwic.8554$gH6.6757@newsread3.news.atl.earthlink.net…

spam2death wrote: I’m currently on my second round of antibiotics in this years edition of my never ending battle against chronic sinus infections. I’m sorry to hear that.  I hope that throwing more and more antibiotics at the problem isn’t the only thing your doctors are doing for you.  The most important thing your doctors should be doine for you, is trying to figure out why you keep getting recurrent sinus infections in the first place.

I’ve had horrible allergies my entire life. I currently treat them with Flonase, Astelin, Nasal Crom, Singulair and whatever else is necessary. I’ve also taken desensitization shots several times and taken enough allergy pills to fill a 55 gallon drum. Once any of my sinuses or eustachen tubes clogs securely, an infection won’t be far behind.  I don’t even remember large portions of junior high because I was so zoned out on various allergy pills or sick with repeated sinus infections. My problem with sinus infections is that I probably wait much too long before beginning antibiotics and the infections are usually well advanced. Augmentin made me have diarreha so I was only on it two days. I’m taking Tequin now. – Hide quoted text — Show quoted text -

What did people do for chronic severe sinus infections prior to the availability

of

antibiotics? IIRC:  nasal irrigation and surgery.  Pretty much what they do now! The first diagnoses of chronic maxillary sinus infections were first made around the 17th century.  And over time, better and better surgical procedures were devised.  (The Caldwell-Luc surgical procedure, for many years the state-of-the-art in sinus surgery, was invented in the late 19th century.) In the 18th century, doctors realized that some sinus infections were caused by dental abscesses and could be helped by extractions of the upper molars.  Nasal irrigation was employed for the first time in the 18th century too. I remember seeing a couple of pictures of the elaborate mechanical apparatuses they used for nasal irrigation, before the invention of electric irrigators.  One of them was a big tank that was fastened high on the wall, way above your head.  You put the hose into your nose, turned the crank, and gravity and siphoning pulled the water down into your nose and thru your nasopharynx. — Steven L.

I use saline nasal spray 4-6 times a day. It seems to help. Having nasal surgery scares the poop out of me as a friend went into the local hospital as an outpatient to clear a minor nasal blockage and immediately came down with incurable MRSA and also strep in his sinuses. He had to have repeated major surgeries to try and cure the infection. The infections and related pain eventually cost him his job and career. I’d probably have to be fighting a malignancy before I’d risk surgery, but if I further lost my ability to breathe, I might change my mind. Thanks for the medical history lessons and suggestions.   spam2death

Response:

spam2death wrote:

I’ve had horrible allergies my entire life. I currently treat them with Flonase, Astelin, Nasal Crom, Singulair and whatever else is necessary. I’ve also taken desensitization shots several times and taken enough allergy pills to fill a 55 gallon drum. Once any of my sinuses or eustachen tubes clogs securely, an infection won’t be far behind.  I don’t even remember large portions of junior high because I was so zoned out on various allergy pills or sick with repeated sinus infections. My problem with sinus infections is that I probably wait much too long before beginning antibiotics and the infections are usually well advanced. Augmentin made me have diarreha so I was only on it two days. I’m taking Tequin now.

Have you seen an ENT?  If so, what did he say?

I use saline nasal spray 4-6 times a day. It seems to help.

You might find that irrigation works better than spray. I use the Grossan irrigator religiously.  It works better for me than any nasal spray.

Having nasal surgery scares the poop out of me as a friend went into the local hospital as an outpatient to clear a minor nasal blockage and immediately came down with incurable MRSA and also strep in his sinuses.

Hmm, this is a new one for me. What the heck is "incurable MRSA?" Was this one of those brand-new strains of MRSA that’s even resistant to vancomycin? Not all hospitals are as careless as the one you describe.  Many of us have had sinus surgery and we didn’t get MRSA.  But we didn’t go to just any surgeon and just any hospital.  We chose carefully. — Steven L.

Response:

"NorthShoreCEO" wrote: "What is the long term effect of hydrogen peroxide on

tissue?  Does anyone know?" <================================

I’ve flooding my sinuses with a mixture of Hydrogen peroxide, baking soda and kosher salt for about 30 months, an average of less than twice a month. Total flooding time averages about 15 minutes. After decades of sinus misery, my sinuses have never been better. I’ve also use electro-acupuncture to treat my sinuses, and watch my diet, and I have made changes to my environment, so I can’t attribute my good sinus health to just the flooding. So far, I have not had any bad effects from the contact of the peroxide with my sinuses. I know that you are looking for more scientific feedback, or feedback from the medical community, but I figured I’d offer my personal experience. ===

"Hydrogen peroxide is water with extra oxygen attached. The formula for

water is H2O, and for hydrogen peroxide is H2O2. Another name for hydrogen peroxide would be hydrogen dioxide." <===

Response:

What is the long term effect of hydrogen peroxide on tissue?  Does anyone know?

Response:

"spam2death" wrote: After reading your post on the allergy group a while

back I tried adding a couple ml of hydrogen peroxide to a half bottle of Ocean salt water spray. This worked fine and seemed to really help. However after I ran out of this bottle and mixed up a batch myself, I either added too much hydrogen peroxide or my sinus infection was already well established as the second bottle seemed to irritate my already inflamed sinuses. I’ll try again with a weaker formulation after my sinuses heal.  Thanks for the suggestions." << <=============================

When I’ve used too much peroxide, it has caused my sinuses to swell shut for about three straight days. I am careful not to use more than one part peroxide to 10 parts water. Even that much used to sting my sinuses, but not any more. If the powerful anti-infective mixture of peroxide, baking soda and kosher salt can get to the source of infection, or infected material, then it can fight the infection and help to prevent recurring infections. If it can’t get to the source of the infection, then the benefits are limited. – Hide quoted text — Show quoted text -

— "Dissent is the highest form of patriotism"   Thomas Jefferson "CanDo" <rasm1…@bellsouth.net wrote in message news:rcwic.2918$7a5.2178@bignews6.bellsouth.net… After suffering with multiple sinus infections, year after year, for decades, I experimented with flooding my sinuses with a mixture of

diluted

3% hydrogen peroxide, baking soda and kosher salt. I kept my forehead

down

for quite a while, hoping that the anti-infective mixture could get to

the

infected area(s) within my sinuses and nasal passages.  . It worked! I have been sinus infection free for about 30 months.  . I have fully documented my experience and how I did it at

Healthboards.com.

There are posts over there by people who have tried my "upside down

sinus

flooding", and by who don’t think that it is a good idea. I have no connection at all with Healthboards. I consider it to be the best

facility

for discussing  health problems on the Internet.  . To find out more, select one of the following links:  . Here is the link to a discussion about the "Upside Down Sinus Flooding": . http://www.healthboards.com/boards/showthread.php?t=129210  . Here is the link to the detailed documentation of the "Upside Down Sinus Flooding" and also some discussion:  . http://www.healthboards.com/boards/showthread.php?t=139765

Response:

I’m currently on my second round of antibiotics in this years edition of my never ending battle against chronic sinus infections. What did people do for chronic severe sinus infections prior to the availability of antibiotics? Anyone have a brief explanation of archaic treatments used for sinus infections used in the years before antibiotics? Any medical historians in the group? thanks,    congested to death but still curious — "Dissent is the highest form of patriotism"   Thomas Jefferson

Response:

After suffering with multiple sinus infections, year after year, for decades, I experimented with flooding my sinuses with a mixture of diluted 3% hydrogen peroxide, baking soda and kosher salt. I kept my forehead down for quite a while, hoping that the anti-infective mixture could get to the infected area(s) within my sinuses and nasal passages.  . It worked! I have been sinus infection free for about 30 months.  . I have fully documented my experience and how I did it at Healthboards.com. There are posts over there by people who have tried my "upside down sinus flooding", and by who don’t think that it is a good idea. I have no connection at all with Healthboards. I consider it to be the best facility for discussing  health problems on the Internet.  . To find out more, select one of the following links:  . Here is the link to a discussion about the "Upside Down Sinus Flooding": . http://www.healthboards.com/boards/showthread.php?t=129210  . Here is the link to the detailed documentation of the "Upside Down Sinus Flooding" and also some discussion:  . http://www.healthboards.com/boards/showthread.php?t=139765

Response:

spam2death wrote:

I’m currently on my second round of antibiotics in this years edition of my never ending battle against chronic sinus infections.

I’m sorry to hear that.  I hope that throwing more and more antibiotics at the problem isn’t the only thing your doctors are doing for you.  The most important thing your doctors should be doine for you, is trying to figure out why you keep getting recurrent sinus infections in the first place.

What did people do for chronic severe sinus infections prior to the availability of antibiotics?

IIRC:  nasal irrigation and surgery.  Pretty much what they do now! The first diagnoses of chronic maxillary sinus infections were first made around the 17th century.  And over time, better and better surgical procedures were devised.  (The Caldwell-Luc surgical procedure, for many years the state-of-the-art in sinus surgery, was invented in the late 19th century.) In the 18th century, doctors realized that some sinus infections were caused by dental abscesses and could be helped by extractions of the upper molars.  Nasal irrigation was employed for the first time in the 18th century too. I remember seeing a couple of pictures of the elaborate mechanical apparatuses they used for nasal irrigation, before the invention of electric irrigators.  One of them was a big tank that was fastened high on the wall, way above your head.  You put the hose into your nose, turned the crank, and gravity and siphoning pulled the water down into your nose and thru your nasopharynx. — Steven L.

Response:

Question:

writes: – Hide quoted text — Show quoted text -Two years ago my allergies really gave me trouble. The progression ended up with me getting pneumonia in April lasting two months until June. At the time I was 38 yrs old reasonably healthy jogging and taking karate up until I couldn’t breath after a run. I started to get sick and thought I had the Flu. But it held on and I went to the Dr.   and I was diagnosed with pneumonia. I was really sick for about 2 weeks and off work for 2 months. I was referred to a Lung Specialist in the midst of all this and had the lung function test as well as sputum tests. He told me that I had asthma as a result of the pneumonia and some scarring in my lungs. He also said that the sputum tests show that I have a fungus in my lungs called Asperligosis (I hope spelling doesn’t count here) I was put on medications Pulmicort and Ventolin. Every morning about an hour or so after I get up I get tight in my chest and hack up some interesting samples of goo. I usually get it up in an hour or so and usually don’t need a shot of my ventolin. But I find now that I don’t have the wind like I had pre-pneumonia. QUESTION— Is the Asperligosis fungi causing my asthma to be worse? Is the fungus actually causing my asthma as I never had it before? Is there any medications out that can rid me of this fungus? I would appreciate any feed back anyone can give me. Thank you.                                    Bob

Aspergillosis is a mold, causing infections in the external ear.Occasionally lesions appear in the skin,nasal sinuses,orbit,bronchi,lungs or other internal organs. Stanley Lepelstat  Phramacy Consultant Easy access to homeopathy   http://www.mja.net/accupathy Email your address for a free brochure on Homeopathy —

Question:

- Hide quoted text — Show quoted text – I have a few questions on the US asthma market – can anyone point me in the right direction for unbiased info ? 4.  Is it true that generic versions of proventil and ventolin have been used more and more frequently over the past few years ? Grateful for your thoughts. . Copley Labs set back the generic market on Albuterol for nebulizers by distributing their contaminated generic a couple years ago! I avoid generics for albuterol like the plague until there is a trackrecord. Does anyone have a good track record? I can’t take the generic albuterol inhaler.  It definitely does not work as well for me.  I had to repeat the dosage every 1 1/2.  It was terrible.

I have used Ventolin practically every day since it first came on the market about 30 years ago without any obvious ill effects.  In now use it in conjunction with Pulmicort and together they very effectively control my asthma. Best of luck. — Michael Thornton LLM Registered Migration Agent 57348 Vice president Migration Institute of Australia Postal address: C/- Macpherson & Kelley Solicitors, PO Box 343 DANDENONG, Australia Phone: 613 97916444 Fax: 613 97934462 Email: Web site: http://www.ozemail.com.au/~mthornto/

Response:

- Hide quoted text — Show quoted text – I have a few questions on the US asthma market – can anyone point me in the right direction for unbiased info ? 4.  Is it true that generic versions of proventil and ventolin have been used more and more frequently over the past few years ? Grateful for your thoughts. . Copley Labs set back the generic market on Albuterol for nebulizers by distributing their contaminated generic a couple years ago! I avoid generics for albuterol like the plague until there is a trackrecord. Does anyone have a good track record?

I can’t take the generic albuterol inhaler.  It definitely does not work as well for me.  I had to repeat the dosage every 1 1/2.  It was terrible.

Response:

- Hide quoted text — Show quoted text –   I have a few questions on the US asthma market – can anyone point me   in the right direction for unbiased info ?   4.  Is it true that generic versions of proventil and ventolin have   been used more and more frequently over the past few years ?   Grateful for your thoughts.   .  Copley Labs set back the generic market on Albuterol for nebulizers by  distributing their contaminated generic a couple years ago!  I avoid generics for albuterol like the plague until there is a  trackrecord. Does anyone have a good track record?

We’ve been using the Astra generic for a while with no difficulties. (Astra the company, with US headquarters in the New England area has been in the press recently for other problems unrelated to quality – personal scandals with the now-former president). — Mark Feblowitz,   GTE Laboratories Inc., 40 Sylvan Rd.  Waltham, MA 02254

Response:

I have a few questions on the US asthma market – can anyone point me in the right direction for unbiased info ? 4.  Is it true that generic versions of proventil and ventolin have been used more and more frequently over the past few years ? Grateful for your thoughts. .

Copley Labs set back the generic market on Albuterol for nebulizers by distributing their contaminated generic a couple years ago! I avoid generics for albuterol like the plague until there is a trackrecord. Does anyone have a good track record?

Response:

I have a few questions on the US asthma market – can anyone point me in the right direction for unbiased info ? 1. What is the annual albuterol market worth ? 2. How many prescriptions for albuterol (brand or generic) are written each year by physicians and pulmonologists ? 3.What share of this do the various brand names have ? 4.  Is it true that generic versions of proventil and ventolin have been used more and more frequently over the past few years ? Grateful for your thoughts. .

Response:

Question:

 This is a re-post from a while ago. I think it answers your question. PEF = Peak expiratory flow; this is the fastest speed you can get air moving out of your lungs if you blow real hard. Back in the old days they used to have "the match test." The doctor would hold a lit match several inches in front of your face (I forget how many – we have PF’s now) and ask you to blow with your mouth open. If you couldn’t blow it out they knew you were in trouble. They could also quantitate things somewhat by describing how close they had to hold the match before you could blow it out. This test was more convenient back when everyone smoked. Somewhere along the line, someone decided to make a device that gave a number. There are several different brands out there. The numbers don’t compare exactly between different models and even between the same model in different conditions. It is the trend, and your own history that counts, so the differences don’t mean all that much. Basically, it is cheap and easy to use. It can give the doctor a number to follow, which is always helpful. You can say "250" rather than "pretty bad." It does have several limitations. The first is that everyone should establish their own "normal." In most ER’s they will have tables that tell them what "normal" for you should be. Trouble is that it varies greatly and these charts are worthless (IMO). Most of the people here probably never get anywhere near "normal." On a good day the chart would have you near death. Some, like myself, can do much more than "normal" and so if they believe the chart, and not me, they will miss a serious decrease in function. The second limitation is that it does not measure precisely the right thing. The PEF generally measures the airflow coming out of the large airways, such as the trachea and first few branches of the Bronchi. Asthma usually is more of a disease of small airways. That is why they make you blow into the PFT machine until you want to pass out. That last little bit of air is coming from the small airways. Usually the PEF correlates with disease severity in asthma, but you have to keep in mind that the PFM (Peak flow meter) is not measuring exactly the right thing and may read normal during a severe attack. The information it gives can be misleading. If you have one at home and use it regularly you will get to know what your best is, and at what levels you tend to get into trouble. This information, derived from your experience, and not a chart can be helpful. It allows you to have a precise way of communicating to your doctor how severe your attack is. The trend now is to develop an "action plan." The PF readings are usually divided up into three zones; green, yellow, and red. The green zone means continue as usual, or possibly taper meds down, depending on what you are doing. Yellow usually calls for some increase in therapy and possibly a call to the doctor. Red usually means call the doctor or 911. — Good Luck, CBI, M.D. – Hide quoted text — Show quoted text – Can someone explain to me how one can have normal peak flow readings (over 100%) and still be short of breath.  Could there be a respiratory infection? Niasha

Response:

Hello! I really understand how frustrated you must be!  My peak flow is generally fairly constant, even if I feel tight in my chest.  My doc said he has some patients showing a high peak flow reading yet are sick enough to go to the ER!!  The only time my peak flow dips is when I am really, really sick. I’ve just had to learn through experience and calls to my doctor how to gauge my symptoms and the need for any additional meds.  I was relying heavily on my Pf readings but learned to listen to my body, also. Best of luck, Patrice – Hide quoted text — Show quoted text – _That_ explains a few things!  I’d been wondering myself how I could still be having symptoms when my peak flow readings were so high… hmmmm some of this is beginning to make sense to me……Every summer I have the same problems, chest tightness, shortness of breath, panic and chest pain…and every summer i start on the same regime of drugs….ventolin and pulmicort and every summer I never feel any better than the last.  I am beginning to get very frustrated and I am beginning to doubt myself and wonder if it is all in my head. This summer my doctor asked me to start recording peak flow information.  I have been doing it for just over two weeks now (which I hear is a good preliminary period) but i feel just as confused as every.  My symptoms seem consistent with asthma, but not the peak flows.  My levels are high in the morning, dip in the afternoon and evening.  After taking ventolin my personal best is 525.  most days i come in around 425.  but some days at 425 i feel ok and other days i feel like I am suffocating.  and the difference between 450 and 425 feels like the difference between 450 and 200. i thought that this was supposed to take the guess work out of this whole mess and give me some "ammunition" when I go to my doctor? but i am still confused, frustrated and on the verge of a nervous breakdown and I fear that my doctor thinks I am nuts. ter Share what you know. Learn what you don’t.

Response:

A peak flow meter only measures the condition of the large airways. You could be having problems with the small airways causing such symptoms.

_That_ explains a few things!  I’d been wondering myself how I could still be having symptoms when my peak flow readings were so high…

Response:

_That_ explains a few things!  I’d been wondering myself how I could still be having symptoms when my peak flow readings were so high…

hmmmm some of this is beginning to make sense to me……Every summer I have the same problems, chest tightness, shortness of breath, panic and chest pain…and every summer i start on the same regime of drugs….ventolin and pulmicort and every summer I never feel any better than the last.  I am beginning to get very frustrated and I am beginning to doubt myself and wonder if it is all in my head. This summer my doctor asked me to start recording peak flow information.  I have been doing it for just over two weeks now (which I hear is a good preliminary period) but i feel just as confused as every.  My symptoms seem consistent with asthma, but not the peak flows.  My levels are high in the morning, dip in the afternoon and evening.  After taking ventolin my personal best is 525.  most days i come in around 425.  but some days at 425 i feel ok and other days i feel like I am suffocating.  and the difference between 450 and 425 feels like the difference between 450 and 200. i thought that this was supposed to take the guess work out of this whole mess and give me some "ammunition" when I go to my doctor? but i am still confused, frustrated and on the verge of a nervous breakdown and I fear that my doctor thinks I am nuts. ter Share what you know. Learn what you don’t.

Response:

Oh, oh!  Thanks.  Niasha – Hide quoted text — Show quoted text – If you are having trouble breathing, but your PFs are stable, then it is probably an infection.  If the PFs are dropping, but improve with albuterol, that is asthma. Chris Owens Earlier this month I was hospitalized for a week with pneumonia. During all that time, my peak flows were at 100%. Emily M.

Response:

Can someone explain to me how one can have normal peak flow readings (over 100%) and still be short of breath.  Could there be a respiratory infection? Niasha

A peak flow meter only measures the condition of the large airways. You could be having problems with the small airways causing such symptoms. It could be a respiratory infection; often a virus where antibiotics would probably not be prescribed. Usually an Action Plan calls for increasing meds when either Peak Flow drops into Yellow zone, OR symptoms increase. [eg double inhaled steroid, use Ventolin as needed] Ellis

Response:

Ellis you are tooo clever.  That’s what my doctor said on Friday.  She explained the difference and procedures for a viral vs a bacterial infection (which requires an anitbiotic).   I am on nebulizer treatments and increase steriods.  This is Sunday morning and I feel better already.  Thanks, Niasha Ellis  wrote…A peak flow meter only measures the condition of the large

airways. You could be having problems with the small airways causing such symptoms.  It could be a respiratory infection; often

a virus where  antibiotics would probably not be prescribed.  Usually an Action Plan calls for increasing meds when either Peak Flow drops into Yellow zone, OR symptoms increase.  [eg double inhaled steroid, use Ventolin as needed]

Response:

If you are having trouble breathing, but your PFs are stable, then it is probably an infection.  If the PFs are dropping, but improve with albuterol, that is asthma. Chris Owens

Earlier this month I was hospitalized for a week with pneumonia. During all that time, my peak flows were at 100%. Emily M.

Response:

Fooey, hooey!  Txs Niasha Can someone explain to me how one can have normal peak flow readings (over 100%) and still be short of breath.  Could there be a respiratory

infection? chris responded…Not only could there be, it’s very likely.  Doctor time.

Response:

PFR are accurate.  I put my average high (700) to be on the safe side.   I can usually go up to 850 at least once and an average bet.  650 and 750 2 out of 3 times.  I guess my question is more about when do you know it’s an asthma attack Vs a respiratory infection.  For asthma I go to the specialist and for infections to my GP (who, by the way, is extremely knowledgeable).

If you are having trouble breathing, but your PFs are stable, then it is probably an infection.  If the PFs are dropping, but improve with albuterol, that is asthma. Chris Owens

Response:

PFR are accurate.  I put my average high (700) to be on the safe side.   I can usually go up to 850 at least once and an average bet.  650 and 750 2 out of 3 times.  I guess my question is more about when do you know it’s an asthma attack Vs a respiratory infection.  For asthma I go to the specialist and for infections to my GP (who, by the way, is extremely knowledgeable). – Hide quoted text — Show quoted text -nancy wrote… I would suggest going to your pulmonologist and making sure that your numbers are correct.  Are you sure that your "normal" zone isnt too high?  We had a bit of trouble pinpointing my correct range, but once we did, my numbers/breathing were right on the money.

Response:

Can someone explain to me how one can have normal peak flow readings (over 100%) and still be short of breath.  Could there be a respiratory infection? Niasha

Response:

Can someone explain to me how one can have normal peak flow readings (over 100%) and still be short of breath.  Could there be a respiratory infection?

Not only could there be, it’s very likely.  Doctor time. Chris Owens

Response:

Can someone explain to me how one can have normal peak flow readings (over 100%) and still be short of breath.  Could there be a respiratory infection? Niasha

I would suggest going to your pulmonologist and making sure that your numbers are correct.  Are you sure that your "normal" zone isnt too high?  We had a bit of trouble pinpointing my correct range, but once we did, my numbers/breathing were right on the money. Life is uncertain – eat dessert first. Nancy 8=: )

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Question:

        I saw the first therapist again, because the first session was mostly a case history; this year’s been really incredible.  She said I pretty much had GAD and some depression, which is what I thought.  We had a CBT session on my topmost issue, which is giving up our place in town and having to move to my wife’s place out in the country.  She showed me I was catastrophizing there and had me look at alternatives.           I did see that CBT is no deep dark mystery; it’s what I used to call "brainstorming":  toss out alternatives with someone else and try a few.           I think I could work with her.  I’ll admit, I couldn’t have heard from someone at the public clinic about the moving issue, since I was afraid they wouldn’t be sympathetic; many of their clients are one step from being out on the street!  So now I feel better about the public clinic.  I also know that I have an alternative.  Since I’m getting my meds   (Effexor XR, 150 mg; Depakote 1000 mg) at the clinic, it would be better to have them coordinate.  I’ll give it all more thought.   Dennis — The charter is available at:  http://readystump.algebra.com/~asapm

Response:

Hi, Dennis, Sounds like the therapy appointment went well.  Please keep us updated on how it is going… smiles, Elise

– Hide quoted text — Show quoted text –     I saw the first therapist again, because the first session was mostly a case history; this year’s been really incredible.  She said I pretty much had GAD and some depression, which is what I thought.  We had a CBT session on my topmost issue, which is giving up our place in town and having to move to my wife’s place out in the country.  She showed me I was catastrophizing there and had me look at alternatives.     I did see that CBT is no deep dark mystery; it’s what I used to call "brainstorming":  toss out alternatives with someone else and try a few.     I think I could work with her.  I’ll admit, I couldn’t have heard from someone at the public clinic about the moving issue, since I was afraid they wouldn’t be sympathetic; many of their clients are one step from being out on the street!  So now I feel better about the public clinic.  I also know that I have an alternative.  Since I’m getting my meds (Effexor XR, 150 mg; Depakote 1000 mg) at the clinic, it would be better to have them coordinate.  I’ll give it all more thought. Dennis — The charter is available at:  http://readystump.algebra.com/~asapm

– The charter is available at:  http://readystump.algebra.com/~asapm

Response:

Question:

<Gale.Schu…@risperdal.causes.mania

wrote in message

news:cv50ducnc4u11fr799r6265i8vu3k60t76@4ax.com…

Effexor Withdrawal Causing Crackling Sounds in the Brain Antidepressants  "Thank God for this website." I had a nervous breakdown six years ago and after being on other

anti-depressants without

a problem, my psychiatrist felt that Effexor had less of an effect on the

heart, and so

switched me to Effexor. I have tried unsuccessfully to quit on many

occasions, even though

I only take 37.5 mgs per day. The extreme lethargy I feel when I have

tried to quit, the

tingling in various parts of my body, the weird dreams and most

troublesome of all, the

crackling, electric sounds in my head have caused me too much distress to

ever be

successful.

Hi, I think that you have to think about all these  side effect problems. Maybe they are not side-effect, maybe they are only telling you that you are stressed, and you need to fix your problems, otherwise the side-problems will be forever with you B

Response:

- Hide quoted text — Show quoted text -"barbapic" <barba…@ntlworld.com

wrote in message <news:go%z8.821$8n2.364518@news2-win.server.ntlworld.com… <Gale.Schu…@risperdal.causes.mania wrote in message news:cv50ducnc4u11fr799r6265i8vu3k60t76@4ax.com… Effexor Withdrawal Causing Crackling Sounds in the Brain Antidepressants  "Thank God for this website." I had a nervous breakdown six years ago and after being on other  anti-depressants without a problem, my psychiatrist felt that Effexor had less of an effect on the  heart, and so switched me to Effexor. I have tried unsuccessfully to quit on many  occasions, even though I only take 37.5 mgs per day. The extreme lethargy I feel when I have  tried to quit, the tingling in various parts of my body, the weird dreams and most  troublesome of all, the crackling, electric sounds in my head have caused me too much distress to  ever be successful. Hi, I think that you have to think about all these  side effect problems. Maybe they are not side-effect, maybe they are only telling you that you are stressed, and you need to fix your problems, otherwise the side-problems will be forever with you B

I thought cross-posting to and from different kind of newsgroups was not the reason why they started alt.support.schizofrenia. Btw, is it not forbidden in the FAQ ? Berty

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Question:

- Hide quoted text — Show quoted text – x-no-archive: yes the pdoc decided not to hospitalize me, as the suicidal impulses have passed for now. instead, she increased my zoloft dose again, renewed my klonny prescription and added trazodone for sleep. hopefully this will help me get eight *consecutive* hours of sleep a night. and i have to go back and see her next week. she also got me set up with a counselor who specializes in self-esteem issues, and my first appointment is February 23rd. if the trazodone doesn’t work, she’ll refer me to the sleep disorder clinic, and i will be spending a few nights there in order for them to find out why i wake up after three hours. thanks, everyone who wished me well. i appreciate it more than i can say. SK SK, I’m on the exact same meds. Took up to three dosage increases to find the right combination for me. 200mg of Zoloft in the morning, along with .05 Klonny; another Klonny around 11:00AM, and a third one around 4:30.  Then, 100mg of Trazadone about an hour before I’m ready to go to sleep. Getting a full night’s sleep was never a problem after my original Traz dose of 50mg was increased to 100mg. Frank i could use a full night’s sleep myself.  what is the klonny like? diana

Diana, Well, the Trazadone is for sleep.  The Klonny is an anti-anxiety med. I find it takes the edge off things, if that makes any sense. I like it, myself. Doesn’t make me tired, or any other side effects; it helps make things tolerable that might otherwise get me frazzled. Frank

Response:

just a quick note on the sleepins meds trazadone always left me doped up the next day i’m on Sonata now, can be taken when you wake up in the middle of the night…just need 4 hrs to be able sleep afterwards i do know meds are very indivual, just thought i’d bring it up

Response:

i’m glad you’re safe, Sunkitty.   hugs, Timmy

Response:

– Hide quoted text — Show quoted text – x-no-archive: yes the pdoc decided not to hospitalize me, as the suicidal impulses have passed for now. instead, she increased my zoloft dose again, renewed my klonny prescription and added trazodone for sleep. hopefully this will help me get eight *consecutive* hours of sleep a night. and i have to go back and see her next week. she also got me set up with a counselor who specializes in self-esteem issues, and my first appointment is February 23rd. if the trazodone doesn’t work, she’ll refer me to the sleep disorder clinic, and i will be spending a few nights there in order for them to find out why i wake up after three hours. thanks, everyone who wished me well. i appreciate it more than i can say. SK SK, I’m on the exact same meds. Took up to three dosage increases to find the right combination for me. 200mg of Zoloft in the morning, along with .05 Klonny; another Klonny around 11:00AM, and a third one around 4:30.  Then, 100mg of Trazadone about an hour before I’m ready to go to sleep. Getting a full night’s sleep was never a problem after my original Traz dose of 50mg was increased to 100mg. Frank

i could use a full night’s sleep myself.  what is the klonny like? diana

Response:

- Hide quoted text — Show quoted text – x-no-archive: yes the pdoc decided not to hospitalize me, as the suicidal impulses have passed for now. instead, she increased my zoloft dose again, renewed my klonny prescription and added trazodone for sleep. hopefully this will help me get eight *consecutive* hours of sleep a night. and i have to go back and see her next week. she also got me set up with a counselor who specializes in self-esteem issues, and my first appointment is February 23rd. if the trazodone doesn’t work, she’ll refer me to the sleep disorder clinic, and i will be spending a few nights there in order for them to find out why i wake up after three hours. thanks, everyone who wished me well. i appreciate it more than i can say. SK

SK, I’m on the exact same meds. Took up to three dosage increases to find the right combination for me. 200mg of Zoloft in the morning, along with .05 Klonny; another Klonny around 11:00AM, and a third one around 4:30.  Then, 100mg of Trazadone about an hour before I’m ready to go to sleep. Getting a full night’s sleep was never a problem after my original Traz dose of 50mg was increased to 100mg. Frank

Response:

Fingers crossed for you!!!!!  =^..^=

– Hide quoted text — Show quoted text – x-no-archive: yes the pdoc decided not to hospitalize me, as the suicidal impulses have passed for now. instead, she increased my zoloft dose again, renewed my klonny prescription and added trazodone for sleep. hopefully this will help me get eight *consecutive* hours of sleep a night. and i have to go back and see her next week. she also got me set up with a counselor who specializes in self-esteem issues, and my first appointment is February 23rd. if the trazodone doesn’t work, she’ll refer me to the sleep disorder clinic, and i will be spending a few nights there in order for them to find out why i wake up after three hours. thanks, everyone who wished me well. i appreciate it more than i can say. SK x-no-archive is in headers; please respect it. thanks MSN: SunKitten — ICQ: 92790525

Response:

Question:

Ok, I have read all the literature I can find, and talked to my pharmacist and a doctor (not the psychiatrist who prescribed it because I know more about the drug than he does). All the "official" stuff tells me that serzone doesn’t affect sexual function. So why, since I have been on it, had by sex drive dropped off to next to nothing? And why is it more difficult for me to achieve orgasm. When I was on Zoloft, I had the same thing happen, but sexual disfunction is a side effect of Zoloft. Anyone have experiences similar to mine? (BTW, I have a different doctor prescribing my meds now). Thanks in advance, Ev emorgan <at slonet <dot org eem <at efn <dot org Replying to the header is futile. Junk e-mail will be illiminated. And for good measure: There is a $1000 US fee for unsolicited commercial e-mail to any of my aforementioned addresses. This is your only warning. Die NetScum! Die!

Response:

[posted and emailed] Ok, I have read all the literature I can find, and talked to my pharmacist and a doctor (not the psychiatrist who prescribed it because I know more about the drug than he does). All the "official" stuff tells me that serzone doesn’t affect sexual function. So why, since I have been on it, had by sex drive dropped off to next to nothing? And why is it more difficult for me to achieve orgasm. When I was on Zoloft, I had the same thing happen, but sexual disfunction is a side effect of Zoloft. Anyone have experiences similar to mine?

yes, only "statistically" does serzone not affect sexual function. that means it wasnt likely.. ‘cept in your case… what about wellbutrin? Thomas A. Ott http://www.geocities.com/heartland/5294 "All Things Are Possible Except Skiing Through A Revolving Door…" [remove "nospam." from my sig to respond...]

Response:

Question:

The name "Slipper" ain’t a pet name.  It is a version of an old family name handed down over the years to the "chosen" ones who exhibited certain qualities.  "Slipper" is a Hebrew term for, "She who is great".  My great, great grandmother, also a chosen one,  was 1/2 American Indian and was called "She who is great", but in indian it was pronounced, "Spaz-twista-shake". That does not fit on contemporary birth certificates. Therefore it was shown in Hebrew, pronouced "Slipper". Yaw show some respect, okay! Jeeeeeeeeeeeeeese!!!!!! -Slipper

Thanks, Slipper.  I needed that …except it hurts to laugh!  You reminded me of a professor I had in grad school who had Parkinson’s. On those wonderful occassions when we would teach together, he would enter the room first with me trailing (and flailing). We would finally get to the front of the lecture hall and he’d introduce us.  "Hi. They call me ‘Old Shaky’ and this is my partner, ‘Spaz’." Shalom, Chana Mitzvah g’dolah l’hiyot b’simcha. "It is a great mitzvah to exist in a state of joy."

Response:

This is so cool.  Here I am, aspiring to become a writer; I answer a newsgroup post and now I’m gonna be in print all over!!!  And more than anything, I’ll have the ultimate "last word" on a multitude of physicians via my pals, the dystoniacs. The name "Slipper" ain’t a pet name.  It is a version of an old family name handed down over the years to the "chosen" ones who exhibited certain qualities.  "Slipper" is a Hebrew term for, "She who is great".  My great, great grandmother, also a chosen one,  was 1/2 American Indian and was called "She who is great", but in indian it was pronounced, "Spaz-twista-shake".  That does not fit on contemporary birth certificates. Therefore it was shown in Hebrew, pronouced "Slipper". Yaw show some respect, okay!  Jeeeeeeeeeeeeeese!!!!!! -Slipper

Response:

The name "Slipper" ain’t a pet name.  It is a version of an old family name handed down over the years to the "chosen" ones who exhibited certain qualities.  "Slipper" is a Hebrew term for, "She who is great".  My great, great grandmother, also a chosen one,  was 1/2 American Indian and was called "She who is great", but in indian it was pronounced, "Spaz-twista-shake". That does not fit on contemporary birth certificates. Therefore it was shown in Hebrew, pronouced "Slipper". Yaw show some respect, okay! Jeeeeeeeeeeeeeese!!!!!! -Slipper Thanks, Slipper.  I needed that …except it hurts to laugh!  You reminded me of a professor I had in grad school who had Parkinson=

’s. On those wonderful occassions when we would teach together, he would enter the room first with me trailing (and flailing). We wo= uld finally get to the front of the lecture hall and he’d introduce us.  "Hi. They call me ‘Old Shaky’ and this is my partner, ‘Spaz= ‘." Shalom, Chana Mitzvah g’dolah l’hiyot b’simcha. "It is a great mitzvah to exist in a state of joy."

Oh me…It is the Chana & Slipper show!!  How fun!  And Chana, your post also appeared as one long line on my server…it is only when I do a ‘post reply’ that your post and Slipper’s take on ‘normal’ form!!  Wonder if it is moi or yoi…<<<VBG MB

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Hi gang. Yes, I feel like I have found a "special" place.  I moved from VA to TX 2 years ago leaving behind family and friends that had been thru it all with me.  That was quite a loss and have been depressed since. (though my husband and daughter are wonderful ) Thanks for all your responses.  I have laughed and cried. I am sure you understand what a.s.d. means to me already. I had my botox shots last Wednesday (300 units) and dr. started me on Klonopin (1 mg). Sure hoping this helps my spasms which for some reason have gotten worse lately. Thanks again.  Talk to yall soon.    Bonnie

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 <SNIP…   Ahhh, but Roger has already warned Slipper of the infamous Mary Beth–NO FAIR, Roger!!!  Now I cannot pounce and be taken seriously <<VBG C’mon now MB! That’s "I cannot pounce OR be taken seriously!"

OOPS!!  Grammar check failed me…what to do, what to do?? Now I tell you, has anyone in any of the countries to which our group us ever taken an MB pounce seriously. (Slipper, it’s those innocent approaches you will have to watch.

John you know me too well!  Now Slipper will just be a lil devil and the Den Mom will have to grin and bear it.  What trouble you do cause, Sir John!! Giving MB the Slip<per I remain, Your humble servant  John  :-)

No, no…I raised your rank above =8-} – Hide quoted text — Show quoted text –

Response:

  <SNIP…       Ahhh, but Roger has already warned Slipper of the infamous Mary Beth–NO FAIR, Roger!!!  Now I cannot pounce and be taken seriously <<VBG

C’mon now MB! That’s "I cannot pounce OR be taken seriously!" Now I tell you, has anyone in any of the countries to which our group us ever taken an MB pounce seriously. (Slipper, it’s those innocent approaches you will have to watch. Giving MB the Slip<per I remain, Your humble servant   John  :-)

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– Hide quoted text — Show quoted text – Believe us when we say we have "superior intelligence".  You know how many doctors it takes to diagnosis dystonia? Ten: One to explain that doctors are not magicians; One to say that you have fribromyalgia; One to say you have slight scoliosis; One to say you have a headache and some endurance problems; One to say you have TMJ One to say you have a Benign Essential Tremor and rigidity; One to say you are suffering from a psychogenic disorder aka depression; Two to hold the neurological textbooks at the public library open for you while you diagnosis yourself using American Online’s Medline; And one to follow your instructions when you decide which medications you need to take. SLIPPER I thought I had read this somewhere before,then I seen the name in the address. Glad you found us. Everyone meet slipper. We have become friends through e-mail recently. Slipper meet the gang, just watch out for that Mary Beth. Good to see you have joined our online family. Roger

I LOVE THIS GROUP!!!!!!!  With Roger’s ‘Stamp of Approval’, this new one ‘Slipper’ has an easy road <<giggle Of course the fact that what was posted is completely Wonderful has something to do with it!  Like Chana, I have also printed it out to disperse among friends & doctors. Ahhh, but Roger has already warned Slipper of the infamous Mary Beth–NO FAIR, Roger!!!  Now I cannot pounce and be taken seriously <<VBG Anyhow, welcome Slipper, be ye male, female, or…well, OK I’ll say it… Slipper kinda sounds like a pet’s name, as in ‘here Slipper, Slipper’ Sorry Roger, you always bring out my ‘best’ side!! MB

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- Hide quoted text — Show quoted text – Believe us when we say we have "superior intelligence".  You know how many doctors it takes to diagnosis dystonia? Ten: One to explain that doctors are not magicians; One to say that you have fribromyalgia; One to say you have slight scoliosis; One to say you have a headache and some endurance problems; One to say you have TMJ One to say you have a Benign Essential Tremor and rigidity; One to say you are suffering from a psychogenic disorder aka depression; Two to hold the neurological textbooks at the public library open for you while you diagnosis yourself using American Online’s Medline; And one to follow your instructions when you decide which medications you need to take.

I LOVE THIS!!!  There is someone else out there who is brilliant and funny just like the rest of us!  We ARE a smart bunch, no? Chana P.S.  I’m sending a copy of this to my neurologist and family friend and physician.  I know that, at least, the latter will ROFL… Mitzvah g’dolah l’hiyot b’simcha. "It is a great mitzvah to exist in a state of joy."

Response:

Believe us when we say we have "superior intelligence".  You know how many doctors it takes to diagnosis dystonia? Ten: One to explain that doctors are not magicians; One to say that you have fribromyalgia; One to say you have slight scoliosis; One to say you have a headache and some endurance problems; One to say you have TMJ One to say you have a Benign Essential Tremor and rigidity; One to say you are suffering from a psychogenic disorder aka depression; Two to hold the neurological textbooks at the public library open for you while you diagnosis yourself using American Online’s Medline; And one to follow your instructions when you decide which medications you need to take.

SLIPPER I thought I had read this somewhere before,then I seen the name in the address. Glad you found us. Everyone meet slipper. We have become friends through e-mail recently. Slipper meet the gang, just watch out for that Mary Beth. Good to see you have joined our online family. Roger

Response:

Believe us when we say we have "superior intelligence".  You know how many doctors it takes to diagnosis dystonia? Ten: One to explain that doctors are not magicians; One to say that you have fribromyalgia; One to say you have slight scoliosis; One to say you have a headache and some endurance problems; One to say you have TMJ One to say you have a Benign Essential Tremor and rigidity; One to say you are suffering from a psychogenic disorder aka depression; Two to hold the neurological textbooks at the public library open for you while you diagnosis yourself using American Online’s Medline; And one to follow your instructions when you decide which medications you need to take.

Response:

Hi! Bonnie I just read your post and I’m also excited about finding all this on my new computer.  I’m had Dystonia since I was a teenager and I am a NSTA support leader in Atlanta, Georgia.  I would love to correspond with you and maybe we could compare notes, this is a GREAT newsgroup and you will love it. Best wishes, Kathie

Response:

Welcome Bonnie! If you’ve got a sense of humor, you’ve found the right place!  As serious as we can be, most of us can find SOMEthing to laugh at! Have you thought of contacting your regional coordinator from the Dystonia Medical Research Foundation in starting a support group?=

  I’ve just come back from one of their conventions and we sure do have a lot to offer?  MB will pipe in with more information and h= I’m a bit older than yourself but just beginning my ‘relationship’ with the diagnosis of dystonia … even though I’ve had dystonia=

 since I can remember.  Personally, I think we were given ’superior intelligence’ to make up for our differences. <<grin Looking forward to hearing from you again. Chana Mitzvah g’dolah l’hiyot b’simcha. "It is a great mitzvah to exist in a state of joy."

Golly, I feel like I am being paged again!!  Yes, Chana, here I am at your service <<giggle Actually, Bonnie!  Chana has a wonderful point which I completely overlooked [I am really scattered presently].  There is a support group called the ‘Dallas-Fort Worth’ Support Group in Cedar Hill TX.  Leader is Patricia Foreman and her home # is 214 299-5715.  You might want to touch base with her OR the Regional Cordinator for that regon is Bill Rapp in New Orleans and Bill’s # is 504 254-2455.  Good Luck, Bonnie! MB

Response:

Welcome Bonnie! If you’ve got a sense of humor, you’ve found the right place!  As serious as we can be, most of us can find SOMEthing to laugh at! I’m a bit older than yourself but just beginning my ‘relationship’ with the diagnosis of dystonia … even though I’ve had dystonia since I can remember.  Personally, I think we were given ’superior intelligence’ to make up for our differences. <<grin Looking forward to hearing from you again. Chana Mitzvah g’dolah l’hiyot b’simcha. "It is a great mitzvah to exist in a state of joy."

Response:

My name is Bonnie and have had dystonia since I was 18 (now 41).  I receive Botox injections (ST) also have problems with left foot and writers cramp with scolosis and degenerative disc disease. Whew!!! But keeping a positive attitude and a sense of humor is the only way to deal with this.  So glad I got a computer in Dec.; never expected to find anything when I typed in dystonia for web search ;boy, was I suprised. This is great.  Well, I could write a book of my experiences over the years.  Just wanted to say hello and this has been a godsend.  I have never encounted anyone else with dystonia; have joined NSTA and talked with my doctor yesterday about starting a support group in my area (Ft. Worth, TX).  She has other patients she is contacting for me anf if they are interested will give them my #.  I sure hope this works out.  If I can help any one, please do not hesitiate to post or e-mail me. Thanks and remember you are not alone.      Bonnie

Welcome Bonnie!!  We are so glad you have found us and are willing to post!  Another Texan…hmmmm, we are blessed with Canadians and Texans, aren’t we? Good luck with the support group…if ya happen to speak with either Jan Richter or Patricia Murray, say hi from Mary Beth (MB). And please keep posting, your experience is invaluable! TTYS, MB

Response:

My name is Bonnie and have had dystonia since I was 18 (now 41).  I receive Botox injections (ST) also have problems with left foot and writers cramp with scolosis and degenerative disc disease. Whew!!! But keeping a positive attitude and a sense of humor is the only way to deal with this.  So glad I got a computer in Dec.; never expected to find anything when I typed in dystonia for web search ;boy, was I suprised. This is great.  Well, I could write a book of my experiences over the years.  Just wanted to say hello and this has been a godsend.  I have never encounted anyone else with dystonia; have joined NSTA and talked with my doctor yesterday about starting a support group in my area (Ft. Worth, TX).  She has other patients she is contacting for me anf if they are interested will give them my #.  I sure hope this works out.  If I can help any one, please do not hesitiate to post or e-mail me. Thanks and remember you are not alone.      Bonnie

Response:

This is so cool.  Here I am, aspiring to become a writer; I answer a newsgroup post and now I’m gonna be in print all over!!!  And more than anything, I’ll have the ultimate "last word" on a multitude of physicians via my pals, the dystoniacs. The name "Slipper" ain’t a pet name.  It is a version of an old family name handed down over the years to the "chosen" ones who exhibited certain qualities.  "Slipper" is a Hebrew term for, "She who is great".  My great, great grandmother, also a chosen one,  was 1/2 American Indian and was called "She who is great", but in indian it was pronounced, "Spaz-twista-shake".  That does not fit on contemporary birth certificates. Therefore it was shown in Hebrew, pronouced "Slipper". Yaw show some respect, okay!  Jeeeeeeeeeeeeeese!!!!!! -Slipper

Oh Great Slipper, I would like to respectfully welcome you to the alt.support.dystonia news group on the part of those of us living in the maritime provinces:-) I am sure our charming Mary Beth Chan will be officially welcoming you shortly. Gene

Response:

<<snip – Hide quoted text — Show quoted text -Oh me…It is the Chana & Slipper show!!  How fun!  And Chana, your post also appeared as one long line on my server…it is only when I do a ‘post reply’ that your post and Slipper’s take on ‘normal’ form!!  Wonder if it is moi or yoi…<<<VBG MB MB I have the same problem.  I always find this very baffling as most of the post I can read on my screen but there are one or two that seem to go past the right hand margin.  Mally made a suggestion of what I should do but I have never been able to get it to work. Glad to have the company. Faye

If you are using Free Agent, try this: Click Options, then Posting, then pick the "General." tab.  There is a choice for Line length.  Choose 70, then click OK. Other newsreaders should have similar options. Jeff Jeff H.

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I am curious about your post itself…it came onto my server as one long line and then a line that appeared to be typed and typed over-top-of many times.  This happened to Chana’s posts too, still is on my server at least.  AOL is having more trouble?  Or what? Ideas anybody? In any case, no matter how your posts ‘look’, I really enjoy having you with us! MB

MB, I just finished describing this problem to Chana… I guess if others are having it too, I should redo it publically. The problem lies within the AOL newsreader.  It appears to not know how to insert a carraige return to wrap a line, and so those posting from AOL are indeed writing one *very* long line instead of a paragraph.  Those who can read the messages fine are using newsreaders that are able to fake-out the problem and wrap the lines to fit that user’s screen.  This is why some people are able to read these posting no problem but others are having troubles and seeing only one line. We need those using AOL to manually insert carriage returns when they come to the end of a line on their screen (and continue their sentence on the next line).  They will need to do this for every line of text for their whole posting as the problem will occur any time they don’t hit that ol’ "return" key. Other than that, people having troubles can see about any "line wrap" options in their own software that they can turn on when they come across a one-line AOL posting, or other means of justifying the message so it is readable in a paragraph format (such as saving the message and opening it up in another program such as a word processor.) Cathy. —  (—-)                                                     (—-)   "  "         http://www.cuug.ab.ca:8001/~collisoc          "  "

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I have the same problem.  I always find this very baffling as most of the post I can read on my screen but there are one or two that seem to go past the right hand margin.  Mally made a suggestion of what I should do but I have never been able to get it to work. Glad to have the company. Faye

Someone mention my name?  Hi Faye!  <waving away at you Depending on what newsreader you’re using, search through your menu lists for "word wrap".  In Free Agent, if you click on that, it will stay "clicked" – a check mark will appear beside it.  Then any post that goes off the side of your screen will get "wrapped" automatically.  IOW, it will fit into the margins you have set in your default.  You may find that you will then half lines followed by "=" or some such weird little squiggles or symbols.  Just ignore those, they are the "line breaks" showing up as symbols.  Hokey? For those whose posts are too wide, check in your "Page Setup" for margins – usually found under "File".  Do this while you are in "Post" or "Reply" mode/screen. Mally  :)

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– Hide quoted text — Show quoted text – The name "Slipper" ain’t a pet name.  It is a version of an old family name handed down over the years to the "chosen" ones who exhibited certain qualities.  "Slipper" is a Hebrew term for, "She who is great".  My great, great grandmother, also a chosen one,  was 1/2 American Indian and was called "She who is great", but in indian it was pronounced, "Spaz-twista-shake". That does not fit on contemporary birth certificates. Therefore it was shown in Hebrew, pronouced "Slipper". Yaw show some respect, okay! Jeeeeeeeeeeeeeese!!!!!! -Slipper Thanks, Slipper.  I needed that …except it hurts to laugh!  You reminded me of a professor I had in grad school who had Parkinson= ’s. On those wonderful occassions when we would teach together, he would enter the room first with me trailing (and flailing). We wo= uld finally get to the front of the lecture hall and he’d introduce us.  "Hi. They call me ‘Old Shaky’ and this is my partner, ‘Spaz= ‘." Shalom, Chana Mitzvah g’dolah l’hiyot b’simcha. "It is a great mitzvah to exist in a state of joy." Oh me…It is the Chana & Slipper show!!  How fun!  And Chana, your post also appeared as one long line on my server…it is only when I do a ‘post reply’ that your post and Slipper’s take on ‘normal’ form!!  Wonder if it is moi or yoi…<<<VBG MB

MB I have the same problem.  I always find this very baffling as most of the post I can read on my screen but there are one or two that seem to go past the right hand margin.  Mally made a suggestion of what I should do but I have never been able to get it to work. Glad to have the company. Faye

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This is so cool.  Here I am, aspiring to become a writer; I answer a newsgroup post and now I’m gonna be in print all over!!!  And more than anything, I’ll have the ultimate "last word" on a multitude of physicians via my pals, the dystoniacs. The name "Slipper" ain’t a pet name.  It is a version of an old family name handed down over the years to the "chosen" ones who exhibited certain qualities.  "Slipper" is a Hebrew term for, "She who is great".  My great, great grandmother, also a chosen one,  was 1/2 American Indian and was called "She who is great", but in indian it was pronounced, "Spaz-twista-shake".  That does not fit on contemporary birth certificates. Therefore it was shown in Hebrew, pronouced "Slipper". Yaw show some res -Slipper

Spaz-twista-shake,hey that fits me oh she who is great. I thought that was a nick name you had,and here I thought I knew you. Well I’ll talh to you later. Roger

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Hi Bonnie- Greetings to you from Chicago!  Just a quick note to welcome you to the "family."  I wanted to ensure that you are also familiar with our organization, The Dystonia Medical Research Foundation.  We are the largest international organizations for dystonia-affected persons and their families (over 25,000 members!)  Our Foundation has a 3-fold mission:  to support dystonia-specific medical research (we have supported over $14 million to-date), to increase public and physician awareness of dystonia, and to sponsor educational and support programs for affected individuals and their families.  If you are not familiar with our gladly send them to you.  We also have a support group manual that may help you to get things started in Ft. Worth.   Take care, Jennifer Molski Dystonia Medical Research Foundation

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– Hide quoted text — Show quoted text – This is so cool.  Here I am, aspiring to become a writer; I answer a newsgroup post and now I’m gonna be in print all over!!!  And = more than anything, I’ll have the ultimate "last word" on a multitude of physicians via my pals, the dystoniacs. The name "Slipper" ain’t a pet name.  It is a version of an old family name handed down over the years to the "chosen" ones who exh= ibited certain qualities.  "Slipper" is a Hebrew term for, "She who is great".  My great, great grandmother, also a chosen one,  was= 1/2 American Indian and was called "She who is great", but in indian it was pronounced, "Spaz-twista-shake".  That does not fit on = contemporary birth certificates. Therefore it was shown in Hebrew, pronouced "Slipper". Yaw show some respect, okay!  Jeeeeeeeeeeeee= ese!!!!!! -Slipper Hi Slipper, So I am understanding that you are part Jew, part American Indian?  WOW!! What a wonderful combination I am curious about your post itself…it came onto my server as one long line and then a line that appeared to be typed and typed over-top-of many times.  This happened to Chana’s posts too, still is on my server at least.  AOL is having more trouble?  Or what? Ideas anybody? In any case, no matter how your posts ‘look’, I really enjoy having you with us! MB

Shoot!!  First it would not post and then it posted twice!!  Sorry! MB

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This is so cool.  Here I am, aspiring to become a writer; I answer a newsgroup post and now I’m gonna be in print all over!!!  And =

more than anything, I’ll have the ultimate "last word" on a multitude of physicians via my pals, the dystoniacs. The name "Slipper" ain’t a pet name.  It is a version of an old family name handed down over the years to the "chosen" ones who exh=

ibited certain qualities.  "Slipper" is a Hebrew term for, "She who is great".  My great, great grandmother, also a chosen one,  was=  1/2 American Indian and was called "She who is great", but in indian it was pronounced, "Spaz-twista-shake".  That does not fit on = contemporary birth certificates. Therefore it was shown in Hebrew, pronouced "Slipper". Yaw show some respect, okay!  Jeeeeeeeeeeeee= ese!!!!!! -Slipper

Hi Slipper, So I am understanding that you are part Jew, part American Indian?  WOW!! What a wonderful combination I am curious about your post itself…it came onto my server as one long line and then a line that appeared to be typed and typed over-top-of many times.  This happened to Chana’s posts too, still is on my server at least.  AOL is having more trouble?  Or what? Ideas anybody? In any case, no matter how your posts ‘look’, I really enjoy having you with us! MB

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